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        New Message Board Archives >> 2005 General Board Posts >> Tough is as tough does....
        
(Message started by: kimh on May 14^th, 2005, 4:33pm)

Title: Tough is as tough does....
Post by kimh on May 14^th, 2005, 4:33pm

hey all,

you know.......... i keep reading over and over again how it seems important for us as sufferers to maintain this "tough" image through the pain............

there is no such thing as a tough sufferer as opposed to a wimp sufferer. You either suffer or don't suffer from clusters -- and when shit hits the fan -- shit flies.

Nothing is rite or wrong in how you react to a stimulis that is STILL so little understood by the world. NEVER feel guilty and NEVER say "never". There is no such thing as a "wimpy" sufferer***

PFDAN :-*

Title: Re: Tough is as tough does....
Post by sandie99 on May 14^th, 2005, 4:37pm

on 05/14/05 at 16:33:08, kimh wrote:

NEVER feel guilty and NEVER say "never". There is no such thing as a "wimpy" sufferer***

You know, I used to feel guilty about having ch a lot. But I don't feel that way anymore. And my dear family here has everything to do with it. So, my thank yous to you all... :-*

PF days & nights to all,
Sandie :)

Title: Re: Tough is as tough does....
Post by Redd715 on May 14^th, 2005, 6:26pm

Regardless of how *tough* or *whimpy*....I still feel guilty. Not for having CH....but for how much it effects those around me.

Yesterday I ws at Jerome's..and I got hit

only a K5 but I was hunkered down in the corner of the kitchen and his 6 year old son Jered stood staring at me...

I was rocking...trying to use deep breathing....Jerome was leaving me alone as I needed...

Poor Jered was so utterly confused over the whole ordeal...I am trying so hard to forge a friendship with him threw this all, his young impressionable state. And here I am scareing the hell put of this poor child. He's such a diplomat too. I'm not his mother...so the duty of trying to explain this is on his father's shoulders and Jeome did try to explain.. How much a 6 year old can understand of this that hasn't seen it before...One can only guess...

Guilt over the life altering effects CH has on us all is immeasurable...

I only can ask the powers that be to spare the brunt of it from those I care about...

Title: Re: Tough is as tough does....
Post by Candycane on May 14^th, 2005, 6:58pm

funny, I go along everyday and really act like I am person that doesn't have CH, might call that tough? Or dumb? Whatever, but when I get hit hard and alot I just give in and surrender to it all and grab my tex and be that wimp!!!

Title: Re: Tough is as tough does....
Post by BarbaraD on May 14^th, 2005, 6:59pm

I quit feeling guilty a long time ago. I have CH and I can't do a damn thing about it. My eye swells, my nose runs and if you get near me I'll hurt you.... just the way it is.

My 3 year old Caleb (grandson) knows when Granny starts messing with her left ear she's getting hit. He runs and pulls out the O2 and starts yelling, "Granny breath, Granny breathe." He knows when Granny quits the O2, she'll be back to take care of him, but to leave her alone for NOW! He usually runs and tells his Papaw that "Granny's breathing - we play now!" I've never apologized to him - just explained that Granny has Cluster Headaches and sometimes she has to be left alone. AFter the headache goes away, he kisses it and makes it all better.

I don't think anyone who goes thru these things can be a wimp. We get to the point we feel like it, but the pain we endure belies that totally.

Hugs BD

Title: Re: Tough is as tough does....
Post by Kirk on May 14^th, 2005, 11:18pm

My family and community have always been so understanding that it has never occured to me to feel guilty about it.
I'm a very lucky man from what I've heard over the years. [smiley=mellow.gif]

Title: Re: Tough is as tough does....
Post by Kevin_M on May 15^th, 2005, 1:39am

on 05/14/05 at 16:33:08, kimh wrote:

for us as sufferers to maintain this "tough" image through the pain............

I'm just tough being prepared. Through the pain? If the image of toughness is crawling and rolling, I'm bad.

Hi Kim~! :)

Kevin M

Title: Re: Tough is as tough does....
Post by sandie99 on May 15^th, 2005, 5:25am

on 05/14/05 at 18:58:57, Candycane wrote:

funny, I go along everyday and really act like I am person that doesn't have CH, might call that tough? Or dumb?

That's what I did in the early days after my diagnosis, when I was in public... It was so much easier to pretend that I was okay than to explain everybody at the uni what's going on. But I don't do that anymore. I've taken pain medication in the middle of a class and few times left because the attack was too much to take.

But I must agree with BarbaraD; nobody who has ch is a wimp. [smiley=bigguns.gif]
We and our supporting closeones are practically everyday heroes! :)

Title: Re: Tough is as tough does....
Post by john_d on May 15^th, 2005, 9:18am

on 05/14/05 at 18:58:57, Candycane wrote:

Yep, that's exactly the way I started being towards the end of my last cycle, I began to actually live my life rather than just be a clusterheadache sufferer, it seems the best way to live with it to me.

Title: Re: Tough is as tough does....
Post by Kim Y. on May 15^th, 2005, 10:45am

I go on living my life till I start getting really bad shadows. Nobody really knows but me till it gets so bad that I can't hide it any longer. I bend over and cry in pain but lately it seems to hit at work and that is the only place that I feel guilty. I find myself appologizing for them having to see this. They tell me not to but I can't help it.

My husband understands I just feel guilty because I know how much he wishes he could help but there is nothing he can do.

I agree that none of us are wimps I think we are much stronger then we think. To indure and continue on day in and day out go to work, take care of families, etc.

PF wishes.................Kim