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New Message Board Archives >> 2005 General Board Posts >> How should I take this?
(Message started by: aprilbee on Jun 3rd, 2005, 11:54am)

Title: How should I take this?
Post by aprilbee on Jun 3rd, 2005, 11:54am
I saw my neuro yesterday, to try ANOTHER preventative...not my point though...I was telling him about the medications and treatments I have read here.  He looked at me like I was goofy and continued with the typical "look at my finger" exam.  Then he says, "so you are online talking with a lot of old men on that website?"  What the fuck does that mean???  I quickly answered with a resounding "NO" and tried telling him about the website and the people, he didn't want to hear any of it...I'm seriously thinking about getting a new neuro... ::)

Title: Re: How should I take this?
Post by Langa on Jun 3rd, 2005, 11:56am

Quote:
I'm seriously thinking about getting a new neuro...  


Good idea...

Langa

Title: Re: How should I take this?
Post by thomas on Jun 3rd, 2005, 12:00pm
Maybe he's like me, when I get people who try and tell me about stuff they've read on the internet as far as fixing their cars go, I let it go in one ear and out the other.  You've got to realize most of the crap on the internet is just that, crap.  This place is an exception to that rule.  I tend to use the term "World wide support group" myself.

Title: Re: How should I take this?
Post by aprilbee on Jun 3rd, 2005, 12:01pm
That was the term I used, a support group...I dunno. :-/

Title: Re: How should I take this?
Post by Linda_Howell on Jun 3rd, 2005, 12:01pm


  A picture is worth a thousand words.

  You should have printed out some of the more pertinent information here and taken it in to SHOW  him.

  Linda


Title: Re: How should I take this?
Post by seasonalboomer on Jun 3rd, 2005, 12:02pm

on 06/03/05 at 11:54:19, aprilbee wrote:
"so you are online talking with a lot of old men on that website?"... ::)


Is that what you all are? Damn, and I thought you all were neuro's. Or are neuro's all old men? Or does your neuro want to find a place where he can be a dirty old man and talk to clusterheads about their pain?

What a jack ass! Knee to the groin might have actually been appropriate.

Sorry to hear you had to deal with such a jerk. I agree with Langa.

Scott

Title: Re: How should I take this?
Post by sandie99 on Jun 3rd, 2005, 12:03pm

on 06/03/05 at 12:00:16, thomas wrote:
I tend to use the term "World wide support group" myself.

Aww... That's what this site is! :)

But April, I have met 5 neuros so far. Find the kind who takes you seriously and listens to you. And DON'T accept meds you don't want. You're the one with the pain in your head, not the doc. He has no idea what battle you're fighting!

Title: Re: How should I take this?
Post by karma on Jun 3rd, 2005, 12:04pm
It doesn't really matter what he thinks about this place.
The question is, Is he educated about CH and is he helping you.
How you answer that question should guide you.

Title: Re: How should I take this?
Post by LeLimey on Jun 3rd, 2005, 12:23pm
April you are paying his wages and if he isn't doing what you want then sack him!
Get yourself to a new neuro pronto girlie!

Title: Re: How should I take this?
Post by aprilbee on Jun 3rd, 2005, 12:28pm
thanks for the input guys!! ;)

Title: Re: How should I take this?
Post by clarence on Jun 3rd, 2005, 2:00pm

on 06/03/05 at 12:04:51, karma wrote:
It doesn't really matter what he thinks about this place.
The question is, Is he educated about CH and is he helping you.
How you answer that question should guide you.


I think that Karma is spot on.  Let him be a jerk about the internet, but if he is helping you with the pain, maybe biting your lip and refusing to kick him is worth it.  

Casey

Title: Re: How should I take this?
Post by Gator on Jun 3rd, 2005, 2:46pm
You are from the OKC area, right?  Who are you seeing?  I have seen Dr. Marc Lenearts at the OU Medical Center Neurology twice so far and he seems very receptive to information from ch.com - even info about psilocybin, lsd/lsa and kudzu.  He asked me to send him links to the info and thanked me when I did.  He also listens to and discusses input about other medications I have seen discussed on this board.  He spends a lot more time with me than either my GP or my two previous neuros.  Apparently, he has around 5 - 7 clusterhead patients.  I am going to take him some materials to give out to the clusterheads and ask him to recommend this website.  I get the feeling he will do it.

If you're interested, here is his contact info:

Dr. Marc Lenaerts
OU Physicians, Dept of Neurology
711 Stanton L. young BLVD, Ste 310
Oklahoma City, OK  73104

PH#:  405-271-3535
FAX:  405-271-2523

He is in the Presbyterian Professional Building.  Actually, they are in Suite 210 right now.  A lot of construction going on in the building.

Title: Re: How should I take this?
Post by aprilbee on Jun 3rd, 2005, 3:49pm
Thanks!!  I will definately look into it!   :)

Title: Re: How should I take this?
Post by kimmeesue on Jun 3rd, 2005, 5:33pm
My first neuro came into the exam room like a whirling dervish and almost maniacally exclaimed she was going to cure me of my headaches.  She specializes in headaches/neurosurgery.  I gave her a year and guess what...I went chronic and she acted like I wasn't cooperating.  
I found a new doc who at least doesn't make empty promises.

Title: Re: How should I take this?
Post by TonyG1 on Jun 3rd, 2005, 6:19pm

on 06/03/05 at 12:02:30, seasonalboomer wrote:
Is that what you all are? Damn, and I thought you all were neuro's. Or are neuro's all old men? Or does your neuro want to find a place where he can be a dirty old man and talk to clusterheads about their pain?


Or maybe he wanted to be a dirty old man talking to other dirty old men....  <ewwwhhh ...> [smiley=hurl.gif]

whatever his motive, I would kick him to the curb and find a new neuro

Title: Re: How should I take this?
Post by BobG on Jun 3rd, 2005, 6:20pm
All clusterheads are old men. Except me!
::)

Go knee that jack ass in the groin!

Title: Re: How should I take this?
Post by ClusterChuck on Jun 3rd, 2005, 7:26pm
I am NOT a dirty old man !!!  (STFU, DD and Svenn!!)

I am NOT a dirty old man ...

Yes you are ...

Am NOT ...

Are TOO !!!

Am NOT ...

Are TOO !!!

Am NOT ...

Are TOO !!!

Am NOT ...

Are TOO !!!


(quick, somebody smack me ...)

Chuck

PS:  Time for you to get a new neuro   ...

Title: Re: How should I take this?
Post by Charlie on Jun 3rd, 2005, 10:16pm
You know more than he. Tell him so. My neurologist has asked me several times what's the latest from us. He knows I suffered for 23 years but see him now just for my seizures. He's a pretty good little twerp.

Dump him. http://www.netsync.net/users/charlies/gifs/purple snarl.gif

Charlie



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