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(Message started by: Carl_D on Sep 25th, 2005, 6:14am)

Title: In a nightmare I can't wake up from...
Post by Carl_D on Sep 25th, 2005, 6:14am
Because I am already awake. THAT is the nightmare!!!

If you want the downright honest truth as morbid as it may sound, it has been said that some folks know when their time is coming. My mother said she didn't think she would see another Christmas and within a couple of months it was so. Right now I feel like my mortality is slipping away faster and faster. I am completely physically, emotionally and mentally drained. I don't think I have ever felt this bad - not even during the worst CH hit. I don't expect anyone here to understand that either. I just know that regardless, what will be will be. I am spent and have made peace with God.  :'(

Now I am going back to bed to once again plead for sleep, whether it be one night, or eternal. If the latter comes soon, just know I love everyone of you guys and for anyone I have rubbed the wrong way here in any way, I wish you only an end to the pain, and happiness and love for the rest of your days and above all... Peace.

Carl


Title: Re: In a nightmare I can't wake up from...
Post by lionsound on Sep 25th, 2005, 6:47am
IN EMERGENCY CALL 1-800-SUICIDE (1-800-784-2433) National Hotline

Carl, you are not alone...come back here and talk to us. Call one of us....Call the number above and call your local 911 if you are feling that badly.

We are here for you and we care about what happens to you!!!

[smiley=hug.gif]
-Rori

Title: Re: In a nightmare I can't wake up from...
Post by Carl_D on Sep 25th, 2005, 7:27am
Sorry Rori. Not meaning to scare anyone, not suicidal - just not sleeping and it is getting the best of me... starting to believe that insomnia is going to kill me.

If I don't post here today it will be a good thing. It will mean I'm sleeping.

Carl

Title: Re: In a nightmare I can't wake up from...
Post by Kate in Oz on Sep 25th, 2005, 7:31am
Phew  :-[

Good to see you back online

Feeling for you... take it easy ok

Kate

Title: Re: In a nightmare I can't wake up from...
Post by AussieBrian on Sep 25th, 2005, 7:37am
Go to bed, sleep well and sweet dreams.  Give us a call tomorrow when you're feeling a little better.

Title: Re: In a nightmare I can't wake up from...
Post by Carl_D on Sep 25th, 2005, 7:38am
Will do Kate. If today is another one without any sleep I will be calling the sleep clinic to try and get in right away tomorrow and if not, to the ER. I always joke about sleep deprivation but it has lost its laughability with me. I just had a meltdown after some nice hallucinations this am and the longer I am awake the worse my body feels and the more my mind is playing tricks on me.

Peace,
Carl

Gonna try again Brian. I've been up and down all night again.

Title: Re: In a nightmare I can't wake up from...
Post by Kate in Oz on Sep 25th, 2005, 7:47am
Ohhh Carl,  I hope you get some zzzzzzzz's    awful too be so far away and hopeless - wish I had a magic wand  mmmm  :-/



IT'S CHARACTER BUILDING STUFF  [smiley=biggrin.gif]



mmm glad you've got a plan

see you in the soup  :P

Kate


Title: Re: In a nightmare I can't wake up from...
Post by AussieBrian on Sep 25th, 2005, 7:48am
You'll be right, mate.  A good sleep under your ear and you'll be feeling yourself again in no time.

Title: Re: In a nightmare I can't wake up from...
Post by Sean_C on Sep 25th, 2005, 8:25am
Hang tough cowboy, he'll give you a break soon, he'll burn himself out sooner or later.

Pf vibes comin your way.

Sean.....................

Title: Re: In a nightmare I can't wake up from...
Post by LadyElaine on Sep 25th, 2005, 9:23am
Carl I feel like that every time I have a cluster. I felt like that when I get real sick. Get it through your head. We are going to live to be a 100 and still bitching.  ;;D

I am 51 years old and I can't wait to hit 60 just so I can say I didn't die in my 50's  [smiley=laugh.gif]

Hope you got some sleep and feel better to day,

Title: Re: In a nightmare I can't wake up from...
Post by Kris_in_SJ on Sep 25th, 2005, 9:39am
Ditto.  Hang tough, Carl!

Kris

Title: Re: In a nightmare I can't wake up from...
Post by Jonny on Sep 25th, 2005, 10:06am

on 09/25/05 at 06:14:52, Carl_D wrote:
for anyone I have rubbed


Dons gonna like that talk, partner  :o

Title: Re: In a nightmare I can't wake up from...
Post by Sean_C on Sep 25th, 2005, 10:12am

on 09/25/05 at 10:06:42, Jonny wrote:
Dons gonna like that talk, partner  :o


ROTMFFLAMMFAO sometimes you fuckin kill me
[smiley=laugh.gif]

I needed that  ;;D

Title: Re: In a nightmare I can't wake up from...
Post by cootie on Sep 25th, 2005, 12:36pm
I hope ya get the rest and sleep ya need to regenerate a better attitude and feel better. But 'in my opinion' the heavy drugs can burn you out to where you don't know wether you are barely alive or slowly dieing. Did somea that stuff many years ago and seen alot of people freak out in time and change how they dealt with things. Just be careful and remember to carefully weed out the wierdness. I suppose when taken at a controled dose it'd be smoother landing......but how do ya do that and know for sure till they makea pill for it. (halucinagens) PF rest Pam

Just my views on it.......been there seen that for years is why and seen alot of people 'go down' cuz of it. Esp after takein it alot.

Title: Re: In a nightmare I can't wake up from...
Post by sandie99 on Sep 25th, 2005, 1:12pm
Carl,

[smiley=hug.gif]

I wish you sweet dreams! and soon.
Sleep tight, my clusterbrother. :)


Sanna :)


Title: Re: In a nightmare I can't wake up from...
Post by kimmeesue on Sep 25th, 2005, 1:14pm
Carl,
As a fellow insomniac I am on here most nights.  You can always PM me.  I know what you mean about the hallucinations....I have gone weeks on end with only a few hours sleep.  I have tried all of the sleep meds and they work for a short time if at all.  It makes for a miserable quality of life.  Fortunately I'm too tired to muster the energy to off myself.
But, seriously, if you need someone to not sleep with in the wee hours, I'll be here unless in the midst of a monster hit.
Take good care.
Kim

Title: Re: In a nightmare I can't wake up from...
Post by unsolved1 on Sep 25th, 2005, 2:18pm
Carl,

Hoping you get some much deserved sleep http://bestsmileys.com/sleeping/3.gif

UNsolved


Title: Re: In a nightmare I can't wake up from...
Post by Charlie on Sep 25th, 2005, 5:12pm

Quote:
I am 51 years old and I can't wait to hit 60 just so I can say I didn't die in my 50's


Elaine: Don't say that. It's right around the corner for me. As Garrison Keillor says: "There comes a day you realize that you're not pushing 50 but pulling it." http://www.kolobok.wrg.ru/smiles/light_skin/shok.gif?SSImageQuality=Full

Dunno what to say Carl but I think that every now and then your body just says no more and knocks your ass out for half a day. It's happened to me several times. I know I've read stuff like this here. http://www.kolobok.wrg.ru/smiles/standart/boredom.gif?SSImageQuality=Full

Be good to yourself Carl. Good luck if you go to the clinic,

Charlie

Title: Re: In a nightmare I can't wake up from...
Post by seasonalboomer on Sep 25th, 2005, 5:22pm
....and then just think in some parallel universe, there is someone that feels like they are in a nightmare where they just can't stay awake.... no matter what they do, they feel as though they are drifting off to sleep. and they're seeing hallucinations too.....

i really do have recurring nightmare that is like that, a flashback to a really bad trip I took when I was 17 and stayed up about 60 hours and all the shrubs on the side of the highway were little, hooded gnomes walking in front my car. i was actually swerving to avoid them -- to which my friends felt as though one of them should maybe start driving.

dude, i hope you get a few winks. no sleep isn't exactly the well spring of healthy "perspective".

scott

Title: Re: In a nightmare I can't wake up from...
Post by Jimi on Sep 25th, 2005, 5:31pm
  Well Carl we have not seen you for a few hours. I hope you are sleeping.

Title: Re: In a nightmare I can't wake up from...
Post by Jonny on Sep 25th, 2005, 5:36pm
Heres what you need Carl ;;D

Dr. Wright’s Circulatory Technique:

I am not sure what mechanism is triggered by this but whatever it is, at least indirectly helps kill the pain. I do know that this technique has nothing to do with meditation, relaxation, or psychic ability. It is entirely physical and takes some work. It involves concentrating on trying to redirect a little circulation to the arms, hands, or legs. It can described as a conscious circulatory flexing. Increased circulation will result in a reddening and warming of the hands. Try to think of it as filling your hands with redirected blood. The important and difficult part is that it has to be done without interruption through the pain. Do not give up in frustration. It may not work on the first try. Every now and then it will work almost immediately. I lived for those moments. Try experimenting between attacks. You will find that it gets easier with practice.

I was given less than five minutes instruction in the use of method. The doctor, while placing his arm on his desk, showed me that he could slightly increase his arm and hand circulation. After several attempts, I was able to repeat this procedure and use it successfully. I have had about a 75% success rate shortening these attacks. My 20 minute attacks were often reduced to 10 minutes or less. Once proven that I had a chance to effectively deal with this horror, I always gave it a try as I had nothing to lose but pain.

Perhaps it will help if you think of it as trying to fill the arm as if it is were an empty vessel. I used to try to imagine I was pushing blood away from my head into my arm. Use your imagination. There is one man who wrote that his standing barefoot on a concrete floor shortened his attacks. This may be similar as it draws some circulation away from the head. Cold water, exercise, or anything affecting circulation, seems to be worth a try. My suggestion is to not let up immediately when the pain goes. Waiting a minute is probably a good idea. So long as you do not slack off, this has a chance of working.

This technique is very useful while waiting for medication to take effect or when none is available. It costs nothing, is non-invasive, and can be used just about anywhere. It is not a miracle but it helped me deal with this horror. It can be a bit exhausting but the success rate was good enough for me and a cluster headache sufferer will do just about anything to end the pain. It gives us a fighting chance.

Title: Re: In a nightmare I can't wake up from...
Post by Carl_D on Sep 25th, 2005, 6:29pm
Thanks guys. I managed to get about 2 hours sleep before the beast did his usual "Oh no you di-'nt" and made me get back up. But hey, I got two hours! I guess that means I am good for another week.  ::)

I'll tell you what, I did some major 'tripping' as a teen and I swear some of the 'bad trips' I had don't compare to the effects of sleep deprivation. Being awake long periods of time never quite had the effect on me in the past as it does now. Then again, when I am taking all of my sleep meds every night and still don't sleep - it just messes with me bigtime and I feel like a zombie. They don't call that shit AmiTRIPtyline for nothing. Not to mention with the Fibro, my body just feels wrecked!

I'm with ya Elaine. I keep telling myself - if I make it to 40 I will be both shocked and happy. It's not an encouragement with my family history knowing that we don't tend to have long lifespans and I keep telling myself 'if I make it to 50 at least I beat my old man.' With all of the shit I have been through I just don't feel like I am long for this world but then again... I used to think I would die before all of my friends. Instead, I have buried more than I can count and once came to the conclusion that I will outlive everyone I know and just die of everything verrrrrrrrry slooooooooowly.

I've been putting off the sleep clinic now for months but it looks like I better get my slap-happy ass in there soon.

Oh, my sis in law thinks I am manic depressive and that when I don't sleep it is because I am in a 'manic' phase. I told her that if the truth be known, I'm not really manic, but the sleep deprivation can produce similar results.


Quote:
Dons gonna like that talk, partner  
LMAO!

Cootie, that is why I stopped doing acid and hallucinogens back in the day. I got some friends that burned themselves out so badly they are as hard to watch as a Tori Spelling movie.  [smiley=laugh.gif]


Quote:
It makes for a miserable quality of life.
Ain't that the truth.

Heres the method I used to get to sleep this morning:

Dr Jeepgun's Woodchipper Technique:

Imagine Bunnies, Beavers, Turtles and other assorted cute animals surrounded by rainbows and flowers. Next, imagine each animal jumping into the woodchipper one at a time. Then, focus on the sound that is made with each different animal. As the bunny hits... Rrrrrreeaaooummmmmph... the turtle.... crunnchheeeommmph...  ;;D

Peace,
Carl

*Note: No actual animals were harmed during this mornings hallucination. I support PETA: Pepper Enhances Tasty Animals.

Title: Re: In a nightmare I can't wake up from...
Post by Barry_T_Coles on Sep 25th, 2005, 6:47pm
Hey Carl if your last post was a smile  :) then it's good to see.

I got to where you are last time around total mental & physical wreck after 2 months living on perhaps 1 hours sleep a night, not nice shit.

For courage I looked at my family and this family that had just adopted me and said to myself I cant let these people down after all they have given me.

Fight the BASTARD we are all here for you.

Kind Regards
Barry

Title: Re: In a nightmare I can't wake up from...
Post by Carl_D on Sep 25th, 2005, 7:00pm
Barry, because of the folks on this site I have had the strength and courage to fight like I've never fought before. Most of my own flesh & blood could care less since it is not affecting them directly. I think the reason for that is obvious - the folks here KNOW unlike anyone else the torments CH can bring.

Peace,
Carl D

Title: Re: In a nightmare I can't wake up from...
Post by kimmeesue on Sep 25th, 2005, 11:26pm
[quote author=Carl_D link=board=general;num=1127646892;start=0#21 date=09/25/05 at 18:29:53]



Oh, my sis in law thinks I am manic depressive and that when I don't sleep it is because I am in a 'manic' phase. I told her that if the truth be known, I'm not really manic, but the sleep deprivation can produce similar results.

quote]
My first husband was bi-polar and that is nothing at all like sleep deprivation.  He would spend hours on end all night long calling long lost friends (back in the days of $1.00 a minute long distance)...he was wired, not a zombie.  I mean like the friggin energizer bunny.  What I would give for just a moment of that energy.

Title: Re: In a nightmare I can't wake up from...
Post by cootie on Sep 26th, 2005, 12:16am
Oh DUH......I'm sorry Carl.........I 'thought' you ment you were takeing halucinagens to ease the ch and was comeing off of that.........good grief..........I can be so stupid I even call myself names. Being a fellow insomniac I also get burnt out and read posts wrong. Sorry again about that. Awake while sleeping Pam  

Title: Re: In a nightmare I can't wake up from...
Post by Tim_Z on Sep 26th, 2005, 1:09am
Hang in there Carl.

Title: Re: In a nightmare I can't wake up from...
Post by Carl_D on Sep 26th, 2005, 1:52am
Kim, I've always been hyper and would go for periods of time without sleep, but every year it gets worse and I function on little sleep and will still be awake for days. Taking the sleep meds work for a period but then after that I start not sleeping and it just wears me out.

It's okay Cootie, I sometimes misinterpret I am so wiped out, but what is funny is I get very creative in times like these. Like Jeep said, writing is either feast or famine. I took my sleep meds tonight at 10pm and here it is almost 2am and I still can't sleep, and have too much walking to do to add to the exhaustion. I just kind of broke down yesterday morning and let it out here. Gonna try for more sleep in a few cause 2 hours in the past 3 days is not enough.

I ran into a friends ex wife tonight and she told me I should go to the neuro where she has been working the last couple of months. When she said the name I heard the Twilight Zone music. She is now working in my neuro's office at the neuroscience center at Wash. U. in St Louis. Eerie huh?

It was funny. She asked what I thought about him and I said "He is a very strange guy." She laughed and agreed. His face will just twist with an odd smile as he talks.

I started keeping a sleep journal today too, since I lose track of the time I have slept and been awake. Insomnia really does cause distortion of the space time continuum. Right now the beast is knocking at the back door of my eye so I may not get to sleep after all. Have already had a low level meegraine today after walking too much in the sun.  :-[

Done whining again for now,
Mackdoodle

Title: Re: In a nightmare I can't wake up from...
Post by kimmeesue on Sep 26th, 2005, 2:14am
Hey Carl,

I thought this WAS the twilight zone.  I, like you, took my sleep meds (Lunesta this go-round) and here I am.  I get up for an hour, lie down for an hour.  The only one more exhausted than me is my dog from following me from room to room
I have been to two neuros and a sleep disorder specialist.  I am supposed to be set up with a CPAP but it's 30 miles away and I'm afraid to drive when I've had no sleep.  Seems like an endless cycle.  No sleep......headache.no sleep............finally crash. Headache.  On and on ad nauseum.
Hope you get some relief soon.
Kim

Title: Re: In a nightmare I can't wake up from...
Post by Carl_D on Sep 26th, 2005, 3:25am

on 09/26/05 at 02:14:46, kimmeesue wrote:
Hey Carl,

I thought this WAS the twilight zone.  I, like you, took my sleep meds (Lunesta this go-round) and here I am.  I get up for an hour, lie down for an hour.  The only one more exhausted than me is my dog from following me from room to room
I have been to two neuros and a sleep disorder specialist.  I am supposed to be set up with a CPAP but it's 30 miles away and I'm afraid to drive when I've had no sleep.  Seems like an endless cycle.  No sleep......headache.no sleep............finally crash. Headache.  On and on ad nauseum.
Hope you get some relief soon.
Kim


Sounds like you know it all too well. Sucks to be us.

I can barely type. Thank God for Backspace button, LOL. I took 200mg of Amitriptyline, 60mg Remeron, 1mg Ativan, 500mg of Glucosamine and 10mg of Flexeril - and STILL can't get any shuteye. When night goes into day, I'll eventually get a second wind for the day but then the evening is hell and then I take meds, rinse, repeat, etc. When I did lay down, I wound up getting back up for the Trex and a short dance.

Hope your sleeping Kimmie,
Carl

Title: Re: In a nightmare I can't wake up from...
Post by rickyshot on Sep 26th, 2005, 7:33am
:'( :'(I hear you Carl. I am glad you are feeling "better". I find when I am in cycle I am suicidal I get crazy after weeks of pain and drugs. I just go off the drugs and ride the pain sometime because the drugs are just as bad as the CH and really make you sick and have other crazy effects. It is like a chemistry set going off in your body. I can't imagine it being good for you. It just drives me nuts. When not in cycle , I am this happy, energetic, balanced (well sort of) person. It is a wonder that they did not lock me up years ago. Ain't a butterfly net big enough to catch me lol.

Title: Re: In a nightmare I can't wake up from...
Post by Carl_D on Sep 26th, 2005, 6:18pm

on 09/26/05 at 07:33:02, rickyshot wrote:
:'( :'(I hear you Carl. I am glad you are feeling "better". I find when I am in cycle I am suicidal I get crazy after weeks of pain and drugs. I just go off the drugs and ride the pain sometime because the drugs are just as bad as the CH and really make you sick and have other crazy effects. It is like a chemistry set going off in your body. I can't imagine it being good for you. It just drives me nuts. When not in cycle , I am this happy, energetic, balanced (well sort of) person. It is a wonder that they did not lock me up years ago. Ain't a butterfly net big enough to catch me lol.


I was just like that when episodic until I got them under control. Once I went chronic, I am convinced the first 3 years I was a bit more than half insane from the rough transition and very little help with meds. Wasn't until Imitrex decided to work 2 years ago that I started catching a break (while letting the rest of the body fuckup). Still wonder if Ergotamine has played a part in the leg thing. I had to give up the Ergots at the risk of losing toes or fingers (seriously). Already have peripheral neuropathy on the last 2 fingers of my right hand. Pinky stays cold usually.

I figured it up and since last Monday I have had a total of 8 hours sleep. Most people can't function on less than 8 hours a NIGHT! LOL!

Peace,
Carl D

Title: Re: In a nightmare I can't wake up from...
Post by cootie on Sep 26th, 2005, 7:41pm
I've been somewhat of an insomniac since a 'kid'.......a doctor had me on 'sagenol' (spelling) many years ago when Angel was small and up all nite cuz she was half ass backwards which didn't help me. That shit was nasty and glad I got out of that era 'alive' ! Never took it every nite.....but got into it alot on weekends. I remember bounceing off walls in bathrooms and stuff fallin out of my purse all over the floor but was almost in a screw'd up dream state. Do they even script that stuff anymore......dangerous crap and ya'd be out of it the next day. I tried lunesta not long ago and it seem'd to take too long to work and if it doesn't work well I won't go to bed anyhow......when I did I felt sort of draggy the next day. I don't like that. Ambien still works after several years but it comes and goes......think it depends on the stress level and how burnt out ya get from it and not sleeping. Benydryl made me REAL drousey but ZOMBIE'd cuz I could not fall asleep. Looked like shit the next day and dark circles under my eyes and felt ODD. Oddity of naturals Pam

HOPE you guys got some sleep !? I had to go and watch 'born with two heads' on the TLC channel late and had nitemares all nite and was really wiped out today. About wrecked my truck into a bridge doin a loop dee loop in front of a semi cuz I got tired of traffic and waiting at this bad exit off the highway so I seen an opening and hit the gas to get onto the main drag.....tires spun out and sqeeled and smoked em and was all over that road. I hope to get some sleep tonight......gettin kind of toasty !!!! Not thinkin rite......and I am a supporter ??

Title: Re: In a nightmare I can't wake up from...
Post by Carl_D on Sep 26th, 2005, 7:58pm
You mean Seconal? That stuff will make you a total zombie like Klonipin. Kept my head foggy and I couldn't handle it.

I got nada sleep since the 2 hours yesterday morn, and starting to wonder if i will tonight.

Peace,
Carl D

Title: Re: In a nightmare I can't wake up from...
Post by cootie on Sep 26th, 2005, 10:31pm
Yeah I think that's it.......and think Johnny Winter wrote a song about it years ago. I've been hyper tired all day today.......ever get that way ? It's like yer hyper feeling but foggy.....and ya seem to be sleepy and even nod in and out if settin still but ya can't fall asleep and stay asleep. Ya hear a noise and yer all hyper again. Strange ways Pam


Title: Re: In a nightmare I can't wake up from...
Post by kimmeesue on Sep 26th, 2005, 10:32pm
Well, here I am....Lunesta, Paxil, Requip (for restless legs) Depakote, Melatonin...and wide awake.  Slept a few hours early morning.  
To think I once took illegal drugs to do what my body now wants to do on it's own.  Karma?
Seconal???Nasty stuff.  Knew a girl who OD'd on that in high school.
Here's to hoping we all ger some much needed rest and recuperation tonight.
Kim

My eye is starting to pulse and my nose run.  Not a good sign.

Title: Re: In a nightmare I can't wake up from...
Post by nani on Sep 26th, 2005, 10:34pm
Seconal was the barbituate of choice among my young downer head friends waaay back in the day. I tried it once and it sucked! I never could figure out why people would want to use it.  :-/

Title: Re: In a nightmare I can't wake up from...
Post by kimmeesue on Sep 26th, 2005, 10:38pm

on 09/26/05 at 22:31:14, cootie wrote:
. Ya hear a noise and yer all hyper again. Strange ways Pam

It's like having an anxiety attack.  Your heart starts racing, you get disoriented?  Oh, yeah.
Do you ever wonder if you have forgotten "how" to sleep?  My hubby lies down and bam he's out.  Why can't I do that?

Title: Re: In a nightmare I can't wake up from...
Post by cootie on Sep 26th, 2005, 11:00pm
Brad does that......walks in the door from work and hits the couch for his 'siesta' and snoreing in 5 minutes. He always tells me if I'd go to bed at a decent hour I'd fall asleep and do fine......try that when camping and everyone goes to bed early. Lay in a tent listening to everyone else snore and the sounds of distant trash cans being invaded by raccoons for hours starteing at the tent top or camper walls. What do you guys do to entertain yourselves waiting to feel like you can sleep ? Just don't nod off at your computer desk and the chair slip out and ya slam yer nose on the desk knockin yerself out further. Deviated septum and a few minor cracks later Pam

My doc said I did a GOOD job on it too........... :P  Course after I did that I couldn't fall asleep...........

Title: Re: In a nightmare I can't wake up from...
Post by kimmeesue on Sep 26th, 2005, 11:14pm

on 09/26/05 at 23:00:27, cootie wrote:
What do you guys do to entertain yourselves waiting to feel like you can sleep ? Just don't nod off at your computer desk and the chair slip out and ya slam yer nose on the desk knockin yerself out further. Deviated septum and a few minor cracks later Pam

.......

Well, I haven't dozed off anywhere.  I have tried to sleep different places, watched boring movies, read boring books....does a good job of boring me but that's about it.
Tonight I'm trying hot chocolate and toast...hubby swears by it.  If nothing else it will get rid of the awfuk taste from the Lunesta.

Title: Re: In a nightmare I can't wake up from...
Post by juvy on Sep 27th, 2005, 12:26am
Damn Carl, sorry to hear you can't sleep.  I suffer from insomnia that has nothing to do with the beast so occasionally i know what you're going through.  Literally, start climbing walls after awhile.  My problem is my mind will refuse to shut down for days until my entire body just collaspes.  Of course it's even worse when the Beast decides he wants to play as well.

I hope you've been able to get a little rest.  Keep us updated.  To relax those uptight muscles, try a little mint tea and your favorite CD.  For the Beast, sometimes with me the only cure is to pack my head in ice until the damn thing goes numb.

Wishing you PFDAN and lots of ZZZZZZZZZZZZ's

~Juvy

Title: Re: In a nightmare I can't wake up from...
Post by Jimmy B. on Sep 27th, 2005, 7:24am

on 09/26/05 at 03:25:10, Carl_D wrote:
I took 200mg of Amitriptyline, 60mg Remeron, 1mg Ativan, 500mg of Glucosamine and 10mg of Flexeril - and STILL can't get any shuteye.



Carl,

Just an FYI...Both Amitriptyline and Flexeril have insomnia and difficulty falling and maintaining sleep, listed as side effects.

Maybe you wanna check your meds with your Doc or pharmacist and see if this could be making it any worse.

It's worth looking into. Hoping you get some much needed rest.

Jimmy

Title: Re: In a nightmare I can't wake up from...
Post by Carl_D on Sep 27th, 2005, 7:30pm
In the past, the Amitriptyline has always helped me get back to sleep after waking up from a CH. The Flexeril, sometimes I wonder if that is doing anything at all. My sleep problems started when I was around 10 years old. Since going chronic though in '98, my insomnia has grown into a beast in its own right. Now I am 35 and feel 45. From what I have researched on insomnia and sleep deprivation effects on the body, it will make you age faster than someone who gets the bodys requirement of sleep and rejuvenation. Gonna talk to my doc about it monday.

I managed to get about 5 hours sleep last night, and then woke up feeling even worse than I did. I forced myself to do the shit I needed to today, which required a 7 1/2 mile walk. My right leg killing me the whole way. I already know I won't get any Zzzzz tonight because since the fibro & paralysis shit started, my brain will not shut off (as usual) and dare the brain shut down, the body pain wakes the brain right back up.

I am setting up an appointment with a sleep specialist over in St Louis, and go to see my GP on monday. Still in disarray from moving and can't find the slip with my neuro appt so I have to call over there tomorrow.

It sucks not having a car or phone, but both of those things will be solved soon. Phone in Nov. and buying my friend Michelle's car from her when she moves to Belgium in January.

I've always been a thinker. Sometimes my head hurts and I think I thunk too much - LOL!!! Brain never really shuts off and some of the vivid dreams I have are so bizzarre and real feeling... some dreams would make Stephen King's writings seem like Peter Fucking Pan!

I can also say some of the strangest things when first awakening, sometimes 'dream-talking' still. My old Bass player Doc woke me up one day and I blurted out "I didn't fucking kill her" and he about died laughing. Scared my ex roomie one night waking up talking in tongues or something (don't remember that one). But hey, makes for great writing ideas. I already have my next 3 books mapped out after I'm finished with this one.

Waxmen Watch,
MackeeDoodleDandy

Title: Re: In a nightmare I can't wake up from...
Post by Carl_D on Sep 28th, 2005, 7:05am
Ugh! I knew I wouldn't sleep last night. I did a 7 1/2 mile walk yesterday and the way my leg has been hurting, ready to cut the fucker off! Probably sleep better without it.  :-[

One odd thing: I got hit once last night before bed and stomped it with Trex. The one I got trying to lie down - brewed up to a kip 7-8, and then eased down after about 5 minutes - and I didn't take anything that time. I was just gonna ride that one out. I'm sure I'll pay double for it later. Another long day today I guess.

Did someone say ZOMBIE?
"They're coming to get you Barbara."

Dawn of the CHead,
Mackies



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