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Title: So, it's been known to happen.... Post by kimmiedawn81 on Aug 25th, 2005, 6:27pm I've been wrong a few times in my life, but yeah the beast has started rearing his ugly head. I thought that it was a different type of headache, but it has started transforming into the same SOB that he did last year. I've been stabbing myself in the arm constantly, which I know isn't good for me. So, if anyone knows of any good neuros in the St. Louis area, please let me know. I'm trying to keep upbeat, but it's getting kinda tough. And my boyfriend just isn't that caring. Well, he's caring, but I don't think that he knows how to handle it. That bothers me somewhat, but oh well. Anyhow, I know that all of you deal with the same shit that I do, so I'm sorry for rambling. Take care! |
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Title: Re: So, it's been known to happen.... Post by Jonny on Aug 25th, 2005, 6:36pm Get the boyfriend on the keyboard and I will give him a crash course on CH!!!! Sorry its starting again, babe....but you know it will end. Now put a boot in the boyfriends ass!!! |
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Title: Re: So, it's been known to happen.... Post by kimmiedawn81 on Aug 25th, 2005, 6:37pm I've tried getting him on here, but he doesn't really seem too interested. And that alone makes me a little upset. |
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Title: Re: So, it's been known to happen.... Post by Jonny on Aug 25th, 2005, 6:39pm on 08/25/05 at 18:37:26, kimmiedawn81 wrote:
Uh-oh....Id be worried too, sorry. |
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Title: Re: So, it's been known to happen.... Post by kimmiedawn81 on Aug 25th, 2005, 6:52pm I'm gonna have an in depth conversation with him about it tomorrow. And if nothing changes, then something will have to change. If that makes sense. |
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Title: Re: So, it's been known to happen.... Post by Jonny on Aug 25th, 2005, 6:57pm It makes all the sense in the world! Are you here to bang me?......Or are you here to love and care about me? Theres only one answer. |
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Title: Re: So, it's been known to happen.... Post by Carl_D on Aug 25th, 2005, 7:05pm Kimmie. I'm in the area, and neuro after neuro, the one I finally ended up with is at Washington University Neuroscience Center. He knows CH pretty well. Richard Sohn 4921 Parkview St Louis, MO 63110 (314) 362 - 7240 Peace, Carl D |
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Title: Re: So, it's been known to happen.... Post by kimmiedawn81 on Aug 25th, 2005, 7:35pm I'm gonna call a neuro tomorrow and I'm wondering if Craniosacral work would help with the clusters. Craniosacral work is a form of massage, in case any of you weren't sure. |
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Title: Re: So, it's been known to happen.... Post by nani on Aug 25th, 2005, 7:43pm When I was episodic, I had cranio sacral massage done several times (out of cycle) and I enjoyed it very much. Frankly, it sounds a little scary for me to consider in cycle. I'm not sure why, kd, but the thought of adjusting the cranial fluid just kinda makes me cringe. I have no real basis for that opinion...just a "feeling". Have you read about kudzu, sweetie. Here's a link (read all the links in it, too) http://www.clusterheadaches.com/cgi-bin/yabb/YaBB.cgi?board=meds;action=display;num=1110584362 pf wishes, nani |
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Title: Re: So, it's been known to happen.... Post by kimmiedawn81 on Aug 25th, 2005, 8:10pm Well Nani, I don't think that that would work for me, I'm on Inderal and Verapamil and the only thing that works for me is Imitrex injections. So, I'm not sure that this Kudzu thing would work. Who knows... |
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Title: Re: So, it's been known to happen.... Post by E-Double on Aug 25th, 2005, 8:16pm Damn Kim, I knew it! You're a pro and know the drill. I'd gladly take them from you as I would anyone here. Regarding your boyfriend........That's BS!!!!! He needs an education in not only your condition which you will most likely have forever but how to truly love! My 2cents Hugs, Eric |
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Title: Re: So, it's been known to happen.... Post by kimmiedawn81 on Aug 25th, 2005, 8:18pm I just don't think that he knows how to handle it....any suggestions for him? |
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Title: Re: So, it's been known to happen.... Post by thebbz on Aug 25th, 2005, 8:25pm I have to side with the King on this one,the guy is either there to love and keep or take and leap. Make it clear to him which one you prefer. All the best. BB |
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Title: Re: So, it's been known to happen.... Post by Carl_D on Aug 25th, 2005, 8:27pm on 08/25/05 at 20:18:10, kimmiedawn81 wrote:
Ask him if he would want someone to understand his pain if he was getting kicked in the balls nonstop for an hour at a time. Maybe THEN he'll get it. Check your PMs. Carl |
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Title: Re: So, it's been known to happen.... Post by Redneck on Aug 25th, 2005, 8:38pm on 08/25/05 at 20:10:37, kimmiedawn81 wrote:
Shit, be very careful! Get to a doctor now! And send the BF here, If Jonny cant educate him no body can. What doses of Inderal and Verap are you on? |
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Title: Re: So, it's been known to happen.... Post by kimmiedawn81 on Aug 25th, 2005, 8:40pm on 08/25/05 at 20:38:24, Redneck wrote:
120 mg each/once a day |
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Title: Re: So, it's been known to happen.... Post by E-Double on Aug 25th, 2005, 8:58pm PROPRANOLOL HYDROCHLORIDE (in Inderal) may interact with VERAPAMIL Both verapamil and propranolol have the ability to decrease blood pressure and slow the heart rate. When taken together, these effects can be even greater. If you are taking these two drugs together, your doctor may want to closely monitor your blood pressure and heart rate. If you are experiencing problems, it may be necessary to adjust the dose of either medication. Ask your healthcare provider about these drugs and this potential interaction as soon as possible. This interaction is well-documented and is considered major in severity. |
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Title: Re: So, it's been known to happen.... Post by kimmiedawn81 on Aug 25th, 2005, 8:58pm I know that they tell you that you can only have 3 Imitrex injections per week. What happens if you go over that? |
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Title: Re: So, it's been known to happen.... Post by E-Double on Aug 25th, 2005, 9:02pm on 08/25/05 at 20:58:40, kimmiedawn81 wrote:
Please.... you can go over that per day. Be careful and know your body!! I'd be more concerned with being on a beta blocker and a calcium channel blocker together. |
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Title: Re: So, it's been known to happen.... Post by Redneck on Aug 25th, 2005, 9:03pm My dear, I don't do Imitrex, but, me thinks you need a new doctor :-[ edit: Listen to Eric! |
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Title: Re: So, it's been known to happen.... Post by thebbz on Aug 25th, 2005, 9:08pm K, Too much trex is bad. I would be concerned the prevent therapy is not working. If the dope don't work why eat it? Do be careful. BB |
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Title: Re: So, it's been known to happen.... Post by Ueli on Aug 25th, 2005, 9:09pm Taking Verapamil and Inderal (Propranolol) together is not a very good idea. From http://www.drugs.com/drug_interactions.html: propranolol and verapamil (major Drug-Drug interaction) Description: MONITOR CLOSELY: Additive reductions in heart rate, cardiac conduction, and cardiac contractility may occur when calcium channel blockers, especially verapamil and diltiazem, are used concomitantly with beta blockers. While this combination may be useful and effective in some situations, potentially serious cardiovascular adverse effects such as congestive heart failure, severe hypotension, and/or exacerbation of angina may occur. Ventricular asystole, sinus arrest, and heart block have also been reported. The risk is increased with high dosages, IV administration, left ventricular dysfunction, or AV conduction abnormalities. Beta blocker ophthalmic solutions may also interact, as they are systemically absorbed and can produce clinically significant systemic effects even at low or undetectable plasma levels. Bradycardia (36 bpm) with wandering atrial pacemaker occurred in a patient taking oral verapamil and timolol ophthalmic drops. The proposed mechanisms include additive slowing in AV conduction, reduced cardiac contractility secondary to beta-blockade, and decreased peripheral vascular resistance secondary to calcium channel blockade. Verapamil and diltiazem may also decrease the clearance of some beta blockers. That's something a good doctor should know. BTW, Propranolol does hardly anything against CH, so if you don't need it for another condition,..... Be careful! PFNADs, Ueli [smiley=smokin.gif] |
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Title: Re: So, it's been known to happen.... Post by kimmiedawn81 on Aug 25th, 2005, 9:12pm I use the Inderal for migraines. I could definitely go off of Inderal and just up the does of the Verapamil....it's a lot cheaper, but I'll wait and see what the new neuro says......whenever I find one. |
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Title: Re: So, it's been known to happen.... Post by Redneck on Aug 25th, 2005, 9:14pm on 08/25/05 at 21:08:26, thebbz wrote:
You gotta have the right dope and the right dosage for the individual. Tried 02 Kimmie? |
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Title: Re: So, it's been known to happen.... Post by kimmiedawn81 on Aug 25th, 2005, 9:20pm Yes, but the lpm's were really low, so it didn't help me. |
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Title: Re: So, it's been known to happen.... Post by lionsound on Aug 25th, 2005, 9:33pm on 08/25/05 at 21:12:45, kimmiedawn81 wrote:
Please be very careful and at least call a different doc or neuro soon! tell the doc you want a second opinion. I have migraines and CH too, and the verapamil helped both for me. You probably don't need both the inderal and verap..sounds very odd to me. HOWEVER you just can't stop either cold turkey. Could be very dangerous all in itself!!! (and I've had craniosacral massage and it felt great, but did not help my CH or my migraines.) Please take care of yourself and know that we are here for you! [smiley=hug.gif] Pf's -lionsound |
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Title: Re: So, it's been known to happen.... Post by kimmiedawn81 on Aug 25th, 2005, 9:35pm Oh, I know that I can't quit cold turkey....that has been bashed into my head. |
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Title: Re: So, it's been known to happen.... Post by lionsound on Aug 25th, 2005, 9:44pm *Phew* glad you replied fast :) I once thankfully got the lecture about that from Broomie.:) |
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Title: Re: So, it's been known to happen.... Post by Opus on Aug 25th, 2005, 9:51pm on 08/25/05 at 20:58:40, kimmiedawn81 wrote:
You can have up to 2 shots a day officially, I believe those can be 2 hours apart. For many splitting shots by 1/2 or 1/3 works great. I split into 1/3 shots That means I can take 6 shots in one day, and you can take 3 in a row and still not exceed the official use amounts. There are rare cases but unfortunately only another CHer can truly understand what living with CH is like. Opus/Paul |
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Title: Re: So, it's been known to happen.... Post by Kim Y. on Aug 25th, 2005, 10:15pm [smiley=hug.gif]Kim I hope that you get help with Neuro. and all. Take heed to what everyone else has said about Imitrex, Verap., Inderal. All mess with your heart in one way or another. In my thoughts and prayers . Kim |
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Title: Re: So, it's been known to happen.... Post by kimmiedawn81 on Aug 25th, 2005, 10:33pm Thank you Kim! And thank you to all of you! I appreciate having all of you here to help me! I just wish we all didn't have to suffer! I am glad that we are all in the fight together though! You guys make a world of difference in my life! You are all amazing! |
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Title: Re: So, it's been known to happen.... Post by Kim Y. on Aug 26th, 2005, 6:25am None of us like this bastard....Excuse the awful phrase. In a group our size and knowing we aren't alone is what makes life worth living. This place will always be my life line. Things will get better. Keep telling yourself that. Right now I know you don't feel that way because I have been there too. We are always here for you Kim call on us any time ok...............IM me if you need someone to talk to k.... PF wishes...................Kim |
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