Clusterheadaches.com Message Board
        (http://www.clusterheadaches.com/cgi-bin/yabb/YaBB.cgi)
      

        New Message Board Archives >> 2005 General Board Posts >> Re: a little relief for cluster headache
        
(Message started by: AussieBrian on Jul 10th, 2005, 6:29am)
Title: Re: a little relief for cluster headache
Post by AussieBrian on Jul 10th, 2005, 6:29am
G'day, Duerrs, and welcome aboard.

Glad you've something, anything, that works for you.  But tell me, what's a sinus buster?  If they're any good I'll buy a dozen myself!
Title: Re: a little relief for cluster headache
Post by Jonny on Jul 10th, 2005, 6:36am
Hot tea?......You dont know what a fucking CH is do you ass-hole?

Get out your sticks, its pokin time ;;D
Title: Re: a little relief for cluster headache
Post by AussieBrian on Jul 10th, 2005, 6:45am
Hang on, Jonny, he may be on to something so good we'll all buy shares in the company.
Title: Re: a little relief for cluster headache
Post by vig on Jul 10th, 2005, 7:54am
good luck....
:P
i guess it would be better than drano, but not much else.  Skip it and save your money.

(another poorly veiled sales attempt, IMHO)

oh, and leave Jonny alone...
Title: Re: a little relief for cluster headache
Post by don on Jul 10th, 2005, 7:54am
Tea does work.

I lie down in a dark quiet room with a wet towel on my head. I do not breath thru mouth or nose. I have learned to take oxygen through my ears. Sometimes I listen to Gregorian Chants.

Then I take the boiling hot tea and pour it on my groin. Doesnt eliminate the CH but definitely distracts from the head pain.

Gregorian Chant CDs are less than $19.00.
Title: Re: a little relief for cluster headache
Post by don on Jul 10th, 2005, 8:09am

Quote:
i hope he comes back


Gregorian CDs $19.00
Sinus busters $19.00
Box of tea bags $5.00

When Jonny comes back........PRICELESS

LMMFAO!
Title: Re: a little relief for cluster headache
Post by vig on Jul 10th, 2005, 8:14am
by the way...
did anybody else notice the S/B ad appearing at the bottom?

"No More Cluster Headaches
Natural Pepper Nasal Spray Works
A Guaranteed Cluster Free Christmas"

guaranteed?
fraudulent claim, IMHO
Title: Re: a little relief for cluster headache
Post by DonnaHar on Jul 10th, 2005, 8:16am
I've finally found my gold mine.........

dj......let's sell log-ons to this thread and split the money because I thought of it and the site belongs to you.

don got it really right this time.......priceless!
Title: Re: a little relief for cluster headache
Post by Redd715 on Jul 10th, 2005, 8:22am

Quote:
When Jonny comes back........PRICELESS


Just what we need ...and just in time for convention...

Let the games begin....!!
Title: Re: a little relief for cluster headache
Post by AussieBrian on Jul 10th, 2005, 8:22am

on 07/10/05 at 08:16:10, duerrs wrote:
i honestly think its johnny that does not know what a ch is...........       oh by the way, i hope johnnys headaches are chronic


Remarkable!  Not only does this man have a cure for us, but he'd wish CH  upon somebody else.

Surely a contradiction in terms.

But then, anyone picking on Jonny can't be all bad.  
Title: Re: a little relief for cluster headache
Post by vig on Jul 10th, 2005, 8:24am

on 07/10/05 at 08:16:10, duerrs wrote:
by the way, i hope johnnys headaches are chronic


a pox on your house.


send DJ your $19 bucks, it'll be better spent.
Title: Re: a little relief for cluster headache
Post by Grandma_Sweet_Boy on Jul 10th, 2005, 8:25am

Quote:
Gregorian CDs $19.00
Sinus busters $19.00
Box of tea bags $5.00

When Jonny comes back........PRICELESS


Oh hell, I'd pay to see this one!


Quote:
oh by the way, i hope johnnys headaches are chronic


Anyone who would wish this on another human being truly has no idea what CH is all about.   You are a complete and total a$$hole!
Title: Re: a little relief for cluster headache
Post by DonnaHar on Jul 10th, 2005, 8:26am
Dear duerrs:

You will have a very hard time convincing anyone on this site that tea will stop a ch, but if it works for you, God bless you.  Others have come here with remedies that they feel works for them and do not work for anyone else.

It would be most interesting if we had some history of what you have tried, in the line of medications, and if you've actually been diagnosed with CH.

Have you read our site, and taken the cluster quiz?

If you do indeed have CH, you are in the right place and just need to get to know a little about the history of other clusterheads, what we've gone thru to get a proper diagnosis and all of the agony with medications, caffiene, water, ice, heat, pepper, shrooms, over-the-counter, under-the counter and a million other things we've tried.  We've walked thru suicides crisis' with our friends, and have even lost a few.

This site has been here for over 6 years and many thousands of clusterheads have been through here, so we really do have a handle on this thing.

Don't leave if you truly have ch,  no matter what.  Just do a little reading, get to know us, and then venture out into the message board.
Title: Re: a little relief for cluster headache
Post by duerrs on Jul 10th, 2005, 8:32am
i have tried prednazone, verapamil 120mg (currently taking)  seems to break the cycle after about a week but this is the first time i'm taking it at the begining of the cycle.  i usually don't go to the doctor till i cannot stand it anymore (lack of sleep does tend to get on ones nerves).  i have a scrip for an oxygen tank, i was at the oral surgeon during an attack once and 10 minutes after they put the oxygen mask on my face the pain went away, i never had access to oxygen before so i can't say that it helped or was the headache going to end anyway.  
Title: Re: a little relief for cluster headache
Post by duerrs on Jul 10th, 2005, 8:34am
what is the deal with tea, why is it so outrageous that it could work.  the heat opens up the sunus but unless you try it you won't know will you?  
Title: Re: a little relief for cluster headache
Post by AussieBrian on Jul 10th, 2005, 8:36am

on 07/10/05 at 08:27:01, duerrs wrote:
i've actually said that i would not ever wish this pain on my worst enemy..........      remember, i'm not the one that started this crap



Errr, wrong on both counts.
Title: Re: a little relief for cluster headache
Post by vig on Jul 10th, 2005, 8:38am
perhaps you have a sinus headache...
Title: Re: a little relief for cluster headache
Post by DonnaHar on Jul 10th, 2005, 8:41am
duerrs:

Verap. and O2 are a combination that work for a lot of people here, but the doseage of the Verap. is usually quite a bit higher.

Since I do not use it, I won't make a recommendation about dosage, but others here will if you discuss it.
Title: Re: a little relief for cluster headache
Post by Redd715 on Jul 10th, 2005, 8:43am

Quote:
3 cups,  sometime less.  make it as hot as you can stand, take a sip and leave it at the back of your throat


with this method, it would be a safe bet that the attack resolved itself in the time it would take to sip sip sip away 3 cups of tea...
Title: Re: a little relief for cluster headache
Post by Kevin_M on Jul 10th, 2005, 8:44am

Quote:
leave it at the back of your throat for a few seconds then swallow.
I've seen this technique berfore.

avoid breathing thru your nose, sometimes i find that when the headache john is coming, if i stop breathing thru my nose and only breathe thru my mouth, the headache john will go away almost right away
Now it makes sense.  Yes, they do leave right away afterwards.

i'm not sure if that would work but for 19 dollars
And you charge a dollar less than what it goes for on Eight Mile Rd.  Smart business.

go to johnnys webpage where it says mean people suck,
Your words used to Jonny make him sound so prophetic too.
Title: Re: a little relief for cluster headache
Post by don on Jul 10th, 2005, 8:46am

Quote:
i hope johnnys headaches are chronic


Can you spell Moron backwards? If you can then do so in big block letters and go stand in front of your bathroom mirror and hold up the sign.
Title: Re: a little relief for cluster headache
Post by don on Jul 10th, 2005, 8:52am

Quote:
hence my don't use coffee


So how is the GED coming along?
Title: Re: a little relief for cluster headache
Post by DonnaHar on Jul 10th, 2005, 9:03am
duerrs, read the instant message that I sent you a while ago.

There is NO survival rate on this board for anyone who attacks Jonny, or any other family member, and by the way, he is already chronic.

I'd hate to see you leave because you have convinced me that you do have cluster headaches....you just started on the wrong foot.
Title: Re: a little relief for cluster headache
Post by don on Jul 10th, 2005, 9:11am

Quote:
There is NO survival rate on this board for anyone who attacks Jonny


Well now thats not totally accurate. Statistically anyway.

I'm still here!  8)
Title: Re: a little relief for cluster headache
Post by duerrs on Jul 10th, 2005, 9:21am
i am sorry for johnny being chronic but why does everyone have to bust my balls, i honestly do use the tea, and it does help me, why would i even be on here if i did not suffer like most of you
Title: Re: a little relief for cluster headache
Post by don on Jul 10th, 2005, 9:31am

Quote:
i'll come and shove that pirate flag up your ass for real



Quote:
aussie, go to www.sinusbuster.com.



Quote:
i hope johnnys headaches are chronic



Quote:
Posts: 5


xxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxxx


Quote:
why does everyone have to bust my balls


Damned if I know.
Title: Re: a little relief for cluster headache
Post by duerrs on Jul 10th, 2005, 9:33am
two questions, #1.  what the hell did i say to convince you that i'm for real.  #2 and this one is a serious question for johnny, have you always been chronic, cause i don't know what the heck i'd do if i had to go thru this hell every day of my life, its bad enough dealing with it for 6 weeks at a shot
Title: Re: a little relief for cluster headache
Post by duerrs on Jul 10th, 2005, 9:34am
don, did you read his first message to me?????
Title: Re: a little relief for cluster headache
Post by duerrs on Jul 10th, 2005, 9:35am

on 07/10/05 at 06:36:15, Jonny wrote:
Hot tea?......You dont know what a fucking CH is do you ass-hole?

Get out your sticks, its pokin time ;;D



just in case you didn't
Title: Re: a little relief for cluster headache
Post by don on Jul 10th, 2005, 9:35am

Quote:
what the hell did i say to convince you that i'm for real.


Nothing. LMAO.
Title: Re: a little relief for cluster headache
Post by duerrs on Jul 10th, 2005, 9:38am
and does anyone recall me asking you all to go to sinusbusters, no, i was only answering aussies question, i said i was going to try it, its probably bullshit but for the 19 bucks, "i'm going to give it a try" that does not mean you have to.
Title: Re: a little relief for cluster headache
Post by don on Jul 10th, 2005, 9:39am
I'm going to stop now. You'll need your energy for later today.

Trust me. LMAO!
Title: Re: a little relief for cluster headache
Post by DonnaHar on Jul 10th, 2005, 9:40am
Can we cut this guy a little slack now?  He got off on the wrong foot just like some of the rest of us.  He'll learn as he goes.
Title: Re: a little relief for cluster headache
Post by duerrs on Jul 10th, 2005, 9:52am
i didn't come here to get into a pissing match with anyone but i take offense when someone says i don't know what i'm talking about. i'm not a salesman i assure you all that.  did i tell johnny that he does not know what he is talking about......well, maybe i did but that was after his remark to me. a simple "tea does not work for me" would have been a little nicer, i was only trying to help so i apologize to everyone for sounding like a salesman and for attacking johnny but you left me no choice.  if you want to attract people here johnnys comment does not help matters, i agree he has me beat in the duration department he is 9 years longer than me but i'm sure that all our pain is equaly as shitty and as for my spelling, it will get much better once i get more then 2 hours consecutive sleep
Title: Re: a little relief for cluster headache
Post by Ueli on Jul 10th, 2005, 10:25am
I think we should start a raid on Wayne Perry of sinusbuster.com, the drummers he's sending to this site get less and less informed about CH but at the same time more and more rude.

Someone, who within 10 minutes of registering starts to plug sinusbuster, is highly suspicious, to say the least.

Duerrs, if you are a genuine clusterhead, I recommend that you read (and then comply with) the second page on this site: http://www.clusterheadaches.com/newvisitors.html

Then come back with a new identity. If you then refrain from attacking people and plugging snakeoil, you will learn a lot how to deal with cluster headaches.

[smiley=smokin.gif]
Title: Re: a little relief for cluster headache
Post by duerrs on Jul 10th, 2005, 10:28am
i dont need your help with ch, i've been dealing with it for the last 20 years
Title: Re: a little relief for cluster headache
Post by don on Jul 10th, 2005, 10:46am

Quote:
i dont need your help with ch


Then just sign off tough guy.


Quote:
don, did you read his first message to me?????


Speaking of which. What happened to your first post? Seems to be gone.
Title: Re: a little relief for cluster headache
Post by Bethany1 on Jul 10th, 2005, 10:59am

on 07/10/05 at 10:28:31, duerrs wrote:
i dont need your help with ch, i've been dealing with it for the last 20 years



[smiley=nopity.gif]
Title: Re: a little relief for cluster headache
Post by gore2424 on Jul 10th, 2005, 11:11am
hello Duerrs and sorry you have cluster headaches too I say everyone needs help when they have clusters
and you have the right to try anything to help fight off the beast when I  had clusters first back 23 years ago and family Dr. didnt know nothing about them I used to take the old formula sinn-off (a sinus medacine) which made you drowsey and I also drink beer put me out for awhile at night but then that hangover headache plus clusters wasnt worth it I have tried 67 different meds in different combos from 1999 (when I became chronic) (17 years before that spring and fall only) thur 2003 when I got on my current meds doing ok now ok I rambled off again guess just wanted to say try anything you like and please read on here and learn many other med and o2 and such plus wanted to ask you if you see a neuro? Terry
Title: Re: a little relief for cluster headache
Post by don on Jul 10th, 2005, 11:16am

Quote:
you have the right to try anything to help fight off the beast


Yeah. What Gore says.

Try vibrating glasses soaked in Lavender oil while sipping the tea.
Title: Re: a little relief for cluster headache
Post by duerrs on Jul 10th, 2005, 11:57am
hey gore, some of the guys in here are not a very nice persons, pardon my french.  i am under the care of a neurologist, there are some things i think are connected to this but no doctor can be sure, i have also been to ent's and they say that it could be caused by a deviated ceptum but i'm not so sure, i don't want to go thru that operation for nothing or worse, have it change on me, i'm not chronic, i get about an 11 month break between clusters.  does anyone ever have it switch sides (not in the same cycle) once im in cycle it stays on the same side till they are gone, my next cycle (again, 11 months later) it may be on a different side.  I started out with 3 month breaks in pain and the longer this goes on seems like i'm getting a longer break i'm up to 11 months for the last 4 years.  oh, the reason everyone is so hard on me in here is that i made the mistake of buying some shit which is advertised on here, it's probably bullshit like everyone says, i wish i would have posted before buying but as anyone knows, when your head hurts like this you would do anything for relief, i would never think of not using the imitrex but my company just switched insurance and the imitrex now costs me 150 for 5 days worth, i'm trying to find an alternative, for the records, stay away from sinus blaster or whatever that shit is, its not worth all the aggrivation and flack.....lol
Title: Re: a little relief for cluster headache
Post by nani on Jul 10th, 2005, 12:10pm
Mine have switched sides now and then. A lot of us went through the misdiagnosis stuff. Sinus problems, TMJ, bad teeth....
find a neuro who is knowledgeable about CH, then you can get an accurate diagnosis. Look here for drs recommended by state:
http://www.clusterheadaches.org/doctors.htm

Good luck and pain free wishes, nani
Title: Re: a little relief for cluster headache
Post by purpleydog on Jul 10th, 2005, 12:20pm
Duerrs, here's some advice for you. First of all, Ueli gave you some excellent advice.

Quote:
Duerrs, if you are a genuine clusterhead, I recommend that you read (and then comply with) the second page on this site: http://www.clusterheadaches.com/newvisitors.html

Then come back with a new identity. If you then refrain from attacking people and plugging snakeoil, you will learn a lot how to deal with cluster headaches.


Go to the links to the left, and READ, READ, READ. Go to the Medications board, go to the CLuster specific board, and READ. Use the search feature of this website, and READ.

THEN, if you have any questions, ask away. Most of us have been dealing with this for years and years. If you are serious about wanting help with these fuckers, then consider this.

You may have had these for 20 years, but I really don't think you want to deal with them alone anymore. That's why yer here, right?

Just be very careful about coming here and pushing any one treatment, or "cure". We have heard it all before, and we know there is no cure. We've heard of all the treatments. If it works for you, then great. Just be aware that a lot of that stuff doesn't work for us, and you pushing it on us will not help. And I'm sure after trying treatment after so-called treatment from yer dentist, chiropractor, energy wave specialsit, acupuncturist, nutritionist, and the multitude of other "medical" pro's who scam money from you for "treatment", you will see just where we are coming from.


And BTW. I hope to hell you kill your CH forever, and never get another headahce.
Title: Re: a little relief for cluster headache
Post by jimbo on Jul 10th, 2005, 12:29pm
I just figured something out from this post!

If CH's switch sides from time to time, It must mean that they are of French origin. ;;D ;;D

Seeya,

Jimbo
Title: Re: a little relief for cluster headache
Post by Kirk on Jul 10th, 2005, 12:38pm
Well you got off to a bad start alrite. I tried Sinus Buster a few years ago. It did clear up my sinus passages. Did'nt do shit for my CH though.
Go to the left side of this page and read up. After that lets see if we can't help each other.
I've had these suckers since May 69 and been chronic since March 2000. O2 and Imitrex Stat Dose injections are what keeps things more or less under control for me.
I think you will be well served if you print out the O2 info and take it to your neuro.

Lottsa luck ya poor sap. [smiley=smokin.gif]
Title: Re: a little relief for cluster headache
Post by duerrs on Jul 10th, 2005, 12:43pm
i'm not going to change my name, i don't see the point in doing that cause your all going to figure out that its me when i tell you that my name is steve and i have had these for 20 years.  it does not take a rocket scientist to see that.  i was not pushing any cure or relief, i was only saying what works for me and i blame you guys for the sinus buster, i have seen that stuff before and thought it was bs untill i came here and saw the ad at the bottom of this very page. that's when i ordered it (about 5:45 this morning).  if johnny ever comes back and reads this, i want to say that i take back everything i said to him, i do feel bad but i didn't think he had a  right to call me an a-hole, if you think i'm full of crap just ask me questions, if i'm lying i will get caught right?????  all i know is that from now on, if i do find something that works i'm not going to post it right away, everyone in here has shown me not to post any suggestions.  i'm not here that often anyway, i think the last time i was here was like 2 years ago and i did not post anything (thank god for that).  well, to johnny and everyone else that reads this, i hope someone does find a cure for this and a real one (i'm not holding my breath) cause i'd be the first to buy it for everyone.

steve
Title: Re: a little relief for cluster headache
Post by maffumatt on Jul 10th, 2005, 12:45pm
very respectable.......stick around.......
Title: Re: a little relief for cluster headache
Post by BobG on Jul 10th, 2005, 12:49pm

Quote:
i hope someone does find a cure for this and a real one (i'm not holding my breath) cause i'd be the first to buy it for everyone.

Thanks for the offer Steve. I'm a cheap SOB and I'll let you buy me stuff.
My Cadilac dealer told me about something called an STS. It probably won't "cure" clusters but it would make me feel a lot better.
Stick around and let us know how you're doing.
Title: Re: a little relief for cluster headache
Post by nani on Jul 10th, 2005, 12:49pm
Hi Steve, a cure may be a long time out...but there are treatments that work for us. Everyone is different though, so there isn't one "magic bullet".
Read, read, read....you'll find one that works for you.  :)
Title: Re: a little relief for cluster headache
Post by duerrs on Jul 10th, 2005, 12:53pm
funny you mention an sts, i know it won't cure ch but i do work for a car dealership, going to head out to the grocery store, i just want to get back in time before the next ch.  thanks everyone.  i'm also going to e-mail johnny and apologize to him personaly when i get back.
Title: Re: a little relief for cluster headache
Post by maffumatt on Jul 10th, 2005, 12:59pm
Dont apologize, he will see it as a sign of weakness and attack, I think he is part mad dog.......
Title: Re: a little relief for cluster headache
Post by Chillrmn1 on Jul 10th, 2005, 1:30pm
"I think he is part mad dog"....... with rabies.... LOL!

Jonny's a cool dude, just takes awhile to figure it out!
Title: Re: a little relief for cluster headache
Post by duerrs on Jul 10th, 2005, 1:33pm
damn, with friends like that, who need enemies.....lol
Title: Re: a little relief for cluster headache
Post by Jonny on Jul 10th, 2005, 1:35pm

on 07/10/05 at 12:53:47, duerrs wrote:
 i'm also going to e-mail johnny and apologize to him personaly when i get back.


Subject: your a moron

 
what the fuck makes you an expert on cluster headaches not a very nice person, yea tea, works for me, and i hope nothing at all works for you, you piece of shit, by the way, i cannnot wait to put your e-mail address on every spam list i can think of, have a great day not a very nice person and thanks for being a jerkoff and posting your real e-mail address.

Man!, thats one hell of an apology...LMAO ;;D

Who here will be next to go the spammers lists when teabag boy gets pissed?
Title: Re: a little relief for cluster headache
Post by duerrs on Jul 10th, 2005, 1:36pm
dude, check the time, that was from this morning
Title: Re: a little relief for cluster headache
Post by duerrs on Jul 10th, 2005, 1:38pm
by the way, i didnt spam anyone, i thought better of that, i was just a little pissed but i waited, that would not be cool, after all, we are all in the same boat right, sorry i got so mad before, you just caught me at the end of one of my headaches (which happen to be real by the way).  How long have your been chronic, i have feared that for a long time
Title: Re: a little relief for cluster headache
Post by Jonny on Jul 10th, 2005, 1:38pm
I dont give a fuck what time it was...you wished nothing worked for me and you wished me chronic, fuck face.....I would beat you to death with your own arm if you were standing here with me you fucking fag!
Title: Re: a little relief for cluster headache
Post by duerrs on Jul 10th, 2005, 1:43pm
first of all, i'm 6'7 250lbs so take your best shot man, why don't you think back and read what you wrote, i feel bad enough for saying that, can we be adult about this, if not then the heck with you anyway, i don't blame you for being bitter, feel better and i really mean that
Title: Re: a little relief for cluster headache
Post by Redd715 on Jul 10th, 2005, 1:51pm
Play nice now....both of you!!! >:(
Title: Re: a little relief for cluster headache
Post by duerrs on Jul 10th, 2005, 1:52pm
lol, i hear that man, truce johnny?
Title: Re: a little relief for cluster headache
Post by Jonny on Jul 10th, 2005, 1:53pm

on 07/10/05 at 13:43:24, duerrs wrote:
first of all, i'm 6'7 250lbs so take your best shot man


Everyone on the internet is that big.....LMMFAO!!! ;;D
Title: Re: a little relief for cluster headache
Post by duerrs on Jul 10th, 2005, 1:55pm
yea, i think we all know that, believe me, at 5:30 this morning i would have helped you beat the crap out of me......lol
Title: Re: a little relief for cluster headache
Post by LeLimey on Jul 10th, 2005, 1:56pm

on 07/10/05 at 13:53:39, Jonny wrote:
Everyone on the internet is that big.....LMMFAO!!! ;;D



speak for yourself!
I'm umm. size 10, blonde, blue eyes, 19.. no make that 21 or I can't drink in Dallas can I? What else.. oh yeah! No bloody kids!  ;)
Title: Re: a little relief for cluster headache
Post by Redd715 on Jul 10th, 2005, 2:00pm
Hey I'm still 29....

size 5,  5'5"   long Red hair, gray eyes,

wait all this is true....trust me....well the age part anyway.... ;;D
Title: Re: a little relief for cluster headache
Post by Charlie on Jul 10th, 2005, 2:17pm

Quote:
i have also been to ent's and they say that it could be caused by a deviated ceptum but i'm not so sure,


So far, not good but I want you and the rest of you to stay away from these quacks and their deviated septum surgery unless you have 400 opinions.

In my town, these guys are finally getting some heat. They've been drilling out sinuses here for everything from ingrown toenails to gray hair. I had my ears examined and the infant doctor, who has offices in the same newly built state of the art structure, told me he could unblock my right nostril with this surgery. He said that I have something like only 25% use of the thing. Fine, but for 58 years I've been blowing out about the same amount of snot as my left during a cold.  

I have RN relatives that tell me that it's quite a rackett. They do hundreds of these unnecessary operations every year for big bucks. The beauty of it is that no one can prove it, especially after the fact. It's like when doctors tell you that you have one leg shorter than the other. Everybody has. Anyway, they tell you that it's simple. Maybe but it's a bloody mess, expensive and usually unnecessary.

I'm usually not one to question medical stuff but this is one that really pisses me off.

Stick around here though but pay attention to what Ueli says.

Charlie http://www.netsync.net/users/charlies/gifs/teatime.gif
Title: Re: a little relief for cluster headache
Post by DonnaHar on Jul 10th, 2005, 2:25pm
Awwww nuts.    dj where are you?  We could be splittin' about $6,600. bucks right now!
Title: Re: a little relief for cluster headache
Post by pattik on Jul 10th, 2005, 2:29pm

on 07/10/05 at 13:53:39, Jonny wrote:
Everyone on the internet is that big.....LMMFAO!!! ;;D

me...I'm 5'5", size 7, age 29, auburn hair, no kids, and into gymnastics! ;;D
Title: Re: a little relief for cluster headache
Post by BobG on Jul 10th, 2005, 2:42pm

on 07/10/05 at 14:17:38, Charlie wrote:
So far, not good but I want you and the rest of you to stay away from these quacks and their deviated septum surgery unless you have 400 opinions.

Ditto for TMJ (Temporal mandibular Joint) surgery to stop clusters. Beware of dentists that sell this quackery.
Title: Re: a little relief for cluster headache
Post by DonnaHar on Jul 10th, 2005, 2:48pm
It's not always about the head.

Mine stressed a hysterectomy, and it worked!!

Please all go to www.hysterectomies.quack


edited for spelling.......twice.  Always do the preview thingy before pressing "go".
Title: Re: a little relief for cluster headache
Post by duerrs on Jul 10th, 2005, 3:15pm
my ent did not say that they would be cured, he did say there was a chance, mine is 90% deviated, he did say that i'd be able to breathe much better but i don't care about that, last thing i want to do is mess  around with the sinuses and make this worse
Title: Re: a little relief for cluster headache
Post by DonnaHar on Jul 10th, 2005, 3:34pm
If you go to the "medical info" section in the left margin or click
http://www.clusterheadaches.com/about.html#CLINICAL%20FEATURES

you'll find that the hypothalamus appears to play a role in the cluster headache cycle.

To find relief from CH, we'll probably find that that is the organ that needs adjusting, not our sinuses.
Title: Re: a little relief for cluster headache
Post by don on Jul 10th, 2005, 3:46pm
Just for further referance. Jonny is a hairdresser. He'll hunt you down give you a real bad haircut with horrible coloring and hurl insults at your wardrobe.

http://img.photobucket.com/albums/v388/bgull2/jonnyhula.jpg
Title: Re: a little relief for cluster headache
Post by DonnaHar on Jul 10th, 2005, 3:54pm
don.....is this a "before" or "after" shot?
Title: Re: a little relief for cluster headache
Post by E-Double on Jul 10th, 2005, 4:08pm
You all have made my day!!! [smiley=laugh.gif]

BTW...was 5'10 prior to several car accidents...now 5'9 haha and have knocked out bigger fellas than all of you...

Anyone realize this all sounds like the introduction's on ESPN's Dan Patrick Show.....

Eric...5'9 190 boo yah!!! [smiley=laugh.gif]

PF wishes bitches!!!!!http://ed3.photosite.com/~photos/tn/89_348.ts1091894178734.jpg
Title: Re: a little relief for cluster headache
Post by Woobie on Jul 10th, 2005, 6:46pm
I DID see SINUS BUSTERS.com advertised on the bottom of THIS site this morning.   And it said it would get rid of clusterheadaches.  


What's up with THAT?  
Title: Re: a little relief for cluster headache
Post by AussieBrian on Jul 10th, 2005, 7:43pm
But does it come with a free set of knives?
Title: Re: a little relief for cluster headache
Post by Topical on Jul 10th, 2005, 9:18pm

on 07/10/05 at 18:46:23, Woobie wrote:
I DID see SINUS BUSTERS.com advertised on the bottom of THIS site this morning.   And it said it would get rid of clusterheadaches.  


What's up with THAT?  


It's a google ad. Search google for "cluster headache" and it will come up on the right hand side. The ads here are "served up" from google the same way.

The pepper treatment must burn like a mother. Sounds like a distraction "cure". Better than hitting ourselves on the head I guess. I missed the first post. But hot tea sounds like another way to distract the pain, "Ow, my tongue!".
Title: Re: a little relief for cluster headache
Post by gore2424 on Jul 10th, 2005, 9:58pm
Is that really a picture of Jonny you posted Don?
If it is well Jonny all I got to say to you is ..................................................................................................................................................................................................... " Your Hair Looks Nice"

Terry
Title: Re: a little relief for cluster headache
Post by duerrs on Jul 10th, 2005, 10:10pm
i don't know why everyone has a hard time believing that the hot tea actually works.  I admit that the sinusbuster was a very bad idea but i'm not going to give up on the tea.  it actually works for me
Title: Re: a little relief for cluster headache
Post by E-Double on Jul 10th, 2005, 10:17pm
Not much different then people chugging hot coffee.....


Whatever works ;)

Just no sales pitches unless for Happy Endings....and it appears that you are not a 4'11 asian chickie so scratch that idea
Title: Re: a little relief for cluster headache
Post by Jonny on Jul 11th, 2005, 4:17pm

on 07/10/05 at 21:58:03, gore2424 wrote:
Is that really a picture of Jonny you posted Don?
If it is well Jonny all I got to say to you is ..................................................................................................................................................................................................... " Your Hair Looks Nice"


Yep that be the King ;;D

http://img.photobucket.com/albums/v451/jonny68/Jonny_kilt1.jpg

Don loves to get naked, cover his body (If you can call it that) with baby oil and spend hours in photoshop with my picture...you can see just how sick he is by what he did to the original....LMAO ;;D
Title: Re: a little relief for cluster headache
Post by don on Jul 11th, 2005, 4:25pm
And just when you thought it could get no worse.

http://img.photobucket.com/albums/v388/bgull2/slim2.png
Title: Re: a little relief for cluster headache
Post by nani on Jul 11th, 2005, 4:29pm

on 07/11/05 at 16:25:15, don wrote:
And just when you thought it could get no worse.

http://img.photobucket.com/albums/v388/bgull2/slim2.png


Jonny, how many times do I have to tell you. Yellow is not your best color. Try a nice muted teal or magenta. Sheesh.   ;;D
Title: Re: a little relief for cluster headache
Post by seasonalboomer on Jul 11th, 2005, 4:30pm

on 07/11/05 at 16:25:15, don wrote:
And just when you thought it could get no worse.

http://img.photobucket.com/albums/v388/bgull2/slim2.png


you've got a long way to go before anyone here thinks it couldn't get worse.
Title: Re: a little relief for cluster headache
Post by Jonny on Jul 11th, 2005, 4:42pm

on 07/11/05 at 16:30:01, seasonalboomer wrote:
you've got a long way to go before anyone here thinks it couldn't get worse.


Thank you, at least someone here knows what they are talking about ;;D
Title: Re: a little relief for cluster headache
Post by Frank_W on Jul 11th, 2005, 4:48pm
Jonny, I have to say, that shiny yellow really accents your girlish figure. All I can say is, you must be livin' right, baby!  8) [smiley=laugh.gif]
Title: Re: a little relief for cluster headache
Post by broomhilda on Jul 11th, 2005, 5:09pm
Don loves to get naked, cover his body (If you can call it that) with baby oil and spend hours in photoshop with my picture...you can see just how sick he is by what he did to the original....LMAO ;;D  


[smiley=crackup.gif] ROTFLMAO Jonny, thanks I needed that today, sorry Don [smiley=laugh.gif]
Title: Re: a little relief for cluster headache
Post by Jonny on Jul 11th, 2005, 5:09pm

on 07/11/05 at 16:48:38, Frank_W wrote:
Jonny, I have to say, that shiny yellow really accents your girlish figure. All I can say is, you must be livin' right, baby!  8) [smiley=laugh.gif]


Is that why people I dont even know are always saying "You go girl" to me?.....LOL ;;D
Title: Re: a little relief for cluster headache
Post by thomas on Jul 11th, 2005, 5:18pm

on 07/10/05 at 13:53:39, Jonny wrote:
Everyone on the internet is that big.....LMMFAO!!! ;;D

Not me, I am much smaller.
Title: Re: a little relief for cluster headache
Post by ghost62 on Jul 11th, 2005, 5:26pm
me too, but thats ok. but the voices say to wait till they sleep and then I am taller.

;;D ;;D ;;D ::) ::) ::)
Title: Re: a little relief for cluster headache
Post by Jonny on Jul 11th, 2005, 5:48pm

on 07/11/05 at 17:18:56, thomas wrote:
Not me, I am much smaller.


You are the exception to the rule, bro....you are actually that big.....LOL ;;D
Title: Re: a little relief for cluster headache
Post by Charlie on Jul 11th, 2005, 6:23pm
I thought I was a big guy until I met all you mutants at Nashville. Must be something to this. Not sure what. Some tall females too. Well....not all of ya but some.

Charlie
Title: Re: a little relief for cluster headache
Post by AussieBrian on Jul 11th, 2005, 6:57pm
Seeing those pictures was no way to start the day, that's for sure.

Reckon I'll sit down to a nice hot cup of tea, scalding hot, and see if I can kick this bloody headache.
Title: Re: a little relief for cluster headache
Post by Donna_D. on Jul 11th, 2005, 7:16pm
Four pages...looks like I missed all the fun!


*putting away poking stick*


....*sigh*.


No worries, Jonny....Neiman's is close to the hotel.  We can pick you up a "smart and sassy little something" in a more flattering color. ;)

Oh and no worries about the cost.  Don's paying for it.  You will have to ask HIM why...   ;;D



DD
Title: Re: a little relief for cluster headache
Post by StressFree on Jul 11th, 2005, 7:45pm

Quote:
  everyone in here has shown me not to post any suggestions.  


Hey Steve,

Glad to see you are sticking around. I had a similar initiation not long ago. Please do post anything that seems to help you with your headaches. Most of us will take it in, even if we are skeptical about it. As you can see most of the "poking" with sticks is in good fun. Even if it seems it's not, it's mostly harmless. Best wishes for you, Rich
Title: Re: a little relief for cluster headache
Post by AussieBrian on Jul 11th, 2005, 7:57pm
And there's no doubting tea as the ultimate headache cure.

I'm just into my second pot (scalding hot of course) and already the thumping in my temples is abating, while the disco between my ears seems to have turned the volume down a bit.

Couple of aspirins next and I may, just may, be ready to face the dreaded "toothbrush test".

Yep, good ol' tea.  Wouldn't be without it at times like this.
Title: Re: a little relief for cluster headache
Post by Jonny on Jul 11th, 2005, 8:05pm

on 07/11/05 at 19:45:47, StressFree wrote:
I had a similar initiation not long ago.


Shit happens when you take support and then run away when you dont need it anymore leaving those that do to suffer without even a kind word...only to come back and bash people on how they post when its not to your liking........Hell, you were not even here so who gives a fuck what you think?


on 06/26/05 at 03:13:40, StressFree wrote:
I'm a returning sufferer. It's been years, now they are back. In any case, I visit the board now and then when pain free. I visit near daily when in a cycle. I am always surprised at the caustic, sarcastic, flaming, uncompassionate, etc. notes that are often thrown at many who post here. Those that have unusual suggestions, or odd cluster variants, or additional symptoms with the pain of cluster headache are often victims of the cluster clique. I would think all of us here would recognise the variation in pain, location, duration, complexity, and treatments of CH. Some have posted with possibly alterior motives (like selling stuff). Blow them off. But you should know that saying, "You don't have cluster headaches" is rediculous. That's like the doc telling you that they are "in your head". Those comments don't help anyone. There is no need to be a jerk to anyone. Not only might it ruin their day, it probably increases your stress levels. Please, treat those who post here with compassion.  Now don't you feel better?  :-)


Take Take Take!
Title: Re: a little relief for cluster headache
Post by StressFree on Jul 12th, 2005, 9:33pm
Thanks for bringing that back. Yes, I asked for it - and got it fairly thoroughly. I just noticed I spelled "ridiculous" wrong. I'm surprised Don didn't hammer me on that! ;;D Truly happy to hear you are no longer chronic Jonny. I hope it lasts for good. I already know you won't be bailing, as some of us are known to do... :-/  
Planning to be around much more, whether I'm wanted or not  :)
Rich
Title: Re: a little relief for cluster headache
Post by cootie on Jul 12th, 2005, 10:04pm
Maybe that tea remedy will help a deviated scrotum when jonny pulls his boot out. I smell convention in the air Pam  [smiley=sgrin.gif]

Wish I could go.......booh-hoo-hoo
Title: Re: a little relief for cluster headache
Post by DonnaHar on Jul 12th, 2005, 10:12pm
Pam.....that's just too funny!!!  How'd you ever think that one up?  LOLOLOL
Title: Re: a little relief for cluster headache
Post by duerrs on Jul 13th, 2005, 2:01am
well if your picking on spelling you all should have a ball with me, i was more of a science nut in high school. you can pick if you want, we all deserve to laugh at something.  by the way i did make an apology to jonny thru e-mail and i think everything is cool, he does seem pretty cool and seems to know his stuff, i won't be giving him a hard time anymore
Title: Re: a little relief for cluster headache
Post by gore2424 on Jul 13th, 2005, 4:06am
glad you going to hang around Duerrs just remember tho some of us are crazy and so am I me too count me in Yes i is yeppers count me two please excuse the bad speeling Terry
Title: Re: a little relief for cluster headache
Post by aprilbee on Jul 13th, 2005, 11:18am
Glad to hear you are stickin around. ;)
Title: Re: a little relief for cluster headache
Post by cootie on Jul 13th, 2005, 11:59am
Yup......take yer punches like a man here Mr. 'duh' and part of it is also we get to pick NIC NAMES.......our treat.......ya got off onto the wrong foot walkin into OUR house tellin 'us' where to move the furniture and which pieces are junk. Pull up a chair and be part of us not "apart' to us. You'll be ok.......and yeah.....I met jonny twice and he is way cool.......my kinda super freak. All these people are cool. Not faultless in Ohio Pam
Title: Re: a little relief for cluster headache
Post by Charlie on Jul 13th, 2005, 5:06pm

Quote:
by the way i did make an apology to jonny thru e-mail and i think everything is cool, he does seem pretty cool and seems to know his stuff, i won't be giving him a hard time anymore


You're right. Jonny's a fuckin' prince. http://www.netsync.net/users/charlies/gifs/smooch.gif http://www.netsync.net/users/charlies/gifs/crackup.gif

Don, Jonny and Chuck:

http://www.netsync.net/users/charlies/gifs/Peas in Pod.gif

Charlie
Title: Re: a little relief for cluster headache
Post by duerrs on Jul 13th, 2005, 5:57pm
yea, i know, i'm not such a bad guy either, i just had a really bad night a few minutes before we met.  I know this has nothing to do with ch's but thank god it looks like hockey is back!!!!
Title: Re: a little relief for cluster headache
Post by DonnaHar on Jul 13th, 2005, 7:24pm
Well pal,  looks like you made it. ;)

Glad you stuck it out.  Welcome home.

Donna
Title: Re: a little relief for cluster headache
Post by Jonny on Jul 13th, 2005, 7:34pm

on 07/13/05 at 17:57:06, duerrs wrote:
yea, i know, i'm not such a bad guy either


And hes not, turns out hes a pretty cool dude......im doing what I can to help him out, so should all of you!....there, the King has spoken ;;D

Now, back to packing for the convention.....I swear if I see Chuck in a thong im taking his head off at the neck....can you imagine the field day Don would have if he had pics of me next to that mess.....LOL ;;D
Title: Re: a little relief for cluster headache
Post by duerrs on Jul 13th, 2005, 10:19pm
thanks everyone, i really can use any help i can get.  anyone know how to get more than 40 minutes sleep, i  think i'm starting to go mad here.......lol
Title: Re: a little relief for cluster headache
Post by nani on Jul 13th, 2005, 10:59pm

on 07/13/05 at 22:19:11, duerrs wrote:
thanks everyone, i really can use any help i can get.  anyone know how to get more than 40 minutes sleep, i  think i'm starting to go mad here.......lol


Have you tried melatonin? 3 - 9 mgs an hour before bedtime might help you with night time hits. It's available OTC at most drugstores.
Title: Re: a little relief for cluster headache
Post by duerrs on Jul 13th, 2005, 11:07pm
i've never tried that but i'm sure willing to try anything at this point.....well, anything except sinus busters, which came today, i was laughing when i saw the package in my mailbox, i'm laughing even harder looking at that same package in my garbage can.  i'm taking verapamil, only 120mg in the morning, will the melatonin be safe in combination with the verapamil?
Title: Re: a little relief for cluster headache
Post by nani on Jul 13th, 2005, 11:11pm
Yes, it should be fine. You may want to talk to your dr about upping your verapamil, also. Most take 360 mgs or more a day. Or...look here at kudzu info. Kudzu and melatonin are fine together, but you shouldn't take more verap with it.
Kudzu threads: (read them all...you need to fully inform yourself)
http://www.clusterheadaches.com/cgi-bin/yabb/YaBB.cgi?board=meds;action=display;num=1110584362
PS: keep the SinusBuster, in case you get a sinus headache, LOL.  ;)
Title: Re: a little relief for cluster headache
Post by Woobie on Jul 13th, 2005, 11:17pm
Duerrs..

glad you are still here..

I TOLD You!!!!!!!!!! ;)
Title: Re: a little relief for cluster headache
Post by duerrs on Jul 13th, 2005, 11:21pm
thank you nani.  i have to say, for the past week, all i'm getting is hits after i try to go to sleep.  this is a first for it to hit me this way.  as long as i'm awake, i'm pain free.  i'm going to try to sleep again, i'm sure i'll be posting something in about an hour.  
Title: Re: a little relief for cluster headache
Post by duerrs on Jul 13th, 2005, 11:22pm
you were right woobie, i'm glad i'm still here too
Title: Re: a little relief for cluster headache
Post by Linda_Howell on Jul 13th, 2005, 11:33pm


  Guess I am not as forgiving as everyone here.

But ANYONE  who would say this:

 
Quote:
i hope johnnys headaches are chronic  
                    to ANYONE !


Is someone I would not want to be associated with.

EVER!!!!!!!!!!!!!!!!!!

   I'm chronic for 18 yrs.  Have felt the lack of sleep/frustration/pain all to well.   Too easy of a rational Duerr.  

 I  have an 'ex'   that  I wish would leave the planet.  

         NEVER have I wished this on even him.  

 

Linda






Title: Re: a little relief for cluster headache
Post by duerrs on Jul 13th, 2005, 11:53pm
linda, i'm sorry you feel that way, i already apologized to jonny a number if times both thru e-mail and on the board, he has forgiven me and i would never say it again to anyone.  actually, that is the first time i ever said that and i feel horrible enough without someone bringing it up again.  trust me, my light is always on for him and anyone else who would need help.
Title: Re: a little relief for cluster headache
Post by Kevin_M on Jul 14th, 2005, 12:47am
Duerrs,

Can you now give an honest opinion of the tea remedy, or should I take your posts on this fifth page as self explanatory.  

Some things can be hard to swallow, understandably, I hope, when lack of sleep is a serious constant attitude determinant.




Kevin M
Title: Re: a little relief for cluster headache
Post by duerrs on Jul 14th, 2005, 12:57am
The hot tea will knock out medium to light attacks quickly, at least for me, within 5 minutes, of course there is the occasional 8 or 9 which is hard as hell to deal with without imitrex.  at first i thought it was anything hot that helped me, but when i drink coffee, it will trigger an attack almost right away so i'd recommend staying away from coffee, you may find different results.  I hope it works for you or anyone else that reads this.
Title: Re: a little relief for cluster headache
Post by Topical on Jul 14th, 2005, 12:57am
"when lack of sleep is a serious constant attitude determinant. "

LOL, what the hell does that mean? Mind you I like it but...  ;;D

Edit: OH I think I get it - you don't sleep you are a prick. Something like that. Man that sentence has rhythm!
Title: Re: a little relief for cluster headache
Post by Kevin_M on Jul 14th, 2005, 1:08am

on 07/14/05 at 00:57:39, Topical wrote:
LOL, what the hell does that mean?


Kinda.  Waking three times a night for months at a time and working full time, then reading "have you tried Camomille, it works for me"


I've humor, but...


Kevin
Title: Re: a little relief for cluster headache
Post by duerrs on Jul 14th, 2005, 1:08am
i was a prick that morning and i cannot say enough how sorry i am for it.  i didn't realize that there a lot of new users on here just trying to sell bullshit cures and i was confused as being one of them.  I overreacted when i was looking for help and to maybe help someone with my tea suggestion, but was instead told i was full of shit.  that is in the past now. i let my temper get the better of me.
Title: Re: a little relief for cluster headache
Post by Kevin_M on Jul 14th, 2005, 1:18am

on 07/14/05 at 01:08:33, duerrs wrote:
i was looking for help


Like yourself, myself, so are many, many others.


120mg verap?



Kevin M
Title: Re: a little relief for cluster headache
Post by duerrs on Jul 14th, 2005, 1:25am
oh i know, actually i know now, i didn't realize there were as many suffering with the same thing i do, and even worse till i discovered this site.  For years i thought it was a brain tumor, sinus pain, stress, etc.. till an ex-gf found an article in a womans magazine about different types of HA's.  I didn't even hear of a CH till about 4 years ago.

My neuro put me on the verap (only 120) he mentioned that he could go higher with the dose but it seemd to help, but.......i always started taking it at the end of my cycle.  it was probably going to end on it's own anyway, this is the first time i'm taking it more at the begining stages, maybe he is going to have to up the dosage
Title: Re: a little relief for cluster headache
Post by Topical on Jul 14th, 2005, 1:44am
I am on 80 mg of verap/day and its starting to break up the cycle. I have been taking it for about 1.5 weeks now. I will ramp it up again if needed after two weeks. So far, so good. (Knock wood). HA are now skipping two days. It should go to one to two HA a week if it was like the past.

I think/hope I am lucky this time out.
Title: Re: a little relief for cluster headache
Post by fubar on Jul 14th, 2005, 1:48am
Verapamil didn't start to have an affect on me until the dosage was at 720mg/day.
Title: Re: a little relief for cluster headache
Post by Topical on Jul 14th, 2005, 2:04am
I also take Dilantin to control seizures, I have no idea if that is playing any role in needing such a low dose. Another possible factor is when I had a MRI the left lobe of my brain (where the CH pain is located) is smaller than my right lobe.

My Dilantin dose is that of a 15-16 year old. If they bring it up to the level of a normal adult I will fail the blood tests and show signs of overdose. If I take too much Verap my heart will race a bit, weak legged, slightly dizzy.
Title: Re: a little relief for cluster headache
Post by ccbiggsoo7 on Jul 14th, 2005, 4:15am
Can we all get along! Jesus!
Title: Re: a little relief for cluster headache
Post by Jonny on Jul 14th, 2005, 4:16am

on 07/14/05 at 04:15:26, ccbiggsoo7 wrote:
Can we all get along! Jesus!


How fucking boring would that be?

.......................................;;D
Title: Re: a little relief for cluster headache
Post by seasonalboomer on Jul 14th, 2005, 9:08am

on 07/14/05 at 04:15:26, ccbiggsoo7 wrote:
Can we all get along! Jesus!


I'm sorry, did I miss something? Was Jesus posting on this thread?
Title: Re: a little relief for cluster headache
Post by DonnaHar on Jul 14th, 2005, 10:46am
I know Melatonin works for me when I work 7pm to 7am and can't sleep during the day at all.  More than 3mg has an opposite effect on me....it's too much.  Some people I know even break the 3 in half.

Margi has written about an OTC med that she suggests, but I can't remember what it is..dramamine?  Anyway, it keeps you out of REM sleep, when CH's originate.  That's why we wake up with roaring headaches after about 1-1/2 hours of sleep.  Some people try sleeping in a recliner and it works for some.  It did not work for me, but mine always went from 0 to Kip 9 within 5 minutes....never had shadows or Kip 1's to 8's.

Margie.......what's the answer?

I also have seen posts about caffeine helping and people keeping the pot ready to turn on at all times.  Tea has caffeine in it.
Title: Re: a little relief for cluster headache
Post by Sandy_C on Jul 14th, 2005, 10:52am

on 07/10/05 at 18:46:23, Woobie wrote:
I DID see SINUS BUSTERS.com advertised on the bottom of THIS site this morning.   And it said it would get rid of clusterheadaches.  


What's up with THAT?  


Yeah, same question - if it's snakeoil, why is it being advertised on this site?
Title: Re: a little relief for cluster headache
Post by seasonalboomer on Jul 14th, 2005, 11:02am
DJ correct me if I'm wrong, but I believe when you sign on with Google for the ad arrangement at the bottom, you don't get to control what is being advertised. (See the "ads by Google" subtext) Just because something is advertised somewhere doesn't mean it is endorsed by the web site. Kind of like your newspaper, I suppose.
Title: Re: a little relief for cluster headache
Post by vig on Jul 14th, 2005, 1:07pm
I also noticed it says it's 'guaranteed'.

I presume somebody could try it, have it fail, and then sue for false advertising.
Title: Re: a little relief for cluster headache
Post by Charlie on Jul 14th, 2005, 1:59pm

Quote:
I also take Dilantin to control seizures, I have no idea if that is playing any role in needing such a low dose. Another possible factor is when I had a MRI the left lobe of my brain (where the CH pain is located) is smaller than my right lobe.


I took Dilantin for my seizures 20 plus years. I'm not crazy about the new stuff I take. Doesn't do much good.  >:(

Dilantin usually makes your gums grow and you have to brush hard to toughen them up.

The stuff I take now: Lamictal, makes you cough, affects vision, and digestive stuff. Don't you love the side effects?

I didn't know that so many anti-seizure drugs were used for CH. I was taking Dilantin when I got my first attack and when they went away.  Beats me.

Charlie http://www.netsync.net/users/charlies/gifs/pills.gif
Title: Re: a little relief for cluster headache
Post by duerrs on Jul 14th, 2005, 4:27pm
ok, wait a minute, i actually did buy that sinus busters shit but i did not use it, it's sitting on the top of my garbage can, i will use it at the next ch onset and let you all know, but i don't want to be confused with a salesman. we all know what happened  the last time i mentioned that crap.....lol  As for guarantee, i only know two in life, death and taxes, i'll let you all know about the snake oil
Title: Re: a little relief for cluster headache
Post by maffumatt on Jul 14th, 2005, 4:32pm
Ahhh, thats so sweet, I am so glad everyone made kissy kissy, and made up.
Title: Re: a little relief for cluster headache
Post by Sandy_C on Jul 14th, 2005, 4:46pm

on 07/14/05 at 16:32:06, maffumatt wrote:
Ahhh, thats so sweet, I am so glad everyone made kissy kissy, and made up.




[smiley=hug.gif]
Title: Re: a little relief for cluster headache
Post by Woobie on Jul 15th, 2005, 1:50am
I understand about the google ads - but - just my opinion here -
regardless of CH.com endorsing the product or not - people might come here - and not KNOW that this site doesn't endorse what is advertised.   Know what I mean?

I mean - it's DJs site - he can do what he wants - I just thought it strange - especially since it said "guaranteed".  

I like your idea vig = Maybe you all should get a class action suit filed against them for guaranteeing  it works... LOL - THAT would be funny!
Title: Re: a little relief for cluster headache
Post by Topical on Jul 15th, 2005, 4:46am

on 07/14/05 at 13:59:09, Charlie wrote:
I took Dilantin for my seizures 20 plus years. I'm not crazy about the new stuff I take. Doesn't do much good.  >:(

Dilantin usually makes your gums grow and you have to brush hard to toughen them up.

The stuff I take now: Lamictal, makes you cough, affects vision, and digestive stuff. Don't you love the side effects?

I didn't know that so many anti-seizure drugs were used for CH. I was taking Dilantin when I got my first attack and when they went away.  Beats me.

Charlie


Yeah, I have no clue about if Dilantin enhancing the Verap. So I'll ditto that 'beats me'. Sorry about the side effects of that Lamictal. It sounds pretty rough for a med that doesn't do much good. Hang in there!
Title: Re: a little relief for cluster headache
Post by duerrs on Jul 15th, 2005, 4:54am
ok, had a ch at 7pm last night, i tried the sunus buster.  In my opinion it did not help me,  but i was able to sleep from like 9:30pm to 4:40am, woke up with a small shadow, was not hard to get rid of since i'm here typing now.  i do not know if sinus buster had anything to do with it, my guess is not.
Title: Re: a little relief for cluster headache
Post by Topical on Jul 15th, 2005, 5:46am
Did it burn? Are you going to try it again? Does the manufacturer say you have to use it multiple times? How about getting that refund, is it going back with a nasty note?

Way to take one for the team, duerrs. I was skeptical but curious about it. Thanks for the report.
Title: Re: a little relief for cluster headache
Post by DonnaHar on Jul 15th, 2005, 7:46am
What we need to know now, kids, is what's in it?  duerrs, give us a list of the ingredients.  Everything in it as per the insert that comes with medications. That might tell us if it has something to aid sleep.

Also, is Sinus Buster exactly what it's called and how it's spelled?
Title: Re: a little relief for cluster headache
Post by seasonalboomer on Jul 15th, 2005, 8:46am

on 07/14/05 at 13:07:51, vig wrote:
I also noticed it says it's 'guaranteed'.

I presume somebody could try it, have it fail, and then sue for false advertising.


Probably could have, but now that it's been discussed as a potential "strategy" on an internet message board, I'm sure the jury might consider some degree of premeditation in buying a product that was known to suck.   :-X
Title: Re: a little relief for cluster headache
Post by vietvet2tours on Jul 15th, 2005, 10:59am
Sinus Buster garoooooooooonteed                                                             http://im1.shutterfly.com/procserv/47b5d934b3127cce92997634e52500000016108Eas2LNu3bi
Title: Re: a little relief for cluster headache
Post by duerrs on Jul 15th, 2005, 11:18am
i'll let you all know what is in it when i get back home.  it burned like a mother for about 1 minute.  more info later on.
Title: Re: a little relief for cluster headache
Post by duerrs on Jul 15th, 2005, 8:28pm
it's actually called "Sinus Buster"  Active ingredients are:

Oleoresin Capsicum, Eucalyptus Oil, Ascorbic Acid as Vitamin C

Other Ingredients are:

Vegetable Glycerin, Sea Salt, Rosemary Extract and a base of Purified Water.  

The card suggests to use 3 times a day for several weeks.  I'm usually in my cycle for about 6 weeks.  i'll keep everyone posted
Title: Re: a little relief for cluster headache
Post by AussieBrian on Jul 15th, 2005, 10:13pm

on 07/15/05 at 20:28:05, duerrs wrote:
it's actually called "Sinus Buster"  Active ingredients are: Oleoresin Capsicum, Eucalyptus Oil, Ascorbic Acid as Vitamin C
Other Ingredients are:  Vegetable Glycerin, Sea Salt, Rosemary Extract and a base of Purified Water.  


And let's face it, folks, we've tried wierder stuff than that!  
Title: Re: a little relief for cluster headache
Post by duerrs on Jul 15th, 2005, 10:54pm
true, but nothing beats imitrex, they should just lower the damn price on it
Title: Re: a little relief for cluster headache
Post by cootie on Jul 15th, 2005, 11:05pm
S'cuse me for interupting.....but are them adds on the bottom based on KEY words in the trhead to select adds shown automatically ? Did that make sense......seems they co'inside with that subject. Or am I imagening things ? Maybe we should start a thread about 'shit' and see what happens. Gaurnteed to stink Pam  8)

OK......carry on........................
Title: Re: a little relief for cluster headache
Post by kimmeesue on Jul 15th, 2005, 11:06pm
[quote author=duerrs  i won't be giving him a hard time anymore[/quote]

Don't you get it....we LIVE for people to give Jonny a hard time.  It's right up there with throwing Christians to the lions. [smiley=laugh.gif]
Title: Re: a little relief for cluster headache
Post by cootie on Jul 15th, 2005, 11:50pm
Yeah......kinda like kickin puppies and stuff......ya mite think it's fun doin the kickin till the crap starts flowin yer way. Shit stomper Pam
Title: Re: a little relief for cluster headache
Post by kimmeesue on Jul 16th, 2005, 12:15am

on 07/15/05 at 23:50:21, cootie wrote:
Yeah......kinda like kickin puppies and stuff......ya mite think it's fun doin the kickin till the crap starts flowin yer way. Shit stomper Pam


I've been on the receiving end and I'm still here.  My point was that Jonny, crass as he is, adds a little spice and it doesn't take long to figure out it's just a game.  I haven't been here that long and I can tell the difference between when Jonny is deadly serious and when he's just stirring the shit.
Jonny wouldn't kick a puppy and neither would I.
Title: Re: a little relief for cluster headache
Post by cootie on Jul 16th, 2005, 12:24am
Yeah I knew what ya ment........just addin my rendition of it all......nothin to do with anyone personally. Punt a puppy Pam
Title: Re: a little relief for cluster headache
Post by duerrs on Jul 16th, 2005, 5:55am
busting balls is a different story, i was actually pissed at first till, like you said, i figured out what the deal is.  Oh by the way, does anyone notice the likeness to Alice Cooper, how could you not  ;;D
Title: Re: a little relief for cluster headache
Post by AussieBrian on Jul 16th, 2005, 6:16am
Alice Cooper?  Isn't she the bird that tries to look like Jonny?
Title: Re: a little relief for cluster headache
Post by DonnaHar on Jul 16th, 2005, 7:56am
Kick'in puppies 'n stuff?  Sounds more like Ozzie to me.

See the ad at the bottom of this thread?  No ch for Christmas....something about pepper.  Jeez!

Remember all the Capsasin (sp) threads?  It's all in the archieves......the "best sellers" corner.  I love the archieves.  Stuff great stuff  written by some entertaining people.
Title: Re: a little relief for cluster headache
Post by BobG on Jul 16th, 2005, 8:30am

on 07/16/05 at 07:56:44, DonnaHar wrote:
See the ad at the bottom of this thread?  No ch for Christmas....something about pepper.  Jeez!

What ad? I don't see any ads.
Title: Re: a little relief for cluster headache
Post by DonnaHar on Jul 16th, 2005, 8:45am
Well, for crying out loud.....the darned things change.

That takes care of this avenue of fun.

Back to my old.........whatever.
Title: Re: a little relief for cluster headache
Post by vig on Jul 16th, 2005, 8:48am
right now, there's an ad that starts out:

"Oprah has spoken"

that sounded ominous.
I had to go and run and turn off all the lights.
and crank the firewall up to high!
:)
Title: Re: a little relief for cluster headache
Post by BobG on Jul 16th, 2005, 8:49am
Hey Donna,
There's an OUCH Convention in Dallas soon. I have 2 tickets that I can't use If you want in on a good deal you can have them for half price. Deal?
Title: Re: a little relief for cluster headache
Post by DonnaHar on Jul 16th, 2005, 8:55am
Hey Bob..

How dumb do you think I am?  I JUST saw some pictures about that and I KNOW it's happening now.

Another ticket-oil salesman!
Title: Re: a little relief for cluster headache
Post by BobG on Jul 16th, 2005, 9:02am
Dang. You're pretty quick. :o

For a hundred year old chick.  [smiley=bag.gif]
Title: Re: a little relief for cluster headache
Post by DonnaHar on Jul 16th, 2005, 9:16am
Don't believe it.  Women lie about their ages.  

I'm blonde.
Title: Re: a little relief for cluster headache
Post by BobG on Jul 16th, 2005, 9:26am
Blond? Blond is good. I was a blond once. I was 3
months old at the time. Ahhhh.......the good old days.
Now I'm not blond. I'm what I like to say is silver.
My wife says it's more of a mousy gray.
I think she needs glasses.
Title: Re: a little relief for cluster headache
Post by DonnaHar on Jul 16th, 2005, 9:37am
You missed the drift of my blonde (and age) joke.  

Please go to square one.
Title: Re: a little relief for cluster headache
Post by BobG on Jul 16th, 2005, 9:43am
No I didn't. I just wanted to be a gentleman and go in another direction.

I was going to ask you te tell us the story about life before the wheel was invented.

But that would have been rude. So I won't.
8)
Title: Re: a little relief for cluster headache
Post by DonnaHar on Jul 16th, 2005, 10:01am
You did a "good thing" there, Bob.  But I'll comment anyway

Life before the Wheel was great.  Now, dingbat and Vanna eat up a whole half hour.

Have you noticed that cartoons are all about saving the universe and robots and scarey things?  What ever happened to Donald Duck, Bugs Bunny and the Roadrunner who only hurt him self?  Kids today don't know what a real cartoon is.

That's another thread.
Title: Re: a little relief for cluster headache
Post by BobG on Jul 16th, 2005, 10:10am
You're right about the cartoons. My grandkids get bored pretty fast with most of the crap they see. We have some old Our Gang and Little Rascals movies. The boys will sit and watch those over and over.
And the video games are unbelievable for the violence, blood, guts and gore. Have you seen that "Grand Theft Auto"? That should not be sold to anyone under 75 years old.
Title: Re: a little relief for cluster headache
Post by DonnaHar on Jul 16th, 2005, 10:30am
No, but my 8 yr. old grandson has one called "Perfect Dark" among many others and they're horrible.  

I can see the change in my own children according to their ages.

My 40 year old son wouldn't think of kids seeing such violence.

My 38 year old daughter wouldn't let her kids see violent cartoons until they were about 8, after the most formative years.  These kids are very sensitive to others feelings and pain.

My 33 year old son is the one who condones these vidios (no matter what mom warns) and plays them with his 8 year old, and has since the little guy was quite young.  This grandson is not shocked at all by violdnce on TV and is not as sensitive to others feelings.

This change in parents' attitudes took place In just a few short years.
Title: Re: a little relief for cluster headache
Post by Kevin_M on Jul 16th, 2005, 10:49am
An Imitrex ad now appears.
Title: Re: a little relief for cluster headache
Post by Kiwiinoz58 on Jul 17th, 2005, 9:51pm
One and all,
Thanks heaps for 7 pages of distraction. I'd been sitting here crying like a bloody big baby with CH no5 and it's only 11:15am here in OZ (have run out of Imigran inj) Sooo I made myself nice hot cup of tea and guess what,
no 6 is starting!! Well it was worth a try and just to see the pics of Jonny, what more could a person want! ;;D
Cheers,
Jacqs


Clusterheadaches.com Message Board » Powered by YaBB 1 Gold - SP 1.3.1!
YaBB © 2000-2003. All Rights Reserved.