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Title: So, what's your story? Post by samsara on Apr 12th, 2005, 4:36pm So, I'm new here and I am very curious to hear stories from other cluster heads. I have spent many hours over the last few days on this forum... reading and reading and reading... I have realized this reading could go on for years!! ;) I am sure most of you have told your stories before, but I am not seeing a thread dedicated just to that. So I figure, maybe it is time for one!! I'll start... I'm 31 years old and have been suffering from clusters for five years. I suffered thru my first couple of cycles just thinking I had stress or other issues... never really paid enough specific attention to time, duration and frequency. My pain was usually a 6-7 on the Kip scale, probably why I just worked thru it for so long. After a while this got old, so I went to my doc. He said "hmmm... headaches at certain times of day... works full time, two small kids... sounds like tension to me, have some muscle relaxers". Looking for an alternative to pills that make me feel funky (an not in a good way... ha ha) I then went to a chiropractor who said "oh yes, this is because your neck is mis-aligned, we can fix this." Well I swear, that chiropractor did wonders. The first couple of weeks of visits, I actually sometimes felt WORSE after my adjustment but then one day they just vanished. Looking back I see it was the end of a cycle, but at that time I thought that chiropractor was a miracle worker. A few months later... December of 2002... on they came again. Well jeez, it's the holidays, must be stress again. Time to see that chiropractor. I went, with no relief, no help... sometimes I would feel better for a few minutes but within ten I was just as bad and sometimes worse. Sometimes I went in with no headache and came out with one. Note, my appointments were usually on my lunch break, which is without fail when these bad boys come on. noon, like clockwork I get a shadow, and then around 12:30 "hello, I'm here!!" Then in January I signed up for a meditation class. Two weeks into the class my headaches dissappeared. I thought "jeez, it is stress and this meditation stuff works great!!" A connection I did not make at that time is that incidentally I had started to supplement my life journey with a natural alternative therapy that I have noticed in my reading here has uses with the beast... So months went by pf, and I would have a cycle start from time to time, but I was healing myself fairly regularly using this therapy, I just didn't know it. I thought it was just my life taking a turn for the better in general. Then last spring I had a whopper of a cycle and went in to see my doc. He was unavaliable, but I was seen by a wonderful PA... who asked me a few key questions... "do these happen at the same time every day? Do they wake you from sleep?" and so on. She nailed it. Gave me a bunch of literature, a scrip for pred and verap, and an order for an MRI "just in case". I ran home, spent the next few days on line and just could not believe it!! All the way down to the odd things... like how I pace when I get these headaches. My sister once teased me that I am the only person she knows who gets a headache and gets almost hyperactive... Anyway, I found this forum a couple months later, registered and never posted. But then last Friday I had my first Kip 9... I sincerely hope this isn't the start of a new level of pain for me. Luckily I had an alt. therapy avaliable, and was able to use that... and I have only had shadows since, and those are only on the level of a Kip 1-2. All I can say is my Kip9 gave me a whole new realization of what real pain is. I have given birth to two children, and I honestly can say this was worse. It just does not relent!! My husband was scared to death I was having a stroke or something, he is used to my clusters but like I said, they have always been a 7. Funny how that scale is like the richter scale.... definitley logorhythmic and not linear!! the difference between 7 and 8, or 8 and 9... cataclysmic. So that is my story. Funny how when I look back over the last couple of years tho, I can see how my personal use of alt. has coincided with pf weeks and months. Only when I go without for a while do I get hit with a cycle. Now I know!! Whoda thunk a spiritual quest would have such physical benifits??? ;) I do intend, however, to follow up with my MD after this last attack. I definitley need to find out about having some imitrex or another abortive handy in case another tsunami from hell hits me. And I think I will check out the kudzu, much to my Georgian husband's amusement.... PF wishes to my new and future friends. Lets hear about you!!!! ;;D |
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Title: Re: So, what's your story? Post by Jonny on Apr 12th, 2005, 4:39pm Please!...either warn us about the length of your post or put it on tape and mail it to all of us.....LMAO ;;D |
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Title: Re: So, what's your story? Post by samsara on Apr 12th, 2005, 4:43pm Oh, I'm sorry!! sometimes I forget.. some folks might have dial up... Here, I will summarize for you. 31 female episodic clusters x 5 years glad to be here ;;D |
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Title: Re: So, what's your story? Post by Jonny on Apr 12th, 2005, 4:44pm on 04/12/05 at 16:43:36, samsara wrote:
LMMFAO....Now THATS FUNNY.....LMAO ;;D Edit to add....30 years chronic 14 with no diagnosis or meds Washed up here close to six years ago and they all hate me....Fuck'em ;;D |
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Title: Re: So, what's your story? Post by ghost62 on Apr 12th, 2005, 4:47pm on 04/12/05 at 16:43:36, samsara wrote:
[smiley=bow.gif] [smiley=bow.gif] [smiley=bow.gif] [smiley=headbanger.gif] [smiley=headbanger.gif] [smiley=headbanger.gif] We love ya johnny ! Oh wait they hate me too. ;;D |
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Title: Re: So, what's your story? Post by samsara on Apr 12th, 2005, 4:49pm Oh my god... chronic and 14 years no meds... there must be many bodies lying in your wake... Glad to make your aquantence J. :) |
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Title: Re: So, what's your story? Post by clarence on Apr 12th, 2005, 4:49pm Welcome, and glad you found us. (though, as everybody says, and will be said again, and with all sincerity I might add, sorry you had to...) Thanks for sharing your story. You have a good way of telling it, and it made me laugh. Thanks, I needed it. I started getting Clusters about 4 years ago. Was first diagnosed with shingles. Even thoguh I didn't get the blisters. When the pain returned a few weeks later, they said that it couldn't be Shingles, and that it had to be Lupus. Actually, the nurse practitioner called me at home on a Friday afternoon and told me that my test results came back as Lupus, and that the doc would call me Monday. I had no idea wht Lupus was so I got online and freaked out. Monday the doc told me that I didn't have Lupus, and that he was pissed at the nurse for telling me that, on a Friday afternoon without consulting hiom first no less. One hell of a weekend. I was sent for an MRI. The Neuro told me straight out that he had no idea what was wrong with me. At this time I happened to see my wife's doc when I went in one time, and she mentioned that it sounded to her like clusters. I said, headache, this is no headache... Well, she was right. I was relieved when they told me what it was, if only because then I had a name to put with the pain. It was about a year before I got the diagnosis. I didn't find this family until last Summer though. Worst cycle for me to date. And I sure am glad that I have this family. I really don't think I could make it through without them! Glad to meet ya! Casey |
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Title: Re: So, what's your story? Post by Langa on Apr 12th, 2005, 4:51pm Welcome Samsara… 36 yo female 27 year sufferer 26 years episodic cycle in June for 2 months every year until June 04, the cycle that hasn’t ended yet…I say yet because I can hope right? Langa P.S. Jonny is full of it…we love him to death here… ;;D |
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Title: Re: So, what's your story? Post by ghost62 on Apr 12th, 2005, 4:52pm lets see episodic x 27 no meds still wife hates me dog broke his tool fight'n beast hand to hand wife hates me 2 kids did I mention wife hates me? |
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Title: Re: So, what's your story? Post by BlueMeanie on Apr 12th, 2005, 7:15pm on 04/12/05 at 16:44:41, Jonny wrote:
Once upon a time, many many years ago. Got CH's and still get them. That's my story and I'm stickin' to it. [smiley=laugh.gif] And jonny can be rude, crude and obnoxious, but we still luv em' ;) |
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Title: Re: So, what's your story? Post by yikes-another-one on Apr 12th, 2005, 7:41pm caught ch 6 years ago, wuz episodic until sept 04...now still in pain... sometimes zomig, othertimes, just dance around. Greatful for this web place.... It cured my anxiety... and my superstitous naivity... In otherwords, it educated my arse... and saved my life... so thanks you guys!!!!!!!!! |
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Title: Re: So, what's your story? Post by nani on Apr 12th, 2005, 7:54pm What a great idea this thread is! ;) My story: My first CH episode was at age 16 (1973) , 2 weeks after childbirth. Misdiagnosed as an effect from anesthesia. Episodic until 7/99. My episodes were not "regular" during all those years. Chronic since 7/99. :( Was not diagnosed until 7/99 Have been finding a great deal of relief since 2/4/05 using kudzu. Still chronic, but 98% PF. :) |
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Title: Re: So, what's your story? Post by totka2 on Apr 12th, 2005, 8:39pm 46 male episodic since 1982 misdiagnosed and mistreated until 1996 Imigran (Imitrex) inj. the only Hungarian here webmaster (?) of Hungarian CH site http://clusterheadache.hu |
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Title: Re: So, what's your story? Post by PerryGR on Apr 12th, 2005, 8:46pm Welcome samsara. My story: 22 y.o. male sufferer for 3 years chronic for 3 years got diagnosed with CCH last June ('04) came here right after my diagnosis for more info and found alot more than just that. PFDAN to you, Perry. |
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Title: Re: So, what's your story? Post by Charlie on Apr 12th, 2005, 8:57pm Welcome to the madhouse and stick around. You'll find lots of ideas and ways to deal with this horror. I'm a lucky one. Got my episodics in 1969 when I was 23. I had two and sometimes three cycles per year. Spring and fall were assured in any event. Back then there weren't a lot of drugs but Inderal worked for me after a week or ten days. It didn't kill them but it made me sane for the most part. In 1991 when I was 45, they disappeared. I don't know why other than that there is some evidence of an age factor. Here is the technique that worked well for me: Dr. Wright’s Circulatory Technique What follows is a technique learned from a neurologist: I am not sure what mechanism is triggered by this but whatever it is, at least indirectly helps kill the pain. I do know that this technique has nothing to do with meditation, relaxation, or psychic ability. It is entirely physical and takes some work. It involves concentrating on trying to redirect a little circulation to the arms, hands, or legs. It can described as a conscious circulatory flexing. Increased circulation will result in a reddening and warming of the hands. Try to think of it as filling your hands with redirected blood. The important and difficult part is that it has to be done without interruption through the pain. Do not give up in frustration. It may not work on the first try. Every now and then it will work almost immediately. I lived for those moments. Try experimenting between attacks. You will find that it gets easier with practice. I was given less than five minutes instruction in the use of method. The doctor, while placing his arm on his desk, showed me that he could slightly increase his arm and hand circulation. After several attempts, I was able to repeat this procedure and use it successfully. I have had about a 75% success rate shortening these attacks. My 20 minute attacks were often reduced to 10 minutes or less. Once proven that I had a chance to effectively deal with this horror, I always gave it a try as I had nothing to lose but pain. Perhaps it will help if you think of it as trying to fill the arm as if it is were an empty vessel. I used to try to imagine I was pushing blood away from my head into my arm. Use your imagination. There is one man who wrote that his standing barefoot on a concrete floor shortened his attacks. This may be similar as it draws some circulation away from the head. Cold water, exercise, or anything affecting circulation, seems to be worth a try. My suggestion is to not let up immediately when the pain goes. Waiting a minute is probably a good idea. So long as you do not slack off, this has a chance of working. This technique is very useful while waiting for medication to take effect or when none is available. It costs nothing, is non-invasive, and can be used just about anywhere. It is not a miracle but it helped me deal with this horror. It can be a bit exhausting but the success rate was good enough for me and a cluster headache sufferer will do just about anything to end the pain. It gives us a fighting chance. I hope this technique is helpful and I wish you the best of luck Charlie |
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Title: Re: So, what's your story? Post by Kris_in_SJ on Apr 12th, 2005, 9:21pm Hi Samsara, 50 yr. old female Episodic clusters since the age of 41. 3-5 year apart episodes lasting about 10 weeks each. First episode diagnosed as Shingles (sound familiar Clarence?) One long chronic shadow pain that lasted about 8 weeks. Many tests, many narcotics, nothing helped ... it went away. Four years later, HA every night at exactly 8 PM. Icepick into my eye and temple lasting from 1 - 2 hrs. Shadows during the day. More tests, Imitrex injects (thank God!) and Prednisone Pack. Diagnosis confirmed. Verapamil started, but cycle almost over anyway. Last year - much reading and research later - High dose Verapamil started immediately, Imitrex injects (split appropriately) and Prednisone Pack - cycle of pain kept to 5 weeks maximum. Am now off all meds. Don't know when my next cycle will happen, but am knowledgeable about medical and alternative treatments, and and ready when it happens. I thank this family every day (even Jonny)! Kris |
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Title: Re: So, what's your story? Post by E-Double on Apr 12th, 2005, 9:36pm 31yr old freak..... episodic since Fall 1994 (2x a yr brief cycles for about 1 month ONLY AT NIGHT) Last yr's cycle started full blown in May yet wife and I agree that the forewarning signs were occuring in March so I guess I've reached that certain word Went undiagnosed/misdiagnosed/untreated.....BARE KNUCKLED IT (19 cycles without any treatment WOW!) until last June when my wife found this place.... I cried as I read the stories and realized it was me!!! Had attacks going heywire day and night finally got to a neuro and had a HIT during my exam..... Was quick to diagnose......finally I knew what was occuring....... Cycle still has not broken but I am a lot more positive and do not live in fear since probably mid July of last year.....Worn out but not scared or anxious! Stopped really questioning when it will end or when it will strike....an inner peace occured. Love this place and like many here have a damn addicitive personality....addicted to the comfort of this place!!!! Hugs to all! Eric |
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Title: Re: So, what's your story? Post by don on Apr 12th, 2005, 9:40pm 27 years old incredibly handsome male sinus headaches since age 26 blow up doll deflated I need a motrin Edited to add: Buff |
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Title: Re: So, what's your story? Post by TonyG1 on Apr 12th, 2005, 9:50pm 39 y/o male 18 years episodic, sometime 2 cycles in a year, sometimes 2 years between cycles Just diagnosed with this cycle ... so every cycle up to this past one was no treatment ... :'( THANK whatever higher power you believe in for finding this site ... I do !! The ppl here are gr8 !!! BTW - I like your "... logorhythmic and not linear ..." analysis of the pain scale !!! Don -- Got that motrin for you ... ;;D |
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Title: Re: So, what's your story? Post by cootie on Apr 12th, 2005, 9:52pm welcome ! Neurotic supporter Whineing champion lives up to blonde jokes loves tatoo's and cats gets off topic alot............. implanted Pam |
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Title: Re: So, what's your story? Post by Gator on Apr 12th, 2005, 11:51pm "I didn't do it, nobody saw me do it, there's no way you can prove anything!" ;;D |
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Title: Re: So, what's your story? Post by samsara on Apr 13th, 2005, 1:15am Wow, thank you all so much for sharing. It is nice to get to know you all... Eric... Quote:
I really like that.. so true, not just about this either! I find it interesting that more than one of you were at some point mis-diagnosed with shingles. And lupis too... I guess a lot of stories have also re-affirmed that while the doctors are "experts", we are the experts of ourselves. They may have the ability to diagnose, but we have the advantage of knowing ourselves far better than we can express to the experts in a short 15 minute appointment. It is a little disappointing that so many have had to teach their doctors, but think of the other CH sufferers you may be helping in the future by being a teacher. Charlie, thanks for sharing that technique. I have self-taught a similair technique, I guess as a by-product of meditation... sometimes when I am in the throes I will close my eyes and breathe deeply, imagining that with each deep in-breath the oxygen is rushing to my head, grabbing the hurt and when I exhale, the CO2 carries some of the pain out with it. I actually visualize this, I think you have to for it to have a chance. It never stops it, but it can tame it a bit if you really give it a chance. It is hard to stay centered and concentrate during these things tho, discipline for sure. keep the stories coming folks! |
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Title: Re: So, what's your story? Post by sandie99 on Apr 13th, 2005, 1:26am My story: female nearly 25 (tomorrow! ;;D ) first ch has in fall 2001 first full cycle in fall 2002 diagnosis in january 2003 chronic since fall 2003 currently on verpamil painkiller maxalt rabitab Here I am, countless meds and six docs ago... ;;D Glad to be here! ;) |
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Title: Re: So, what's your story? Post by samsara on Apr 13th, 2005, 1:37am Let me be the first to say happy birthday Sandie!!! ;;D |
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Title: Re: So, what's your story? Post by ccbiggsoo7 on Apr 13th, 2005, 1:38am Happy 25th Sandie! |
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Title: Re: So, what's your story? Post by LeLimey on Apr 13th, 2005, 3:31am 39 3 kids (officially plus 1 husband ;) ) 1 stinkin beagle and 1 scared cat first attack last sept and still going would not be here now if not for this site. firmly believe that you have to laugh or this thing will get you |
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Title: Re: So, what's your story? Post by Renee on Apr 13th, 2005, 4:05am 43 year old female ch began in 1982 epidodic ch returned in 1997 chronic since many misdiagnoses and unneeded surgeries not diagnosed until 2003, by an e.r. doc, after many specialists This place DID save my life! |
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Title: Re: So, what's your story? Post by Drk^Angel on Apr 13th, 2005, 4:46am First attack I can remember at 11. Diagnosed with ECH at 25. Currently in cycle for the past 25 months. First quack diagnosis "Children don't get headaches" from before I can remember 'til my teens. Full current diagnosis: Episodic Cluster Headaches and Chronic Daily Tension Type Headache (non-remitting headache since age 13) Current meds: None (Had to choose between shelter, food and clothing for me and my family, or continue to waste my money on useless meds) Started with one 2 week cycle per year (~4 attacks a day) then increased to two cycles per year. Around the time I was diagnosed, I was up to 8 attacks per day and ended up with a pleasant 8 month cycle that time. New cycle started like 6 months after that one. PFDAN....................................... Drk^Angel |
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Title: Re: So, what's your story? Post by marty on Apr 13th, 2005, 5:51am Hi Episodic clusters started back in early 90's. Thought that I had an anurism. Went to the doctor who told me that I was stressed out. Up until 2000, I fought my silent battles drinking lots of very hot coffee, causing blisters on my lips and burning the crap out of my mouth. While on vacation in Sweden, they got really bad and I went to see a Swedish doctor. He had a trainee with him and explained in his expert training mode that I was a smoker and that I had (by smoking) caused damage to the membranes in my right nostril and prescribed sesame-oil that I was supposed to spray up my nostril and that would take care of the problem. Of course it did not take care of the problem.. In 2002, I went to the ER at Kaiser Hospital in San Diego. After starting to explain to the doctor why I was there (seemingly without any pain at the time), the doctor "took over" my explanation and told me, word by word what I had intended to say!! That is when I first heard of cluster headaches. 2002 was my last episode and I am well overdue with shadows getting stronger and more frequent. Hopefully, this time I will be more prepared, have more knowledge and more peace of mind, knowing that I am actually not going to die of an anurism or brain tumor. I will be more understanding when strangers try to help me by saying that they know exactly what I am going through, since they also have had exactly the same headache after the last party when they drank way to much or when their sinuses where infected.. I will also make a card that I will carry with me and give to the next cop that comes up to arrest me for being on meth as I am standing outside my truck, soaked in sweat on a blacktop parking lot, in 100+ degree heat, drinking mega large cups of hot and steaming coffee >:( Marty |
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Title: Re: So, what's your story? Post by Bethany1 on Apr 13th, 2005, 7:51am 30 yr old female episodic cluster freak for 10 yrs, misdiagnosed until 2002 Have 2-3 cycles per year that last around 6-8 weeks Verapamil, Indocin & Imitrex Just got married in September of 04, live in Boston, and have 1 puppy. ;;D welcome Samsara, a boatload of info here along with wonderful people! |
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Title: Re: So, what's your story? Post by Frank_W on Apr 13th, 2005, 8:19am 36yo Curmudgeon Episodic since 1998 2 Cats: 1 is terrified of me; the other loves me Wife half-scared and worried 7yo Daughter, oblivious. (and that's a good thing) Meds: Kudzu |
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Title: Re: So, what's your story? Post by ExplodingEyeBall on Apr 13th, 2005, 8:52am 42 years old (I act like I'm 16 and look like I'm 100) Male Married almost 15 years now with 3 step kids and one daughter of my own that looks like my clone (poor kid). Episodic since I don't really remember. Just got diagnosed last year about this time. My one year anniversary at this web site is 4/15. I gladly accept any expensive gifts that anyone wants to throw my way. If you are bored, ask me about my daughter or my guitars and I'll never shut up. BTW: Watch out for johnny. He's trouble. ;;D |
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Title: Re: So, what's your story? Post by thomas on Apr 13th, 2005, 9:10am Old, fat, bald guy with a sore head. |
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Title: Re: So, what's your story? Post by vig on Apr 13th, 2005, 9:12am not allowed to divulge that... witness protection plan and all.... 8) |
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Title: Re: So, what's your story? Post by thomas on Apr 13th, 2005, 9:29am on 04/13/05 at 09:12:10, vig wrote:
You can run but you can't hide, stoolie! I'm sendin' Vito and da boys down der ta take care of ya's. [smiley=deal2.gif] |
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Title: Re: So, what's your story? Post by EmpressJMB on Apr 13th, 2005, 10:03am 43 yr old female episodic since 1977 correctly diagnosed 1994 no effective meds until August 2004; also when I found this site. (Happy Birthday Sandie!) (Jeep, what is a "curmudgeon"? cranky old man comes to mind but nevermind I'll look it up) |
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Title: Re: So, what's your story? Post by Frank_W on Apr 13th, 2005, 10:13am You've got the right definition, Empress! LOL! |
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Title: Re: So, what's your story? Post by Gena on Apr 13th, 2005, 10:26am on 04/13/05 at 09:10:43, thomas wrote:
34 years old I have had CH for 13 1/2 years Misdiagnosed and mistreated for 11 of them Engaged and in love with old fat bald guy with a sore head listed above. :-* We are to be married on July 23 of this year!!!!! |
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Title: Re: So, what's your story? Post by LadyLuv on Apr 13th, 2005, 10:46am :o Female Age 57 CH for 30 years Episodic for 20 yrs Chronic for 10yrs No hit has ever been below a 9 on the Kip Scale until the last few weeks. Been having lots of shadows, but only one series hit (kip 6-7) in the last several weeks since I've been taking Kudzu. At least I feel that it's the Kudzu. I had (oldmonia) pneumonia a couple months ago and on prednisone for several weeks. So I'm not sure if it's the Kudzu or all the prednisone that's in my system causing this great and much appreciated repreve. [smiley=bow.gif] Lady Luv |
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Title: Re: So, what's your story? Post by Frank_W on Apr 13th, 2005, 11:05am on 04/13/05 at 10:26:59, Gena wrote:
*firing off Roman Candles* WHOO-HOO!! Congratulations, you two!! :) [smiley=hug.gif] |
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Title: Re: So, what's your story? Post by Tiannia on Apr 13th, 2005, 12:10pm My story - EDIT - Sorry I type slower then I think so I usually misspell at least 5 words, if not more, a post. You get used to it after a while. Had meegrains since I was 16. About 2 times a year. In June of 2003, Started getting these massive HA that where hitting the same time everyday and night. Did not matter what I was doing what stress I was under whatever. After about 3 weeks of them getting worse my husband made me go see the doc. I got "well it sounds like clusters but you are a woman so it cant be. Gave me trex tabs (which did nothing unless I took them at the onset of a shadow.) 33 now and going 22 months with no break. Guess I am chronic. Dont really care. It has turned my life upside down and backwards. I;ve freaked people out cause I have said that at least I know that mine are coming. Now sure I could handle being episodic and not sure when the Cycle would start again. Been on Pred, Inderal (did noting), Tomomax. Gabitril, Neurontin, ect... Nothing really dented them. Was told by one Neuro that I have Occipital Neuralsia that triggers some of my clusters. So stress will make then worse. But for the most part I cycle from 1-2 K8+ a day to 8+ k8 a day. My cycles run in abour 4 months up and down. Currently I am taking Kudzu and it is easing the HA. I am on a high end of my cycle right now and even though I know that I am getting hit, it is muted. I'll take what I can get. Being Pagan I would prefer to stay off synthetic meds as much as possible so all I have is the Kudzu and trex shots (using the tip to the side) for when one breaks through and knocks me for a loop. I am to the point where I dont even want to tell docs about it cause I have heard the you cant have those cause you are a woman so mane times I want to smack people. Peronally I figure that even if I dont understand why I am having them, I am learning so much about myself because of it. There is a reason why I am cursed with this. I have to believe this in my core or I think I would go crazy. I am glad that you found this place, but sorry that you had too. It is a haven and a sanity grounder when you feel like you are going crazy. We are all so fucking stuborn and heard headed that we fight like any family but when you need them, they are all here. (Jonny has always been here to giveme a swift kick in the ass when I am really really down and need a reality check. That is why we all love him.) ok summary for Jonny :-* 33 female almost 2 year with CH and Chronic Addicted to this site Happy to be a part of this family |
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Title: Re: So, what's your story? Post by Kim Y. on Apr 13th, 2005, 1:10pm 29 YOF This is my 2nd episode. Last one was April 2004-Aug 04 (LPN School) then Nov 04 till present. Misdiagnosed with Greater Occipital nephropathy the first go round then CH dx. this time. I have used Melatonin for sleep and Imitrex to abort. Waiting for insurance to aprove O2 at 12-15 L so till then use concentrator at 10L with NRB mask. Use exercise as a preventive. Like running. Helps some when the Ch isn't really bad otherwise I can't muster the energy to try. Married with good supportive husband of 7 yrs. |
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Title: Re: So, what's your story? Post by Bamalady on Apr 13th, 2005, 2:21pm Thanks for starting this thread, and thanks to all of the folks that have gone before us. This site is wonderful!! 58 year old female. HA started after having a stent inserted into Subclavian Artery in June 2000. Was told they were vascular HA. Was started on Klonopin which stopped them immediately. Tapered off Klonopin and thought that was the end of them, since I had had some other problems as well that were resolved. 2 years later in August they started again. I was diagnosed with CH last month. I have not been able to stop the meds this time without getting hit. I started Melatonin a few days ago and am hopeful because I have been able to reduce my meds. PF wishes for everyone! |
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Title: Re: So, what's your story? Post by Candycane on Apr 13th, 2005, 2:25pm on 04/12/05 at 16:52:59, ghost62 wrote:
So funny!! [smiley=crackup.gif] [smiley=crackup.gif] |
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Title: Re: So, what's your story? Post by high_commander on Apr 13th, 2005, 3:55pm 36 year old female 13 years episodic 11 years untreated 2 years since diagnosis(females don't get clusters, ya know) 3-4 month cycles with 6 months reprieve in between on prevents and water treatment and have zomig for the ones that get past that stuff married 20 yrs this October 2 boys, 14 and 12 2 cats Danielle |
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Title: Re: So, what's your story? Post by TomM on Apr 13th, 2005, 3:58pm on 04/13/05 at 10:26:59, Gena wrote:
Stop bragging about your bedroom golf! ;;D What about that lump 3 feet above his a$$? 42 Y.O. Male Married 18 years...which has NOTHING to do w/ my CH. Diagnosed in 1994. Episodic. Live off of Imitrex spray and Valium and an uderstanding spousal unit. ghost62's wife hates me also. ;;D TomM EDIT: I know I have saved a few lives from here and in turn a few people on this board saved my life several times. Thank you! |
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Title: Re: So, what's your story? Post by Jonny on Apr 13th, 2005, 5:15pm on 04/12/05 at 21:21:34, Kris_in_SJ wrote:
;;D ....Awwww, and I thank you.....thanks to your post there will be NO fish bowl in my backyard :) |
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