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        New Message Board Archives >> 2005 General Board Posts >> At the End of My Rope
        
(Message started by: rickyshot on Aug 8^th, 2005, 6:29pm)

Title: At the End of My Rope
Post by rickyshot on Aug 8^th, 2005, 6:29pm

I am praying to God. I have not felt well all summer. I never know what kind of day I am gonna get. Everytime the pressure changes which is every minute my head bothers me. And it is very strange. Not big on pain not the ice pick but exteme congestion with tearing and not feeling right. I did have pain in my eyes and sinus yesterday a very bad day with nausea. It comes and goes and it is not a sinus infection. My neuro is out of town so I went to ER today for oxygen and IV meds including steroids for the congestion. I am feeling "better" now not so off but I feel the heaviness behind my eyes and a slight shadow. WHAT THE HELL IS THIS. Can you have cluster cycles wo the searing pain but with the congestion, tearing and feeling just plain off and shitty. I have been crying all day. I wish God would just take me back quietly into his kingdom. I am basically alone, my kids are grown and into their lives and if I continue like this I will surely not be able to support myself. I am not supposed to be in cycle this time .

Title: Re: At the End of My Rope
Post by Donna_D. on Aug 8^th, 2005, 6:38pm

Hang in there. We ALL have days like you just described. I'm having one today..weather changing, barometric pressure up and down, feeling like total crap, one side of my nose running, one eye tearing, only a couple of full blown hits today, but then again there is always tonight to look forward to :-/

I guess my point is, you are not alone. You DO have a family here...and we do care. A Lot. A whole lot.

And we love you. Don't EVER forget that.

Times are tough, but clusterheads are tougher.

DD

Title: Re: At the End of My Rope
Post by Jonny on Aug 8^th, 2005, 6:57pm

We have plenty of extra rope if you run out, Babe!

Always!

Title: Re: At the End of My Rope
Post by Melissa on Aug 8^th, 2005, 7:04pm

Oh hon, I am so very sorry. :( The very nature of what we suffer from is unpredictable. It manifests itself when it wants to, and we are caught off guard. I want to honestly tell you, that even though you feel like you want to die right now, that things WILL get better! If you can get through the moment, you can get through the cycle. And remember, if he brings you to it, he'll bring you through it! I truely believe in this. PM me if you ever need to talk or vent.

hugs,
mel

Title: Re: At the End of My Rope
Post by ClusterChuck on Aug 8^th, 2005, 7:17pm

Hang in there girl. We got your back. And even though the kids have flown the coop, they are still there for you too.

Call one of us, if you need to talk in person. Anyone of us would be happy to be a shoulder to cry on.

Chuck

Title: Re: At the End of My Rope
Post by Sandy_C on Aug 8^th, 2005, 7:22pm

on 08/08/05 at 18:29:49, rickyshot wrote:

I am basically alone

No you're not. You've got us.

[smiley=hug.gif] [smiley=hug.gif] [smiley=hug.gif]

Title: Re: At the End of My Rope
Post by unsolved1 on Aug 8^th, 2005, 7:26pm

YOU'RE NOT ALONE !! (sorry I had to yell)

Chin up

PF Vibes headed your way

UNsolved

Title: Re: At the End of My Rope
Post by Frank_W on Aug 8^th, 2005, 7:42pm

Yeah! What Sandy said!! [smiley=hug.gif]

Title: Re: At the End of My Rope
Post by rickyshot on Aug 9^th, 2005, 8:56am

Got a hit in the middle of the nite and it woke me up. Took Maxalt and put an ice pack to my head and it subsided in an hour. I feel so so this am. Mainly nauseaus and diaherrea. Head seems more balanced . Waiting out the rest of the day. Did not go to work.

Title: Re: At the End of My Rope
Post by seasonalboomer on Aug 9^th, 2005, 9:00am

Hang in there ricky. not to sound like your granny, but get a little food in your tummy and try to make a day of it. we know how things feel after a bad night but you'll feel better if you drag yourself into the day and keep yourself intact. shake it off as best you can.

scott

Title: Re: At the End of My Rope
Post by Frank_W on Aug 9^th, 2005, 9:03am

Ricky, hang in there... [smiley=hug.gif] You have my phone number, so gimme a call this evening, if you need some support. As much as you are able, get some rest and pamper yourself. "This too shall pass."

Title: Re: At the End of My Rope
Post by Svenn on Aug 9^th, 2005, 9:06am

Hang in there. We ALL have days like you just described :'( :'( :'( :'(

Svenn

Title: Re: At the End of My Rope
Post by Jasmyn on Aug 9^th, 2005, 9:08am

Ricky, doesn't matter when or where, we are all out here for each other so you will never be alone ever again. [smiley=hug.gif]

Title: Re: At the End of My Rope
Post by alienspacebabe on Aug 9^th, 2005, 9:38am

[smiley=hug.gif]

Title: Re: At the End of My Rope
Post by Ruth on Aug 9^th, 2005, 9:44am

I heard this saying one time, it said when you get to the end of your rope, tie a knot at the end and hang on.
Wishing you a better days ahead!

Ruth

Title: Re: At the End of My Rope
Post by Gator on Aug 9^th, 2005, 9:55am

Hang in there "shawt" one. You'll make it through this one just fine. Remember you have a family here who understands what you are going through and we're here for you.

Hugs for ya. [smiley=hug.gif]

Mike

Title: Re: At the End of My Rope
Post by Langa on Aug 9^th, 2005, 10:15am

I'm so sorry you're having a hard time Ricky...http://bestsmileys.com/comfort/2.gif

You are definitely not alone and we're here for you...

Hang in there lady...be strong....

Prayers and hugs on the way...

Langa

Title: Re: At the End of My Rope
Post by ShariRae on Aug 9^th, 2005, 10:17am

We are all here..you are not alone....not ever...
huggs
Shari

Title: Re: At the End of My Rope
Post by E-Double on Aug 9^th, 2005, 11:52am

[smiley=hug.gif]
We are all stronger than it!!!!!!!!!

Tons of love and hugs.

stay strong

E

Title: Re: At the End of My Rope
Post by sandie99 on Aug 9^th, 2005, 11:57am

I'm so sorry... :'(

Hang on in there... This too shall pass... I pray that it will happen soon. [smiley=hug.gif]

Remember, you're never alone. You've got us.

Best wishes,
Sanna

Title: Re: At the End of My Rope
Post by rextangle on Aug 9^th, 2005, 3:46pm

It sucks being there, but hang on tight!!! :-[

Title: Re: At the End of My Rope
Post by Bethany1 on Aug 9^th, 2005, 5:13pm

Hang on girl.. it will pass... all my prayers and vibes headed your way..

[smiley=hug.gif]

Title: Re: At the End of My Rope
Post by Kim Y. on Aug 9^th, 2005, 5:32pm

[smiley=hug.gif] :'(It saddens me to hear you are hurting so much lately. :-/ It does get better just can't promise you when still trying to figure that out myself.

We 're here for you....................

Title: Re: At the End of My Rope
Post by Cathi04 on Aug 9^th, 2005, 5:46pm

Ricky........hang on, honey! You dont want to give the beast any encouragement. You are a clusterhead...one of the strongest people in the world, and though you are in pain, you WILL get through this!
You have an army of friends around you to help, just reach out..........and then, think of those grown kids who do love you soo much.after all, you raised them!
Here........ ;;Dborrow my smile till yours returns, and keep talking here, would you please?

This, too, shall pass, Ricky!

Cathi

Title: Re: At the End of My Rope
Post by burnt-toast on Aug 9^th, 2005, 7:40pm

You're stronger than that and you know it. Lean on folks here when you need to, we really do understand what this is like. Please don't ever give up, we all need you here too.

God Bless,

Tom

Title: Re: At the End of My Rope
Post by lionsound on Aug 9^th, 2005, 7:51pm

Ricky,

Ricky, when I read your post I saw myself in it. I've had lots of days when pain isn't high, but the other symptoms and emotional drag are way up there.

I hope that you had a better day today. We are here for you ...you are not alone.

Be wel and PF,
lionsound

Title: Re: At the End of My Rope
Post by Charlie on Aug 9^th, 2005, 11:24pm

Nope. You are definitely not alone. Here you are and here we are. http://www.netsync.net/users/charlies/gifs/pat.gif

Charlie

Title: Re: At the End of My Rope
Post by Frank_W on Aug 10^th, 2005, 6:50am

Hope you had a better night, Ricky. [smiley=hug.gif]

Title: Re: At the End of My Rope
Post by Candycane on Aug 10^th, 2005, 6:56am

Ricky,
Hoping you have better days and nights to come soon. Hope you kick the beast ass real good [smiley=hug.gif]

Candycane

Title: Re: At the End of My Rope
Post by clarence on Aug 10^th, 2005, 7:42am

Like everyone else has said, we're all here for you. Praying for your pain, and for you.

Casey

Title: Re: At the End of My Rope
Post by sassy_lady on Aug 10^th, 2005, 8:09am

[smiley=hug.gif] [smiley=hug.gif] [smiley=hug.gif] [smiley=hug.gif]Sending Lots of Love & Prayers !!

Title: Re: At the End of My Rope
Post by rickyshot on Aug 10^th, 2005, 10:57am

OMG y'all are beyond the best :'( Thank you so much. I had a better nite. I had a small hit kip1-2 just before bedtime behind the eyes only. Today my eyes are still burning and I was very nauseated. I went to work because I am concentrating better and more balanced. My boss said I can go home when I want to. We had a clinic this am. My boss said I look much better today. Still in cycle though with shadows only at present.

Title: Re: At the End of My Rope
Post by Frank_W on Aug 10^th, 2005, 11:49am

Fantastic, Ricky. Glad to hear that you're feeling better. :)

Title: Re: At the End of My Rope
Post by rickyshot on Aug 11^th, 2005, 6:38am

Not a good day today. I have a shadow at the usual left side behind my ear with a lot of nausea. Feel sick. My right eye is burning and itching with pain behind it. I never had anything on my right side before except congestion with this. Every nite at 6:00 I get a lot of pain in my right eye, yet is it not red and not drooping. I never had a cycle like this before. I sneeze and it is all over, my head feels like blowing up the whole day. What do you do with a shadow like this. Do I take something or wait for a hit? If I take something like the Maxalt the shadow might go away and that is might but then hours later comes back or a full blown hit. Then more meds. What do I do????? I think these abdominal symptoms and nausea are partly due to the all the Advil I have taken to deal with my eye. I am going nuts. .. :(

Title: Re: At the End of My Rope
Post by Frank_W on Aug 11^th, 2005, 7:17am

Hang in there, Ricky!! "This too shall pass." [smiley=hug.gif]

Title: Re: At the End of My Rope
Post by don on Aug 11^th, 2005, 7:22am

Quote:

What do you do with a shadow like this. Do I take something or wait for a hit?

Try an OTC like Advil or generic ibuprophen.

Title: Re: At the End of My Rope
Post by Melissa on Aug 11^th, 2005, 8:44am

Ricky, for shadows I use naproxim sodium (Aleve). It works very well for me and I don't get rebounds like I do with asprin, tylenol or ibuprofen.

Title: Re: At the End of My Rope
Post by rickyshot on Aug 11^th, 2005, 8:54am

Melissa Thanks I will try one later because I just took two advil which BTW I am bruised all over my arms from this shit plus the IV and needle they stuck in me at the ER. When I go to the neuro this pm I am asking for something to protect my stomache like Diovan from all these meds.