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        New Message Board Archives >> 2005 General Board Posts >> Pheochromocytoma
        
(Message started by: catlind on Oct 6^th, 2005, 3:03pm)

Title: Pheochromocytoma
Post by catlind on Oct 6^th, 2005, 3:03pm

Anyone who has any info on this particular condition I would appreciate you letting me know.

Thanks Cat

Title: Re: Pheochromocytoma
Post by Langa on Oct 6^th, 2005, 3:19pm

Catlind, i've sent you my phone number in case you want to talk further about this.

I know about this tumor firsthand. It's a genetic problem in my family. We get these tumors in our kidneys. It's a very deadly tumor in that the chemicals it produces can elevate your blood pressure so high and so fast, you'll go into cardiac arrest. Most people with these tumors go into surgery for removal of them as soon as they're found out. I had mine removed when I was 17.

Langa

A link I found that might be helpful.
http://www.endocrineweb.com/pheo.html

Title: Re: Pheochromocytoma
Post by catlind on Oct 6^th, 2005, 3:57pm

Thanks Langa, I had already used that website as well as the NIH one. If you don't mind, I will take you up on that offer of a phone number. I found out yesterday that's what's going on (or rather they are fairly certain but want to run a couple of other tests to confirm it).

Considering my already existing cardiac issues, and some that were rather severe (myocardial ischemic attack, atrial fibrillation and left atrial enlargement) she (my endocrinologist is a bit concerned).

Sorry I didn't want to go into the details of this on here, it's not for this board, I just wanted to find people who might know where I can turn to get support.

Thanks
Cat

Title: Re: Pheochromocytoma
Post by ClusterChuck on Oct 6^th, 2005, 4:08pm

on 10/06/05 at 15:57:24, catlind wrote:

I just wanted to find people who might know where I can turn to get support.

1 - You are a clusterhead.
2 - You are on the general board.
3 - You are family.

Those tickets let you post ANYthing! It is your right, seeing you hold the above tickets.

I am fairly certain anyone of us have a spare shoulder to cry on. An extra ear to listen to you. A warm body, just to be here for you.

We may know nothing about what you have, but we still care, and want to do whatever we can for you.

Use us.

Chuck

Title: Re: Pheochromocytoma
Post by unsolved1 on Oct 6^th, 2005, 4:16pm

Cat
Forgive me I Know nothing of your situation and only wish you the best:

Is it possible that the Pheochromocytoma is causing your severe headaches and you don't really have clusters ? Maybe a surgery can solve alot of your problems ? [smiley=huh.gif]

Best Wishes
UNsolved

Symtoms of Pheochromocytoma include:
Headaches (severe)
Excess sweating (generalized)
Racing heart (tachycardia and palpitations)
Anxiety / nervousness (feelings of impending death)
Nervous shaking (tremors)
Pain in the lower chest or upper abdomen
Nausea (with or without nausea)
Weight loss
Heat intolerance

Title: Re: Pheochromocytoma
Post by Grandma_Sweet_Boy on Oct 6^th, 2005, 4:17pm

Cat - What Chuck said!!!!

Title: Re: Pheochromocytoma
Post by catlind on Oct 6^th, 2005, 4:44pm

Here's the NIH site:

http://www.nlm.nih.gov/medlineplus/ency/article/000340.htm

Symptoms Return to top

* Severe headache
* Palpitations
* Rapid heart rate
* Sweating
* Flushing
* Chest pain
* Abdominal pain
* Nervousness
* Irritability
* Increased appetite
* Loss of weight

Of course I couldn't get the weight loss one!!! hehe

Michael, it's possible this will fix the headaches, but as of this point, neuro, neuro surgeon and endo all believe it won't likely make a difference.

I may contact Marcello Bigal or Dr. Tepper at NECH and ask them about it though.

Thanks for the thoughts, here's hoping I just screwed up another test and failed by default.

Cat

Title: Re: Pheochromocytoma
Post by Mark C on Oct 7^th, 2005, 11:36am

Hya Cat......a little more here (http://www.docguide.com/news/content.nsf/SearchResults?openform&Query=Pheochromocytoma&so=date&id=239FCA8DF4C3101685256C6D0019E3C3).

Title: Re: Pheochromocytoma
Post by Pinkfloyd on Oct 8^th, 2005, 4:22pm

on 10/06/05 at 16:44:27, catlind wrote:

* Palpitations
* Rapid heart rate
* Sweating
* Flushing
* Chest pain
* Abdominal pain
* Nervousness
* Irritability
* Increased appetite
* Loss of weight

Hell Cat, I got all these just looking at Friday's Pics for men.
The older we get the harder it becomes to spell our ailments!

Be well and call if you need anything.
Bobw