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        New Message Board Archives >> 2005 General Board Posts >> They're baaack...please help!
        
(Message started by: lady_bug on Aug 27^th, 2005, 8:59pm)

Title: They're baaack...please help!
Post by lady_bug on Aug 27^th, 2005, 8:59pm

Another cycle has begun for me within about the past 10 days (almost exactly 1 year from the last one) :'(...

I would like to know everything about the "non-traditional" treatment options that I heard you all talking about at the convention, and any details you can provide such as; how to get them, costs, side affects, dosages, etc. My Neurologist can provide me with the usuals, but I'm ready to venture out.

Thanks in advance for your help...you guys are best!

Title: Re: They're baaack...please help!
Post by lionsound on Aug 27^th, 2005, 9:02pm

I'm sure others will be along to help you shortly.....

I just wanted to give you these...
(((((((PF))))))))) [smiley=hug.gif]

love,
Rori

Title: Re: They're baaack...please help!
Post by sassy_lady on Aug 27^th, 2005, 9:12pm

Hey sweety I'm sorry you are getting hit, what are you on or taking now!! the more info you give us, the more we can help.
[smiley=hug.gif] [smiley=hug.gif] [smiley=hug.gif] [smiley=hug.gif]
so [smiley=mad.gif] that you are getting hit!!
stay strong we are here for you !!
Lots of prayers & Love To You sweety
Lots Of Love Jolene

Title: Re: They're baaack...please help!
Post by Redd715 on Aug 27^th, 2005, 9:20pm

www.clusterbusters.com

[smiley=hug.gif]

Title: Re: They're baaack...please help!
Post by thebbz on Aug 27^th, 2005, 9:36pm

;)Clusterbusters.com
There's some root out there as well that will cure us all I just know it. Read the past threads in the Meds section.
All the best
BB

Title: Re: They're baaack...please help!
Post by nani on Aug 27^th, 2005, 9:55pm

Sorry to hear they're back, Sandra. :(
Kudzu is one of the alternatives.
Look here and read all related threads.
http://www.clusterheadaches.com/cgi-bin/yabb/YaBB.cgi?board=meds;action=display;num=1110584362

The other alternative(s) are covered in the link Redd gave you.

Hang in there, sweetie. hugs, nani

edited for spelling. :-/

Title: Re: They're baaack...please help!
Post by E-Double on Aug 27^th, 2005, 10:00pm

Hang in there!

You're a pro and know they will pass and life will go on.

Kick it's a$$ the best you can and try to remain positive and strong!

Tons of hugs!

E

Title: Re: They're baaack...please help!
Post by Jasmyn on Aug 28^th, 2005, 3:18am

Hang in there girl! [smiley=hug.gif]

Title: Re: They're baaack...please help!
Post by BMoneeTheMoneeMan on Aug 28^th, 2005, 10:04am

Well, I am not an expert in treatments, but i have tried the clusterbuster treatment.
During the beginning of my last cycle, when the CHs were still only 1 or 2 per nite and not that intense, i took a tea treatment. Got hit a little on the downside, guess that is normal. Then 2 to 4 days of no relief is common, then on day 4 or 5 it is common to get some relief.
You cant have any other CH drugs in your system, certainly no trex.
The shroomys could be responsible for diverting my cycle. I did another treatment the following week, and it did seem to reduce the severity of my cycle. It didnt break it all together, but it seemed to 'break it in half'. It seemed the severity of my CHs, although at 3 to 6 CHs per nite, were not too severe. That whole cycle, i only had a couple of CHs that went up to kip 8.
Thats a success in my book. The shrooms didnt give me total relief, but they may be responsible for reducing the intensity of my cycle.
Now i am thinking about doing preventative maintenance with the fungus...... we'll see.

Have you tried the more traditional drugs? like prednisone or lithium? Some people say they both are effective in breaking the cycle, i have never taken.
GL, PF wishes.
BMonee

Title: Re: They're baaack...please help!
Post by Langa on Aug 28^th, 2005, 11:00am

Damn girl...sorry it found ya again... :-/
We shall talk... [smiley=hug.gif]

Langa

Title: Re: They're baaack...please help!
Post by Charlie on Aug 28^th, 2005, 4:54pm

Rats. Sorry the beast has found you. Here is my thing though. It worked well for me and I hope it can for you too. You have nothing to lose....

Dr. Wright’s Circulatory Technique:

I am not sure what mechanism is triggered by this but whatever it is, at least indirectly helps kill the pain. I do know that this technique has nothing to do with meditation, relaxation, or psychic ability. It is entirely physical and takes some work. It involves concentrating on trying to redirect a little circulation to the arms, hands, or legs. It can described as a conscious circulatory flexing. Increased circulation will result in a reddening and warming of the hands. Try to think of it as filling your hands with redirected blood. The important and difficult part is that it has to be done without interruption through the pain. Do not give up in frustration. It may not work on the first try. Every now and then it will work almost immediately. I lived for those moments. Try experimenting between attacks. You will find that it gets easier with practice.

I was given less than five minutes instruction in the use of method. The doctor, while placing his arm on his desk, showed me that he could slightly increase his arm and hand circulation. After several attempts, I was able to repeat this procedure and use it successfully. I have had about a 75% success rate shortening these attacks. My 20 minute attacks were often reduced to 10 minutes or less. Once proven that I had a chance to effectively deal with this horror, I always gave it a try as I had nothing to lose but pain.

Perhaps it will help if you think of it as trying to fill the arm as if it is were an empty vessel. I used to try to imagine I was pushing blood away from my head into my arm. Use your imagination. There is one man who wrote that his standing barefoot on a concrete floor shortened his attacks. This may be similar as it draws some circulation away from the head. Cold water, exercise, or anything affecting circulation, seems to be worth a try. My suggestion is to not let up immediately when the pain goes. Waiting a minute is probably a good idea. So long as you do not slack off, this has a chance of working.

This technique is very useful while waiting for medication to take effect or when none is available. It costs nothing, is non-invasive, and can be used just about anywhere. It is not a miracle but it helped me deal with this horror. It can be a bit exhausting but the success rate was good enough for me and a cluster headache sufferer will do just about anything to end the pain. It gives us a fighting chance.

Charlie

Title: Re: They're baaack...please help!
Post by lady_bug on Aug 28^th, 2005, 5:39pm

THANK YOU EVERYONE!! WHAT A WONDERFUL THING TO HAVE SUCH GREAT SUPPORT! After 38 years with these nasty things this is the first time I've ever had a support system other than my immediate family...it's awesome!

I am seeing the doc next week, he will put me back on Verapamil and probably a round of prednisone...with the Imitrex injectables as an option. I a soooo ready to try something new! I will read very carefully all of your responses and try some of your suggestions.

Keep em' coming!!

Love you all!
Sandra

Title: Re: They're baaack...please help!
Post by Frank_W on Aug 29^th, 2005, 7:57am

38 years... Jeez.... :'( [smiley=huh.gif]

Hang in there, my friend. [smiley=hug.gif] Look into the kudzu. It was truly a life saver for me.

Title: Re: They're baaack...please help!
Post by Carl_D on Aug 29^th, 2005, 8:35am

Ladybug, I hope your cycle is brief and you find a treatment that works for you. Alot of people have had success with the Kudzu and the clusterbusters method.

Hang tough,
Carl D

Title: Re: They're baaack...please help!
Post by ghost62 on Aug 29^th, 2005, 10:10am

Hang in there Lady We are here for ya girl. ;;D
Keep your spirits up and your shirt down. ;)

Prayers comin at ya .

Title: Re: They're baaack...please help!
Post by Svenn on Aug 29^th, 2005, 10:12am

Hang in there, sweetie. hugs

Title: Re: They're baaack...please help!
Post by Bethany1 on Aug 30^th, 2005, 7:16am

Sandi sweetie, hang in there... lots of prayers going up for ya...

[smiley=hug.gif]

Title: Re: They're baaack...please help!
Post by lady_bug on Aug 30^th, 2005, 8:37pm

Thanks Bethany...and everyone!!

So happy to hear about that baby boy of yours Beth!! :-*