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Title: just found out 2 Post by Wim on Sep 26th, 2005, 8:28am hey everybody, thanx for al the support and tips! I'm glad I'm not the only one with CH (if you know what I mean). I had my first attack when I was about 18. My parents took me to an eye specialist 'cause I thaught it was my eye that caused the pain. He gave me some eye drops but - surprise - that didn't help. But 2 weeks later the pain was gone so I thaught it was over for good. The hole cluster period lasted about a month or so with 2 or 3 headaches a week. A year (or 2?) later it all came back and this time it got a bit worse. The pain got even more intens and came back every 2 a 3 days. Now I'm 30 years old and I had my CH aprox every 2 or 3 year. Each time a little worse, more intense, more frequently. Now I'm up to 1 or 2 a day. Some very bad, some less bad. Usually I know when they are coming 'cause my right eye starts to sting. So then I know that I must prepare myself. All in all an attack lasts about 45 minutes. First the sting in the corner of my eye (10 min), then I feel the pressure building up in my eye (5 min) and then the real pain begins with painflashes up to my brain,nose and teeth (20 min). With - off course - the nosedripping and eye leaking. Then little by little the pain faids away until only a little stinging in my eyes remains(10 min or more). When I have an attack I can't stand people around me. I have to be somewhere where it is nice and quiet. And no bright lights please. I only once got an attack at night (unlike most of you), most of the time I get them around 12 pm. Last month I went to see a doctor cause I finally wanted to know what was going on with me. She said it was CH although she wasn't sure. So she gave me Imitrex and send me to a specialist. He confirmed it. I still have to undergo some tests (scan, EEG) to be sure. In 2 weeks we have another meeting to talk about medication. So this is a bit of my history with CH. For me it's hard some times but when I read some of the messages on this board I know I can't complain. So good luck and much strenght to you all Wim |
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Title: Re: just found out 2 Post by vig on Sep 26th, 2005, 8:50am well that sux, but you're in good company, pull up a chair, and read, read, read... and laugh while you're at it. welcome |
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Title: Re: just found out 2 Post by BobG on Sep 26th, 2005, 8:55am Quote:
2 Weeks! Call them and tell them these headaches are also known as suicide headaches. See what they say. Quote:
Yes you can. You've earned the right. Go ahead, use it. |
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Title: Re: just found out 2 Post by ghost62 on Sep 26th, 2005, 9:31am Glad ya found us Wim. Hope we can be of some help, this is one of the best groups of people ever. hope we can help you too. |
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Title: Re: just found out 2 Post by sandie99 on Sep 26th, 2005, 11:19am Wim, complaining is the natural right one gets along with ch. ;;D And the greatest support group ever. So stick around here & enjoy. :) Sanna |
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Title: Re: just found out 2 Post by Ronny on Sep 26th, 2005, 11:41am Dag Wim, Ik zal dit maar in het engels doen. Did u get imitrex of a GP? My neuro told me only Neuro's can prescribe Imitrex (the injection type, anything else wont help). GP can prescribe the imitrex pills used for migraines (to slow for CH) or nasal spray's. U can also aks for Verapamil, if u dont have any heart diseases as a preventative, they are taken as long as the cycle lasts and a little longer to make sure its over, it works for me, not 100% but any help is welcome at the time, as you probably know :). Ronny |
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Title: Re: just found out 2 Post by Charlie on Sep 26th, 2005, 1:57pm Sorry you have to deal with this horror but thanks for the history. I always liked it cool and dark as well. You have every right to rant to your doctors. Beat the walls and scream. http://www.industreal.spb.ru/smiles/mad.gif?SSImageQuality=Full Let us know how you make out. Charlie |
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