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        New Message Board Archives >> 2005 General Board Posts >> Interesting Letter From A Former Chronic Sufferer
        
(Message started by: Carl_D on Aug 19^th, 2005, 5:15pm)

Title: Interesting Letter From A Former Chronic Sufferer
Post by Carl_D on Aug 19^th, 2005, 5:15pm

Just been doing more personal research on our malady and I stumbled upon this letter from an Attorney who was chronic for 18 years to Diamond Headache Clinic. I asked Mr Rosenstein his permission to post the link here and he responded kindly. Might be something to think about too, especially if you are chronic and suffer from 'other' pain. This is worth a read.

http://www.medicalnewstoday.com/youropinions.php?opinionid=4917

Peace,
Carl D

Title: Re: Interesting Letter From A Former Chronic Suffe
Post by nani on Aug 19^th, 2005, 5:19pm

If my brain shrinks anymore...I'm in DEEP shit... :-[

Title: Re: Interesting Letter From A Former Chronic Suffe
Post by LeLimey on Aug 19^th, 2005, 5:20pm

Carl do you think it would be okay for me to post this on OUCH UK please?

Title: Re: Interesting Letter From A Former Chronic Suffe
Post by E-Double on Aug 19^th, 2005, 5:23pm

Great letter and kinda scary to be honest

Title: Re: Interesting Letter From A Former Chronic Suffe
Post by Carl_D on Aug 19^th, 2005, 5:31pm

Absolutely Limey. He said he is more than happy to help anyone else who suffers with CH.

Carl

Title: Re: Interesting Letter From A Former Chronic Suffe
Post by Frank_W on Aug 19^th, 2005, 5:34pm

Holy shit.... I've always had phenomenally great eyesight. I'm a "righty." Last cycle, (began in late February) I was reading and briefly rubbed my left eye without my eyes leaving the page. The entire page blurred, so I tried adjusting the distance that I was holding the book at. My right eye has become extremely far-sighted. I need to make an eye appointment but keep putting it off. I really don't need glasses. Yet. It makes me wonder if I haven't somehow damaged the lens of my right eye by grinding my palm into it...

In any case, that was quite an interesting (and frightening) letter.

Title: Re: Interesting Letter From A Former Chronic Suffe
Post by unsolved1 on Aug 19^th, 2005, 5:37pm

I think the dude has a few screws loose too.
Never heard of a shrinking brain due to clusters before.

UNsolved

PS. I bet Dr. Diamond got a big laugh from this letter.

Title: Re: Interesting Letter From A Former Chronic Suffe
Post by Kevin_M on Aug 19^th, 2005, 6:16pm

My brain shrinks when I go in the pool.

Title: Re: Interesting Letter From A Former Chronic Suffe
Post by Jonny on Aug 19^th, 2005, 6:33pm

"The opinion you requested appears below. Please note that any comments expressed below do not reflect the opinions of Medical News Today. "

Nuff said....if they wont back what they print consider it bullshit!

Shrinking brain?.....give me a fucking break!!

Title: Re: Interesting Letter From A Former Chronic Suffe
Post by floridian on Aug 19^th, 2005, 6:58pm

The ideas are worth thinking about, but I am not buying it. Brain shrinkage is probably from prolonged pain, inflamation, or some other biochemical abnormality like reduced blood flow to the brain. There is no evidence that the brain shrinks for the purpose of reducing the area of the brain that causes the problem (hypothalamus or cortex or whatever ). To the contrary, it could be that people with more shrinkage have more problems with the hypothalamus.

But his letter does hold out hope - even people with bad CH can outgrow it or see them reduced over time. And even though it wasn't a scientific study, maybe there is something to it. Who knows?

I am taking the opposite approach - I am going to try to keep my brain from shrinking; everytime I feel it shrinking, I am going to push some more chi up that way. Oh, I think I feel some shrinkage... there, nipped that little one in the bud.

Title: Re: Interesting Letter From A Former Chronic Suffe
Post by Charlie on Aug 19^th, 2005, 7:03pm

Ueli........where are you when we need you? http://www.industreal.spb.ru/smiles/lens.gif?SSImageQuality=Full

No doubt sincere but he seems a tad unhinged--all those headaches didn't help of course.

I'm glad his headaches are better anyway.

Charlie

Title: Re: Interesting Letter From A Former Chronic Suffe
Post by Jonny on Aug 19^th, 2005, 7:10pm

on 08/19/05 at 18:58:05, floridian wrote:

even people with bad CH can outgrow it or see them reduced over time.

I will give you that....after 30 years chronic im sliding into my 31first year half dosing my preventitives....I even went 5 weeks with no meds at all and that is so unheard of with me.

Nowadays, I wake up before it even hits Kip 5 and am able to kill it with 02, I guess what Im trying to say is that I avoid 95% of HA's.....and have been for some time.....Cured?......I doubt it......Happy?.....Wish you were with me on this!

Title: Re: Interesting Letter From A Former Chronic Suffe
Post by Melissa on Aug 19^th, 2005, 7:14pm

Oh great, as if I don't have enough problems! ::)

BTW, the vision thing sucks. My history is already horrid with eyesight problems. I bet I'll be blind before I turn 65. :-/

Anyway, that's an interesting theory, but I've never heard of it before. There are many other chronic brain problems out there and you never hear about brain shrinkage. [smiley=huh.gif]

Title: Re: Interesting Letter From A Former Chronic Suffe
Post by cootie on Aug 20^th, 2005, 12:54am

Interesting article on this crap......dunno wether I believe it or not......I don't beleive everything I read or hear anyhow....also have heard ageing causes shrinkage but doesn't do alot of damage. Yeah rite........whatever.......facts to fret by Pam

http://www.livescience.com/041122_brain_pain.html

Title: Re: Interesting Letter From A Former Chronic Suffe
Post by maffumatt on Aug 20^th, 2005, 1:13am

Makes you wonder if perhaps he is a headbanger, seems to me that after years of that practice it could have the same effect as a boxer...................................

Title: Re: Interesting Letter From A Former Chronic Suffe
Post by nani on Aug 20^th, 2005, 2:30am

on 08/19/05 at 18:16:08, Kevin_M wrote:

My brain shrinks when I go in the pool.

ROTFLMAO, Kev. [smiley=laugh.gif]

Title: Re: Interesting Letter From A Former Chronic Suffe
Post by CHTom on Aug 20^th, 2005, 4:47pm

Maybe he has very long fingers and picks his nose a lot and sometimes goes too far-lawyers!

Title: Re: Interesting Letter From A Former Chronic Suffe
Post by LeLimey on Aug 20^th, 2005, 4:54pm

I posted this on OUCH UK and it raised a point I hadn't thought of which is that Jasper hasn't exactly had a lot of time for brain shrinkage! He isn't the ONLY kid with CH sadly either.

Title: Re: Interesting Letter From A Former Chronic Suffe
Post by Barry_T_Coles on Aug 21^st, 2005, 9:16pm

If pain shrinks the brain I reckon mine is just about to turn into a Void.

Title: Re: Interesting Letter From A Former Chronic Suffe
Post by Callico_Kid on Aug 21^st, 2005, 10:02pm

Could it be the brain shrinkage could be caused by the five meds he was on? Five meds all at one time? What were they, and what dosages?

Interesting theory.

Jerry

Title: Re: Interesting Letter From A Former Chronic Suffe
Post by kimmeesue on Aug 22^nd, 2005, 12:13am

This might explain my kid's referring to my brain as the black hole. ANd here I always thought they meant I was a deep thinker.