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        New Message Board Archives >> 2005 General Board Posts >> Happy to have CH
        
(Message started by: scrapinby on Sep 6^th, 2005, 10:37am)

Title: Happy to have CH
Post by scrapinby on Sep 6^th, 2005, 10:37am

I was diagnosed about a month ago with CH. I was sent in to have an MRI done to make sure there isn't something more serious going on in my head, and low and behold they find a tumor. The Doc said it doesn't look like cancer, and doesn't have anything to do with the headaches. I'm going to see a neurosurgeon tomorrow to find out what needs to be done. At the moment I'm looking at the CH like a blessing. Without CH I wouldn't know about the tumor.

Title: Re: Happy to have CH
Post by cootie on Sep 6^th, 2005, 10:49am

Oh shit.....good luck to ya and hope it all works out ok for ya ! Lumps and bumps Pam

Title: Re: Happy to have CH
Post by vig on Sep 6^th, 2005, 11:03am

let's hear it for optimism...
but maybe it's the tumor causing the headaches, not CH.
fngresi crsodse
good luck

Title: Re: Happy to have CH
Post by Melissa on Sep 6^th, 2005, 11:04am

Wow. First off, I am so sorry about the tumor. My aunt had one removed from her head about 6 years ago and she is doing just great! It is refreshing to see such a positive attitude toward the curveballs life is throwing your way. Thank you for the post and lots of luck and prayers as you get the tumor taken care of.

hugs,
:)mel

Title: Re: Happy to have CH
Post by LeLimey on Sep 6^th, 2005, 11:06am

Good luck with your appointment tomorrow.. let us know how you are getting on asap won't you?
[smiley=hug.gif]
Helen X

Title: Re: Happy to have CH
Post by sandie99 on Sep 6^th, 2005, 11:29am

[smiley=hug.gif]

Check you IMs... :)

Sanna :)

Title: Re: Happy to have CH
Post by lionsound on Sep 6^th, 2005, 12:35pm

geez, mike....sorry to hear about the tumor.

Good luck tomorrow and keep us posted, okay?

may you be well and PF,
lionsound

Title: Re: Happy to have CH
Post by scrapinby on Sep 6^th, 2005, 1:00pm

Thanks for all of the support. Funny thing is that I am generally a pessimistic person, but with everything going on I can't help but think of how bad it really could be, which in turn makes me think of how lucky I really am.

Title: Re: Happy to have CH
Post by sandie99 on Sep 6^th, 2005, 1:23pm

Positive attitude, that's the ticket. Good luck for tomorrow! :)

Title: Re: Happy to have CH
Post by ghost62 on Sep 6^th, 2005, 1:41pm

Sorry to see you having to be here ... But an glad something posative came of it.

Hang tough

Mike

Title: Re: Happy to have CH
Post by Frank_W on Sep 6^th, 2005, 2:42pm

Oh man.... You have a great attitude, and I'm sure that whatever course of therapy you and your doctors decide upon, you'll come through it with flying colors. My very best to you.

-Frank

Title: Re: Happy to have CH
Post by Ree on Sep 6^th, 2005, 9:14pm

Attitude is key.... I agree with Frank I am sure you will recuperate fine.....love to you Ree

Title: Re: Happy to have CH
Post by Charlie on Sep 6^th, 2005, 10:58pm

Sounds good I guess and the optimism is a good thing but.....

Let us know how things work out.

Charlie

Title: Re: Happy to have CH
Post by scrapinby on Sep 7^th, 2005, 9:45pm

Good news- The doc isn't sure if it is a tumor or just some abnormality in my brain. He said it is so small, and because it hasn't affected anything yet, at this point the best course of action would be to sit back and monitor it. He wants me to go in and have another MRI done in 3 months and see if it has grown. He said in three months it can't grow large enough that they will not be able to take care of it. He told me that I should give his office a call if I have any weakness in my right side, or if I have a seizure (damn right I'm calling someone if I have a seizure). Although I am happy to hear what this doc has to say, I think getting a second opinion is a good idea.

Title: Re: Happy to have CH
Post by nani on Sep 7^th, 2005, 10:54pm

I think a second opinion is always a good idea. I'm so glad to hear that it's not too serious. :)
Be well, nani

Title: Re: Happy to have CH
Post by yikes-another-one on Sep 8^th, 2005, 2:07pm

My neice was just 8 years old,
and had a benign tumor removed.
they shave only a u-shaped patch of hair,
and scrapped out allthe roots without
any nerve damage.

She recovered great, got A's and B's in school
and now keeps her hair long, it covers any
remaining scar...

It's a wonder what medicine/doctors
really can do these days.

thank goodness for MRI
and all the tecnology....
better than a labotomy.... ;)

best wishes.

Title: Re: Happy to have CH
Post by Jasmyn on Sep 8^th, 2005, 2:31pm

Get that second opinion, keep the great attitude and keep us posted.

[smiley=hug.gif]

Title: Re: Happy to have CH
Post by Ronny on Sep 8^th, 2005, 3:29pm

Yea, go get a second opinion. I hope all the best for ya.

R.

Title: Re: Happy to have CH
Post by Charlie on Sep 8^th, 2005, 3:42pm

Good news. Glad to hear it.

I've had a tumor/growth on my cerebellum for 59 years. The docs say it's from birth and not at all a problem. I'm not the sharpest knife in the drawer is all. http://www.netsync.net/users/charlies/gifs/crazyeyes.gif

Keep us informed and good luck.

Charlie