|
||
|
Title: I have a little list... Post by AussieBrian on Jul 11th, 2005, 8:56pm Pills, potions and poisons. Treatments, therapies and tricks of trade. What we've tried over the years could make for interesting reading and I'll show you mine if you'll show me yours. |
||
|
Title: Re: I have a little list... Post by ClusterChuck on Jul 11th, 2005, 9:24pm on 07/11/05 at 20:56:00, AussieBrian wrote:
Wait a minute, my zipper is stuck ... Give me a minute, and I'll show you ... Chuck |
||
|
Title: Re: I have a little list... Post by Donna_D. on Jul 11th, 2005, 9:31pm on 07/11/05 at 21:24:16, ClusterChuck wrote:
Probably stuck on a bandaid if I remember correctly.... or was it superglue? DD |
||
|
Title: Re: I have a little list... Post by burnt-toast on Jul 11th, 2005, 9:31pm Extra Strength Excedrin - 1 - 2 dozen a day - Don't know how I survived that stupidity. Prescription Pain Killers - like candy - Don't know how I survived that stupidity either. Cinnamon - The real bark kind - soaked the bark in boiling water and left it brew for days into a strong sweet liquid - would pour some into a mug, heat it and drink it when attacks occurred. At one point I swore it worked but my dilusions didn't last long - haven't used it in years. Currently snortin' Anbesol (actually applying with q-tip) - again I'm at the I swear it works stage - Haven't hit the "it was just another dilusion stage" yet. Modified to include Lithium Verapamil Cafertot Variety of Steroids Melatonin Imitrex O2 Zomig Didn't know you wanted the more legitimate stuff. Tom |
||
|
Title: Re: I have a little list... Post by AussieBrian on Jul 11th, 2005, 9:39pm Ok, from the top............ Ice packs Hot packs Ice and hot packs alternately Prescribed glasses Teeth pulled Aspirin Paracetamol Codiene Paracetamol with codiene Morphine (on prescription, thank you) Valium Caffergot and it's mate Immegran tabs Immegran shots Massage therapy Very serious opiate shots but the name escapes me Hypnosis Denial Psychiatric advice Pacing, jogging, running, swimming Serial head banging Steam baths Horrible shots in the back of my neck to "break the ganglion" Coffee, tea, booze Haven't done the seance thing yet, but will advise. Not that any of it has worked, either, but it's been an adventure. |
||
|
Title: Re: I have a little list... Post by E-Double on Jul 11th, 2005, 9:45pm Some tricks that I used to use and sometimes still do are: *Wrapping a bandana tightly around my skull (be careful) *Filling a sink with scaulding water creating a steam bath and placing my head over it with a towel covering it. *Going from Steam to Frigid shower. *Standing infront of A/C *Icepacks or frozen veggies on the back of the neck or eye *Tons of STRONG coffee. |
||
|
Title: Re: I have a little list... Post by vig on Jul 11th, 2005, 9:46pm I will say it has been one h311 of an adventure.... no doubt |
||
|
Title: Re: I have a little list... Post by Charlie on Jul 12th, 2005, 1:48am Cafergot and Inderal. Some success with the latter. Cafergot was useless. Sitting in the dark with an open window...in winter even. Felt good, didn't work. Absolute silence. Felt good too. The technique I post here did the trick more than 75% of the time. At least it shortened them and now and then killed them very fast. What a deal that was..... Charlie |
||
|
Title: Re: I have a little list... Post by Topical on Jul 12th, 2005, 4:47am Advil gelcaps for normal headaches work great. These are now in my med chest: Verapamil O2 Cafergot These didn't work for CH: Advil gelcaps Tylenol Aspirin Lithium Lidocaine Imitrix (nasal) Maxalt Distractors I've tried: Head beating(not recommended) Cold shower Soaked hair with fan blowing Pinch nerve center Massage Excercise Hyperventilation Digging toenails into soles of feet Sex Ice cubes or frozen dinner (preferably Swanson) :) A leg cramp I got accidentally had during an attack worked best. |
||
|
Title: Re: I have a little list... Post by sandie99 on Jul 12th, 2005, 6:12am Impressive lists, guys! To add some of my own: magnesium (actually abourted 3 attacks in the beginning & I got horrible attacks when I lived few days without it) ice cream (aborted attack once - ch didn't return that day) anadin extra (actually helped with shadows) Naturally there are lots of meds which I have tried, but since they have been mentioned already I didn't want to mention them again. Sanna |
||
|
Title: Re: I have a little list... Post by AussieBrian on Jul 12th, 2005, 6:46am She Who Must Be Obeyed has just returned from work, taken her rightful place within our household, and is currently calling from the kitchen that I must add....... Prednisone Nurofen Lavender oil O2 (of course, thanks Sandie) Tiger balm (kip4 to kip9 within 15 seconds) Milo - a chocolate drink - while confined to protect me from myself. |
||
|
Title: Re: I have a little list... Post by LadyElaine on Jul 12th, 2005, 9:27am Had teeth pulled out (DON'T DO THAT) Don't work Had shock treatment (Don't do that either) Didn't work Hot towels (made it worse) Cold towles ice cold shower hung head off bed think if blood rushed to my head it would stop (did not work) Had Buddy put my head between his hands and mash as hard as he could. Don't do that it worries the supporter ! Hit head on padio floor (Don't do that either) Broke my nose and had a few stiches. meds Verrapamil Norotten (sp) Zomig Melatonin Imitrex shots Hot sause Riding in a car hanging head out the window. Nose in air condition vent Cold shower Sitting in the snow. The hardest thing I did was I gave my self a shot of novacain up under my eyes pain big time( DON'T DO IT) It worked but my whole face felt like I had a stroke for almost a day. The list goes on The things we do ! |
||
|
Title: Re: I have a little list... Post by thomas on Jul 12th, 2005, 9:43am Sudafed Asprin Hot showers Cold showers Pressing my eye into my head with the palm of my hand Cold packs Hot packs Afrin 4way Norgesic Forte Phirenol Hot shower while banging head against cold shower tile Strangulation Pain transferance techniques Imitrex Paxil More imitrex Pills, shots, nasal sprays all imitrex Verapamil Excedrin Migraine. Prednisone Sansert More imitrex DHE IV treatment Oxygen Hmmm more trex Amerge Melatonin (Hallelujah) Magnesium Axert Prozac zomig shrooms Things in bold, I had some mearsurable success with. |
||
|
Title: Re: I have a little list... Post by seasonalboomer on Jul 12th, 2005, 9:50am Just a few of my prouder moments: -Placing face into snow drifts while stumbling drunk -Trying to puke because it makes my eyes -Jumping into very cold pool in winter -Face in air conditioning vent -Looking up into bright lights -Scalding hot water in sink with towel over it (duplicate from e-double) -Snorting Dr. Bronner's Peppermint Soap -Steam room at health club (made worse - very embarassing) -Drinking MORE alcohol -Holding my breath Many would find these lists to be sad and pitiful. Only clusterheads can see the little glints of humor that many of these crazy experiences bring when looking back upon them. (At least I do, anyway.) This forum has allowed me to actually tell some of the crazier ones not only here but to people that know me and laugh. |
||
|
Title: Re: I have a little list... Post by Margi on Jul 12th, 2005, 9:54am Mike's tried so much, too. In the early days before we knew what we were dealing with: Aspirin by the tonne Tylenol Extra Strength Advil Gel Caps Dristan Nasal Spray (decongestant that is addictive and makes things WAY worse) Antibiotic after antibiotic for "sinus infection" ::) Feverfew MRI's and CT scans Sinus draining at the hospital Teeth extraction Hot mustard powder up the nose (do NOT try this at home) Heat (only once. never again) Massage Red Wine (bad idea. very bad) Pot (exTREMELY bad idea. only once.) Toradol Sansert Demerol Imitrex pills then we found this place: welder's oxygen (a Godsend!) water water water (worked very well a couple times, now, not so much) ice (THANK YOU!!) benadryl gravol neo-citran learning to calm down (best defense so far) shrooms (stopped working for him but did change his remission pattern for awhile) 1 month after, he went to a neuro for the first time ever and was prescribed: prednisone imitrex spray verapamil magnesium lithium now his cycles are more than 6 months in duration (I'm convinced, because of these meds). |
||
|
Title: Re: I have a little list... Post by nani on Jul 12th, 2005, 10:13am The ones I remember: Fiorinol Midrin Excedrin Migraine All the OTC NSAIDS Having root canals Having teeth pulled Accupressure Accupuncture Chiropractics massage therapy head banging trying to push my eye back into my head temple pressure ice heat (definitely NOT for me) natural migraine "remedies" Toradol Vicodin Percodan oxygen (aborts about 75% for me) Morphine (at ERs) Neurontin Verapamil lithium melatonin kudzu (something that finally makes a difference for me!) ...and some bizarre treatments that people recommend. |
||
|
Title: Re: I have a little list... Post by Gator on Jul 12th, 2005, 10:45am Alone and in various combinations: Tylenol...........Tylenol Allergy Sinus......Pseudofed Excedrin.........Aspirin.........................Benedryl Ibuprofen.......Naproxen.....................Coffee Demerol..........Percocet.....................Relpax Oxycontin.......Fioricet.......................Tylenol 3 w/Codeine Flexeril...........Skelaxin......................Tylenol PM Temazepam....Halcion........................Sonata Verapamil.......Lithium........................Tegretol Trileptal.........Topomax......................Indomethacin Prednisone.....Melatonin.....................Baclofen Nortriptyline...Oxygen........................Zomig NS Imitrex NS......Imitrex Injections..........Imitrex Tabs Depakote.......Heat...........................Ice Coca Cola......Occipital Nerve Block......Reflexology Massage........Direct Pressure.............Exercise Still no working preventative. Oxygen, Zomig NS, Imitrex Injections, and to a lesser extent Imitrex NS, have worked as abortives. |
||
|
Title: Re: I have a little list... Post by BobG on Jul 12th, 2005, 5:00pm Asprin - didn't help Sansert Ice pack |
||
|
Title: Re: I have a little list... Post by unsolved1 on Jul 12th, 2005, 5:29pm My little list includes: Imitrex tabs, NS, and injections Frovatriptan Maxalt O2 Verapamil Meletonin Lithium Topamax Neurontin Keppra Lamictal Depakote Zyprexa Indomethacin Sansert Methergine Remeron Prednisone Prednisolone Medrol Dose Paks Solu Medrol (IM and IV) Decadron Dex Packs Solu Cortez (IV) Droperidol & Benadryl (IV) DHE 45 (IM and IV) Thorazine Clomid (experimental) Cell Cept (experimental) Nerve blocks: Greater Occiptal block Sphenopalatine block Facet block Histamine Desensitization ;) RFG (Radio Frequency Generator) Bilateral Occipital nerve stimulator 7 day trial Narcotics Stadol IV @ 1-3 mg; Stadol NS 2.5ML; Stadol IM 2mg Demerol IV @ 50 - 75 mg Morphine IV @ 7 mg Actiq Lollipop @ 200 mg & 600mg Valium 10 mg Loritab 5mg, 7.5mg, and 10mg tablets Methadone 10 mg Worst medicines for me: Topamax & Keppra The rest I can't remember !! [smiley=huh.gif] |
||
|
Title: Re: I have a little list... Post by notseinfeld on Jul 12th, 2005, 6:02pm Divining Rods Exorcism Expletives Prayer Group 'Deals' Meditation Yoga Acupuncture (the 6" Nail kind) Prednisone Verapamil Occipital Nerve Block (ONB) Melatonin Xanax All the Triptans Impressive Lists folks! |
||
|
Title: Re: I have a little list... Post by E-Double on Jul 12th, 2005, 7:47pm I forgot to add..... When I first ccame to this site prior to meds I read about someone sniffing amonia.....So I did..... DO NOT DO THIS!!!!!! also best defense has been the helmet! http://ed3.photosite.com/~photos/tn/272_348.ts1105810524921.jpg |
||
|
Title: Re: I have a little list...Imitre Post by JDH on Jul 12th, 2005, 8:14pm In no particular order: 'shrooms (aka the beast slayer) O2 (I was doing back flips the 1st time it worked!) Imitrex injection & ns Prednisone Civamide (that's some rough stuff) Lithium Verapamil Caffergot Feverfew Magnesium Melatonin Stadol ns (probably THE nastiest thing I've tried) Fioricet w/codeine Percodan Percocet Name an OTC drug and I've tried it Hot & cold showers Holding my head out of the car window like a friggin' dog Ice, ice, and more ice!!! Alcohol (it took me a long time to figure out that it was a big time trigger...duh me, I actually used to try to out drink the beast) Weed Grrrrrrrrrrr!!! and if the prick doesn't stop messing with me I guess I'll be trying my new Zomig script that I had filled last week >:( Jim |
||
|
Title: Re: I have a little list... Post by Topical on Jul 12th, 2005, 8:18pm on 07/12/05 at 18:02:50, notseinfeld wrote:
What, no Voodoo? [smiley=laugh.gif] I was curious about meditation. I see those guys walking of fire and glass and wonder if the control of pain would be easier. |
||
|
Title: Re: I have a little list... Post by nani on Jul 12th, 2005, 11:05pm on 07/12/05 at 09:50:06, seasonalboomer wrote:
I was thinking about that story the other day while getting hit. (I forgot it was you, LOL) I would've given someone $1000.00 to point me in the direction of a snowdrift that day. ::) edited to add: I was having a hot flash and getting hit at the same time. |
||
|
Title: Re: I have a little list... Post by hdido on Jul 12th, 2005, 11:10pm Dilaudid and Actiq work for me; going back on Lamictal-I'm chronic, had a one year remission after being on Lamictal for 6 months, stayed on L for about 6 months after the CH returned, no results/after 3 1/2 years of being chronic again, my neuro suggested giving the Lamictal a try again....not sure if it was a factor in the remission, but since it had no adverse side effects, willing to give it a shot again. Sex also helps, but I don't get enough. |
||
|
Title: Re: I have a little list.. Post by notseinfeld on Jul 12th, 2005, 11:28pm Knew I was missing one and TOPICAL provided the answer: Voodoo! Now, where'd I put that Bill Clinton doll...... |
||
|
Title: Re: I have a little list... Post by Barry_T_Coles on Jul 13th, 2005, 12:30am Its no wonder the pharmaceutical companies are doing so well with us lot around. Havn't tried the hard meds but have used off the shelf pain killers by the bucket load that proved about as usefull as a plane without wings. My favourite is my faithfull TENS machine to hit the ganglion lump. Next time I get hit with the CH I am definately going for the 02. But I reckon Aussie Brian has the best fix that he isn't letting on about, take a look at the place he has to put up with having to live. http://www.ozoutback.com.au/postcards/postcards_forms/tsi_dauan_boigu/ Kind Regards Barry |
||
|
Title: Re: I have a little list... Post by Topical on Jul 13th, 2005, 12:58am Was this one of the things Barry? "New Blue Emu Oil" http://www.tvproducts4less.com/emu-oil.html I was getting some meds and saw it worked for headaches. Tempting, but I put it back. |
||
|
Title: Re: I have a little list... Post by Barry_T_Coles on Jul 13th, 2005, 1:52am You never know! Throw away the contents, fill the container with concrete and wait untill set and crack yourself on the head as hard and as long as you wish. No sure fix but anything is worth a try ONCE. Kind Regards Barry |
||
|
Title: Re: I have a little list.. Post by sandie99 on Jul 13th, 2005, 3:13am on 07/12/05 at 23:28:50, notseinfeld wrote:
[smiley=laugh.gif] |
||
|
Title: Re: I have a little list... Post by StressFree on Jul 13th, 2005, 3:23pm In order, somewhat useful things in bold - very useful with smiley: Tempromandibular Joint Treatments TENS electrical stimulation (helped to relax muscles) Muscle relaxants (helped for a short time) Mouth Piece All Wisdom Teeth Pulled Vision Checked Told to get allergy screening (never did) Variety of pain pills (quit working after tollerance) Variety of street drugs Alcohol (definately made things worse) All manner of Over the Counter stuff After seeing headache specialist: Verapamil (broke chronic cycle, didn't help next cycle, now this cycle helped a lot) :) Prednisone (would get smiley, but nasty drug) Caffergot PB (PB=pentobarbital) Maxalt (so far better than caffergot) :) Meprobamate (anti-anxiety agent that seemed to ward off cluster cycles) Stadol NS (not a pleasant pain drug, but somewhat effective) Oxygen (seemed to cause multiple-attacks) Imitrex (definately caused mucltiple-attacks) Lidocaine in nose (multiple attacks) Cold packs to back of head and neck (sometimes helps) Running head under cold water Head in Freezer, breathing cold air Massage of temples, jaw, and neck (sometimes helps) Much Prayer :) |
||
|
Title: Re: I have a little list... Post by seasonalboomer on Jul 13th, 2005, 3:44pm on 07/13/05 at 15:23:05, StressFree wrote:
great list! I forget about much prayer. Except I'm not sure if pleading counts. I think during my last few cycles, in the throws, my plea was, "God, if you're going to make my fucking head explode during one of these fuckers, do it now." |
||
|
Title: Re: I have a little list... Post by AussieBrian on Jul 15th, 2005, 11:46pm The list so far, and this is just what we've taken! More later about what we've tried.......... Excedrin, Cinnamon, Anbesol, Lithium, Verapomil, Cafergot, Melatonin, Immitrex, O2, Zomig, Aspirin, Paracetamol, codiene, Morphine, Valium, Immegran, Inderal, Advil, Tylanol, Lidocaine, Imitrix, Maxalt, magnesium, Anadin, Prednisone, Neurofen, Lavender oil, Noroton, Zomig, Sudafed, Hotsauce (nasally), Afrin, 4Way, Norgesic forte, Phiranol, paxil, sansert, DHE IV, Amerge, Axert, shrooms, Dristan nasal, Prozac, antibiotics, feverfew, hot mustard (nasal), red wine, pot, Toradil, Demeril, welder's O2, water, ice, Gravol, neo-citran, Fiorinal, Midrin, accupuncture, Vicodin, Percodan, Neurontin, kudzu, Ibuprofen, Oxycentin, Flexeril, Temazepam, Verapamil, Trilyptal, Nortrypalene, Depahot, Coca cola, Naproxem, Percoset, Fioricet, Scelaxin, Topomax, pseudofed, Benadryl, coffee, street drugs, relpax, sonata, Tegratol, Indomethacin, Balcofen, methadone, Xanax, Civamide, Frovatriptan, Keppra, Lamictal, Zyprexa, Methergine, Remeron, Prednisolone, tea, Medrol, Solu medrol, Decadron, Dex packs, Solu cortez IV, Droperidol, Thorozene, Clomid, Cell cept, Stadol, Actiq lollipop, Loritab, alcohol, Meprobonate, Ultram, Tegratol, valporic acid, Lexapro, Reglan, Amitriptriptalye, Aderall, Dilantin, methysergide, Elival, Vicodin, Corgard, Ritalin. Anyone else feeling a little like a lab rat? |
||
|
Title: Re: I have a little list... Post by Kiwiinoz58 on Jul 17th, 2005, 8:54pm Wow guys, what haven't you tried in the way of meds?? Before being diagnosed corrrectly I tried the usual gambit of sinus meds etc. Now on Verap, Melatonin & Imigran inj only. Two others I tried were Pethedine inj & Mersyndol Forte to no avail. A hot water bottle on my temple sometimes convinces me it's helping [smiley=laugh.gif] but to be honest the frustration and pain causes me to spend a lot of time crying like a bloody big kid!! PF days are like miracles, so wishing them to all of you. Cheeers, Jacqs |
||
|
Title: Re: I have a little list... Post by AussieBrian on Jul 18th, 2005, 8:14am on 07/17/05 at 20:54:39, Kiwiinoz58 wrote:
Thanks for that, mate. Bit of a reality check there. Truth is that this is but a taste of it and there's plenty of other drugs, poisons and invasive measures missing from the little list. I've also done some serious compilation on the list of other 'therapies' we've variously tried over time and the fact is, it's bloody scary. Medieaval. Witchcraft, hocus pocus and much of it outright dangerous! My concern is that some new-chum sufferer finds this place, stumbles upon what we've tried in the past, and somehow thinks they must go through all this themselves looking for their own special cure. (Snorting hot mustard powder???) I think this a fine time to bid farewell to this thread before it does more harm than good. R.I.P. |
||
|
Clusterheadaches.com Message Board » Powered by YaBB 1 Gold - SP 1.3.1! YaBB © 2000-2003. All Rights Reserved. |