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Title: FOR THE MIGRAINE SUFFERERS Post by wolf29 on Feb 16th, 2005, 8:17am I seen this in MSN news...thought some of you that suffer migraines might be interested WOLF29 A study is underway to determine whether fixing a common heart defect might cure migraines in some patients. The defect, patent foramen ovale (pronounced "PAY-tent for-A-men O-vah-le"), or PFO, is found in one in four people overall, and in half of people who suffer migraine with aura. It occurs when a hole between the two top chambers of the heart fails to close properly at birth. While people with PFO normally have no symptoms, the defect has been tied to stroke, and, more tenuously, to migraine. The initial study, launched in the United Kingdom in January, is targeted at an estimated 5 percent of migraine sufferers: those with migraine with aura not controlled by medication who also have a PFO. advertisement "We’re inundated with people wanting to do the study," said Dr. Andrew Dowson, director of the King’s Headache Service at King’s College Hospital in London and chief investigator for the Migraine Intervention with STARFlex Technology (MIST) trial. "I think it’s something of great interest to patients especially, but also to the medical profession." STARFlex consists of two tiny umbrella-like devices with fabric patches stretched across a flexible metal frame. It is passed into the heart after being inserted through an incision in a vein in the groin area. The "umbrellas" are positioned on either side of the hole and then snapped open to seal it shut. The procedure is done under local anesthesia, generally on an outpatient basis, and takes about an hour, Dowson said. Patients in the MIST study will receive either a PFO closure or a placebo procedure, and will then be followed for six months. Dowson expects to have all data from the study in about a year. NMT Medical, the Boston-based company that makes the STARFlex device, hopes to start a U.S. trial in migraine patients later this year. Hearts and minds Dowson and other supporters of a PFO-migraine connection hypothesize that the hole in the heart allows chemicals that normally would be metabolized by the lungs to reach the brain’s blood supply. It’s been known for 20 years that scuba divers with PFO are more likely to develop decompression sickness, known popularly as "the bends." There also is also growing evidence for a link between PFO and stroke, most likely because the hole promotes the formation of clots within the heart that can then travel to the brain. Studies are now underway in the United States to determine if PFO repair will help patients who suffer this type of stroke repeatedly. Researchers began to investigate the migraine-PFO connection more closely after some patients who underwent PFO repair to prevent stroke or decompression illness reported dramatic improvement of their migraine symptoms as well. No magic bullet Despite widespread interest, some experts are skeptical that fixing PFOs will prove effective for many patients with migraines. Dr. Seymour Diamond, head of the Diamond Headache Clinic in Chicago, noted that he’d advised one of his patients who suffered frequent migraine attacks with stroke-like symptoms, including weakness on one side of the body, and had a relatively large PFO, to have the defect closed. "He is doing very well," Diamond said. But while he might recommend the treatment in a case like this one, he added, "I wouldn’t recommend it as general therapy." Dr. Scott Kasner, director of the Stroke Center at the University of Pennsylvania, also urged caution. "We really don’t know how strong the link is with PFO and stroke and whether or not we should do anything about PFO in patients with stroke," he said. "Stroke obviously has a huge impact on somebody’s life, it’s a huge burden that can be potentially disabling permanently. I think it makes sense to prove whether or not PFO closure is effective there before embarking on something like migraine." Kasner also said he’s concerned that "some people are hearing this as some kind of magical answer to their problems." He added: "It’s still very experimental right now. That doesn’t mean it won’t work; hopefully we’ll show that these things are effective in stroke prevention or migraine prevention, but we don’t know yet and we really don’t know about long-term risks either." -------------------------------------------------------------------------------- Anne Harding is a science and health writer based in Maplewood, N.J. |
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Title: Re: FOR THE MIGRAINE SUFFERERS Post by Jonny on Feb 16th, 2005, 3:15pm Prehaps you should go here http://www.migraines.org/ and let them know, this is a CH site! ....................................jonny |
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Title: Re: FOR THE MIGRAINE SUFFERERS Post by nani on Feb 16th, 2005, 3:23pm Don't be all snippy. Jonny...there are CHers who have both. And this PFO issue may also be applicable to CH. [smiley=tongue2.gif] ;;D |
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Title: Re: FOR THE MIGRAINE SUFFERERS Post by Donna_D. on Feb 16th, 2005, 3:25pm Now, now Jonny... You know as well as I do that a lot of CH sufferers also have migraines... Play nice ;;D DD |
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Title: Re: FOR THE MIGRAINE SUFFERERS Post by Donna_D. on Feb 16th, 2005, 3:25pm on 02/16/05 at 15:23:37, nani wrote:
GMTA |
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Title: Re: FOR THE MIGRAINE SUFFERERS Post by Jonny on Feb 16th, 2005, 3:29pm on 02/16/05 at 15:25:07, Donna_D. wrote:
Maybe so, but we dont need this place cluttered up with meegraine posts....there are plenty of sites for that, this aint one of them Just ask DJ ;;D |
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Title: Re: FOR THE MIGRAINE SUFFERERS Post by Charlie on Feb 16th, 2005, 5:28pm I read this thing somewhere or saw it. Life is never strainght-forward, is it? Relax Jonny. Migrainers sort themselves out after a few posts all on their own. They rarely need assistance. Charlie |
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Title: Re: FOR THE MIGRAINE SUFFERERS Post by Jonny on Feb 16th, 2005, 5:34pm on 02/16/05 at 17:28:12, Charlie wrote:
Relax?....I dont think so!! Im just letting the dude that started this thread (If he is a CH'er) that it will not be tolerated on my watch, and no way as the main topic of a thread never mind a single post! If anyone has a problem with what I am posting ...I ask you to either PM or email DJ and ask him what he thinks. I know what his answer will be, go ahead, do it!!! Until you have, dont even bother posting to this thread. |
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Title: Re: FOR THE MIGRAINE SUFFERERS Post by Sean_C on Feb 16th, 2005, 5:44pm This site is devoted completely and exclusively to those that suffer from, and to the supporters of those who suffer from Cluster Headaches! There are a few other sites out there dealing with Cluster Headaches, but no real place to "interact" with other Cluster sufferers. There are a few message boards where you can read posts dealing with Cluster Headaches, but sorting through all the migraine, tension, and other headache posts to find the few about Clusters is enough to bring on a headache! Never again will you have to search, hour upon hour, for information on Cluster Headaches! You now have a place to "hang out" that you can call our very own. You now have a place to "vent" when you wake up at 3 a.m. with a headache, the oxygen tank is empty, and you're out of Imitrex! Finally...a place where you can talk to someone about how horrible your headaches are and know that they really do understand your pain. Welcome to your new home on the internet! This is the agreement I accepted when I walked through the front door and was admitted to this nut house ;;D Sean............................ |
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Title: Re: FOR THE MIGRAINE SUFFERERS Post by nani on Feb 16th, 2005, 6:09pm Helllooo....this same info has been posted here at least twice. Because the possibility exists that CHers may also suffer from this. |
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Title: Re: FOR THE MIGRAINE SUFFERERS Post by Jonny on Feb 16th, 2005, 6:12pm on 02/16/05 at 18:09:49, nani wrote:
Take it up with DJ http://www.drudgereportarchives.com/data/downloads/20040120_145003_dean.mp3 |
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Title: Re: FOR THE MIGRAINE SUFFERERS Post by Lizzie2 on Feb 16th, 2005, 6:19pm ::) This type of discussion hasn't popped up in awhile. Always a delight... L2 chronic cluster sufferer chronic daily migraine sufferer Take me or leave me, baby ;) |
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Title: Re: FOR THE MIGRAINE SUFFERERS Post by Jonny on Feb 16th, 2005, 6:24pm on 02/16/05 at 18:19:33, Lizzie2 wrote:
Right, but do you remember how DJ's post ended it? |
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Title: Re: FOR THE MIGRAINE SUFFERERS Post by Lizzie2 on Feb 16th, 2005, 6:37pm on 02/16/05 at 18:24:57, Jonny wrote:
yup...that i do |
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Title: Re: FOR THE MIGRAINE SUFFERERS Post by nani on Feb 16th, 2005, 7:14pm For the record... Both DJ and Floridian posted PFO articles here, but they were titled: PFO and Clusters. :) |
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Title: Re: FOR THE MIGRAINE SUFFERERS Post by Tiannia on Feb 16th, 2005, 7:39pm on 02/16/05 at 19:14:44, nani wrote:
Nani let me guess you where on the debate team in school and always picked the side that no one wanted to argue...... ;) |
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Title: Re: FOR THE MIGRAINE SUFFERERS Post by nani on Feb 16th, 2005, 7:45pm LMAO Tia....actually, I didn't stay in HS long enough. I just like to argue. ;) |
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Title: Re: FOR THE MIGRAINE SUFFERERS Post by Jonny on Feb 16th, 2005, 7:45pm on 02/16/05 at 19:14:44, nani wrote:
Exact article? Seems Ch is not mentioned anywhere in this one! Lets get with the program!!!....Huh Duh!! |
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Title: Re: FOR THE MIGRAINE SUFFERERS Post by Kevin_M on Feb 16th, 2005, 7:46pm DJ, Forgot to tell you today, THANKS for this site that I found about cluster headaches. Unbelievable man! I remember my first post, and have read many other's first when they found this site for cluster headaches. The lives saved and sanity that has prevailed do to your motivation and foresight. Lots of gratitude. Kevin M |
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Title: Re: FOR THE MIGRAINE SUFFERERS Post by nani on Feb 16th, 2005, 7:48pm on 02/16/05 at 19:46:34, Kevin_M wrote:
Suckin' up, Kev?? ;;D |
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Title: Re: FOR THE MIGRAINE SUFFERERS Post by Jonny on Feb 16th, 2005, 7:53pm on 02/16/05 at 19:45:38, Jonny wrote:
No answer? Fuck it, ill just call DJ so he can add his nah or yah ;;D |
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Title: Re: FOR THE MIGRAINE SUFFERERS Post by Kevin_M on Feb 16th, 2005, 7:56pm on 02/16/05 at 19:48:20, nani wrote:
Just the O2 ;) Kevin M |
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Title: Re: FOR THE MIGRAINE SUFFERERS Post by ghost62 on Feb 16th, 2005, 7:56pm Has anyone noticed the one that started this thread aint in the battle. I like a good discussion too but lets do it on a better topic like women yappin. [smiley=laugh.gif] [smiley=headbanger.gif] |
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Title: Re: FOR THE MIGRAINE SUFFERERS Post by ghost62 on Feb 16th, 2005, 7:58pm OOOOPS did I do it again. [smiley=laugh.gif] |
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Title: Re: FOR THE MIGRAINE SUFFERERS Post by Sean_C on Feb 16th, 2005, 8:43pm Nan did you burn your bra? Just curious [smiley=laugh.gif] Luv ya ;;D |
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Title: Re: FOR THE MIGRAINE SUFFERERS Post by clarence on Feb 16th, 2005, 8:47pm on 02/16/05 at 15:25:34, Donna_D. wrote:
What is that? Give Me T & A? Sorry, just being ornery. Casey |
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Title: Re: FOR THE MIGRAINE SUFFERERS Post by nani on Feb 16th, 2005, 8:57pm on 02/16/05 at 20:43:51, Sean_C wrote:
Baby...I haven't worn a bra since the trainer I burned in 1968! ;;D |
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Title: Re: FOR THE MIGRAINE SUFFERERS Post by Sean_C on Feb 16th, 2005, 9:07pm on 02/16/05 at 20:57:22, nani wrote:
ROTFLMMFAO you made my day ;;D |
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Title: Re: FOR THE MIGRAINE SUFFERERS Post by Magick on Feb 16th, 2005, 9:59pm Hmmm. Let’s see this is the General Post .Not the Cluster Headache Specific post. Seems to me that this area has always been full of non-CH chitchat and BS. Sounds like THE place to post this. So would it be more accurate to change the front door and say that you cannot say ANYTHING about migraines any ware on this site? Or would it be better to say ONLY CH related thing can be discussed in these boards and noting else? [smiley=huh.gif] ::) |
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Title: Re: FOR THE MIGRAINE SUFFERERS Post by Donna_D. on Feb 16th, 2005, 10:31pm on 02/16/05 at 20:47:26, clarence wrote:
LOL Casey T & A?!?! I already have lots of both... Great Minds Think Alike DD |
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Title: Re: FOR THE MIGRAINE SUFFERERS Post by Kevin_M on Feb 16th, 2005, 10:40pm on 02/16/05 at 20:47:26, clarence wrote:
Grubby Minds Think Alike too! Kevin M |
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Title: Re: FOR THE MIGRAINE SUFFERERS Post by Charlie on Feb 17th, 2005, 1:35am All you whippersnappers remember stuff. Makes me feel as old as I look. This thing looks weird to me now. Charlie |
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Title: Re: FOR THE MIGRAINE SUFFERERS Post by clarence on Feb 17th, 2005, 8:11am on 02/16/05 at 22:31:18, Donna_D. wrote:
Thanks for the clarification. Acronyms have never been my strong point. I like mine better, though yours is more socially acceptable. Casey |
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Title: Re: FOR THE MIGRAINE SUFFERERS Post by DJ on Feb 17th, 2005, 8:34am on 02/16/05 at 19:14:44, nani wrote:
For the record... somebody is smokin' crack if they think I've posted an article about PFO on here! I've never even heard of it until now. As for the "M" word. Everyone knows it causes arguments here so why even bring it up? I still stand by what it says at the top of the main page: "This site is devoted completely and exclusively to those that suffer from, and to the supporters of those who suffer from Cluster Headaches!" [smiley=referee.gif] |
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Title: Re: FOR THE MIGRAINE SUFFERERS Post by Jonny on Feb 17th, 2005, 7:58pm ;;D ......Aint I a MF'er. :o |
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Title: Re: FOR THE MIGRAINE SUFFERERS Post by Donna_D. on Feb 17th, 2005, 8:07pm Looks like ya got the last word in on this one, Big J.... Pays to know the big guns LOL. DD who is shuttin' up now. |
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Title: Re: FOR THE MIGRAINE SUFFERERS Post by Jonny on Feb 17th, 2005, 8:11pm on 02/17/05 at 20:07:01, Donna_D. wrote:
Pays to know just why this site is here! :-* |
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Title: Re: FOR THE MIGRAINE SUFFERERS Post by Donna_D. on Feb 17th, 2005, 8:15pm on 02/17/05 at 20:11:05, Jonny wrote:
Do you know just how much I love pickin' on you? :-* DD |
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Title: Re: FOR THE MIGRAINE SUFFERERS Post by john_d on Feb 17th, 2005, 8:27pm on 02/16/05 at 20:47:26, clarence wrote:
I was thinking that too Casey - GMTA this whole thread went down without me, I miss all the good stuff |
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Title: Re: FOR THE MIGRAINE SUFFERERS Post by Kevin_M on Feb 17th, 2005, 8:32pm on 02/17/05 at 20:11:05, Jonny wrote:
Ka-ching Kevin M |
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Title: Re: FOR THE MIGRAINE SUFFERERS Post by Donna_D. on Feb 17th, 2005, 8:40pm on 02/17/05 at 20:32:21, Kevin_M wrote:
Ordering Chinese again tonight, Kev? ;;D DD |
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Title: Re: FOR THE MIGRAINE SUFFERERS Post by Kevin_M on Feb 17th, 2005, 9:00pm on 02/17/05 at 20:40:41, Donna_D. wrote:
Goofy Minds Think Alike Pop-tarts are already opened, but tomorrow though... aww, it's all just Thai in the sky, but I'm buyin' and flyin'. Kevin M |
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Title: Re: FOR THE MIGRAINE SUFFERERS Post by Donna_D. on Feb 17th, 2005, 9:17pm on 02/17/05 at 21:00:17, Kevin_M wrote:
What scares me.... Is that makes perfect sense! [smiley=smokin.gif] DD |
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Title: Re: FOR THE MIGRAINE SUFFERERS Post by don on Feb 18th, 2005, 8:02am Quote:
Also pays to read the front door before you come blabbering about Meee-ga-rines. I can also state that DJ has NOT smoked ANY crack since the heroin habit kicked in full throttle. Dont worry DJ, I gotcha back . |
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Title: Re: FOR THE MIGRAINE SUFFERERS Post by rextangle on Feb 19th, 2005, 5:24pm Jonny.... I think you just gave me a meeeeegraine!!! ;;D |
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