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Title: Any body want an OUCH T Shirt Post by don on Sep 6th, 2005, 8:51pm OUCH has chosen not to donate surplus OUCH T Shirts to Katrina victims. Without explanation. I have a drawer full of them but will not wear one again. Any body want an OUCH shirt? |
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Title: Re: Any body want an OUCH T Shirt Post by BarbaraD on Sep 7th, 2005, 6:28am I donated the ones in my closet to a shelter... |
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Title: Re: Any body want an OUCH T Shirt Post by sandie99 on Sep 7th, 2005, 6:47am Don, if you're not going to donate them directly presonally, I'd love to have one. :) Sanna |
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Title: Re: Any body want an OUCH T Shirt Post by don on Sep 7th, 2005, 6:56am PM me your address Sanna. |
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Title: Re: Any body want an OUCH T Shirt Post by jcmquix on Sep 7th, 2005, 7:44am on 09/06/05 at 20:51:29, don wrote:
Don.. as I think you know where are taking supplies to the Victims of the Hurricane and hopefully bringing some back to Florida. If you want to send them to Me, I will donate them for You, myself... Let me know I'll PM you my address !!! Just an Idea... Thanks Charlie |
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Title: Re: Any body want an OUCH T Shirt Post by don on Sep 7th, 2005, 7:47am Thanks Charlie but I'm only talking about a dozen or so. I'd prefer to offer them to CHers first. I am also involved in a relief effort up here. May see you down there somewhere. In fact if I end up heading South I will contact you. |
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Title: Re: Any body want an OUCH T Shirt Post by jcmquix on Sep 7th, 2005, 8:23am Thats cool I understand.. I perfer it too... Well I am still in Florida, the wife and group are now in Alabama, they are having Breakfast right now, and then they are going to meet up with some of the Guard in MS, so they can go to Picayune, Ms.. near the coast... from what I hear, people are using their homes for shelters and are in bad need of supplies... My wife Sassy_Lady (Jolene) is suppose to call me later in the day, so I know whats going on, and we are still collecting donations for a return trip next week... God Bless Charlie |
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Title: Re: Any body want an OUCH T Shirt Post by don on Sep 7th, 2005, 8:27am Its the grass roots efforts that will eventually get this done. |
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Title: Re: Any body want an OUCH T Shirt Post by gore2424 on Sep 7th, 2005, 8:28am hello Don I would like to have an OUCH tee-shirt would even pay for the shipping and or cost of shirt too and you could do whatever you like with the $. Terry if possible could you please let me know one way or the other thank you and pfdan' s to all Terry |
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Title: Re: Any body want an OUCH T Shirt Post by don on Sep 7th, 2005, 8:30am PM me your address Terry. I'll keep one to remind of what OUCH could still be. Lots of people want shirts but I see no member input on the OUCH site. Strange. Terry, S/H is $137.15. Paypal is good. 8) I'm off to the airport. Will send them out to you guys next week. |
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Title: Re: Any body want an OUCH T Shirt Post by gore2424 on Sep 7th, 2005, 9:00am Dear Don I am sorry but I will have to pass now on the tee-shirt. Thank you for offereing me one but I am afraid that I cannot afford one at this time. When I reread your post I noticed you seam upset everything ok ?¿?. Terry |
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Title: Re: Any body want an OUCH T Shirt Post by vig on Sep 7th, 2005, 10:58am on 09/07/05 at 09:00:17, gore2424 wrote:
looks to me like he's upset about: "OUCH has chosen not to donate surplus OUCH T Shirts to Katrina victims. Without explanation." and this is his protest.... I think he was kidding about the $137.... I hope. ;;D |
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Title: Re: Any body want an OUCH T Shirt Post by Roxy on Sep 7th, 2005, 11:01am I am heading to Hammond, LA day after tomorrow. There won't be time to send anything here for me to take, but I can let ya'll have my address when I get down there. If anyone wants to send anything to the shelters in Baton Rouge, our guys are having to drive there everyday. Why on earth will OUCH not donate? |
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Title: Re: Any body want an OUCH T Shirt Post by Bethany1 on Sep 7th, 2005, 1:48pm on 09/06/05 at 20:51:29, don wrote:
I'm not sure why they wouldn't donate them. Chris donated Alpine Landscape T-shirts. Its not like he is going to get any business from it. |
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Title: Re: Any body want an OUCH T Shirt Post by Sean_C on Sep 7th, 2005, 7:58pm on 09/07/05 at 09:00:17, gore2424 wrote:
ROTFLMMFAO |
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Title: Re: Any body want an OUCH T Shirt Post by TxBasslady on Sep 8th, 2005, 3:27am Terry, You still live on N Ripley???? I have a T-shirt ordered from the OUCH store....it'll be in the mail to ya, sweetie. See you in January!! Jean |
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Title: Re: Any body want an OUCH T Shirt Post by marty on Sep 8th, 2005, 4:46am Hi Y'all There has been a lot of discussion about OUCH and the leadership of OUCH. This is a discussion that is sad to the core. I must admitt that I have not been very active on the OUCH board and usually I don't even check it like I should. I did check it this morning after reading Don's post. Don may be a "pain in the butt" for the OUCH leadership but I don't think that he does it for the heck of it - he really cares what OUCH is doing and where OUCH is going. It seems to me that the two persons that OUCH should see as a resource (BobP and Don) are being ignored and treated wrong by the OUCH leadership. I do not really know what OUCH is doing. I am sure that they have posted what they are doing somewhere and that I am supposed to read it (but I have not). When a small organization like OUCH have decided that only elected "spokespersons" can answer simple questions from the membership, I get a bad feeling about it. Generally, a spokesperson is choosen to speak for someone or something when there is a risk of "others" (not choosen), to say to much or give the wrong information. This leads me to wonder; is there something that we don't know that we should know or that may upset us if we did know..? When is the next election? My vote is for Don and BobP to get back into OUCH - They may not want to but they sure as hell care about OUCH and are not afraid of the membership asking "hard" questions. So, why did I not post this in the OUCH board? Because I do not think that many CH'rs go there and in order to find out what the general membership think about spokespersons etc, this is the best place to post. With risk of being treated like Don (i don't mind - I'll be in good company) Marty |
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Title: Re: Any body want an OUCH T Shirt Post by LadyElaine on Sep 8th, 2005, 7:36am LMAO Terry you are going to gets lots of T-Shirts I sent one too ! |
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Title: Re: Any body want an OUCH T Shirt Post by Melissa on Sep 8th, 2005, 8:10am on 09/08/05 at 04:46:09, marty wrote:
;;D Don, I know you quit OUCH, but would you consider this? I know BobP has been asked many times to seek rejoining the effort, but he has said he is tired (I think), so I dunno about him. Also, as long as we're talking about people getting back into working for OUCH, how about Barb D. and Donna H. who also quit? Barb D. was great as a Treasurer and Donna H. had a lot of compassion and knowledge about Roberts Rules (which to this day, I still don't understand, LOL). What say you guys [smiley=huh.gif]. I mean all of you recently have given tons of input to the current OUCH administration, so maybe I'd be a good idea to just put your hat in the ring one more time? Just a suggestion... :)mel |
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Title: Re: Any body want an OUCH T Shirt Post by Melissa on Sep 8th, 2005, 10:19am BTW, my post is pertaining to upcoming elections. mel |
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Title: Re: Any body want an OUCH T Shirt Post by Bob P on Sep 8th, 2005, 6:30pm Mixed feelings here Mel. Linda has hinted at her thinking she has served her time as Director of CalOUCH and it's time for someone else to step up. Since I want to stay involved with them I will throw my hat in their ring if nobody else does. Then I wonder if it would be benificial for the Chapter Director to also be on the OUCH BoD? Good representation for the Chapter. Only problem is if I were on the BoD, my main focus would be on keeping the members as informed as I could regarding what is going on in those private message boards and chat rooms. I'm not sure that would be too well recieved. Then how would it look for the Chapter Director to be kicked off the BoD? Think I'll stick with CalOUCH. |
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Title: Re: Any body want an OUCH T Shirt Post by Jonny on Sep 8th, 2005, 6:43pm on 09/08/05 at 18:30:24, Bob P wrote:
-Note to self, call printer!- There goes my "Vote for Boob" stickers ;;D You where an awesome Prez, Bob.....info always there, explinations always there! Retire, grow your hair and ride, Bro (you told me that years six years ago) |
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Title: Re: Any body want an OUCH T Shirt Post by Melissa on Sep 8th, 2005, 7:52pm on 09/08/05 at 18:30:24, Bob P wrote:
I dunno, but it sure sounds like fun to me! ;;D Ahem...uh....cuz, like, you know, I get off on that sort of thing... [smiley=bigguns.gif] :-* |
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Title: Re: Any body want an OUCH T Shirt Post by minnie on Sep 8th, 2005, 8:16pm Copy and pasted from the ouch board.With a big Thank you going out to from me person donating the shirts and all those here asking ouch to get involved.the members of ouch really do have big hearts. MInnie purpleydog O.U.C.H. Officer O.U.C.H. Member Gender: Posts: 437 Re: How OUCH can help the Hurricaine Victims « Reply #13 on: Today at 11:16am » Quote Modify -------------------------------------------------------------------------------- OUCH has had an offer, long before this thread was started, to purchase shirts, and send them to help with the hurricane relief effort. Now that the details have been worked out to the donator's satisfaction, this has been done. They have been shipped to a contact in the State of Louisiana to take to a couple of shelters that can use them. Just passing along a little info here. The Red Cross and the Salvation Army do not accept in kind donations. That means clothing, food, furniture, etc... If you would like to donate money to these organizations, here are the links: https://give.redcross.org/ https://secure1.salvationarmy.org/ These are good organizations with a proven track record of helping people get back on their feet, especially in disasters such as this. I realize there are myriad other organizations out there, but in the interest of getting these out as soon as possible, this is the way the person who donated the shirts has chosen to handle it. Chris ---------------------------------------------------------------- Hope this is ok to post here I thought people might wanna know what's going on but I also encourage them to keep an eye on the ouch board and vote in the upcoming elections. |
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Title: Re: Any body want an OUCH T Shirt Post by forgetfulnot on Sep 8th, 2005, 11:54pm No, they don''t have pockets. ;;D Lee |
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Title: Re: Any body want an OUCH T Shirt Post by tommyD on Sep 9th, 2005, 6:23am We Americans are generous to a fault. Please make sure your good intentions don't cause more problems than they solve. Somewhere yesterday I heard a call go out to NOT send any more clothing to the disaster areas. (sorry gotta get to work, no time to look it up). Flooding distribution centers and shelters with things they don't need wastes thier time and space, and those OUCH T-shirts don wanted to send might well end up being dumped, just to get them out of the way. Check around - web sites are springing up everywhere - and find a specific need to fill. For example: Some of those docs we bitch about all the time have set up impromtu clinics, but they desparately need supplies and pharmaceuticals. But find out specifically what they need and send only what they ask for. The same goes for other aspects of the recovery. In my hometown we got a call for games, puzzles, books, etc. Apparently there are a lot of really bored and anxious kids in shelters across the South, and they are driving everyone CRAZY. So my daughter's Harry Potter books are on the way to N'awlins. Just so you know, I'm proud of our good intentions, and don saw a good opportunity. But we must be careful to avoid that old evil bugaboo: the Law of Unintended Consequences. Send cash to the Salvation Army (personally, I think they are more effective than the Red Cross, YMMV), check with your local United Way (ours is organizing in-kind donations). Gotta go. -tommyD |
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Title: Re: Any body want an OUCH T Shirt Post by Bethany1 on Sep 9th, 2005, 6:33am Nice Tommy & Chris.. ;;D My friend was on the local news last night, he works for FEMA and was down in Mississippi. He brought home 2 doggies that were stranded. |
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Title: Re: Any body want an OUCH T Shirt Post by jcmquix on Sep 9th, 2005, 9:46am Hi All... I just want to add something to think about: Quote:
Tommy D.. Please do not take this the wrong way, but that is the message that alot of the well known shelters are stating.... A Team from our Church are on there way back from some places in Miss, they still have not recieved any Aid or Supplies. They need anything that people will donate, these people lost everything, the storm surge came in a washed eveything away... Its cool that people can donate CASH, that is truely what is needed, but please do not be discouraged about donating time or any supplies...anything that you feel may be needed... I agree with Tommy D 100%... Take any items to the Salvation Army or United Way.. the Red Cross will not take items like clothes Etc.. Thanks to all for Supporting & Praying for the Victims.. God Bless Everyone Charlie |
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Title: Re: Any body want an OUCH T Shirt Post by gore2424 on Sep 9th, 2005, 5:36pm well thank you Eliane and Jean and yes I am still at N. Ripley t/y for thinking of me and sending me tee-shirts I will maybe give one to wifey maybe and will pay you two back ( with cash,cookies,or sex) hehehehe just kindin well if you want me to kid hehehehe when I hopefully see you in DavCon06 as for the ouch board section here i promise to start looking at posts daily thank you gals Terry |
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Title: Re: Any body want an OUCH T Shirt Post by Jonny on Sep 9th, 2005, 6:34pm on 09/09/05 at 17:36:07, gore2424 wrote:
Holy shit.......ROTFFLMMFAO!....Too funny ;;D |
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Title: Re: Any body want an OUCH T Shirt Post by BobG on Sep 9th, 2005, 7:44pm on 09/09/05 at 06:23:41, tommyD wrote:
Yep. Got that same word here. I got a call this morning from a good friend wanting to use my pickup to get some things at Costco and Sam’s Club. This friend is working with a volunteer group getting ready to move some much needed supplies to the Gulf Coast area. I picked him up and off we went to Costco. He (or they) had already made arrangements for a special price since it was going to the relief effort. You all know how Costco has pallets of goods stacked everywhere. Guess what we picked up? 3 pallets of Kotex and Tampax. Don’t laugh. It was hard enough for me to keep a straight face when the other shoppers were wondering what 2 men needed with about 50,000 sanitary pads. It didn’t end there. We dropped off the pallets of pads and went to Sam’s Club. There we loaded up on every women’s and girl’s panties in the store. Just panties, nothing else. Hundreds and hundreds of them. "Hey honey, can you go to the drug store for me? I need Midol. Get about 10,000 bottles, OK?" A man’s work is never done! |
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Title: Re: Any body want an OUCH T Shirt Post by Melissa on Sep 9th, 2005, 8:37pm OMG Bob, your friend is gonna be a HERO in thousands of womens eyes!!!! :D That is so cool!! [smiley=thumb.gif] :-* :)mel |
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Title: Re: Any body want an OUCH T Shirt Post by BobG on Sep 10th, 2005, 7:53pm on 09/09/05 at 20:37:37, Melissa wrote:
I got off work at midnight last night. Guess what? My buddy called at 6am! "Didn't get ya up did I?" He wanted my truck again. You know those little tiny bars of soap you get in hotels? Did you know they come in huge 4' x 4' x 4' cardboard boxes? About 2000 bars in each box. Did you know that the face cloths come in the same size boxes? About 500 cloths in each box. I didn't either until we got to loading dock at the MGM Hotel. They (the forklift guy) loaded a box of soap and a box of cloths into my little truck. Really made that sucker squat. Steered real easy! Then they loaded the same thing into my son-in-laws truck. In about 5 days there will be some southern folk with clean faces. Then I called don. He said he'd be downtown at the poker tables. No answer. Maybe he was enjoying a tiny bar of soap in his room. |
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Title: Re: Any body want an OUCH T Shirt Post by sassy_lady on Sep 10th, 2005, 9:36pm Since I was there, I will say that they DO NOT want clothes, clothes are bring shipped in by the tons, they need baby stuff of all kinds, wipes, wipes, wipes, wipes, water, water, water, water, & food, food, food, food !!! bug spray, tents, any kind of camping stuff!! battiers, flash lights!! Meds, cold meds, cough meds, asprin, ointment, bandaids, & things of the nature!! dog food, cat food, flea & tick spray!! battiery radios, gas cards, coolers, & ice |
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Title: Re: Any body want an OUCH T Shirt Post by BobG on Sep 10th, 2005, 10:19pm on 09/10/05 at 21:36:03, sassy_lady wrote:
Absolutely what sassy_lady said. If you are helping to collect donations first set a target. Babies, calling cards, first aid items……..whatever. But stick to just that. What do babies really need at this time? What first aid items are really needed at this time? Whatever you collect, think it through and ask “Is this really needed at this time or just taking up space in the truck?” The group I spoke about above was collecting hygiene items only. Shampoo, tooth paste/brushes, deodorant, etc. They stuck to their plan for only these items. They were not collecting garage sale junk. |
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Title: Re: Any body want an OUCH T Shirt Post by sassy_lady on Sep 10th, 2005, 10:24pm on 09/10/05 at 22:19:12, BobG wrote:
Thanks missed that stuff, also needed badly, PFDAN to all !! Lots of Prayers & Love Jolene |
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Title: Re: Any body want an OUCH T Shirt Post by don on Sep 10th, 2005, 10:44pm Quote:
So if I'm reading this correctly, OUCH sold a bunch of T-shirts for someone else to donate? Isn't that special. Nice spin. |
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Title: Re: Any body want an OUCH T Shirt Post by BarbaraD on Sep 11th, 2005, 9:27am Yep Don, OUCH had to SAVE its money for software that they're never going to use for the BIG things that are coming... |
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Title: Re: Any body want an OUCH T Shirt Post by don on Sep 11th, 2005, 10:02am Quote:
Who doesn't listen and if they do you get a vague response. Apparantly there is some type of gag order in effect. Members have been excluded from the process and are ill informed if there even is a process. I can not work with that style of administration. Will it change? Check the nomination page on the OUCH site. Doesn't look like it. For some unfathomable reason OUCH has decided not to post on CH.com so here is the link. http://www.clusterheadaches.org/members/elect/nominees.htm |
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Title: Re: Any body want an OUCH T Shirt Post by Melissa on Sep 11th, 2005, 11:46am omg, i am seething right now. i just wrote out a nice, tactful long reply to you Don, but my puter went stupid on me and it erased all of it!! >:( Anyway.... Basically, what I was trying to write to you, is that with an org. a TINY as OUCH, it is just not possible to create the "news" for you, and others, every week, let alone divide the administrations time of answering your every question within 24 hours. Don, why do you post a diatribe when your questions arn't answered within that time period? I also want to know why you feel the need to be so involved as a member now, when you quit being President before? Why did you quit? What were the reasons? I've always wanted to ask you that, because I never understood just what went on, even though I was VP at the time. And YES, I will admit I did not do my job when I was VP. I was caught up in my own life with being sick while I was pregnant with my son and wasn't around. But I would still like to know what happened. I don't understand your persistance to try and make OUCH a useless org. Don. Nor do I understand Barb D's intentions either. I would be very happy to have an explanation, so I can really understand what it is you have against the people who are volunteering their time for OUCH right now. BTW, I would get back in to helping OUCH, but don't know if I should, especially if I have to put up with constantly being chastised (yes, that is how it's viewed when you're on the "other side" ) for everything, or nothing, being done. And when people tell me it's not directed at me personally, you bet I'll take it personally, because when you attack OUCH, you attack each of us(them) who are working for it. Did you know that when members post over and over again at their dissatisfaction (and I'm talking about a handful of the same members), it can cause a dividing effect among the administration? It causes frustration, a feeling of inadequecy and a general loss of hope or passion to help others with CH. Makes you feel like, "If this is how I'm being treated by a fellow sufferer, when all I'm trying to do is HELP them, then why the heck should I even bother?" That's how it feels. OUCH IS a good org.! There are no vendettas, just people who have clusters trying to do something positive and beneficial for other cluster sufferers. I honestly would love to see it succeed, but when you look at us, yes, all of us who have clusters, do you really think we should be the ones running our own org. and actually taking it to that next higher level? I mean come on, our emotions run high, we deal with crap on a daily basis, yes we are the most giving people I know, but cripes, you can tell how negative (as well as positive) we can be just by looking at the posts HERE. Anyway, go ahead and pick me apart, but I don't care. I have said what has been on my mind for a couple years now. I am glad to have said it and get it off my chest. butterflies in stomach for going to hit "post" button, mel and P.S. I KNOW the questions that are asked on OUCH are valid, don't get me wrong, it's just the way they're presented that makes me wince. |
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Title: Re: Any body want an OUCH T Shirt Post by Melissa on Sep 11th, 2005, 12:11pm Since I'm sitting her in tears, I may as well keep going... I usually don't post on the fly, but since this past week has been hellacious, I figure WTF... When I worked for OUCH, I witnessed, and experienced, a lot of craziness. It was very emotionally draining on me, to make a simple post, that hundreds of people might read, tactful, impersonal, professional and informative. That is NOT an easy feat, especially with clusterheads! Right now, my heart is just breaking. OUCH could be so wonderful, but it is just going around in circles. It's not because people are not dedicated, or passionate, or smart, or business oriented, but it's because it lacks the structure. Basic building blocks. Most times, lots of different tasks, are being taken on by very few people and the tasks are not spread out evenly like the should be to keep things smoothly running. Initiative is always there, but one person does not build an entire empire. Anyway, I have thought up and down, sideways, back and forth to figure out a way for OUCH to gain the status it needs. And I'm clueless, as is everyone else. Its kinda funny, so many think they have all the answers, yet no one has the answers. |
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Title: Re: Any body want an OUCH T Shirt Post by nani on Sep 11th, 2005, 12:15pm Thank you, mel. [smiley=hug.gif] |
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Title: Re: Any body want an OUCH T Shirt Post by LeLimey on Sep 11th, 2005, 12:31pm I'll second that Nani, thank you Mel :-* |
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Title: Re: Any body want an OUCH T Shirt Post by vig on Sep 11th, 2005, 12:47pm IMHO OuCH is a non-profit collecting money for a good cause: Cluster HeadaCHes. It shouldn't be an entity DONATING anything anyway. Individuals here can and should, but the funds earned for OuCH shouldn't be passed to another charity. |
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Title: Re: Any body want an OUCH T Shirt Post by Jonny on Sep 11th, 2005, 1:12pm Don along with George Bush started global warming.....lets get'em ;;D |
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Title: Re: Any body want an OUCH T Shirt Post by vig on Sep 11th, 2005, 1:18pm on 09/11/05 at 13:12:04, Jonny wrote:
bush didn't start global warming, he just ignored it until it was too late... ... and then he changed his mind: http://www.washingtonpost.com/wp-dyn/articles/A37232-2004Aug26.html |
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Title: Re: Any body want an OUCH T Shirt Post by Jonny on Sep 11th, 2005, 1:21pm on 09/11/05 at 13:18:55, vig wrote:
Ala John Kerry? ;;D |
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Title: Re: Any body want an OUCH T Shirt Post by don on Sep 11th, 2005, 1:37pm Quote:
Because I consistantly see OUCH officials logged in. Why not answer simple questions? Quote:
Quote:
Thats one reason. Accepting positions then not fullfilling the responsibilities of that position. If you dont haqve the time or situations change then step down so someone can fullfill the resposibilities. Quote:
I'm starting to think not. It may be time to bring in an outside consultant. Quote:
The last line is your response Mel. Now you post this.......... Quote:
? ? ? ? ? ? Quote:
Not everyone is clueless. Lots of people can read the clues. Its using those clues that people have a problem with. Quote:
Wrong. The blocks are there and plenty of precedant for success or failure. Quote:
That may or may not be true. I wouldn't know because OUCH never explained the decision. Could be a perfectly valid reason but I wouldn't know that. |
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Title: Re: Any body want an OUCH T Shirt Post by BarbaraD on Sep 11th, 2005, 1:37pm You know Mel, when OUCH started, it was INTENDED and started as a MEMBER organzation was was RUN that way up until 2004 when it started to become a "secret" society and members started being excluded from the "higher" powers that "ruled". Since Don resigned, what has been done? A lot of money spent - on what? No answers to that questions to MEMBERS. Is that really too much to ask from those who donated that money? THe powers say they're in compliance, but my thinking is - the jury is still out on that one (I'll let you know in a couple of weeks). They now have a corporate book - big deal - a 3 ring binder holding the bylaws and minutes and treasurer's reports should have been there all along - thus a "corporate book". A seal - and how many times is that going to be used? Bylaws that aren't much better than we had a couple of years ago? Now you tell me just what this dedicated BOD has accomplished because I haven't had questions answered that I THOUGHT were important. Sorry I have no tact at all, but I have Cluster Headaches. When OUCH was formed the light at the end of the tunnel was to find a cause and cure for the darn things -- now it looks like all OUCH is doing is arguing over political correctness. At least when we started OUCH, we did everything out in the open and actually got things done and everyone knew what was going on. There's a lot to be said about the "good old days". BD |
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Title: Re: Any body want an OUCH T Shirt Post by BarbaraD on Sep 11th, 2005, 1:43pm And another thing - while I'm on a roll - until some of you posting here running down those of US who ARE asking questions of the present regime in "power" - until you've put in the hours that some of US have for OUCH, maybe you should be careful about thowing stones. You don't even want to know the HOURS put in by Bob P, Don, DJ, Drummer, Kip, Margi, or myself for that matter. (5 hours a week - give me a break!) Does that give US a right to ask questions - I would THINK it does. |
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Title: Re: Any body want an OUCH T Shirt Post by don on Sep 11th, 2005, 1:46pm Quote:
It took me that many hours per week to sort through member input. Back when members HAD input. Come right down to it thats my only beef with the BoD. I think the current BoD can take OUCH to the next level. They have to run OUCH because the officers aren't doing it. My beef is the lack of communication with members. |
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Title: Re: Any body want an OUCH T Shirt Post by Jimi on Sep 11th, 2005, 3:13pm Bullshit.....when they do give you answers it either wasn't fast enough or you want to argue about it. Myself and many other members I know are tired of reading this crap. Either shit or get off the pot. If you are so interested then run for office. And you never did answer Mel's question. Thanks Mel. You said what most everyone else has been thinking. |
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Title: Re: Any body want an OUCH T Shirt Post by don on Sep 11th, 2005, 3:27pm Quote:
Ussually. Because its a bull shit answer. Quote:
Then all those anonymous members should go to the OUCH site and speak up. Quote:
Thinking but not saying dont cut it. Go to the OUCH site and speak up. Quote:
I did my service. Your name in the hat yet? If you have the qualifications and the desire to serve in a position PM me and I will nominate you. |
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Title: Re: Any body want an OUCH T Shirt Post by Jimi on Sep 11th, 2005, 3:57pm As for your 3rd quote of why I have not served. I answered it on the OUCH board where it needs to be anyway. And I was as honest about it as I could be. |
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Title: Re: Any body want an OUCH T Shirt Post by don on Sep 11th, 2005, 4:02pm And as I answered "over there" you give a stand up reason. I dont have the time I believe is neccesary to provide OUCH membership,and OUCH the organization, what I feel they and it deserves. Everyone should think long and hard before jumping in the ring. Desire and conviction are great qualities but not enough to be effective. |
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Title: Re: Any body want an OUCH T Shirt Post by Jill on Sep 11th, 2005, 11:22pm Again, I am late on this thread but Barbara brings up something that I have been wondering about and I want to ask this while the topic is being discussed.. As it was mentioned before, OUCH was started as a member run organization where the members had input in what was going on. But somewhere, from what I gather, this all changed and that doesnt make sense to me. An organization is only as good as its members and those that run it - they both have to work together.. That being said, why is that the members dont vote on who they want to lead it? From what I understand and correct me if I am wrong, any member can nominate another member for an OUCH position. But then there is a group of just three people that choose who gets that position? It seems to me that if you arent in a 'certain group' than you will never get chosen.. I would think that the members would vote on who they want - if there are three nominations than the members should vote on which one of these three people they want to fill the position. Make sense? It seems to me that while OUCH has good intentions, somewhere things are not following through. I am grateful for those that volunteer their time to do the work they do, I really am. And I thank them... That being said, wanted to make sure I am not coming across wrong.. there are some things that dont make sense and again maybe I am missing something. But why wasnt there anything put on the board about the convention, like minutes or information or something? Or about how much was made at the auction - I know that we couldnt stay for the whole thing and I am wondering how it went. And what happens to money that is raised? Seems to me that it would be in everyones best interest to have something put out once a month with information about what is going on and so forth... once a month shouldnt be too bad. It bugs me that there are people wondering why members dont volunteer because I did ask if help was needed for a certain project and I never got a response. My theory was that if you couldnt respond than I guess you didnt want help that bad... sad to say. Shoot, I asked a question about something from convention and never heard back. Makes me wonder.. never mind. :-/ These are just my thoughts and I hope that they come across okay.. and make sense. OUCH has potential if members and 'officials' can work together more.. Jill |
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Title: Re: Any body want an OUCH T Shirt Post by LeLimey on Sep 12th, 2005, 3:18am Jill there is a committee in place to process the nominations but the voting on them to the best of my knowledge will be done by the membership in November. I may have dates wrong but I know for a fact that people are being nominated to be voted in or not as the members see fit. If there wasn't a committee in place to process applications, if it rested with one person alone then I dread to think what sort of threads would appear saying "X" didn't put my application through etc. |
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Title: Re: Any body want an OUCH T Shirt Post by Bob P on Sep 12th, 2005, 9:01am In reality for 4 years one person recieved the nominations and posted them to the web site. No body ever complained about anything. |
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Title: Re: Any body want an OUCH T Shirt Post by Margi on Sep 12th, 2005, 9:46am The question was asked at the OUCH board why Barb, Don and "the others" keep bothering the current administration with questions. When did, exactly, did members lose the right to ask questions? I always thought OUCH was a democratic organization, run by a member-elected group. At least that's what we had in mind when we started it. Very valid questions have been asked and very vague and condescending answers have been applied. It's almost as if the answers are designed to egg the questioners on - I just don't understand that tactic. If questions were answered informatively and with respect, I'm sure the questions would dwindle. Secrecy breeds suspicion. Honesty and openness breeds trust. I was really hoping this new board understood that. |
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Title: Re: Any body want an OUCH T Shirt Post by E-Double on Sep 12th, 2005, 9:51am Just a side note. Dr.'s do read the site. I saw Dr. Sheftell this morning and..... [smiley=huh.gif] |
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Title: Re: Any body want an OUCH T Shirt Post by don on Sep 12th, 2005, 10:09am Quote:
Comprehensive answers would do the trick. Every short sited answer breeds 6 new questions. Dont quote me by laws. I can read. Quote:
Who was that guy? Pauper? Pirate? Pawn? King? PIRATE! NOW I REMEMBER ! |
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Title: Re: Any body want an OUCH T Shirt Post by Margi on Sep 12th, 2005, 10:37am Well, Don, those days are gone. (Sounds like a line from a country song, doesn't it? In fact, the evolution is startlingly similar... - no offense intended or implied to country music fans.) |
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Title: Re: Any body want an OUCH T Shirt Post by Melissa on Sep 12th, 2005, 10:58am It's nice to see people interacting and saying what they feel, but I wish more who have been silent (OUCH administration too), would speak up. Lets just get it all out in the open for once! Don- I asked you the reason why you don't get involved, because you are so critical of what's being done by the people working for OUCH "now". What I was trying to say is, if it is broke, then help to fix it! Yet you said (I think before you modified your post) that you "can't work with the way it's run now"?? Isn't that why you join, to help change it so it can be run better? Also, you modified your answer to my question about why you are trying to make OUCH out to be a useless org., and you had written for me to "start thinking outside of the box". Well I did, and I think that the org. should just maybe be completely shut down, the funds disbursed to other orgs working on our condition, and then start again from scratch with an outside guidance. Barb- I know what the founding peoples vision was, but what I DON'T know, is why you left? Where did you go? Why didn't you help to keep that vision and direction going? You came back to ch.com and OUCH in 2003 (I believe) and starting speaking up about it. You were voted in as Treasurer, and did a great job, but then resigned after another person left. Is it because that person left, that you did also? Did you feel as if I never listened to you? That any of us never did? Did you know that when you talked to us, me, that we felt like you were trying to steer the org. in the direction you felt it was supposed to go? How did we know if you were right? How did we know that by doing exactly what you told us to do, that the org. would go far? I remember writing to you before I even accepted my nomination for Recording Secretary, do you remember what I wrote to you? That I admired you for your fire, your determination and your love for OUCH, yet the more I worked with you, the more I felt that what "I" was doing, was worthless. I felt it didn't matter what my ideas were, because they weren't in tune with the direction that the original founders envisioned them to be. Oh, and BTW, I have clusters too, but that doesn't give me the excuse to talk first and think later about the repercussions my words might give to others. I am not trying to get in a pissing match with you. I want to see OUCH go far too, just don't discredit me as insignificant. Margi- Members have every right to ask questions, but I don't think the people working for OUCH right now, really have the answers. I will not say they're perfect, because they're not. There have been a few things I'd like to see happen in regards to answering the membership, but I really don't think they have the spokesperson to do it. Before I left, I had even given the thought that I would stay on as a "go between" for the membership. So they'd have someone to answer their questions in a timely manner, and the Officers/BoD can concentrate on their jobs. BUT, you know why I decided not to? Because I was burnt out. After all the stuff with people quitting, I had my hands full up to my eyeballs. And almost every night, I'd be up till midnight (not in cycle) talking about OUCH, and then just turn my computer off , sit there and cry. Now I will generalize... Don't anyone tell me you deserve to have your questions answered when you want them to be. I don't owe any of you anything, yet out of the goodness of my heart, I volunteered my time, my emotions, and what little skill I have to OUCH, to help YOU. I cannot speak for those sitting in the positions they are now, but I can speak for myself. These are MY feelings, no one elses and I am not responsible for anyones actions but my own. I used to work for OUCH, and I probably would work for it again, but I'll be damned if I'm going to let anyone treat me with contempt and bitterness through those black squiggly words coming across on my puter screen. I take issue with them because I care, not because I'm obliged! If we were sitting across the table from one another, face to face, we would not be going through what we are right now. I guarentee it. modified to add: when I say what I did about answering questions, I mean don't fucking badger and pick apart the answers to death. there is a time to just stop and say "ok". i can answer till i'm blue in the face and some will just keep picking and picking and picking. Why the fuck do people do that?? I can understand answering a question, but pick it apart to death just for the sake of argument???? WHY? |
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Title: Re: Any body want an OUCH T Shirt Post by nani on Sep 12th, 2005, 11:10am Anytime I've had a question, which I ask respectfully and void of sarcasm, I have had an answer. Quickly, I'll add. Whether I do so by PM, or posting. I have also volunteered some time so that I can assist the organization do the work I, as a member, want it to do. ~nani |
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Title: Re: Any body want an OUCH T Shirt Post by Margi on Sep 12th, 2005, 11:15am Well said, Mel, and I wholeheartedly agree with you, especially about the part about being face to face. We all have way more courage behind a keyboard...I know I do. The sad reality is though that we can not now and probably never will be able to accomplish face to face business. All the more reason to keep OUCH an organization that reports clearly and promptly to its membership. As well, it's my opinion (and only that, obviously not one that counts much anymore), that OUCH needs to empower its membership with a voice. This year marks the first time in OUCH's history that the membership shall remain speechless at Officer Election time. I think what is hardest to accept that what once was an organization that was member driven has now eroded to become one driven by a select group of people who the membership has no say in electing. The President of OUCH can be a high profile position and OUCh members can no longer say "hey, I voted for him/her". That may sound petty (and will most likely be labled so), but it's one of many small issues that can quickly become huge and come with a potentially fatal cost. |
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Title: Re: Any body want an OUCH T Shirt Post by Jill on Sep 12th, 2005, 11:21am Okay, now this all has me thinking and I just have to respond to what has been written because....well.. just because. ::) First, Thanks Helen for the clarificaiton on the nomination process though I still dont agree with the way that it is done. I have never seen a voting process this way in an organization that strives to have members participate. To me, no one would nominate themselves or someone else unless they truly felt that they could do the job.. I think that anyone who is nominated should be chosen by the members meaning the members should be able to look at that persons credentials and decide whether they should hold the position or not. After all, if three people get to choose who goes to the voting 'ring' thank who is to say that they wont choose or not to choose people based on who they like or dont like - NOT saying that this would happen because I dont know but it is a thought that is out there. Second, so far as to what Mel has written - that boggles my mind. I dont blame people for leaving OUCH because of what Margi mentioned. Members can ask questions but they are rarely answered or answered in a decent manner, look at this thread. More on this is in a sec.. There are people out there that want to help make OUCH better, I myself have asked if I could help, but they are ignored. How can you ask people to help if when they do, no one answers them? That doesnt make sense - members dont want to and cant help if they arent welcome. Just something to think about. Now, as far as the questions. You said that members shouldnt say that there questions deserve answers and that you dont 'owe' them anything. What! I know and I am grateful that you have donated your time and energy to OUCH but when you did this, you MADE a committment to the members. Part of that is to represent OUCH, part is to answer the members questions... if you dont want to do this, than why volunteer. Again, I dont mean harm by this and I am thankful to you and others but members have an obligation to be involved, right? And 'officials' have the obligation to answer questions and lead OUCH... On a final note, as far as the doctor part goes.... every organization has its problems and to ignore them is crazy.. I dont see anything wrong with finding the problems and asking questions as it shows that we do care about success. The problem is the lack of answers and the lack of respect when answering... Those are my thoughts, take them as you will.. Jill Edit to add - if the reasons that questions arent answered is because the answer is not know than why not just say that? If I came across wrong in this than I am sorry but I just think that members and officials have to work together and part of that is discussing things.. |
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Title: Re: Any body want an OUCH T Shirt Post by Melissa on Sep 12th, 2005, 11:31am Jill, did you read what I added? Did you? I don't think you did. So here's a reminder... Quote:
Jill, I made a commitment and I STUCK to that commitment! Some are not, but some are damned if they do and damned if they don't because there are a few people who insist on placing blame squarely on their (volunteering, caring peoples) shoulders. They FEEL like they need to shoulder the blame, when in reality, it is not entirely their fault! They did the same thing I did, volunteered out of the goodness of their heart, and somehow they now feel responsible for ALL the ills of OUCH. Is that fair? No. It's not. |
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Title: Re: Any body want an OUCH T Shirt Post by Jill on Sep 12th, 2005, 12:05pm Hey Mel... I know that you made a committment and stuck with it, it wasnt personal... I promse. Please, please dont jump on me because I did read what you wrote and I understand what you mean. What I am talking about is not directed at you but at the idea that people do think this way and questions arent being answered - questions that should be answered... I do agree that people shouldnt badger any official for asnwers in a rude way but sometimes it seems that persistance is needed to get a result. Maybe it isnt badgering sometimes but frusteration in no one responding... Again, I didnt mean anything personal because I do respect and thank anyone who volunteers with OUCH. But, it does need work and we do need to find a way for members and officicals to work together because we are ALL after a common goal.. right? And one more thing, I dont think anyone is trying to place blame on anyone, especially not those volunteering. I think that people are just trying to ask questions, find out what is wrong and so forth and it is being mistaken as blame. If we cant ask the officials and voice our thoughts, than what kind of organization do we have? Part of the responsibility of being an official is to listen to the members - nothing should be taken personally... Jill |
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Title: Re: Any body want an OUCH T Shirt Post by Opus on Sep 12th, 2005, 12:22pm on 09/11/05 at 13:37:30, don wrote:
Don, Was it that or something else that made you resign. Since you are so vocal on no secrets in OUCH, then tell everyone your secret, instead of evading the question. My guess is that you either couldn't do the job, because something as simple as using a web browser to quote people properly in a forum is beyond your abilities, or perhaps it was fear of incarceration that caused you to quit. Constantly asking that OUCH have a president when you quite the job yourself is very irritating. Haven't you ever thought that there is no one with a head big enough to fill the hat you left behind. on 09/11/05 at 11:46:18, Melissa wrote:
That is my point too Mel, it is hard to believe words by one person can be so irritating. I hope he starts posting like a member instead of like a troll. Opus/Paul |
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Title: Re: Any body want an OUCH T Shirt Post by Margi on Sep 12th, 2005, 12:38pm Paul, I have always respected you. But this post is very nearly slanderous towards Don and, in my opinion, very uncalled for. Don stepped down because his situation and time commitment capability changed. He did the right thing, in the best interest of OUCH at the time. To insinuate that he was 'running because of fear of incarceration' is pretty low. Yes, he exercises his OUCH members' rights and asks a lot of questions. Those questions are initially asked politely. It's only when his questions are ignored or answered vaguely or sarcastically that the tone of his comments change. |
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Title: Re: Any body want an OUCH T Shirt Post by don on Sep 12th, 2005, 12:41pm Quote:
ROFLMMFAO! Suspicions confirmed! You ARE a fuckin nitwit! LMAO. |
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Title: Re: Any body want an OUCH T Shirt Post by Melissa on Sep 12th, 2005, 1:00pm First off, thank you Jill, for clearing that up. Secondly you asked... Quote:
Perhaps one that just is not working. Maybe the format is just not what is needed to put it where it's supposed to be, where it should have been placed at the beginning. Maybe something got skewed along the way when the message board converted over to the new format, who knows? Doesn't mean it wasn't a good idea, (or a great one!), but some things need to change and trying to resurrect something that refuses to stay alive, well, it's sort of saps the energy from it. I have been both in front of and behind the curtain. Misconceptions abound, and some take advantage of those misconceptions to exploit people. Not cool. Anyway, I am still a believer and I still have hope. It may or may not be OUCH, but it'll be something. :)mel Quote:
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Title: Re: Any body want an OUCH T Shirt Post by don on Sep 12th, 2005, 1:12pm Quote:
Wanna buy some magnets? |
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Title: Re: Any body want an OUCH T Shirt Post by thomas on Sep 12th, 2005, 1:29pm on 09/12/05 at 12:05:50, Jill wrote:
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Title: Re: Any body want an OUCH T Shirt Post by Jill on Sep 12th, 2005, 1:49pm Hey Thomas, I am not jumping on anyone at all - I am just asking questions and giving an opinion. Nothing is personal - I am not placing blame on anyone nor am I critizing anyone. Please dont misread what I am writing.. I am also not badgering anyone for answers - I asked my questions and if someone answers them than that is great and if not, than I guess I wont ask any more. Right now, my last posts, have just been input and my opinion.. again, I thought as a member that I could do this, though it should be a nice manner... I really do believe, as Mel stated, that OUCH has potential and hope but everyone needs to work together and listen to each other, the key word being listen. I am sorry if my posting has been read as 'blame' or 'badgering' but that wasnt what was intended. And I think that this is part of the problem - some read what they want and others not the entire post and things are not read as they are meant.. if that makes any kind of sense. I really do appreciate those that work with OUCH and I hope that one day we can get some where and be successful. Jill PS, Mel, you are right.. OUCH does have hope! |
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Title: Re: Any body want an OUCH T Shirt Post by thomas on Sep 12th, 2005, 1:53pm on 09/12/05 at 13:49:08, Jill wrote:
I'm not, saying you are. Just noting my opinions on the points you made in your post. Has nothing to do with you per se. |
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Title: Re: Any body want an OUCH T Shirt Post by Jill on Sep 12th, 2005, 2:01pm I gotcha Thomas! I know that it wasnt personal but I just wanted to make sure that I wasnt coming across wrong or anything. I understand what you are saying because there are some that are pointing fingers, placing blame and so forth.. and that is sad. :-/ It is hard when talking online because you can only read what is written, when in person you can hear the tone of voice or read facial expressions.. Jill |
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Title: Re: Any body want an OUCH T Shirt Post by thomas on Sep 12th, 2005, 2:05pm on 09/12/05 at 14:01:30, Jill wrote:
It's the same for me either way, I speak in monotone and never smile. ;) |
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Title: Re: Any body want an OUCH T Shirt Post by seasonalboomer on Sep 12th, 2005, 2:09pm on 09/12/05 at 14:05:48, thomas wrote:
Me too, I speak in high pitched squeals, punctuated by growls and menacing grunts, and make threatening facial expressions, while wildly motioning with my arms in a threatening manner toward whomever I'm speaking with. And I'm constantly misunderstood. :P |
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Title: Re: Any body want an OUCH T Shirt Post by don on Sep 12th, 2005, 2:44pm Quote:
I always knew you had monotonial tendancies. Finally outta da closet heh? |
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Title: Re: Any body want an OUCH T Shirt Post by Opus on Sep 12th, 2005, 3:22pm on 09/12/05 at 12:38:30, Margi wrote:
Margi, Sorry I forgot to include the sarcasm tag, I merely posted in a way that Don himself does at the OUCH board. A lot of people say a lot of different things about why he quit. I for one will only believe what he says the reason is, not that it really matters to me, he is the only one complaining bitterly that the BoD cannot seem to find someone to complete his term. I know Don didn't do anything criminal, nobody is that stupid to draw so much attention to themselves, and to make enemies of the people who could expose them. If I was posting a question I would wait at least a couple of days for the answer, and then just bump my own post if nothing happened after a week then I might post again. His statement about BoD and officers being logged in a waste of words, every time I start my browser it logs me in because I always have a tab opened to the OUCH forum, that doesn't mean I even look at that tab the whole day. Knowing how web browsers and Internet works would really be a benefit to him. If Don wants to clear the air and tell why he quit that would be great. I will even post why I cannot do the job myself. Right now everyone should be concerned with the elections, so if they don't like the current BoD, they can vote a new one in. I just hope they support the new people and let them make mistakes without jumping all over them. Encouragement goes a long way. Criticism without encouragement is useless. Opus/Paul |
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Title: Re: Any body want an OUCH T Shirt Post by Margi on Sep 12th, 2005, 3:31pm thanks for the reply Paul. For the record though - I share Don's sentiment about folks logging in and then disappearing without seeming to post. It seems like every time there is a pointed question posted, a BoD signs in within a few minutes and says nothing before logging off. That leaves the peons to believe that they are either checking their private messages or posting on the private board and that the question posed wasn't worthy of the time it would take to post a simple yes or no answer. Edited to add: the timing is just too coincidental for it to be a case of the site opening automatically upon login. Further, I'm pretty sure Don did post his reasons for having to leave at the time he left. What's never been answered, though, is what happened to the expensive software that was bought by the last president. Where is it now? Has OUCH been reimbursed for it yet, if it's not going to be used? And what cash transactions happened since the last president vacated? The most current "financial statements" are from May of this year. I am an Accounting Manager and, I'm telling ya if our most current financials were FOUR MONTHS OLD, my whole department would be fired. Especially with a transition of power - that should have been an automatic audit trigger all in itself. Don't you think those are more relevant questions, Paul, than as to why Don felt he had to step down from the presidency? I sure do. |
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Title: Re: Any body want an OUCH T Shirt Post by Opus on Sep 12th, 2005, 4:19pm on 09/12/05 at 15:31:45, Margi wrote:
I believe many times the BoD has said that they have the software. In my world software is free, you only pay for it if you want to, and you pay for support. I am not going to bash the current administration for what Dan bought. If it was a mistake, then it was hopefully learned from. on 09/12/05 at 15:31:45, Margi wrote:
As I said I don't really care, I did look for his resignation post but couldn't find it. Anyway it is in the past. He keeps bringing it up when he complains there is no one who fills the post as he wants. I have suggested a few times that he fills it as a figure head if it is so important to him that there be one. I have no problems with Donna being an acting president. If he cannot go back there must be a reason and that is for him to worry about as I see it. From what I can see the current BoD and Officers have saved OUCH from falling apart. They have worked hard, organized a convention and kept the financials in the black. If I was them I would not run and just walk away from the whole thing, but still leaving it in the best shape I could and helping the new people get started. To me the criticism on the OUCH forum is just like being home, I wouldn't be able to take it for long. Opus/Paul |
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Title: Re: Any body want an OUCH T Shirt Post by Opus on Sep 12th, 2005, 4:27pm Here is the thread about the software. http://www.clusterheadaches.org/members/cgi-bin/yabb/YaBB.cgi?board=new_main_board;action=display;num=1116639537;start=3#3 I like in Barbara's post about how much work it is going to be to straighten out things. It is my belief that this work is still ongoing. Opus/Paul |
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Title: Re: Any body want an OUCH T Shirt Post by don on Sep 12th, 2005, 5:43pm Quote:
LMAO! Then why do you keepasking and where were you then. If it will mak eyou sleep better I resigned for both personal and professional reasons. Professional: On the advice of 3 non profit attorneys. My work involves consulting for various non profits and high end grant writing. After reviewing the corporate structures, P&P manuals etc. of all the non profits I was associated with theuy suggested strongly that I dis engage from OUCH. Personal. None of your business. Sleep well now Opus. (Sorry about the tipink flaws) |
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Title: Re: Any body want an OUCH T Shirt Post by Jonny on Sep 12th, 2005, 6:23pm This is laughable, Paul, why dont you PM Don and ask him anything you want? Could save DJ some bandwith, No? |
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Title: Re: Any body want an OUCH T Shirt Post by don on Sep 12th, 2005, 6:28pm No No. Its OK. Pritty sune I be learnded enough to use da bwoswer rite two! |
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Title: Re: Any body want an OUCH T Shirt Post by Kevin_M on Sep 12th, 2005, 7:33pm on 09/12/05 at 16:19:35, Opus wrote:
In all fairness, prior to voting, I would think up to date financials could be posted. I am in complete understanding of delays in software upgrades. Bylaws aside now, seeing that OUCH has been augmented by the incumbents as an ongoing concern is important. |
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Title: Re: Any body want an OUCH T Shirt Post by BarbaraD on Sep 13th, 2005, 5:14am Barb- I know what the founding peoples vision was, but what I DON'T know, is why you left? Where did you go? Why didn't you help to keep that vision and direction going? You came back to ch.com and OUCH in 2003 (I believe) and starting speaking up about it. You were voted in as Treasurer, and did a great job, but then resigned after another person left. Is it because that person left, that you did also? Did you feel as if I never listened to you? That any of us never did? Did you know that when you talked to us, me, that we felt like you were trying to steer the org. in the direction you felt it was supposed to go? How did we know if you were right? How did we know that by doing exactly what you told us to do, that the org. would go far? I remember writing to you before I even accepted my nomination for Recording Secretary, do you remember what I wrote to you? That I admired you for your fire, your determination and your love for OUCH, yet the more I worked with you, the more I felt that what "I" was doing, was worthless. I felt it didn't matter what my ideas were, because they weren't in tune with the direction that the original founders envisioned them to be. Oh, and BTW, I have clusters too, but that doesn't give me the excuse to talk first and think later about the repercussions my words might give to others. I am not trying to get in a pissing match with you. I want to see OUCH go far too, just don't discredit me as insignificant Mel, I think my resignation letter said why I left -- on advise of my attorney. Because OUCH "refused" to get in compliance (and that was ONE thing I WAS RIGHT about!) and MY liability as Treasurer (I could have been held PERSONABLY liable for the non-compliance and that was something I was NOT willing to accept). As far as the other person "leaving" - I never like a lynch mob and still don't. And during the time I was "supposingly" not around, I was spending my time donating a room in my office for the OUCH store and my time shipping merchandise for it, keeping the OUCH corporate office as well as possible in compliance, and a few other things for OUCH. During this time I was quite ill, but thanks for asking.... My opinion - until OUCH decides WHERE it's going and gets some PLANS written down - it's never going to get there. BD |
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Title: Re: Any body want an OUCH T Shirt Post by Pinkfloyd on Sep 13th, 2005, 9:44am on 09/13/05 at 05:14:27, BarbaraD wrote:
Wow, it seems like everyone was being advised to leave because of the mess OUCH was in a couple years ago. Lawyers advising people to leave...? Other Non-Profits advising people to leave? Who the heck was in charge back then? Who was refusing to follow the law? With elections coming up I think these are important questions. May effect my vote. on 09/11/05 at 13:37:45, BarbaraD wrote:
When exactly were these "good old days" anyway? :-/ Bobw |
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Title: Re: Any body want an OUCH T Shirt Post by Margi on Sep 13th, 2005, 9:57am on 09/13/05 at 09:44:08, Pinkfloyd wrote:
Why would something that happened in the past affect your vote for current Board members? I will never understand this constant feeding frenzy on OUCH pioneers. It's sickening. Who cares now why any one person retired or resigned? (Melissa, this isn't directed at you - please understand that. You ARE one of the OUCH pioneers and you HAVE done your time at the firing line, you know I have huge respect for you.) Why aren't people more concerned with what's happening NOW at OUCH with the policy changing, lack of fiscal reporting, etc., etc., ETC. THESE are issues that should form voting trends. ::) |
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Title: Re: Any body want an OUCH T Shirt Post by Jimi on Sep 13th, 2005, 10:11am Margi, my question for you is why do you care? Didn't you just resign a couple of days ago as an Ouch member? If you have complaints about the OUCH board, don't you think it might carry more weight if you were a member? Just the first thing that popped in my mind this morning when I saw that you were still posting about this. |
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Title: Re: Any body want an OUCH T Shirt Post by Pinkfloyd on Sep 13th, 2005, 10:21am on 09/13/05 at 09:57:44, Margi wrote:
Well, a couple reasons. BTW, I agree (in general terms) about the usual "feeding frenzy" you noted. The only reason(s) I ask is because the people from "the past" might be running again this year. I don't know who is running but past records should be considered, don't you think? It also seems that some of the things being done now, are based upon what has/hasn't been done in the past so I think to be an informed voter needs to know at least some general background. I hear about the "good old days" and I hear about people leaving under advise from lawyers. Who the heck do I vote for????? Bobw |
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Title: Re: Any body want an OUCH T Shirt Post by Mark C on Sep 13th, 2005, 10:29am ;) |
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Title: Re: Any body want an OUCH T Shirt Post by Margi on Sep 13th, 2005, 10:29am yeah, thanks, Jimi. You're absolutely right. I shouldn't care should I? As you so kindly point out, I don't have the right to care anymore, do I? What was I thinking? Man oh man! Wow, Jimi - you've save me SO much trouble here, saved me so much energy and time spent still caring about something that I have cared very deeply about for years. Since inception, really. Something that has morphed into an organization that bears such little resemblance to the original vision we all had for OUCH. Kinda like having a kid grow up and join a cult. But yeah, you're right. Guess I just forgot to flick the off switch. Thanks so much for throwing that cold water in my face. Wow, I really needed that! http://www.clusterheadaches.com/public_html/yabbimages/smileys/thumb.gif |
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Title: Re: Any body want an OUCH T Shirt Post by Jimi on Sep 13th, 2005, 10:43am I am always here to help ;;D Now go back and rejoin OUCH.....come on girl...you know you want to...... :-* |
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Title: Re: Any body want an OUCH T Shirt Post by Pinkfloyd on Sep 13th, 2005, 10:46am on 09/13/05 at 10:29:22, Mark C wrote:
You got it Mark. Will do. I don't want to end up needing to steal your avitar. Hope you're doing well Bobw |
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Title: Re: Any body want an OUCH T Shirt Post by Margi on Sep 13th, 2005, 11:02am naw, Jimi - your post just now helped to drive my decision home. |
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Title: Re: Any body want an OUCH T Shirt Post by Ree on Sep 13th, 2005, 2:04pm You should save your breath Margi. I found out all too long ago that there are too many personalities for OUCH to run as a professional active organization. I don't know if it is the personality of the Cluster sufferer that is to blame. First of all... in my business I've seen toddlers stick out jobs longer than some members of OUCH. The first thread that doesn't agree with an idea and THEY'RE OUTA THERE......Secondly... I for one won't donate to an organization that I don't get a statement monthly to know where my money is working. Thirdly... some things I believe should be kept among the board. It seems that for everything to be out here for the world to read has made OUCH look extremely unprofessional. I used to announce with pride the organizations name and now (yesterday) mumbled it under my breath to the new Neurologist for fear he would come here and read. I still don't understand how the voting is done.... and IS IT FAIR? Why is it that no one wants to take on these jobs with 8,800+ members. I for one was told I couldn't partake because I wasn't a sufferer.... NOW..... NO THANKS I'D RATHER HAVE HEAD LICE..... REE |
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Title: Re: Any body want an OUCH T Shirt Post by LadyElaine on Sep 13th, 2005, 2:30pm Here is my 2 cents. Yesterday is gone, it is not ever coming back. We have today and tomorrow. That is the only thing that can be changed. I am so sick of the Old and New ! There should only be us. We should be united. and be one. If you don't like a organization find ways to change it, productive ways. If you dislike everything about a organization then go find one you trust and join it or start your own. This sarcasm, and fussing about every thing is not productive. It is not helping anything. It is not chancing anyones mind. OUCH should mean something to everyone here. Posting here is great for support and for friendship. Its not worth a damn when it comes to getting the word out about clusters, educating the public and so on, but OUCH is, if people would back off and give them half a chance. Become part of a team and get rid of the words OLD and New! Replace them with us. I can no longer help as a volunteer for OUCH. I no longer have the time I use to. I can donate money by buying a T-Shirt and things from their store from time to time and donating things for auctions and biding on auctions. Yes I quiet OUCH as a volunteer, but never as a Member. I don't know if OUCH will make it. You know if it doesn't, it won't be the officers or the BOD that are in there now that I will blame It will be people who spend there time picking the damn organization apart. I don't know any more than you all do about OUCH now, just what I read on the board. When I see Officers and BOD on the OUCH board I figure they are working and talking to each other. It would worrie me more if I did not see their names there. Go to the OUCH Board look for the good there, stop looking for the bad. There is good there! Thats all I have to say on the matter. |
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Title: Re: Any body want an OUCH T Shirt Post by Cathi04 on Sep 13th, 2005, 2:51pm Amazing! "They're UP! They're DOWN......."...over and over again! OUCH has been trying soo hard to BE...yet, who keeps knocking t hem down? THE MEMBERSHIP! Elaine made an excellent point.... it's NOT the past, here......it's the FUTURE! It's not THEM.....it's US ! There is a ton of new blood here.......so they WEREN't in that garage on that historic date..they're HERE and they are working diligently to make things right. Oh, yeah, and they are working with some of the "oldies" as well. Hang your head, wash your hands of the whole thing....but make your decision. Do you want to be a part of the problem, or do you, in a very positive supporting manner, wish to help out in some capacity? As for those who wish to put a spin on things...well, you just go ahead and spin. MY inbox is open for blasting. Cathi |
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Title: Re: Any body want an OUCH T Shirt Post by LeLimey on Sep 13th, 2005, 2:53pm Cathi and Elaine, well said ladies! :) |
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Title: Re: Any body want an OUCH T Shirt Post by nani on Sep 13th, 2005, 3:01pm on 09/13/05 at 14:53:15, LeLimey wrote:
Ditto. It's time to move forward. :) |
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Title: Re: Any body want an OUCH T Shirt Post by seasonalboomer on Sep 13th, 2005, 3:14pm In most organizations that is an easy call to action. The old guard gets trotted out and they move on to something else. Sadly, with CH, this is really more like a family. Where else will our brothers or sisters, whether we agree with them or not, go? Have them go join a "migraine club"? Or a "Pain Management Support Group"? No, our oldies and our newbies, are here and staying here --- because here is where the best support on the planet for CH is. scott |
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Title: Re: Any body want an OUCH T Shirt Post by don on Sep 13th, 2005, 3:47pm Quote:
Whomever told you that is talking out of their ass. From the OUCH site. Quote:
Head lice suck Ree. Dont do it! |
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Title: Re: Any body want an OUCH T Shirt Post by Jill on Sep 13th, 2005, 4:44pm This thread is getting frusterating and it seems that we are going in circles and still questions arent being answered... So I want to post this last thought.. Quote:
Cathi (and others)... I do believe that some of us ARE trying to be part of the solution and NOT part of the problem. I didnt know that making suggestions, asking questions or giving opinions was a problem.. :-/ To me when you are part of an organization than you make a commitment to help out and ask these questions and make it work just as the officers have this same commitment. I wish that people would stop saying that some of us are causing the problems when we are just trying to get information and especially when we are doing so in a nice and polite manner. I have said this before and I will say it again, I have offered to help with OUCH projects and I am sorry that no one seems to want my help but please dont say that I am not trying to help make it better. One last note, I dont think that anyone said anything wrong on this thread until people starting telling others to be quiet, etc.. It is a real shame that we cant ask the questions we are wondering about or give suggestions.. :( My last thoughts on this subject... Jill |
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Title: Re: Any body want an OUCH T Shirt Post by Mastifflvr28 on Sep 13th, 2005, 10:17pm A year ago we were told to get a lawyer, seek legal councel and change the bylaws. We did that. We were told that we needed to be in complience. Through the lawyer, we did that. We were told that the organization needed to be run like a business. It needed to look profession so that professionals could come and look at the site and take us seriously. We are in the process of doing that. We were are trying our hardest to make this organization a desirable place for people to give us grants, to raise money, to educate the doctors and insurance companies. We are trying to achieve our goals. We are trying to stand by our mission statement. We are told to answer questions with a simple yes or no yet after the yes or no we are told to elaborate, when we elaborate we are told to not quote or that "I can read the bylaws". You were told the financial statement will come out with the next newsletter. That wasn't FAST enough. The current editor of the newsletter gets hit SEVERAL times a day. Tell him to go faster! It really doesn't matter what we do, it will be wrong. We are trying so hard to make this organization a success for all sufferers and supporters. It doesn't even matter that I'm writing this, it'll be right in some eyes, wrong in others. Oh well, I'll just keep trying to be part of the solution. Mast |
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Title: Re: Any body want an OUCH T Shirt Post by LadyElaine on Sep 13th, 2005, 10:25pm Way to go Mast ! I am, behind ya'll ! I am so glad you are all there ! |
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Title: Re: Any body want an OUCH T Shirt Post by Jimi on Sep 13th, 2005, 10:29pm Good Post Mast and how very true... |
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Title: Re: Any body want an OUCH T Shirt Post by FrankF on Sep 13th, 2005, 11:07pm on 09/08/05 at 04:46:09, marty wrote:
Yeah... it is sad! I'm gone for two years, I started a new CH cycle last month, and same old OUCH shit. I said it before and I'll say it again... this website and OUCH used to be separate and should stay that way. Believe it or not, some CHers (like me) come here for CH support and to give support and could give a rat's ass about OUCH and their Board of Directors and some members who fancy themselves as somehow owning this website, their constant bickering and bitching, and putting down anyone who isn't a card carrying member of OUCH and didn't attend the fucking Convention. Sorry I came back. |
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Title: Re: Any body want an OUCH T Shirt Post by Jonny on Sep 14th, 2005, 2:45am on 09/13/05 at 23:07:36, FrankF wrote:
If thats true...where the fuck have you been for two years, Asswipe? |
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Title: Re: Any body want an OUCH T Shirt Post by Melissa on Sep 14th, 2005, 7:16am Mast, thank you to you, and all those working for OUCH who are trying to bring the org. to a new level, which they ARE doing. I commend you for speaking up, and even though I know personally that there are some in OUCH who do not want to step outside the org. in order to defend it (because they'll get crucified, like I've seen happen so many times on here because they'll be deemed "unprofessional" ), I know they feel the same way you do. There have been many positive posts here, and it warms my heart to see the concern, the care in wording, and the backing of OUCH still alive. modified to delete a portion cause it was not something that needs to be written...anywhere. ;;D |
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Title: Re: Any body want an OUCH T Shirt Post by Svenn on Sep 14th, 2005, 7:28am "Cathi and Elaine, well said ladies!" I have said it before several times and i can say it again. With this "civilwar going on at OUCH there will be NO PROGRESS there. Those "backseatdrivers" has to stop. DAMN im happy to be on this side of the pond Svenn |
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Title: Re: Any body want an OUCH T Shirt Post by jcmquix on Sep 14th, 2005, 8:29am on 09/14/05 at 07:28:54, Svenn wrote:
I am with you on this Svenn, I might join later.... As I have never joined over there, I think I'll stick my Flag here... @CH.com Good Luck Have a Nice Day God Bless Charlie |
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Title: Re: Any body want an OUCH T Shirt Post by Peppermint on Sep 14th, 2005, 8:45am on 09/13/05 at 22:17:15, Mastifflvr28 wrote:
Concise and oh-so-accurate.... EXCELLENT POST Mast. |
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Title: Re: Any body want an OUCH T Shirt Post by Bob P on Sep 14th, 2005, 8:58am I think there are a bunch of crisis junkies around here. Someone voices an opinion or asks a question and Oh my God! It's civil war. The organization is falling apart! What a heap of crap! The BoD is going to move OUCH in the direction they see fit. That's the job they signed up for. Not every member is going to be on board with every decision. Bravo to those who have the nuts to say how they feel. The BoD can take it or leave it. What's the big deal! If a Board Member won't share with the members their thoughts on OUCH issues because they are afraid they are going to be crucified, they shouldn't have taken the office. It's their duty to let the members know their thoughts. We, the members, are given one message board on which to post (also happens to be the only message board the "Professionals" can see when they visit the site). Then there are complaints that member questions, comments, opinions aren't professional. Maybe the members should have two forums. One for professional posts only and one where they can say what they really think. From the recently posted minutes of the last BoD meeting: "Discussion was held regarding user agreements and codes of conduct in reference to the new OUCH website." This reeks of more exclusion and censorship. Maybe they have it backwards and the member forum should be hidden and the BoD forum pulic for the professionals to see. I think it's a shame that the only way the BoD thinks they can appear professional is to exclude the members. Long live OUCH. |
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Title: Re: Any body want an OUCH T Shirt Post by don on Sep 14th, 2005, 9:23am Anybody ever notice that the OUCH boards are graveyard until someone throws a little shit in the fan. Suddenly members come out of the wood work ! Its the 11th hour folks ! Nominations for elections are due. If you've been blowing your horn either here or there then nows the time to show OUCH the money. (Literally I guess). OUCH isn't a balloon rally so hot air isn't much help. Quote:
Ditto |
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Title: Re: Any body want an OUCH T Shirt Post by Margi on Sep 14th, 2005, 9:32am The point being missed here is that the bitching is being done for very valid reasons and coming from a very deep-rooted care and desire for OUCH to succeed. Denying members a voice and treating them like errant children is going to cause members to leave. Without members, what is left? And, Don? I'll see your "ditto" and raise you a "hear, hear". LONG LIVE OUCH. |
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Title: Re: Any body want an OUCH T Shirt Post by don on Sep 14th, 2005, 9:51am Whats going on here? Have we been had? Three rebels yelling "Long Live OUCH? I dont get it? I thought they were tearing down the organization? (Tossing more shit in the fan, YUCK) |
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Title: Re: Any body want an OUCH T Shirt Post by Melissa on Sep 14th, 2005, 9:51am on 09/14/05 at 08:58:58, Bob P wrote:
Bob, answering questions is one thing, but having to defend themselves constantly for giving answers that some think arn't good enough makes me really wonder if those who are asking the questions actually have OUCH's best interests at heart or are they just getting a rise out of trying to prove someone wrong? It is perfectly FINE to let OUCH know your thoughts, but to get into a pissing match about your (not YOU, just generalizing here) thoughts being RIGHT, is NOT professional in the least. Quote:
Ok, but how would you feel about that forum being moderated like other forums on the net? I have yet to see a mod. remove or modify a post of a member due to inappropriate behavior (and there HAS been inappropriate behavior). Some need to re-read the message board rules on the OUCH site before they post. Quote:
Exuding a professional appearence does not exlude us Bob. I'm surprised you look at it that way. These people working for OUCH are our friends, they are fellow sufferers in the same pain WE have. Why would they want to exclude us? We can easily email them, or phone them (which is my perferred route) to express our concerns. Why do some feel the need to have their views expressed publicly in front of others? What are they trying to do, make sure that their offering of help is documented for all the world to see so they can go back later and say "I told you so"?? Do other "successful" non-profits like the Red Cross, Migrainers Assoc., American Cancer Society, etc. etc. offer such a thing? Bob, you have done a lot to get OUCH started, but now can you let some take it further? It's obviously not a platform you agree with, and I do not agree with your reasons why, but can you at least give it a chance? Please? For everyone expressing their dissatisfaction about not being heard, you ARE being heard, but OUCH is taking things step-by-step at the moment, trying to do things right this time. If you think that means things weren't done right in the past, you are wrong, because things were done right in the past according to where the org. was at that time. As time goes on, things happen like people leaving, new contacts made, old contacts broken and such, the org. changes. Which means that as it changes, so to the format has to change on dealing with problems and new offerings of help. Not everyone is going to be happy, obviously, but to think OUCH doesn't care because some offers of help are not replied to, well, that seems sorta conceited to me. That's like me expressing my help to the Migraine association on what they need to do to make it better, and then get upset at them when I don't get a reply, so I go to their website and start berating them for not paying enough attention to "ME". How do you think I'll be treated? How would you look at me for acting in such a manner? I dunno, it almost seems to me like a message board for OUCH's members becomes more a staging ground for problems than solutions. I don't see how some feel the need to be credited outloud instead of behind the scenes. What are you looking for? (Bob, that last paragraph is not directed at you) |
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Title: Re: Any body want an OUCH T Shirt Post by minnie on Sep 14th, 2005, 11:00am I have been trying to find theright words for my feeligs on ouch.Elaine and Mast took the words right out of my mouth so yes I'm gonna quote.I believe nothing can get done when the Bod and Officers have to constantly defend themselves.As for volunteering and not given a job my thoughts are this.maybe the Bod can or is already keeping a list of talents and those willing to volunteer them then When that need comes up the person would be asked if the offer to help still stands.It's kinda like my kids when I'm cooking they wanna help with what they can.If theres something they can do I need done then I let them.But offer to put the bread in the toater when I'm making cookies isn't needed.(does that make sense ?)oh well long live OUCH . Minnie -------------------------------------------------------------------- on 09/13/05 at 14:30:04, LadyElaine wrote:
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Title: Re: Any body want an OUCH T Shirt Post by Bob P on Sep 14th, 2005, 11:23am It's my guess that people who volunteer to help are not answered because OUCH doesn't yet have a set of "projects" to put people to work on. There is no answer because we just don't know how or where to use them. I would be very happy if the BoD would do what I think it is supposed to do. Develop a set of projects aimed at reaching specific goals that the org has in mind. Give that list to the Officers with the direction to get it done. Let the Officers collect volunteers to work the projects, report progress back to the Officers who report to the BoD. I would feel much more included if those projects were listed on the site instead of being told that they will tell me about it when it's all said and done (finalized). I think there are a lot of members who, if given the chance, would have some good input (both positive and negative) that could save the BoD some time and effort. The members are OUCH's biggest asset, use them. Please note that nowhere am I saying the current BoD is doing a 'bad' job. It looks like they are taking care of business items that have to be taken care of. |
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Title: Re: Any body want an OUCH T Shirt Post by BobG on Sep 14th, 2005, 12:43pm on 09/06/05 at 20:51:29, don wrote:
Sorry to hijack this thread but I got a question. OUCH has T Shirts now? Nobody ever tells me nothin'. Ok, back to the bickering, pissin' and whinning. |
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Title: Re: Any body want an OUCH T Shirt Post by TxBasslady on Sep 14th, 2005, 2:44pm on 09/14/05 at 11:23:57, Bob P wrote:
It doesn't matter, Bob. You've been here...and you know that. There is no way in hell that you or I or anyone else can please everyone all the time. We will never agree all the time on all issues. Just human nature. As a BoD member, I'm sure I have failed miserably to make that difference I thought I could accomplish. After the resignation of the previous President, things seem to fall backwards...couldn't move forward till all the particulars were taken care of. Bank cards had to be cancelled and redone...Counsel had been hired, but then the contact for Counsel had to be changed. Records had to be forwarded to the registered agent..paper work for the State of Texas had to be updated on the registered agent and address for the org. Records on the org had to be copied and sent to Counsel for her review. Then...we had to wait. Compliance was an issue, as you know. We had so many questions for Counsel...but didn't want to chance running up the tab. We waited...again. In the meanwhile, checkbook and receipts were passed thru the mail...trying to get the loose ends tied. Convention was lurking in the shadows...and some of us had donated items to tend to and get them listed for the Fund Raising folks. What people say means diddly to me. I take things at face value....and I usually don't take things personally. Could things run smoother?? Probably. Could things be easier? More than likely. I am but 1 vote on the BoD. I am not a "yes" kinda person. I do not always agree....and my vote on different issues will verify that. Michelle's post was right on the mark. We have begun the forward movement, and the things that slowed this process a few months ago, have been tended too. Has it satisfied the masses? No, it hasn't...and as an individual, I have not a clue what that would entail. I committed to serve my term....but will gladly relinquish my position in November when my "time" is up. I refuse to resign...I promised my service for a specified period, and nothing short of death will change that. Lots of positions will be coming up in November. Just about all of them, matter of fact. If the BoD has indeed failed the membership, then I encourage all who think they can make a difference, to step up to the plate. This would be their chance...to rectify all the "bad" things and make them good. Donna D has done a remarkable job. She has a passion for OUCH like I've never seen. When things "broke", she picked up the pieces and ran like hell. She never stops...there's always that passion that drives her. This of course, is my PO...and not intended to reflect the opinion of the entire BoD. For those who have supported our team, I thank you. For those who feel we have failed, I ask that you step up and volunteer to make that difference that you feel you can make. As of this time, there's very few who have thrown their name in the hat. I will always support OUCH and the administration that the membership chooses. I may not always agree, but I will respect the choices made. My thoughts and opinions are solely mine...and in no way reflects the opinions/and or thoughts of the current BoD and Officers. Respectfully, Jean |
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Title: Re: Any body want an OUCH T Shirt Post by minnie on Sep 14th, 2005, 3:05pm Jean,Mast and the rest of the BOD. you've done a wonderful job in a very thankless position.It's all in the "little details"You can go aound taking the biggest steps forword that you can but sometimes those steps may seem too tiny to others.Does that make sense?In other words you can please some of the people some of the time but you'll never make everyone happy .just keep doing what ya gotta do and get-r-done. Minnie who's done rambling now p.s.for a translation of this post please send a self addressed stamped envelope to.... ;;D :D ::) [smiley=huh.gif] [smiley=deal2.gif] |
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Title: Re: Any body want an OUCH T Shirt Post by Kevin_M on Sep 14th, 2005, 6:03pm Among others on 09/14/05 at 09:23:28, don wrote:
Thanks Don for the unselfish bravery. and Quote:
Thank you Jean, that is needed. Cool. |
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Title: Re: Any body want an OUCH T Shirt Post by FrankF on Sep 14th, 2005, 8:13pm on 09/14/05 at 02:45:31, Jonny wrote:
Because Jonny, some of us are episodics. I know it's a difficult concept for you... but some of us who are episodic don't spend as much time here as those who are chronic. The cycle is over and we try to move on. But when we episodics need to be here (if this is truly a CH support group), episodics who disappear for a year or two and come back should be afforded the same courtesy, help and support that you would extend to a N00b or to old-timers. Or am I wrong again? |
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Title: Re: Any body want an OUCH T Shirt Post by thomas on Sep 14th, 2005, 8:33pm on 09/14/05 at 20:13:29, FrankF wrote:
This site is more about giving than taking. |
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Title: Re: Any body want an OUCH T Shirt Post by Frank_W on Sep 14th, 2005, 8:48pm Bingo, Thomas. Many of us are episodics who aren't in cycle, but we stick around to help others and offer support. No shaming or blaming, because after all, if your life is so full that you just can't spare the time, then that's just the way it is... But yeah, it kind of sucks for someone to come and get support, get information, and lean on people, and then disappear and not offer anything back. :-/ My two cents' worth... |
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Title: Re: Any body want an OUCH T Shirt Post by Sean_C on Sep 14th, 2005, 8:53pm on 09/14/05 at 20:13:29, FrankF wrote:
So you want people to go to your birthday party but you don't want to go to anybody elses I guess. Try to give back Frank, thats what support groups are all about. Don't forget those that gave to you in your hour of need. Cheers Sean...................................... |
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Title: Re: Any body want an OUCH T Shirt Post by Jimi on Sep 14th, 2005, 9:40pm 5 years PF after 30 years of yearly cycles. I still enjoy helping and getting support here from friends on other things in my life as well. But thats me and not you. Not saying you are wrong, I just enjoy the friends that I have developed after finally meeting those who understand. I can't leave. |
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Title: Re: Any body want an OUCH T Shirt Post by Jonny on Sep 15th, 2005, 1:47pm on 09/14/05 at 20:13:29, FrankF wrote:
Well, if you had bothered to stop by and say hi to the folks, you would probably know that for the last year I have been episodic. You would think that after 30 years chronic I would beat feet and get a life now, I choose to be here everyday because everyday there is always someone here in some kind of need and I dont bail on family!! As Den would say, "Take what you need and leave the rest of us" |
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Title: Re: Any body want an OUCH T Shirt Post by JDH on Sep 15th, 2005, 1:58pm on 09/14/05 at 20:13:29, FrankF wrote:
Seems to me a support group should work both ways. What if we had all packed up and left because we were pf before you first showed up? Look, I don't think anyone is asking you to be here everyday but remember, you get what you give ;) Jim |
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Title: Re: Any body want an OUCH T Shirt Post by Margi on Sep 15th, 2005, 2:33pm Frank, I'm sorry to hear you're in cycle again. If you're the Frank from California that I remember, I know you have a heavy load at home caring for your wife and family. Again, sorry to hear you're hurting, Frank. Please know that there IS still CH support here if you need it. Margi |
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Title: Re: Any body want an OUCH T Shirt Post by Ree on Sep 15th, 2005, 9:15pm Hi Frank F...... missed you buddy. You are definately on the same cycle plan as Dave. He is also in cycle too. Be well and know WE ARE STILL HERE FOR YOU!!! LOVE REE PS I Love you jonny and sean... but not everyone is like you and I and a handful of others that are here all the time.....no matter what.... I'm sure Frank has his reasons.... you were looking for Little Deb on another thread jonny....10 to 1 she isnt in cycle either and doesnt need us right now.... lots of people do it.....there are alot of missing persons... for whatever reason.... love ya ree |
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Title: Re: Any body want an OUCH T Shirt Post by sandie99 on Sep 16th, 2005, 11:33am on 09/14/05 at 20:13:29, FrankF wrote:
FrankF, I'm a chronic, yes, but I've been episodic before that. Now I'm PF, I've been that since April, but I'm still here and I hang around at this board nearly every day. That's because I believe that once I've got help in pain the work isn't done. There's a lot I can give and get back each day I'm here. Correct me if I'm wrong, but I personally haven't seen ch.com folkes treating new comers differently than they to oldtimers what comes to support. Personally, I'll do my best to help everyone every way I can. It may feel different to new people and it may take time before this place feels like home, but that's where one's personal commitment plays a part. Besides, I don't think that one is "moving on" less if one keeps on coming here. If you've had ch attack, you've got lots to give to others who have it too. Lots of advices to give, tips to share, support to give and get. And besides, this board is about so much more than just ch. All shades of life appear here, every day. But it's the people who make it special. It's up to you how involved you want to be. But if you want to get unconditionally, you got to give unconditionally, too. :) These are my thoughts, PF days, Sanna :) |
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Title: Re: Any body want an OUCH T Shirt Post by Bob P on Sep 16th, 2005, 11:38am Like Margi, I too am aware of Frank's situation. He's got a whole lot more on his plate than clusters and I don't blame him at all for not being here when he's not in cycle. |
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Title: Re: Any body want an OUCH T Shirt Post by sandie99 on Sep 16th, 2005, 12:25pm I'm sure that everyone has their reasons to show up and not to show up. Nobody's forced to come here, no one should feel guilty about their choices about it. But I've noticed that when I'm here, the support I get in here makes the rest of my life a lot easier to deal with. :) Sanna :) |
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Title: Re: Any body want an OUCH T Shirt Post by Margi on Sep 16th, 2005, 12:34pm With the load that Frank willingly carries for his family, I'm amazed that he even finds time to post here when he IS in cycle. Frank, I hope your cycle is over quick and that you find a good relief plan this time. |
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