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        New Message Board Archives >> 2005 General Board Posts >> What harm we did to stand such pain?
        
(Message started by: ZAIRA on Feb 9^th, 2005, 3:46pm)

Title: What harm we did to stand such pain?
Post by ZAIRA on Feb 9^th, 2005, 3:46pm

I ask to myself what the 'healthy people' is looking at when they say: “Did you have an HA? Not because I can’t believe that, you look very nice today... >:(” ma vaffanculo... grrr....

Still fighting the awful bastard beast, I had a swift augmentation of the attacks from 2 to 9 a day... + contusions all over my body (I had a car accident)...

Sometimes I’m wondering what harm we did to stand such pain... as you all, I hate the CH... I hate the CH... I hate the CH... I hate the CH... I hate the CH... I hate the CH... I hate the CH... I hate the CH... I hate the CH... I hate the CH... ODIO LA BESTIA! :'(

Thanks God I have some Trex...
http://img.photobucket.com/albums/v637/FABIODL/imigran.jpg

Title: Re: What harm we did to stand such pain?
Post by vig on Feb 9^th, 2005, 3:55pm

I hate it too Zazi.

You didn't do anything to deserve all this...

Title: Re: What harm we did to stand such pain?
Post by totka2 on Feb 9^th, 2005, 4:02pm

Sorry because of your pain Zazi. Hope (and wish) you will be pain free soon...

Wow! 25 boxes of trex injection! (The annual trade of it was 1,300 boxes in Hungary (in 2003) :-/ I hate the insurance company.

Title: Re: What harm we did to stand such pain?
Post by ZAIRA on Feb 9^th, 2005, 4:12pm

.... I must say..... Italian CHs are lucky. In italy we don’t pay any insurance because Health is public (State). We can get Imitrex we need paying 2$ a box (i.e. 2 shots).... and it is not difficult to get it, it is sufficient that the Neuro certifies that you have CH....

Title: Re: What harm we did to stand such pain?
Post by nani on Feb 9^th, 2005, 4:22pm

Zazi...first let me say I'm glad you were not injured more severly in your car accident!
I guess that how we feel about having CH is an individual thing based on our spiritual beliefs. I, personally, look at it as a way God and I have chosen to test my faith and courage. Never once did I think I deserved it, or even deserved the other trials in my life. But I do know that I can learn much from suffering and I can use it to grow spiritually.

one final thing: what is the translation of ma vaffanculo? I grew up in an Italian neighborhood in NYC and heard it and even used it fairly often. I have never really learned exactly what it meant! I'm stunade (spelling?) love, nani

Title: Re: What harm we did to stand such pain?
Post by ExplodingEyeBall on Feb 9^th, 2005, 4:32pm

nani,

Check this link for some neat translations.
I don't think Zazi will be willing to put the american translation here.

http://www.lotsofjokes.com/cat_21.htm

Title: Re: What harm we did to stand such pain?
Post by nani on Feb 9^th, 2005, 4:49pm

LMAO Pat!! Someone just PM'd me. It was what I thought...
I'm adding your site to my Favorites...you never know when you might need it. ;;D

Title: Re: What harm we did to stand such pain?
Post by Langa on Feb 9^th, 2005, 4:55pm

I'm sorry you're hurting Zazi...I've asked myself the same question...and I refuse to believe we've done anything THAT horrible to deserve this pain...We did nothing wrong, and as Nani said...we can learn and grow from it. Hugs for ya. [smiley=hug.gif]

Nani, I always wondered about those translations too...also, gavone (sp?)...Zazi, is Gavone someone that eats a lot...I think Stunade means stupid... :-/

Langa

Title: Re: What harm we did to stand such pain?
Post by nani on Feb 9^th, 2005, 4:59pm

yep...uncoothe (sp?) pig and stupid. Those I know.

Title: Re: What harm we did to stand such pain?
Post by broomhilda on Feb 9^th, 2005, 5:10pm

Zazi, I wish I had the answer for you :(

[smiley=hug.gif] from Canada

Title: Re: What harm we did to stand such pain?
Post by Linda_Howell on Feb 9^th, 2005, 5:19pm

Zazi,

With all the bad luck you have been having lately, i.e. Car accidents, stalkers, etc... it really seems only right that you are able to obtain as much Imigran as you need for so little. I am happy for you for that at least.

You (we) did nothing to deserve this pain.

Linda

Title: Re: What harm we did to stand such pain?
Post by Luke63 on Feb 9^th, 2005, 8:11pm

We did nothing...but yet....WE ENDURE!!!!!! Luke

Title: Re: What harm we did to stand such pain?
Post by maureen on Feb 9^th, 2005, 8:46pm

We didn't do anything to deserve this pain!!!

I like nani think each person depending on their beliefs have different views on why we have them.
Personally I like to think maybe I chose to have them so someone else, maybe someone who wasn't strong enough to deal with them wouldn't have to.
Maybe we are the troopers who stepped up to the plate and said o.k. we will do it because we are the strong ones!!!

Title: Re: What harm we did to stand such pain?
Post by Charlie on Feb 9^th, 2005, 11:18pm

Not a thing Zazi, not a thing. Just being around this silly place and time, seems all it takes.

I always say: "How about one effen thing at a time"? It would be nice if we had a choice now and then..... >:(

Charlie

Title: Re: What harm we did to stand such pain?
Post by Gator on Feb 9^th, 2005, 11:55pm

Hi there, Zazi! Good to see you posting again. I am glad you weren't injured any worse than you were. I like the new picture you are using for your avatar. It's kind of fiesty looking. Shows off an attitude. Good for you.

What did we do to deserve the pain? Nothing. I don't associate any divine challenge or spiritual intervention nor any profound higher meaning to it. We got the screwed up brains (and whatever else) - we got the CH. c'est la vie :-/

Title: Re: What harm we did to stand such pain?
Post by cootie on Feb 10^th, 2005, 12:39am

I'd like to know what were doin wrong over here to have to pay so dam much for trex.......a box is $ 169.00 !!!!? I have a hard time comprehending that price. Our insurence started over in Jan with the high deductable to meet once again and I forgot to get Brad's last two refills to add to our arsonal stock.....rats......foiled again Pam

His head is doin ok so far still........so at least THAT'S a good thing ? Stay safe !!!!!!!!

Title: Re: What harm we did to stand such pain?
Post by rumplestiltskin on Feb 10^th, 2005, 1:43am

Don’t be silly. There is no way to know exactly…precisely what it was you or I did to deserve CH. Butt you can bet yer sweet ass it must have been a doozie! Most of the bad shit I have done…. has contained some degree of pleasure…damn I wish I could remember what I did to deserve this! I must have had a whopper of a good time.

Being the highly enlightened being that I am… I am aware of the karmic law of reciprocity. An eye for an eye…sow and reap…as the twig is bent so grows the tree.

I feel that God is a sniveling twerp for slipping some past live’s punishment into this saintly life….and not even allowing me to remember what was obviously a serious run of pure unadulterated evil.

I swear I am gonna do one of those past life regression thingys and get to the bottom of this. What a blessed relief it will be when I get to see what it was I did to deserve CH…and then…well….I’ll just feel better…sighing…as that…. that recognition washes over me….and during my next CH I can then feel somehow satisfied that I am getting my just desserts. I suspect it will even lessen the pain…cause the psychic frustration of being undeservedly hit will finally be resolved.

And to those that told you that you and they “did nothing to deserve CH” …well they are in denial …and I’m glad I’m not like them….cause to be in denial on top of CH would be…well frankly…. a pain in the ass.

Walk in the sunshine
den

Title: Re: What harm we did to stand such pain?
Post by sandie99 on Feb 10^th, 2005, 11:08am

[smiley=hug.gif]

I am so sorry for your pain... :(

I have been wondering the same question since my first CH...

The conclusion I have for the time being is that the pain is here to teach me a lesson. Perhaps, in my case, not to ignore myself, but to take a good care of myself.

Did we deserve it? NO! Absolutely not. No one does...

I believe in God and that God never gives anyone burdens which are too hard to handle. My strength has been tested with CH, though. But it has made me stronger.

Wishing you PF days,
Sandie

Title: Re: What harm we did to stand such pain?
Post by Tiannia on Feb 10^th, 2005, 11:14am

Zazi,

We have talked about this. I wish there was an answer for us all. That there was somethign that we could do or learn or whatever that would bring an end to the pain that we are all in. I am so sorry that you have been put through so much in the short time that i have come to know you.. You are one of the strongest people that i know. You did nothing. Even though I have asked mself that same question more times then I care to think about. I wish there was more that I could say.

Blessed be my friend. You have a great support group around you. I hope that you can find some peace in knowing that you have so many people who watch out for you and that you can lean on.

Ok stopping now before I start crying here at work.
My love, my sister,
-Tia

Title: Re: What harm we did to stand such pain?
Post by Gator on Feb 10^th, 2005, 12:20pm

on 02/10/05 at 11:08:02, sandie99 wrote:

I believe in God and that God never gives anyone burdens which are too hard to handle.

Tell that to all the families of those who couldn't handle it.

Title: Re: What harm we did to stand such pain?
Post by notseinfeld on Feb 10^th, 2005, 12:30pm

It may help to look at our condition w/a bit of perspective such as: I'm not an 8 year old with cancer, bald, and 6 months to live.
I don't have ALS, I'm not blind, I'm ambulatory.

Of course our condition is horrible but it could be much, much worse. There will be help for us in the future and some mitigating medicines in the meantime.

Hope you get some PF time Z!

Title: Re: What harm we did to stand such pain?
Post by nani on Feb 10^th, 2005, 12:33pm

on 02/10/05 at 12:30:06, notseinfeld wrote:

Good point, Dave. When it comes right down to it, it's all about perspective isn't it?

Title: Re: What harm we did to stand such pain?
Post by rextangle on Feb 10^th, 2005, 1:52pm

Dave, I agree with you... I was telling my wife the other night that I'd rather have CH than Cancer, or Multiple Sclerosis, or any terminal disease.
As bad as CH are, we know what to expect.
Horrible but temporary pain.... and that's it!
It's not gonna get worse than that... It's not like tomorrow our legs are going to cease to function, or other horrible symptoms.

Zaira, as far as why? Don't ask me, I can't answer that.
We haven't done anything. It's not a punishment nor a sentence. You can't always ask why.
Life is never easy... we all get thrown hard balls out of the blue. Loss of loved ones, diseases, natural disasters, etc...

Just remember, nobody said it was gonna be a piece of cake.

At least since I have CH, I've learned to put things in perspective. I try to focus on what's good in my life, and I feel blessed. If CH is the price I have to pay to have a roof over my head, a great wife, too many guitars and still manage to laugh everyday.... I'm in!

Cheer up! :)
Rex

Title: Re: What harm we did to stand such pain?
Post by brain_cramps on Feb 10^th, 2005, 1:53pm

Zazi... I have no idea what we could have done. So sorry yer hurtin.

Pat... Great list!!!

Den... LMMFAO!!!!!!!!!! [smiley=laugh.gif]

Title: Re: What harm we did to stand such pain?
Post by Charlie on Feb 11^th, 2005, 3:44am

That reminds me kids, you too Den.

Someone said that if there is a god, he's an underachiever.

Charlie

Title: Re: What harm we did to stand such pain?
Post by floridian on Feb 11^th, 2005, 4:40pm

We are not humans on a spiritual journey; we are spirits on a human journey. Rain and pain are components of the landscape. Some of us parachuted into a grassy meadow, others into a swamp. Half of your grade for this assignment is based on effort and improvement. Partial credit may be given for work that is unfinished, but not for work that is unstarted.

Title: Re: What harm we did to stand such pain?
Post by Frank_W on Feb 11^th, 2005, 4:45pm

on 02/11/05 at 16:40:45, floridian wrote:

Awesome!! May I use that, Floridian?
[smiley=thumb.gif]

Title: Re: What harm we did to stand such pain?
Post by floridian on Feb 11^th, 2005, 8:35pm

Anybody can use it - I borrowed the first sentence (don't remember where I read it) and the rest just came to me when I thought about the question Zazi asked. Feel free to modify it - improve it, personalize it, pass it on.

Title: Re: What harm we did to stand such pain?
Post by nani on Feb 11^th, 2005, 8:36pm

on 02/11/05 at 20:35:49, floridian wrote:

Anybody can use it - I borrowed the first sentence (don't remember where I read it) and the rest just came to me when I thought about the question Zazi asked. Feel free to modify it - improve it, personalize it, pass it on.

It's Redd's signature line. A damn good one, too.

Title: Re: What harm we did to stand such pain?
Post by karma on Feb 11^th, 2005, 9:11pm

Quote:

Extra credit is given for effort given to help others despite the rain and pain we experience in our daily lives.

Title: Re: What harm we did to stand such pain?
Post by PrettyH8Machine on Feb 12^th, 2005, 12:38pm

With as terrible as CH is, I don't think there is anything we could have donw to bring this on ourselves. At least, I have yet to meet a CHead who understood why gets hit and doesn't seem to mind it

Hang tough Zazi. It can't rain forever.

Peace,
Carl

Title: Re: What harm we did to stand such pain?
Post by Kirk on Feb 12^th, 2005, 1:48pm

Are you related to the Borgias' by any chance?
Hang in there kid.

Title: Re: What harm we did to stand such pain?
Post by nancyc on Feb 13^th, 2005, 11:52am

Aw, sis...sorry to hear you are in pain...Prayers going up for you....The other day, one of the nurses I work with was saying she wondered what a particular patient of ours had done to deserve such pain she was going thru....I have truly never seen any patient of mine suffer so much...This poor lady has a feeding tube in her stomach and the gastric acids from it are eating an enormous hole in her stomach...Her guts are literally about to fall out...It is unreal! She is also struggling to take another breath..And she never has anyone come to visit her..What is she hanging on for?..None of us understand how she keeps on living...or WHY she keeps on living..she is in such tremendous pain....What did she do to deserve this kind of pain? I have always found when I am suffering, that there is always someone else that is worse off than me. Going in to work everyday reminds me how lucky I really am... And to think there is pain worse than chs is scary! Take care, sis....know you are loved! smiles,nancyc

Title: Re: What harm we did to stand such pain?
Post by ZAIRA on Feb 17^th, 2005, 2:37pm

Thanks to be here, I want to believe to the positivity you are sending me, and this doesn’t cancel the pain but reassures the spirit. A thought to whom is suffering now, Stay Hard!! ;;D :'( :'(

on 02/10/05 at 12:30:06, notseinfeld wrote:

Let me have just a comment on your message…

There are many children who lose their legs due to the mines, mothers who feed their children
with hunger and with their own HIV infected milk, marvellous people of each age who suffer of incurable diseases... it is true, there is always people who is worse than us,... but... why should I feel better thinking of people who is worse (healthy speaking) than me?

Let us take courage thinking of who is good (healthy speaking)!

I think that console themselves with those thoughts is not correct, on the contrary it is such a form of selfishness. I am a CH sufferer, and if there is a tretement OK, otherwise... I LIVE THE SAME...

What??

Remember that ours, are sometimes sad lives, but we do not have other chances, we have to survive...

for anger,

for need,

for all the people who loves us,

because we do not have any alternatives.... !

:-X

Title: Re: What harm we did to stand such pain?
Post by vig on Feb 17^th, 2005, 4:25pm

I will call on DJ's tagline....

"Adversity does not build character... it reveals it. "

Be strong everybody

Title: Re: What harm we did to stand such pain?
Post by Frank_W on Feb 17^th, 2005, 6:12pm

What good is there in asking the rhetorical "Why?" There really IS no answer. There is only what IS. Trip and fall, scrape your knees, get all dusty, cry a little if you must, but then get up, dust yourself off, and get back to running the race!

Title: Re: What harm we did to stand such pain?
Post by Jackie on Feb 17^th, 2005, 6:34pm

My Daddy used to say, "I cried because I had no shoes until I saw the man that had no feet."

(Damn.....I miss my Daddy... :'()

Jacks 8)

Title: Re: What harm we did to stand such pain?
Post by ghost62 on Feb 17^th, 2005, 7:22pm

dont know what we did but I hate this just got a good one kicked in now and its a bad one.... [smiley=headbanger.gif] [smiley=hammer.gif]