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Title: Just When I Thought Things Couldn't Get Any Worse Post by Carl_D on Jun 4th, 2005, 7:25am I am finding myself completely overwhelmed. With all of the shit I have had to contend with the past two hellish weeks I've managed to keep it together and not 'lose it.' IThe headaches have been bad lately, but again, I have been coping pretty well - that is, up until the last two days. My legs have been hurting again, and now the pain is keeping me awake, yet again. I told my friend Maggie I would rather ride out a 5 hour cluster attack than deal with this. At least it would be over after 5 hours. The pain in my legs though is continuous, and they are just pulsating and throbbing. Needless to say I have been miserable as all getout, and right now I am staying with peeps who know me better than anyone, and I can't hide the fact I am in so much pain. I have been hanging with Maggie during the day and evening, and coming over here to my friends Phil and Sunny's at night to hang out and crash (they are neighbors in the same building as Maggie, and even have a door that connects the apartments.) My friend Maggie is one of my biggest supporters. We met a year after I became chronic, and she has seen me in more attacks than my own family. In fact, years ago we were on our way to church, and on the highway I got hit with a kip 10 with nowhere to run and hide. I sat writhing, rocking and bawling in the passenger seat, and by the time we got to the church, she was in tears as well. A few weeks ago I came to Maggie's rescue when she had a massive migraine. I had some Trex tabs and rushed them over to her. It didn't really help her, so when she got her Trex nasal spray refilled she just gave them to me. My buddy Phil is one of the few people who can look me in the eyes and be able to tell me I am about to go into an attack. In fact, he used to piss me off so bad. We would be talking and he would suddenly say "Uh oh man, your eye is turning." I'd get ticked as if it was his fault. Of course we joked about that later. Now, instead of just the clusters, I am having to deal with the Fibro going haywire, and my legs are about ready to drive me insane they hurt so bad. I feel like I've been beaten with a ball bat too. Getting harder to walk again and am finding it harder and harder to hide the fact I am in so much pain, especially from these peeps who can tell. To top it all off, I got my Imitrex filled yesterday and once again, they didn't give me any syringes. So, I have to go back this morning and smack 'em around a bit. I mean how hard is it to figure out that if you are given any type of medication in a vial, you need a syringe to administer it? Anyways, I'm just lucky to have good friends back in town. Everyone had moved away from the area and since I don't have wheels, rarely got to see them. I should be back in my apartment Tuesday or Wednesday as long as everything works out. So with everything going on here, I really could use some vibes and prayers. Peace, Carl D |
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Title: Re: Just When I Thought Things Couldn't Get Any Wo Post by LeLimey on Jun 4th, 2005, 8:21am Carl you mucking fuppet! Don't you know yet never to say "Just when I thought things couldn't get any worse?"... haven't you ever watched any scary films?! Sheesh! Just promise me one thing.. don't go in the bathroom without checking behind the shower curtain okay?! [smiley=laugh.gif] I'm glad you have good friends and I'm glad you can see a chink of light at the end of the tunnel, I hope you get back to your apartment tues or weds as planned! Thanks for checking in, I've been thinking about you Take care Helen |
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Title: Re: Just When I Thought Things Couldn't Get Any Wo Post by Gator on Jun 4th, 2005, 4:52pm Carl, I just checked and apparently the vibes I sent to you were misdelivered to some schmuck with a hang nail. ARRRGH Brand new load on the way! Seriously, dude. Words seem so futile at a time like this, but it's all I got. I'm glad you have friends close by. Tell them I said thanks for taking care of my brother. Hang in there, man. |
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Title: Re: Just When I Thought Things Couldn't Get Any Wo Post by Lizzie2 on Jun 4th, 2005, 5:58pm Hey Carl, I'm sorry to hear you are hurting so much! Try to focus on the positive that you have your friends there to support you. I know you don't like that they can tell you are in pain when you want to keep it to yourself, but it's actually for the best - they've probably by now learned to recognize when you are in bad shape and then give you space or handle it however you all feel is best. Sounds like you are a good support for your friend, Maggie, too! You're lucky to have each other. :) Keep focusing on that part of things! As far as the trex - I take it your physician is writing a script for these vials? Is he also writing a script for the syringes? You do have to have a script to get them...at least as far as I know. When my doc would write for DHE vials, I also had to have a script for the syringes/needles. Of course, the insurance didn't pay for the syringes/needles (and no longer pays for any injectible meds at all), but they were the cheap part - I could get about 18 syringes for just over $7 I think! Just make sure that your doc is writing a script for both - because it isn't really the pharmacy screwing you over if he or she is not. If they don't have a script for the syringes, then it doesn't matter if they are giving you vials of a med - they have to have a separate script for the needles! Anyways...know you've got support from some good friends and also from all of us here! I know quite a few people with fibro, and if you'd like to talk to any of them via email, just let me know. I could always see if one or two would mind answering some of your questions or just sharing experiences. Gotta go dig through more drawers! Take care and hugz, Carrie :) |
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