Clusterheadaches.com Message Board (http://www.clusterheadaches.com/cgi-bin/yabb/YaBB.cgi)
New Message Board Archives >> 2005 General Board Posts >> Jonny is gonna kick my ass ...
(Message started by: ClusterChuck on Jul 20th, 2005, 11:17pm)

Title: Jonny is gonna kick my ass ...
Post by ClusterChuck on Jul 20th, 2005, 11:17pm
I know how much he LOVES surveys!!

Anyhow, at one of our outings to terrorize eat a meal, at a restaurant, I came up with something that I thought was interesting.

Tell me what your answers are:

Backround information:
How long have you been a clusterhead?

How long did it take to get diagnosed?

How long, after getting diagnosed, was it till you found ch.com?

Now the real questions:
How long, after you found this site, was it until you posted to the guest book?

How long, after you found this site, was it until you posted to the message board?

To start the ball rolling, here are my answers:

Backround information:
How long have you been a clusterhead?  27 years

How long did it take to get diagnosed?  6 years

How long, after getting diagnosed, was it till you found ch.com?  19 years

Now the real questions:
How long, after you found this site, was it until you posted to the guest book?  I don't think I ever did.

How long, after you found this site, was it until you posted to the message board?  less than 24 hours, I think

Chuck

PS: SCREW you, Jonny!!!   ;)


Title: Re: Jonny is gonna kick my ass ...
Post by Charlie on Jul 21st, 2005, 12:03am
How long have you been a clusterhead?
22 years and 13 PF
How long did it take to get diagnosed?
2 weeks
How long, after getting diagnosed, was it till you found ch.com?
Not very relevant in my case. Found you in 2000
Now the real questions:
How long, after you found this site, was it until you posted to the guest book?
Posted there within a week
How long, after you found this site, was it until you posted to the message board?
Probably two weeks

I love this shit you old fart. Find something Chuck. I'm tired of watching you get hit.   :-/

Charlie

Title: Re: Jonny is gonna kick my ass ...
Post by blossom on Jul 21st, 2005, 12:16am
Backround information:
How long have you been a clusterhead? 8 years

How long did it take to get diagnosed? 7 years

How long, after getting diagnosed, was it till you found ch.com? 6 hours

Now the real questions:
How long, after you found this site, was it until you posted to the guest book? I never did I don't think - I just dove right in.

How long, after you found this site, was it until you posted to the message board? 2 hours


Title: Re: Jonny is gonna kick my ass ...
Post by nani on Jul 21st, 2005, 12:19am
Backround information:
How long have you been a clusterhead?
32 years in Oct
How long did it take to get diagnosed?
26 years
How long, after getting diagnosed, was it till you found ch.com?
about 3 years
Now the real questions:
How long, after you found this site, was it until you posted to the guest book?
I never did
How long, after you found this site, was it until you posted to the message board?
Probably about 6 months

I like polls.   :P

Title: Re: Jonny is gonna kick my ass ...
Post by Jimi on Jul 21st, 2005, 12:25am
      Yes...............I have heard that :P

Title: Re: Jonny is gonna kick my ass ...
Post by nani on Jul 21st, 2005, 12:27am

on 07/21/05 at 00:25:07, Jimi wrote:
      Yes...............I have heard that :P


You have?!?  Damn I thought the stage name would've kept me anonymous. ~ nani...aka  Bubbles LaRue   ;;D

Title: Re: Jonny is gonna kick my ass ...
Post by Carl_D on Jul 21st, 2005, 12:42am
How long have you been a clusterhead?  
18 years

How long did it take to get diagnosed?  
Only a few months. My GP told me I had "classic cluster headaches. They are rare and kind of a bear to treat."  Bear my ASS! More of a dragon!

How long, after getting diagnosed, was it till you found ch.com?  
12 years

Now the real questions:
How long, after you found this site, was it until you posted to the guest book?  
I don't think I ever did either.

How long, after you found this site, was it until you posted to the message board?  
A friend found this site for me, and later that day I logged on and left my first post.

I have to add; when I first found this site, I went straight to my brothers house and showed the site to my sis in law. As she read posts, she started crying and said "I always thought you were exaggerrating how bad these are. If I didn't know any better, I would have thouht you wrote all of those posts yourself."
I have to admit, it was exilharating to find out I was not alone, but it was MEGA EERIE to read the very words I had said for years posted by total strangers.

Peace,
Carl D

Title: Re: Jonny is gonna kick my ass ...
Post by AussieBrian on Jul 21st, 2005, 1:09am
Backround information:
How long have you been a clusterhead?   31 years.

How long did it take to get diagnosed?   15 years.

How long, after getting diagnosed, was it till you found ch.com?  15 years.

Now the real questions:
How long, after you found this site, was it until you posted to the guest book?  Didn't.

How long, after you found this site, was it until you posted to the message board?  1 year.


I'm starting a petition to end all petitions.  Will you sign it?

Title: Re: Jonny is gonna kick my ass ...
Post by maffumatt on Jul 21st, 2005, 7:33am
How long have you been a clusterhead?
7 years
How long did it take to get diagnosed?
7 years
How long, after getting diagnosed, was it till you found ch.com?
24 hours
Now the real questions:
How long, after you found this site, was it until you posted to the guest book?
couple hours
How long, after you found this site, was it until you posted to the message board?
a few more hours

Title: Re: Jonny is gonna kick my ass ...
Post by Frank_W on Jul 21st, 2005, 7:33am

on 07/20/05 at 23:17:26, ClusterChuck wrote:
Backround information:
How long have you been a clusterhead?


8 years.


Quote:
How long did it take to get diagnosed?


6 years


Quote:
How long, after getting diagnosed, was it till you found ch.com?


2 days


Quote:
Now the real questions:
How long, after you found this site, was it until you posted to the guest book?


I didn't.


Quote:
How long, after you found this site, was it until you posted to the message board?


A couple of weeks. I spent that time just reading, downloading documents, printing them off, and crying a little with recognition that other people suffer this condition.

Title: Re: Jonny is gonna kick my ass ...
Post by Rock_Lobster on Jul 21st, 2005, 8:07am
Backround information:
How long have you been a clusterhead? 15 Years

How long did it take to get diagnosed? 4 Years

How long, after getting diagnosed, was it till you found ch.com? The old board... 5+ years?  The new board... 2 years ago?

Now the real questions:
How long, after you found this site, was it until you posted to the guest book?  Never did.

How long, after you found this site, was it until you posted to the message board?  A day or so.

Why did you give up being a porn star?  She say too boo-coo. Too boo-coo.

Title: Re: Jonny is gonna kick my ass ...
Post by ExplodingEyeBall on Jul 21st, 2005, 9:01am
How long have you been a clusterhead? Ever since I can remember.

How long did it take to get diagnosed? I was officially diagnosed a little over a year ago.

How long, after getting diagnosed, was it till you found ch.com? I found ch.com before I was diagnosed. I went to the neuro as a result of reading info here.

How long, after you found this site, was it until you posted to the guest book? I never did. I came straight to the  the lions' den. ;;D

How long, after you found this site, was it until you posted to the message board? Just a couple of days.

Title: Re: Jonny is gonna kick my ass ...
Post by ClusterChuck on Jul 21st, 2005, 9:13am

on 07/21/05 at 01:09:30, AussieBrian wrote:
I'm starting a petition to end all petitions.  Will you sign it?

Only if you include an option to end all polls, too.  Where do I sign??




on 07/21/05 at 08:07:09, Rock_Lobster wrote:
Why did you give up being a porn star?  She say too boo-coo. Too boo-coo.

Ya bonehead!!!  Didn't you read the instructions (in the VERY fine print) ?? ?? ??  That question is on NEXT week's poll ... Sheesh!!

Chuck

Title: Re: Jonny is gonna kick my ass ...
Post by BobG on Jul 21st, 2005, 9:30am
How long have you been a clusterhead?
Hmmmm…….31 years? + or – a couple years.

How long did it take to get diagnosed?
20 years. + or – a couple years.

How long, after getting diagnosed, was it till you found ch.com?
4 years.

Now the real questions:
How long, after you found this site, was it until you posted to the guest book?
20 minutes. That's how long it took for me to do a happy dance.

How long, after you found this site, was it until you posted to the message board?
I don’t remember a message board at that time. It didn’t start until about a week later.

Why did you give up being a porn star?
I haven’t given it up yet. Matter of fact I’m still in porn school. The subject is hard but I’m doing my best to stay up.

Title: Re: Jonny is gonna kick my ass ...
Post by thomas on Jul 21st, 2005, 9:33am
How long have you been a clusterhead? 14 Years

How long did it take to get diagnosed? 3 Years (3 doctor visits)

How long, after getting diagnosed, was it till you found ch.com? 4 years.

Now the real questions:
How long, after you found this site, was it until you posted to the guest book?  I don't think I ever did, just seemed too touchy feely for a big man like me to do.  I really didn't care about sharing my story with a bunch of strangers on the internet about what I had lived with so long with no one but me who understood.

How long, after you found this site, was it until you posted to the message board?  About 3 weeks. (Spent all of that time reading in rapt amazement it was surreal to read people describing what was going on in my head to a tee.)




Title: Re: Jonny is gonna kick my ass ...
Post by Langa on Jul 21st, 2005, 9:38am
How long have you been a clusterhead?
27 years

How long did it take to get diagnosed?
17 years

How long, after getting diagnosed, was it till you found ch.com?
6 years

Now the real questions:
How long, after you found this site, was it until you posted to the guest book?
A couple of hours

How long, after you found this site, was it until you posted to the message board?
2 years…I’m shy… ::)

Langa

Title: Re: Jonny is gonna kick my ass ...
Post by Melissa on Jul 21st, 2005, 9:52am
How long have you been a clusterhead?  14 years

How long did it take to get diagnosed?  5 years

How long, after getting diagnosed, was it till you found ch.com?  5 years (Sept. 2000, within days of Charlie finding it ;))

Now the real questions:
How long, after you found this site, was it until you posted to the guest book?  within 4 hours

How long, after you found this site, was it until you posted to the message board?  within 24 hours

Ya know, I was just thinking...  Those who have never posted in the guestbook, really should.  Who cares if it's been a few years. :-/

mel

Title: Re: Jonny is gonna kick my ass ...
Post by ExplodingEyeBall on Jul 21st, 2005, 9:58am

on 07/21/05 at 09:38:38, Langa wrote:
…I’m shy… ::)


[smiley=spit.gif][smiley=spit.gif] [smiley=spit.gif][smiley=spit.gif][smiley=spit.gif] [smiley=spit.gif][smiley=spit.gif][smiley=spit.gif]
[smiley=spit.gif][smiley=spit.gif] [smiley=spit.gif][smiley=spit.gif][smiley=spit.gif] [smiley=spit.gif][smiley=spit.gif][smiley=spit.gif]
[smiley=spit.gif][smiley=spit.gif] [smiley=spit.gif][smiley=spit.gif][smiley=spit.gif] [smiley=spit.gif][smiley=spit.gif][smiley=spit.gif]
[smiley=spit.gif][smiley=spit.gif][smiley=spit.gif] [smiley=spit.gif][smiley=spit.gif][smiley=spit.gif] [smiley=spit.gif][smiley=spit.gif]

Title: Re: Jonny is gonna kick my ass ...
Post by seasonalboomer on Jul 21st, 2005, 9:59am
Everybody loves surveys...unless it's by phone

How long have you been a clusterhead?
12-14 years
How long did it take to get diagnosed?
I knew right away, my father had CH. Neuro confirmed a few years later.
How long, after getting diagnosed, was it till you found ch.com?
10+ years

Now the real questions:

How long, after you found this site, was it until you posted to the guest book?
don't remember
How long, after you found this site, was it until you posted to the message board?
several years

Title: Re: Jonny is gonna kick my ass ...
Post by Redd715 on Jul 21st, 2005, 10:13am
How long have you been a clusterhead?

15 years at least.

How long did it take to get diagnosed?

14 years

How long, after getting diagnosed, was it till you found ch.com?  

I found it about a week before the diagnosis was confirmed, but the GP had mentioned it along with other possibilities, so I did a search.

Now the real questions:
How long, after you found this site, was it until you posted to the guest book?

Never posted to guest book.  I read alot of it while waiting for the confirmation.

How long, after you found this site, was it until you posted to the message board?

About a week.  Again, I waited to post anything untill the Dx was confirmed.

Title: Re: Jonny is gonna kick my ass ...
Post by Cinder on Jul 21st, 2005, 10:21am
Backround information:
How long have you been a clusterhead? 4yrs  

How long did it take to get diagnosed? 2yrs

How long, after getting diagnosed, was it till you found ch.com?  1yr

Now the real questions:
How long, after you found this site, was it until you posted to the guest book?  never did

How long, after you found this site, was it until you posted to the message board?  about 8 mnths.  [/b][b][/b][b]

Title: Re: Jonny is gonna kick my ass ...
Post by don on Jul 21st, 2005, 10:49am

Quote:
How long, after you found this site, was it until you posted to the guest book?


Guest book?

GUEST BOOK!

FUCK!

I'll be right back.

Title: Re: Jonny is gonna kick my ass ...
Post by echo on Jul 21st, 2005, 11:06am

on 07/20/05 at 23:17:26, ClusterChuck wrote:
Backround information:
How long have you been a clusterhead?  32 years

How long did it take to get diagnosed?  13 years

How long, after getting diagnosed, was it till you found ch.com?  14 years

Now the real questions:
How long, after you found this site, was it until you posted to the guest book?  Same day

How long, after you found this site, was it until you posted to the message board?  less than a hour - old board - jonny, paco and nancyc responded within minutesif memory serves correctly.

Mark


edited because I'm a dork and can't seem to operate the bold sequencing

Title: Re: Jonny is gonna kick my ass ...
Post by pattik on Jul 21st, 2005, 11:57am
 How long have you been a clusterhead?
27 years
How long did it take to get diagnosed?
19 years (then self-diagnosed)
How long, after getting diagnosed, was it till you found ch.com?
I was diagnosed BECAUSE I found ch.com-then a doctor confirmed it
How long, after you found this site, was it until you posted to the guest book?
I'm not sure I ever posted to the guest book
How long, after you found this site, was it until you posted to the message board?
a week--had a conversation with Bob P on the old board

Title: Re: Jonny is gonna kick my ass ...
Post by vig on Jul 21st, 2005, 12:22pm

on 07/21/05 at 11:57:47, pattik wrote:
 How long have you been a clusterhead?
9 years
How long did it take to get diagnosed?
4 years (then self-diagnosed)
How long, after getting diagnosed, was it till you found ch.com?
coupla months
How long, after you found this site, was it until you posted to the guest book?
I never posted to the guest book
How long, after you found this site, was it until you posted to the message board?
a minute or two....  ;;D


Title: Re: Jonny is gonna kick my ass ...
Post by Bob P on Jul 21st, 2005, 2:14pm
How long have you been a clusterhead? 34 years

How long did it take to get diagnosed? 2 years

How long, after getting diagnosed, was it till you found ch.com? 27 years because ch.com wasn't here

Now the real questions:
How long, after you found this site, was it until you posted to the guest book? same day

How long, after you found this site, was it until you posted to the message board? next day

Title: Re: Jonny is gonna kick my ass ...
Post by rextangle on Jul 21st, 2005, 2:26pm
Backround information:
How long have you been a clusterhead? 3Years

How long did it take to get diagnosed? I diagnosed myself at first because I found this website after searching for my symptoms online, then a doctor diagnosed me at Kaiser.

How long, after getting diagnosed, was it till you found ch.com? As I said, found the website first.

Now the real questions:
How long, after you found this site, was it until you posted to the guest book? Never did

How long, after you found this site, was it until you posted to the message board? A couple of months later....

Cheers,
Rex

Title: Re: Jonny is gonna kick my ass ...
Post by Linda_Howell on Jul 21st, 2005, 3:14pm


   and so am I.

  How's it coming with the changing of your screen saver Chuck.   >:(


 Besides I already answered your survey at the restaurant that night.

Linda

Title: Re: Jonny is gonna kick my ass ...
Post by lady_bug on Jul 21st, 2005, 3:30pm
Here goes...

How long have you been a clusterhead?
37 years

How long til diagnosed?
About 20 years

How long after diagnosis til I found ch.com?
35 years

How long to post in the guest book?
Almost immediately

How long until I posted on the message board?
About 10 months






Title: Re: Jonny is gonna kick my ass ...
Post by unsolved1 on Jul 21st, 2005, 3:36pm

How long have you been a clusterhead? almost 17 years

How long did it take to get diagnosed? 2 - 3 years

How long, after getting diagnosed, was it till you found ch.com?  [smiley=huh.gif] 12 years

Now the real questions:
How long, after you found this site, was it until you posted to the guest book? same day I think (Damn Dopeamax)

How long, after you found this site, was it until you posted to the message board?  [smiley=huh.gif] Damn Dopeamax

Title: Re: Jonny is gonna kick my ass ...
Post by Drk^Angel on Jul 21st, 2005, 5:30pm
Backround information:
How long have you been a clusterhead?
At least 18 years

How long did it take to get diagnosed?
At least 13 years

How long, after getting diagnosed, was it till you found ch.com?
Same day

Now the real questions:
How long, after you found this site, was it until you posted to the guest book?
Never did

How long, after you found this site, was it until you posted to the message board?
A few days

PFDAN...................................... Drk^Angel

Title: Re: Jonny is gonna kick my ass ...
Post by saintslair on Jul 21st, 2005, 11:45pm
Backround information:
How long have you been a clusterhead? 27 yrs

How long did it take to get diagnosed? 18 yrs

How long, after getting diagnosed, was it till you found ch.com? 15 yrs

Now the real questions:
How long, after you found this site, was it until you posted to the guest book? Never posted in the guest book

How long, after you found this site, was it until you posted to the message board? one week, spent most of the time reading in disbelief that anyone else was suffering the same pain.

PFNAD to all,
Andy

Title: Re: Jonny is gonna kick my ass ...
Post by DonnaHar on Jul 22nd, 2005, 7:11pm
I am an ex-clusterhead .....for almost 19 years.  Was an active episodic for 28 years, spring and fall for almost exactly 6 weeks each.  I was really looking for any new information for my son who also suffers from  cluster headaches. He was not diagnosed nor properly treated until I found this site about 6 years ago.  He was diagnosed with migraine in the 6th grade, treated with Periactin, and later Inderal.  I believe they turned into full fledged CH when he was 17 by seeing the dramatic increase in his suffering and the tell-tale signs. He is now 33 yrs old.

I was never officially diagnosed as a clusterhead. but was diagnosed as having Hortons Cephalgia (back then).

I never did post in the guest book.

I posted to the message board a couple days after finding this site.




Clusterheadaches.com Message Board » Powered by YaBB 1 Gold - SP 1.3.1!
YaBB © 2000-2003. All Rights Reserved.