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Title: I never bitch...... Post by Jonny on May 25th, 2005, 7:34pm about my head, but I do post whenever something good is happening so others will have some hope (Newbies) Ive been chronic for 30 years, been taking the magic cocktail of Lithium and Verapamil everyday for about the last 14 years. It has helped to kill 80% of the HA's from ever reaching my brain....LOL Ok, now for the new news....6 weeks ago I made an appointment with my Neuro, it had been 18 months since I had blood work (I know....practice what you preach) Knowing that I would run out of meds before I saw him I started half dosing, in the past this was a bad thing to do....I would get slammed every night cause of it. For some reason this time I had no daily shadows and when I did wake up at night it was just a shadow that 02 killed in 5 minutes (I have never killed a HA that woke me up with 02) I told my Neuro this and he said "take what you feel you have to, you have been doing this so long you know more than I do".................I love that guy ;;D Im going to continue to half dose as long as I can and hopefully ween off.....Can I get a Fuckeneh? [smiley=headbanger.gif] .......................................jonny |
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Title: Re: I never bitch...... Post by floridian on May 25th, 2005, 7:44pm Fukeneh, Bro! Good to be pain free, good to have a doc that cooperates. |
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Title: Re: I never bitch...... Post by pattik on May 25th, 2005, 7:46pm [smiley=headbanger.gif]Way to go, Jonny ;;D Maybe this IS the beginning of weaning off---keep us posted on this. I have high hopes for you. pk [smiley=hug.gif] |
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Title: Re: I never bitch...... Post by maffumatt on May 25th, 2005, 7:56pm Good going man, I hope that it works out for you. I have noticed that alot of people here know more than their doctors, and the doctors seem to leave treatment decisions to the patients. Hopefuly they are learning something. I know that when I want to try something different, my doc never has any objections. |
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Title: Re: I never bitch...... Post by high_commander on May 25th, 2005, 7:56pm [smiley=headbanger.gif] Too cool Jonny ! [smiley=cool2.gif] (Hard for me to swear, unless i'm ticked) [smiley=oops.gif] Danielle |
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Title: Re: I never bitch...... Post by alchemy on May 25th, 2005, 8:04pm FUKENEH!!!![size=2][/size] [smiley=headbanger.gif] |
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Title: Re: I never bitch...... Post by vig on May 25th, 2005, 8:07pm I don't know about a fuckeneh, but how about congratulations.... |
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Title: Re: I never bitch...... Post by BarbaraD on May 25th, 2005, 8:08pm Great news Jonny. Hope it stays PF and NEVER comes back... Hugs BD |
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Title: Re: I never bitch...... Post by BikerBob on May 25th, 2005, 8:15pm Go back to the full dose on the Lithium. Lately, your posts have been showing symptoms of the manic side of bipolar disorder. http://bestsmileys.com/transform/13.gif ;;D Bob |
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Title: Re: I never bitch...... Post by kissmyglass on May 25th, 2005, 8:22pm WOO fuckin HOO...Couldn't be happier for you man. Maybe after 30 years you wore the beast out. |
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Title: Re: I never bitch...... Post by Charlie on May 25th, 2005, 8:22pm http://www.netsync.net/users/charlies/gifs/yahoo.gif http://www.netsync.net/users/charlies/gifs/beer.gif http://www.netsync.net/users/charlies/gifs/rockon.gifhttp://www.netsync.net/users/charlies/gifs/partytime2.gif http://www.netsync.net/users/charlies/gifs/happy.gif Nice fuckin' goin' Charlie http://www.netsync.net/users/charlies/gifs/goofclap.gif |
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Title: Re: I never bitch...... Post by Redd715 on May 25th, 2005, 8:30pm Fuckeneh !!!!![/move] |
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Title: Re: I never bitch...... Post by nani on May 25th, 2005, 8:30pm FAN-FUKEN-TASTIC, BRO!!!! Thats great news! :-* hugs, nani |
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Title: Re: I never bitch...... Post by broomhilda on May 25th, 2005, 8:39pm Fuckeneh!!!That is wonderful news may it continue and see your future as being pf, you deserve the break :-* Whooooooo hoooo!!! [smiley=headbanger.gif] ;;D ;;D Hugs on over! |
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Title: Re: I never bitch...... Post by Jonny on May 25th, 2005, 8:50pm Folks......I have no idea WTF is going on, I just know I am not going to judge it for as long as it goes my way. This is the first time in two thirds of my life that I am able to live....and I dont know why, thats the hard part. I found you in 1999 and have been here since.......I thank you all for what you have done for me everyday.......see you in Dallas my family! |
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Title: Re: I never bitch...... Post by notseinfeld on May 25th, 2005, 8:51pm Sheee-Yot bro! That's uplifting. Keep us posted. |
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Title: Re: I never bitch...... Post by maffumatt on May 25th, 2005, 9:42pm See you there Bro.. hell Ill even buy a round or two........ |
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Title: Re: I never bitch...... Post by toolong on May 25th, 2005, 10:01pm Great Doc you've got there Jonny.Good fuckin' future to ya man!!!!!!! [smiley=headbanger.gif] |
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Title: You're Don's bitch...... Post by Mr. Happy on May 25th, 2005, 10:06pm Hey.....Mr. Fukeneh....you may turn into a whining occasional meegrainer. Can I have all your cool CH stuff? RJ |
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Title: Re: I never bitch...... Post by don on May 25th, 2005, 10:11pm FUCKEN EH DUDE! you still suck. |
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Title: Re: I never bitch...... Post by Kevin_M on May 25th, 2005, 10:12pm Good to hear Jonny! I know you've gotten through A LOT. It's backing down off ya and that means the most. that's ROCKIN' damn cool Kevin M |
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Title: Re: I never bitch...... Post by Redneck on May 25th, 2005, 10:18pm Damn Newbies! [smiley=laugh.gif] Kick ass and take names bro. |
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Title: Re: I never bitch...... Post by kcopelin on May 25th, 2005, 10:21pm So now you can find out how much of your personality was cluster induced and how much is just Jonny being Jonny ;;D PFDAN forever! kathy |
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Title: Re: I never bitch...... Post by Jimi on May 25th, 2005, 11:13pm One thing that you can predict when it comes to clusters. They are unpredictable. Great news Jonny and Good Luck bro. |
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Title: Re: I never bitch...... Post by Ruth on May 25th, 2005, 11:35pm Simply wonderful for you. Ruth |
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Title: Re: I never bitch...... Post by cootie on May 25th, 2005, 11:58pm This Fuckeneh's for you bud.........so you'd only been on here bout a year when I found this place........I remember thinkin you were some cool hard core ass dude that'd kick anybody's ass back then. Bet you still fuckeneh can Pam ;;D |
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Title: Re: I never bitch...... Post by E-Double on May 26th, 2005, 12:03am That rocks! Enjoy life! |
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Title: Re: I never bitch...... Post by Gator on May 26th, 2005, 12:48am |
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Title: Re: I never bitch...... Post by BobG on May 26th, 2005, 12:52am A Big Fuckeneh coming your way! :D |
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Title: Re: I never bitch...... Post by LeLimey on May 26th, 2005, 4:11am FUCKENEH!!! |
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Title: Re: I never bitch...... Post by medic1852 on May 26th, 2005, 5:41am FUCKENEH!!! I am happy for you! |
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Title: Re: I never bitch...... Post by Bethany1 on May 26th, 2005, 7:43am Fuckeneh!!!!!!! |
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Title: Re: I never bitch...... Post by Frank_W on May 26th, 2005, 7:57am FUKENEH!! Congratulations, bro'! That's awesome news! :) |
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Title: Re: I never bitch...... Post by ExplodingEyeBall on May 26th, 2005, 8:56am Fuckeneh So then there's some truth about them going away when we start getting real old??? ;;D Just kidding, I think I'm older than you are. |
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Title: Re: I never bitch...... Post by Langa on May 26th, 2005, 9:11am Good for you Jonny! May the PF time become permanent… ;;D Langa |
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Title: Re: I never bitch...... Post by LadyElaine on May 26th, 2005, 10:44am Jonny I don't know if you remember but I was on Verapimil and I cut the dose down and my clusters backed off. Then I just stoped taking my meds all together. I used imitrex alone for awhile when they broke though. I had to stop using that because of my heart. I have been pain free and drug free now for over a year. I am almost scard to say that, afraid they will come back. I am loving this pain free time. I think after awhile there is a build up and when you cut back it changes things and the old beast is fooled. :-) I am happy for you Jonny!!! |
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Title: Re: I never bitch...... Post by Candycane on May 26th, 2005, 12:10pm ONLY YOU JONNY ONLY YOU!!!! thats great news!!! 8) |
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Title: Re: I never bitch...... Post by boonie on May 26th, 2005, 12:28pm fuckeneh, fuckeneh boonie |
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Title: Re: I never bitch...... Post by Karla on May 26th, 2005, 1:11pm I am so happy for you! I hope this is a sign of good things comming. I will continue to pray for you to find perminent relielf. |
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Title: Re: I never bitch...... Post by Tiannia on May 26th, 2005, 1:31pm Can I get a Fuckeneh? [smiley=headbanger.gif] [smiley=headbanger.gif] [smiley=headbanger.gif] That is great hun. That is such a great thing to hear. |
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Title: Re: I never bitch...... Post by Lizzie2 on May 26th, 2005, 1:33pm [smiley=me&mb.gif] [smiley=headbanger.gif] Rock on, Bro!! Fukeneh!!!! -L2/kid :) |
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Title: Re: I never bitch...... Post by aprilbee on May 26th, 2005, 1:42pm I won't mess up your ju ju, I'll just say...Fuckeneh!! there's hope for us all!! ;) |
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Title: Re: I never bitch...... Post by Carl_D on May 26th, 2005, 5:29pm FUKENEH BRO!!!!!! Car |
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Title: Re: I never bitch...... Post by ghost62 on May 26th, 2005, 5:38pm Farfegnuegin [smiley=headbanger.gif] [smiley=bigguns.gif] [smiley=jammin.gif] NO MO PAIN !!!!!!!! its all good |
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Title: Re: I never bitch...... Post by Jonny on May 26th, 2005, 5:50pm on 05/25/05 at 20:15:47, BikerBob wrote:
I heard that;;D Thanks for all the good wishes folks, but theres a downside......If I wean off the Lithium by the time Dallas rolls around......your all in trouble......LMMFAO [smiley=sgrin.gif] |
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Title: Re: I never bitch...... Post by ClusterChuck on May 26th, 2005, 8:44pm !!! Fukeneh !!! I am SO glad for you, Bro! It gives other chronics (like ME) lots of hope !!! Way to GO !!! Chuck |
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Title: Re: I never bitch...... Post by ShariRae on May 26th, 2005, 10:18pm FUCKENEH.... That is great news jonny...you have definately earned a break! Keep us posted.. Huggs Shari |
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Title: Re: I never bitch...... Post by don on May 26th, 2005, 10:32pm Plus he's wearing one of these now. http://img.photobucket.com/albums/v388/bgull2/SHSheadbandpatch.jpg |
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Title: fuRe: I never bitch...... Post by rickyshot on May 27th, 2005, 10:59am FUCKENEH!!!! for sho gives us all hope [smiley=headbanger.gif] [smiley=me&mb.gif] [smiley=shore.gif] |
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Title: Re: I never bitch...... Post by TheMasterBaker on May 27th, 2005, 1:00pm ;;D ;;D ;;D |
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Title: Re: I never bitch...... Post by Kim Y. on May 27th, 2005, 3:15pm Johnny [smiley=headbanger.gif] Congratulations. This is wonderful news. May it continue on PF wishes forever.. Kim |
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Title: Re: I never bitch...... Post by Leesa on May 29th, 2005, 11:06pm Happy wigglin over here for ya bro. Still cant happy dance YET ;). Ive told folks from day one on here "do what ever works" Love, Leesa :-* |
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Title: Re: I never bitch...... Post by sandie99 on May 30th, 2005, 12:05pm Jonny, that's fantastic!!! 8) More PF days, Sandie |
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Title: Re: I never bitch...... Post by Ree on May 30th, 2005, 3:28pm Spucken-Eh jonny!!! thats the best news I have had all day.....love ree |
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