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Title: Ouch.... Post by Frank_W on Mar 1st, 2005, 8:38am It's just a shadow. It's just a shadow. It's just a shadow, dammit. I am NOT going into cycle. I'm NOT. I'm NOT!! [smiley=nono.gif] :'( :-X |
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Title: Re: Ouch.... Post by nani on Mar 1st, 2005, 8:45am OK...just a shadow. Kudzu helps shadows, too. :) |
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Title: Re: Ouch.... Post by medic1852 on Mar 1st, 2005, 8:52am Frank, hang in there bro. I am thinking about you. Rodger [smiley=hug.gif] |
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Title: Re: Ouch.... Post by Frank_W on Mar 1st, 2005, 8:53am Thanks... Right now, it's just one shadow a day, but the shadows are growing more intense, and lasting longer. |
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Title: Re: Ouch.... Post by medic1852 on Mar 1st, 2005, 8:55am Hate it for you, so you can save your strength. I will be thinking about you day and night sending all my vibes to you bro! |
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Title: Re: Ouch.... Post by Frank_W on Mar 1st, 2005, 9:03am Thanks, Bro' I feel dumb, even saying anything when others are in such pain, but last night's shadow really did seem to verge on a full-blown CH. Not knowing what to expect and not knowing what's happening... The Chinese Water Torture: Dripping a single drop of water on the victim's forehead every fifteen minutes, until they go crazy with waiting for the next drop. That's what this is like... |
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Title: Re: Ouch.... Post by medic1852 on Mar 1st, 2005, 9:05am Frank, you still got my number? Let me know if you need anything. |
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Title: Re: Ouch.... Post by lionsound on Mar 1st, 2005, 9:06am :-[PF [smiley=hug.gif]'s Oh my dear friend, I hope it's only a shadow too. Neither rain, nor sleet, nor snow(sure doing that here today) can stop the Jeep-loads of vibes I'm sending south to you! love and extra huggs, Rori |
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Title: Re: Ouch.... Post by Cerberus on Mar 1st, 2005, 9:07am I know that this is going to be easier said than done, but... Optimism Captain! [smiley=hug.gif] Ramon |
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Title: Re: Ouch.... Post by Cathi04 on Mar 1st, 2005, 9:21am Frank!! You are much stronger than that drip!!!!!!!!! I know, you waited to go into cycle all Feb.....now it's March.......... Venting is always allowed, you know how to reach me....ya know.......could be all you are going to get this time around is a bit of shadowing!!!!!!!!!!!!!!!!!!! Fingers crossed, and reminding you about Kudzu......... Hang in there, Jeepie-guy! :-* :-/Cathi |
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Title: Re: Ouch.... Post by Svenn on Mar 1st, 2005, 9:31am Hang in there Frank We are here for you Sending the bandwagon full with vibes Svenn |
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Title: Re: Ouch.... Post by TomM on Mar 1st, 2005, 9:32am Hang tough Frank. You WILL survive. Tom |
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Title: Re: Ouch.... Post by Frank_W on Mar 1st, 2005, 9:43am Thanks... I appreciate it. It's totally manageable, at the moment. I don't feel the need for any medications or kudzu or anything, but last night gave me some second thoughts... Off to the health food store today, Nani. |
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Title: Re: Ouch.... Post by nani on Mar 1st, 2005, 9:52am Good...I would get a jump start on it. Don't wait to use kudzu as an abortive. It seems to have more success as a prevent. And since this is NOT an episode, it should relieve the shadows a great deal. Good luck. |
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Title: Re: Ouch.... Post by Cathi04 on Mar 1st, 2005, 10:07am Yesssssssssssssssssssssssssss!!!! Another on the trail of Nani's pretty flowers!!!!!!!!!!!!!! Can't hurt.........seems to help...........keep the trials going! (but, then, what do I know?) |
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Title: Re: Ouch.... Post by Rock_Lobster on Mar 1st, 2005, 10:20am Kinda in your same boat Frank. Shadows have been making me a cranky little bitch these last two months. The skull has been pretty clear this last week. Been taking 2 or 3 Kudzus daily this last week as well. I dunno. |
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Title: Re: Ouch.... Post by Frank_W on Mar 1st, 2005, 10:30am Hang in there, Rock. Last night, I went to the basement and stood barefoot on the cold concrete floor to see if it would disipate the shadow. (I'm insisting that it was only a shadow!) It didn't seem to do much... Okay: Off to the health food store to see if they have some kudzu... |
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Title: Re: Ouch.... Post by medic1852 on Mar 1st, 2005, 10:50am Ok here you go as a last resort you should try this. It really works saw it at 2am on an info-mercial. With sworn testimonials and all. So it has to be true! http://zapatopi.net/afdb/alnose.jpg Hang in there! ;;D |
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Title: Re: Ouch.... Post by Frank_W on Mar 1st, 2005, 10:59am LMAO! Okay: I just bought some kudzu. Planetary Formulas brand, and just capped two of 'em. *waiting to turn into Mr. Hyde...* [smiley=laugh.gif] |
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Title: Re: Ouch.... Post by nani on Mar 1st, 2005, 11:05am LOL...I'm Mr Hyde on a good day! Kudzu turns me into mild mannered Dr Jekkyl. If I were you, Frank, I wouldn't max out the dosage right away. 25 days into it, I'm still only taking 2 per day (1500 mgs) I figure I'll wait in case I have to add more later. My first week I was able to get relief from only 750mgs/day. I'm optimistic for you... :) edited to add: if your "shadow" is coming at a regular time, try a dose about an hour before. |
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Title: Re: Ouch.... Post by Frank_W on Mar 1st, 2005, 11:10am The bottle says 750mg. So... One dose is 750mg? One day's dose would then be, 2250mg? Is that right? |
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Title: Re: Ouch.... Post by don on Mar 1st, 2005, 11:22am One word. PREVENTATIVES. Dont wait. |
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Title: Re: Ouch.... Post by Frank_W on Mar 1st, 2005, 11:28am Thanks, Don. I'm going to give this kudzu a try... *keeping my fingers crossed* |
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Title: Re: Ouch.... Post by E-Double on Mar 1st, 2005, 11:53am Alright tough guy......if you are refusing to.... http://ed3.photosite.com/~photos/tn/366_348.ts1109375759906.jpg then you should atleast "bare knuckle it" as you said with some... http://ed3.photosite.com/~photos/tn/278_348.ts1105833004890.jpg can't hurt brother!!! Stay Strong!!! Eric |
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Title: Re: Ouch.... Post by nani on Mar 1st, 2005, 12:27pm Yes, Frank. One tablet ( of our brand) is 750 mgs. The bottle says we can take 6 tablets a day (4500 mgs). For now, I consider one tab to be one dose. I take 2 per day. OK...I just had my son read the bottle to me (I have got to get some reading glasses) I was wrong. One serving is 2 tablets...one serving is 750 mgs. So max per day would be 2250 mgs. Wow...I'm only taking 750 mgs a day then... |
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Title: Re: Ouch.... Post by Frank_W on Mar 1st, 2005, 12:29pm Okay. The label wasn't clear if 750mg was one TABLET or one DOSE. Thanks, Nani. |
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Title: Re: Ouch.... Post by sandie99 on Mar 1st, 2005, 1:23pm It's just a shadow. I keep my thumbs up for you! [smiley=hug.gif] best wishes, Sandie |
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Title: Re: Ouch.... Post by Frank_W on Mar 1st, 2005, 1:25pm Thanks, Sandie. You're right: It IS just a shadow, but I am living in dread of what it bodes for the near future. On the other hand, maybe this IS my cycle, and maybe I'm just having the most mild one I've ever had, in the eight years that I've had these #$%$*# things. I guess time will tell... |
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Title: Re: Ouch.... Post by Tiannia on Mar 1st, 2005, 1:35pm Hang in there hun. You know how to get a hold of me. Keep with the kudzu and go talk to your doc now. Get O2 and what ever else you need. Fight the beast if he even starts to darken your doorstep.. PF Wishes, my friend, -Tia |
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Title: Re: Ouch.... Post by Frank_W on Mar 1st, 2005, 1:41pm Thanks, Tiannia. My doctor won't prescribe oxygen, but if I need verapamil, she'll write me a script. I want to give the kudzu an honest try first, though. I also want to go through this cycle, if it comes, med-free. It might turn me into a raving lunatic, or else I may be able to find something truly beneficial. On one hand, I am filled with dread. On the other, I am filled with hope that I can somehow uncover some inner way of dealing with CH that will make me less dependent on medications for relief. All of this pain just has to be worth something... This is my first and foremost theory. But I'm not going to be a damn fool about it, either. If it gets too excrutiating, I'll cede this round to the beast and get some verapamil. For now, it's just one day at a time. Thanks again. [smiley=hug.gif] -Frank |
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Title: Re: Ouch.... Post by Gator on Mar 1st, 2005, 3:24pm Sounds like you are taking a stand with the Kudzu. It's working for others, I hope it works to keep the beast at bey for you, too. If not, you got my number, bro. Shit gets too deep call me. |
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Title: Re: Ouch.... Post by Frank_W on Mar 1st, 2005, 3:27pm Thank you, my friend. Nothing like Gatoraid, eh? ;;D I hope the beastie is leaving you alone, pal. |
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Title: Re: Ouch.... Post by Tiannia on Mar 1st, 2005, 3:56pm on 03/01/05 at 13:41:42, Frank_W wrote:
You know how I feel about it. If it is not for a reason then I would be a lot more depressed about the last 2 years. Take each day ... Take each minute... That way you can function. Love you hun -Tia |
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Title: Re: Ouch.... Post by PittsburghJoe on Mar 1st, 2005, 4:00pm on 03/01/05 at 13:25:37, Frank_W wrote:
Fuckin' amateur... try 20 years! Lots o' love & vibes to ya, bro... ya gots the # if ya needs to use it! Joe |
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Title: Re: Ouch.... Post by Frank_W on Mar 1st, 2005, 4:03pm 20 years... I can't even imagine... I hope I remain an amateur. "Hot Clusterhead Amateurs!" (Now THAT'S a DVD I wouldn't want to see!) :o [smiley=laugh.gif] |
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Title: Re: Ouch.... Post by nani on Mar 1st, 2005, 4:09pm on 03/01/05 at 16:00:37, PittsburghJoe wrote:
Amateurs...try 32 years. Where do ya think I got this nasty ass disposition. ;;D |
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Title: Re: Ouch.... Post by Jonny on Mar 1st, 2005, 4:27pm on 03/01/05 at 16:00:37, PittsburghJoe wrote:
LMAO.....Try 30 years, 29 of them chronic ;;D Hang in there Frank....let me know if you get a welding tank and I'll have that reg made up for ya. ....................................jonny |
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Title: Re: Ouch.... Post by E-Double on Mar 1st, 2005, 4:30pm on 03/01/05 at 13:41:42, Frank_W wrote:
BUT NOTHING BROTHER!!!! Find another doc just for the O2 then....I understand having a doctor (yours is your GP right??) That is willing to do things for you but won't do the simplest SAFEST things.... I'm going through that now. I love my doc but I know that I need a new one and that sucks! I went through quite a few... NEED THAT SCRIPT!!!! or find a mechanic buddy of yours to help you get a welders tank! Screw the other meds if that's what you want. I totally respect that but no need to torture self for enlightement. You are already a higher being. We all are!!! Just my 2cents Frank. Best to ya, Eric edit to add: oops just caught this.... Quote:
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Title: Re: Ouch.... Post by Frank_W on Mar 1st, 2005, 4:34pm Thanks, Eric and Jonny. Right now, I'm okay but if I do end up with a full-blown cycle, I will not hesitate to get a welder's tank. If/when I do, I'll shoot a PM to you, Jonny. Thank you for your help. I appreciate it. |
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Title: Re: Ouch.... Post by medic1852 on Mar 1st, 2005, 6:24pm Frank since white house tenn. is just down the road and I work for an ambulance service..I might know where a O2 tank with a regulater might be just laying around with no one to use it. I dont know but that looks like one hiding in my closet? ::) Rodger |
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Title: Re: Ouch.... Post by Frank_W on Mar 1st, 2005, 6:27pm Rodger, that is awesome!! Thank you! Thank you! If/when I go into cycle, I'll give you call. Thank you so much! |
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Title: Re: Ouch.... Post by medic1852 on Mar 1st, 2005, 6:31pm YOu got my number still? Let me know..Cause it will have to be a day I am off. But I think I could handle a road trip to white house. ::) The things I find lying around with no one watching it... |
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Title: Re: Ouch.... Post by ClusterChuck on Mar 1st, 2005, 6:32pm Kick ass Frank!!! And what the fuck with the title?? Here I thought it had something to do with O.U.C.H.!!! Haha!!! Good talking to you the other night. Call me if you need someone to bitch at, or a shoulder to cry on. I am here for you, my friend!! Chuck |
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Title: Re: Ouch.... Post by Charlie on Mar 1st, 2005, 7:12pm Here's hoping you keep this horror at bay and can keep enjoying the 600 year break from the beast. Charlie |
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Title: Re: Ouch.... Post by E-Double on Mar 1st, 2005, 7:47pm Right on!!!!!! |
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Title: Re: Ouch.... Post by Tim_Z on Mar 1st, 2005, 9:14pm Hang in there Frank. For me the fear, and the unknown are as bad as the beast itself. I don't like being in limbo. Will you become the next kudzu success story? I'm pulling for ya. Tim |
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Title: Re: Ouch.... Post by blossom on Mar 1st, 2005, 9:22pm Hey Frank - you got my # - any time day or night - I'm not much of a sleeper! Damn screwed up head anyway! Blossom |
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Title: Re: Ouch.... Post by PrettyH8Machine on Mar 2nd, 2005, 12:38am Hang tough bro. Keep that fucker at bay as long as you can, and if he does come - FIGHT THAT FUCKER WITH ALL THAT YOU ARE! Peace man, CD |
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Title: Re: Ouch.... Post by Frank_W on Mar 2nd, 2005, 7:33am Thank you, everyone. Last night, I got hit around 1 a.m. with a Kip 6 that lasted for a half hour. A thirty-minute hit? I can deal with that... |
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Title: Re: Ouch.... Post by Redd715 on Mar 2nd, 2005, 7:46am Damn I had hoped this was going to be just a gentle reminder and you'd not get the full wake up calls hun. You got this number too so you know wehre I am if ya need me. Love ya Bro. :-* |
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Title: Re: Ouch.... Post by Alien Space Babe on Mar 2nd, 2005, 12:13pm |
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Title: Re: Ouch.... Post by Frank_W on Mar 2nd, 2005, 12:21pm Thanks again, everyone. Day 2 on the 'zu. I guess we'll see what happens.... One thing that I've noticed is that watching TV seems to trigger shadows.... Anyone else experienced this? I've been watching a lot of movies lately. Last Wednesday, I watched a movie, got hit with a shadow. Thursday, I watched a music video, got hit with a shadow. Friday, I didn't watch TV and didn't get hit with a shadow. Saturday, Sunday, Monday, and Tuesday, I watched movies and got hit with shadows, and last night, on top of the shadow, got nailed with a cluster headache at 1:00 a.m. Very strange.... Tonight, I'm not going to watch TV or movies, and see what difference it makes, if any. [smiley=huh.gif] Thanks again. |
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Title: Re: Ouch.... Post by nani on Mar 2nd, 2005, 12:32pm The TV doesn't get to me. I have a large ceiling fan between 2 skylights over my sofa. If I sit there during the day, the strobe-like shadows can trigger a CH. [smiley=huh.gif] |
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Title: Re: Ouch.... Post by vig on Mar 2nd, 2005, 1:04pm well? what movies were you watching? Evita? Shanghai Surprise? Swept Away? You know Madonna movies will make you sick every time.... Just use your remote Frank... |
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Title: Re: Ouch.... Post by nani on Mar 2nd, 2005, 1:08pm on 03/02/05 at 13:04:10, vig wrote:
LMAO... [smiley=laugh.gif] |
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Title: Re: Ouch.... Post by Frank_W on Mar 2nd, 2005, 1:10pm ROFL!! Let's see.... Pi Pi R2 video on the DVD Sky Captain & The World Of Tomorrow Rumble Fish The Thin Red Line To Live & Die In L.A. Saigon |
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Title: Re: Ouch.... Post by Hirvimaki on Mar 2nd, 2005, 3:21pm Frank, I am so sorry that you are going through ANY pain - shadows or not! Hang in there. And let me know if there is anything I can do! I'm here for ya! Watching the Brothers Krofft's H.R. Pufnstuf will give me shadows, but it is worth it. Hirvimaki-Isi |
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Title: Re: Ouch.... Post by Leesa on Mar 2nd, 2005, 3:29pm Hey bro you got my number use it baby. I got the vibe wagon rollin for ya man, hang in there cuz this too shall pass darlin. PF wishes, Leesa :-* |
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Title: Re: Ouch.... Post by Frank_W on Mar 2nd, 2005, 3:32pm Thanks, Hirv and Leesa. I'm going to hold off on the third kudzu dose of the day until around 9 p.m. and see if that pre-empts the nightly shadow-hit that I keep getting. Otherwise, I am pain-free, and for last night's pain, I'm all the more grateful for the pain-free time. Thanks again. |
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Title: Re: Ouch.... Post by E-Double on Mar 2nd, 2005, 4:53pm on 03/02/05 at 15:21:11, Hirvimaki wrote:
Watching that will give me an acid flashback..... Also avoid Lawrence Welk!!! A major trigger for many! Hang in there brother and get yourself a tank! Hugs, E |
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Title: Re: Ouch.... Post by high_commander on Mar 2nd, 2005, 9:43pm [smiley=hug.gif] [smiley=hug.gif][smiley=hug.gif] [smiley=hug.gif] so sad to hear of your pain.... hope the kudzu brings you some relief Danielle |
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Title: Re: Ouch.... Post by LeLimey on Mar 3rd, 2005, 4:01am on 03/02/05 at 15:21:11, Hirvimaki wrote:
I loved HR Pufnstuf.. haven't heardof that in years! Frank I'm sorry you are getting hit... bugger, bugger, bugger.. good luck with the kudzu.. can't wait until mine gets here now. |
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Title: Re: Ouch.... Post by Frank_W on Mar 3rd, 2005, 7:48am WHOO-HOO!!! Fantastic news!! I held off on the last dose of Kudzu until around 9 p.m., and took the dose along with a very good quality multi-vitamin. GNC's "Mega Men." (No snickering, out there!! They are good vitamins! LOL) Anyway..... Last night, no shadows, no hits, NOTHING!! Pain-free and overjoyed.... All hail the 'zu!! -Franko |
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Title: Re: Ouch.... Post by nani on Mar 3rd, 2005, 8:31am Excellent news, Frank! Will you indulge me and post your results on the kudzu thread, as well? Here's to a PF "cycle"... :) |
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Title: Re: Ouch.... Post by Hirvimaki on Mar 3rd, 2005, 8:35am on 03/03/05 at 07:48:29, Frank_W wrote:
WONDERFUL! FABULOUS! YEAH! I'm happy for ya, Frank! Hirvimaki-Isi PS: Er, Mega Men? http://www.newsarama.com/dreamwave/Megamancover_t.jpg You go, Frank! ;) |
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Title: Re: Ouch.... Post by Frank_W on Mar 3rd, 2005, 8:52am on 03/03/05 at 08:31:34, nani wrote:
Yes'm. :) LOL, Hirv! |
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Title: Re: Ouch.... Post by lionsound on Mar 3rd, 2005, 9:47am on 03/03/05 at 07:48:29, Frank_W wrote:
:) [smiley=hug.gif] |
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Title: Re: Ouch.... Post by Frank_W on Mar 3rd, 2005, 9:49am 0844, Day 3: Just muddled my way through a 30-minute shadow (?) hit... Real low level, but enough to make me adopt the classic pose. (Digging heel of right palm into right eye...) Dammit... >:( |
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Title: Re: Ouch.... Post by lionsound on Mar 3rd, 2005, 9:52am >:( :-[ [smiley=hug.gif] |
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