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Title: ALL in the same boat Post by judkins on Mar 24th, 2005, 10:17am This might sound stupid.. but whether we use CALouch OUCHcanada OUCHuk CH.com & all other sites across the world we all have one thing in common. We are either Supporters or Sufferers, with the former suffering just as much. As with many people I don't know how I would cope without mine. I was alone for the first 4 years of onset and knowing you have someone by your side makes such a difference. I keep thinking of people who have no support and no access to a computor... what on earth do they do? I don't quite know why I've posted this... had to get it off my chest. [smiley=bag.gif] |
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Title: Re: ALL in the same boat Post by Hirvimaki on Mar 24th, 2005, 10:20am on 03/24/05 at 10:17:59, judkins wrote:
I don't know. I'd be lost without you freaks. Hirvimaki-Isi |
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Title: Re: ALL in the same boat Post by nani on Mar 24th, 2005, 10:22am So true, Judy...32 years of CH...I found this place last year. I don't know what I'd do without all of you... :-* |
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Title: Re: ALL in the same boat Post by aj8694 on Mar 24th, 2005, 10:31am this is my first cycle with this group (or anyother) and I am soooooooooo thankful...... for the first time my wife is starting to understand...... and there ARE others who understand me and the HELL THANK YOU and I'm sorry you understand (noone should have too) |
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Title: Re: ALL in the same boat Post by Magman on Mar 24th, 2005, 10:34am judkins, thank you for you post. It seemed like a perfect thread to cross-post this message I just placed on the O.U.C.H. website. OUCH Members/Cluster Suffers & Supporters: O.U.C.H. and the Jefferson Headache Center are exploring various collaborative opportunities. One area of mutual benefit to our organizations is the sharing of information. To that end, the Headache Center will be forwarding a copy of their Cluster Headache Newsletter for dissemination via mass-emailing to O.U.C.H. members. The first Edition of this letter is linked herein and will be forwarded via email to all members in the next few days. Jefferson is pleased to provide medical professionals for speaking engagements at O.U.C.H. functions in and around the Philadelphia area and the Northeastern quadrant. Speakers for other areas of the country will be considered on an individual basis. They are considering the possibility of providing a physician to address the O.U.C.H. membership at this years’ annual convention in Dallas. I am pleased to provide the first installment of the Jefferson Headache Center Newsletter (http://www.ouch-us.org/jhc/jhced-1.pdf) Regards, Dan Bemowski, President Organization for Understanding Cluster Headaches |
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Title: Re: ALL in the same boat Post by Bob P on Mar 24th, 2005, 11:31am Quote:
I told you guys women don't get clusters! ;;D |
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Title: Re: ALL in the same boat Post by Candycane on Mar 24th, 2005, 12:27pm I'm just glad I found you guys to be in it with. tThanks for for the help! |
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Title: Re: ALL in the same boat Post by Langa on Mar 24th, 2005, 1:14pm Great post Judy...! I feel not only blessed to have found this place but honored to be a part of such an awesome family. Dan Great news! Looking forward to reading the newsletter and future installments! Langa |
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Title: Re: ALL in the same boat Post by Charlie on Mar 24th, 2005, 5:39pm So true so true: http://www.netsync.net/users/charlies/gifs/TITANIC.gif We're gonna miss that berg though. 8) Charlie |
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Title: Re: ALL in the same boat Post by sandie99 on Mar 25th, 2005, 4:54am I don't know what I'd do without you all... We're the clusterfamily! :) Bless you all, Sandie |
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Title: Re: ALL in the same boat Post by mikey-de on Mar 26th, 2005, 9:30am Yep, all in the same boat...I feel a bit like the uncle that no one really knows too much about. I have no support other than y'all coz nobody gets it....but that's OK, coz I got my mushies and they are my local supporters [smiley=laugh.gif] Might have to dose again soon, been getting lil twinges in my neck, teeth and sinus...but so far relatively PF for 8 days now (since last dose) and 10 days before that(since my first dose) WOOHOOOO!!! 18 relatively PF days with no meds and two 1 gram doses of mushies [smiley=sayyes.gif] mikey-de in cycle and PF 8) |
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