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        New Message Board Archives >> 2005 General Board Posts >> I need your help folks!!!!
        
(Message started by: Jonny on Jun 6^th, 2005, 5:59pm)

Title: I need your help folks!!!!
Post by Jonny on Jun 6^th, 2005, 5:59pm

Lets get this lady some help.....Rex! you out there?....I need you on this one!!

Here is a PM I got, lets help this Mom help her daughter....thats an order ;;D

Jonny,
My first visit to the Message Board!
Our daughter is age 44. First cluster started in 1989 at age 29.
She has moved into chronic cluster stage about 30 days ago. She just moved into a High Altitude city, Denver and a new high stress job. Her cluster occurred almost every night now they come during the day &/or evenning.
We are really concerned. Can anyone suggest how to find the best expert/clinic/hospital in North America?
My daughter has monitored the Message Board for some time, but it does not discuss who's good better or bad!
My daughter spent 30 days in a Chicago clinic and the so called support staff at the hospital had to be on the lowest range of the pay/qualifications scale. Most did not speak legible English and on a couple of occasions almost made serious medication mistakes to my daughter. That 'specialist" can not be classified as good due to her unwillingness/inability to gather a competant staff.
Who, what where can you suggest???
Thanks

Title: Re: I need your help folks!!!!
Post by thomas on Jun 6^th, 2005, 6:06pm

Dr. Charles Meilie in Madison WI. Linked on the OUCH board.

http://www.clusterheadaches.org/doctors.htm

Title: Re: I need your help folks!!!!
Post by broomhilda on Jun 6^th, 2005, 6:09pm

Its pretty far but Dr Robinson

Vancouver BC, Canada

Hope she finds someone and soon :(

Title: Re: I need your help folks!!!!
Post by lionsound on Jun 6^th, 2005, 7:04pm

The New England Center for Headache, in Connecticut.
http://www.headachenech.com/

I see Dr. Sheftell. He's the best! :)

All the doc's and staff there are awesome.

They are not an inpatient facility but do work with one if that's what you need.

Title: Re: I need your help folks!!!!
Post by Jonny on Jun 6^th, 2005, 7:54pm

Thank you folks for replying!

If this was your Mom....nuff said!

Rex, dont make me come there [smiley=bash.gif]

Title: Re: I need your help folks!!!!
Post by rextangle on Jun 6^th, 2005, 8:36pm

Yeah, yeah yeah... I'm here.;;D

I'm in Denver and I may be able to help.
Jonny, put her in touch with me. You've got my home email and my number....
I'll see what I can do.

Later,
Rex

Title: Re: I need your help folks!!!!
Post by vig on Jun 6^th, 2005, 8:40pm

I think she could also come here and read up and talk to the clusterheads. there's a lot to be learned!
Good luck!

Title: Re: I need your help folks!!!!
Post by Jonny on Jun 6^th, 2005, 8:56pm

Thanks Rex...info has been forwarded