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        New Message Board Archives >> 2005 General Board Posts >> ouch UK in the news
        
(Message started by: maffumatt on Jul 27^th, 2005, 12:56pm)

Title: ouch UK in the news
Post by maffumatt on Jul 27^th, 2005, 12:56pm

http://icwales.icnetwork.co.uk/0100news/0200wales/tm_objectid=15669207&method=full&siteid=50082&headline=what-makes-things-worse-is-being-told-we-have-a-migraine--sinusitis-or-just-a-low-pain-threshold--name_page.html

Title: Re: ouch UK in the news
Post by thomas on Jul 27^th, 2005, 1:06pm

Great article.

Title: Re: ouch UK in the news
Post by LadyElaine on Jul 27^th, 2005, 1:09pm

[smiley=thumbsup.gif] Way to go OUCH UK!

Title: Re: ouch UK in the news
Post by notseinfeld on Jul 27^th, 2005, 1:33pm

Hip-Hip, Hoorah! Right ON OUCH UK!

Title: Re: ouch UK in the news
Post by Frank_W on Jul 27^th, 2005, 1:44pm

WHOO-HOO!!! Congratulations and good show, OUCH UK! :)

Title: Re: ouch UK in the news
Post by alienspacebabe on Jul 27^th, 2005, 2:23pm

Excellent job getting the word out about cluster headaches!

Title: Re: ouch UK in the news
Post by BikerBob on Jul 27^th, 2005, 2:29pm

Nice press, OUCH-UK

"Rumor" - that article is a precursor to an article about CH and mushrooms that will appear in The Guardian Newspaper (UK) within the next few days... stay tuned.

BB

Title: Re: ouch UK in the news
Post by Kirk on Jul 27^th, 2005, 2:55pm

Being chronic, I can definitly see where a neuro regulator would be an almost ideal solution.
[smiley=smokin.gif]

Title: Re: ouch UK in the news
Post by Margi on Jul 27^th, 2005, 2:57pm

Way to go, OUCH UK! Good article. Interesting the comparison about the occurence of CH being the same as MS. I didn't know that! Well done, Val!

Title: Re: ouch UK in the news
Post by LeLimey on Jul 27^th, 2005, 3:45pm

on 07/27/05 at 13:46:41, vig wrote:

good, but...

"She hopes to become one of the few people in the country to benefit from a new treatment where electrodes are implanted in the brain to switch off the pain from attacks."

I think she's WAAAAAAAAAAAY off base on that one.

if there were nothing else that worked, than maybe, but there's just too many better choices.

Vig - Val has tried just about everything. We have two other regular posters to OUCH UK who HAVE had alot of success with the ONSI. Its not something I can bear to contemplate Ill admit but I think Val is a brave lady and she is pushing the boundaries for the rest of us.

This article has been syndicated and will be appearing in 200 local newspapers over the course of the next 4-6 weeks. Howzat for a result for OUCH?!

We have also had a HUGE article in a womans weekly magazine here by our very own Wendy the Brit AKA Pubgirl. I took a couple of copies for Donna when we came to Dallas and there is due to be another big spread on Val in September so we are getting a high profile in the press. I'll keep you all updated of course on both this and how our lovely Val gets on!

Title: Re: ouch UK in the news
Post by LeLimey on Jul 27^th, 2005, 4:11pm

Of course it does silly.. and I will support all of those choices too as well you know!

Title: Re: ouch UK in the news
Post by burnt-toast on Jul 27^th, 2005, 4:23pm

Great article(s) - It's nice to see coverage that attempts to tell the real story of our little nightmare.

Tom

Title: Re: ouch UK in the news
Post by Charlie on Jul 27^th, 2005, 9:54pm

That's nicely done. http://www.netsync.net/users/charlies/gifs/paper read.gif

Thanks Helen.

Charlie

Title: Re: ouch UK in the news
Post by Jasmyn on Jul 28^th, 2005, 2:40am

Great stuff!

Title: Re: ouch UK in the news
Post by LadyElaine on Jul 28^th, 2005, 3:54pm

Thought I would bump this! Its a good thing. Any time something is in the News about Clusters, should be important. OUCH UK being in the news is as good to me as OUCH USA. The point is Clusters are being told about more and more people are hearing about our pain. I have found in the last few years I can say I have clusters and people will say I have heard of that. :) Use to be when I would say I had clusters no one knew what it was.

Title: Re: ouch UK in the news
Post by Kirk on Jul 28^th, 2005, 4:28pm

Bump.

Title: Re: ouch UK in the news
Post by Topical on Jul 28^th, 2005, 5:28pm

on 07/27/05 at 15:45:16, LeLimey wrote:

This article has been syndicated and will be appearing in 200 local newspapers over the course of the next 4-6 weeks. Howzat for a result for OUCH?!

Yup, I've seen this before. It's a fantastic piece. I hope to see more of it and other articles about CH. People need to know including Doctors. I hope someone who was wrongly diagnosed can read it and identify their affliction. That's a big payoff.

Title: Re: ouch UK in the news
Post by Svenn on Jul 29^th, 2005, 3:47am

GREAT WORK

Seems that someone knows what they are doing

Svenn

Title: Re: ouch UK in the news
Post by Carl_D on Jul 29^th, 2005, 4:34pm

That article fricken ROCKED!!!!

I know about 30 people I need to send that to.

Peace,
Carl D