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        New Message Board Archives >> 2005 General Board Posts >> Like lifes not hard enough on us
        
(Message started by: Sean_C on Jan 21st, 2005, 5:01am)
Title: Like lifes not hard enough on us
Post by Sean_C on Jan 21st, 2005, 5:01am
Yesterday our primary care physician called and said my wife has Lupus :'(

He wants her to go to Boston to see a specialist.

I'm pretty bummed guys, she's my everything and unfortunately I can't make it stop or else I would, infact my understanding is that there's no cure at all so recovery isn't an option I guess:'(

If you could spare a prayer for us it would be greatly appreciated. God knows we need it.

Thanks guys

Love to all

Sean.......................
Title: Re: Like lifes not hard enough on us
Post by ClusterChuck on Jan 21st, 2005, 5:16am
Sean, lupus is rough, but I knew a lady who lasted a very long time, and had a fairly good life, even with the lupus.  Strange thing was, she did not die from lupus or its complications.  She was a diabetic (even before the lupus) and that is what got her!

But, you still got my prayers and vibes for you and your darling wife.  You can deal with this.  Be there for her, as she has been there for you.

Chuck
Title: Re: Like lifes not hard enough on us
Post by E-Double on Jan 21st, 2005, 6:06am

Quote:
I'm pretty bummed guys, she's my everything and unfortunately I can't make it stop or else I would, infact my understanding is that there's no cure at all so recovery isn't an option I guess


Many hugs to you both brother!
This is one thing that WE all understand regardless of the disease....

Love and Live!

Best!

E
Title: Re: Like lifes not hard enough on us
Post by hilbily on Jan 21st, 2005, 6:27am
Our prayers go out to you and family.   Jim
Title: Re: Like lifes not hard enough on us
Post by Grandma_Sweet_Boy on Jan 21st, 2005, 6:54am
Sean - I'm so sorry to hear this.  PM or email me if there's anything I can do.

In the meantime, lots of prayers going up for you and your wife.

Hugs
Maa
Title: Re: Like lifes not hard enough on us
Post by taraann on Jan 21st, 2005, 6:56am
I'm going through a possible diagnosis of Lupus or MS right now myself.  Lupus is scary but death by Lupus is rare (from what I've read)  Lupus isn't curable (yet) BUT is controllable with meds.

Boston is a great place for specialist's, in that sense she is "lucky".

Here is a message board I discovered http://brain.hastypastry.net/forums/forumdisplay.php?f=160

The Lupus Foundation of America http://www.lupus.org/

An informative Lupus Site http://www.uklupus.co.uk/linfo.html

Hugs and vibes to you and your wife!  Please keep me posted on how she's doing.
Title: Re: Like lifes not hard enough on us
Post by Jeepgun on Jan 21st, 2005, 7:30am
What Tara Ann said, Sean. Hang in there, my friend. Gimme a call if you need to vent, wanna talk, or whatever... [smiley=hug.gif]

My best to you and your wife,
-Frank
Title: Re: Like lifes not hard enough on us
Post by Renee on Jan 21st, 2005, 8:06am
Sean,

Your wife, and you, will be in my prayers.

Support is always a p.m. away.

God Bless You and Yours,
Renee
Title: Re: Like lifes not hard enough on us
Post by Langa on Jan 21st, 2005, 8:36am
[smiley=hug.gif]

You'll both be in my prayers...

Langa
Title: Re: Like lifes not hard enough on us
Post by nani on Jan 21st, 2005, 9:09am
Oh f*ck, Sean....
Lots of prayers for her and you.  [smiley=hug.gif]   :-*

Check your PMs for my number if you ever need anything.  love to all of you, nani
Title: Re: Like lifes not hard enough on us
Post by Mastifflvr28 on Jan 21st, 2005, 9:42am
vibes and prayers going up to your family Sean,
Take care,
Mast
Title: Re: Like lifes not hard enough on us
Post by sandie99 on Jan 21st, 2005, 10:22am
Sean,

[smiley=hug.gif]

I am so sorry to hear about that...  :(
Lots of prayers for your family.


Wishing you the best,

Sandie
Title: Re: Like lifes not hard enough on us
Post by broomhilda on Jan 21st, 2005, 12:36pm
Oh Sean :'( big hugs to you, Barb and the kids....

Sending a care package of prayers on over to you and Barb and the kids...

pm or call me anytime, thinking of you :(
Title: Re: Like lifes not hard enough on us
Post by cat14 on Jan 21st, 2005, 2:27pm
Sean,
Sorry you and your wife have to deal with lupus too, I sent you loads and loads of prayers! [smiley=hug.gif] [smiley=hug.gif]
Title: Re: Like lifes not hard enough on us
Post by ExplodingEyeBall on Jan 21st, 2005, 3:07pm
[smiley=hug.gif]
Title: Re: Like lifes not hard enough on us
Post by john_d on Jan 21st, 2005, 3:07pm
I am sorry Sean  :'(

prayers going up
Title: Re: Like lifes not hard enough on us
Post by Gator on Jan 21st, 2005, 3:14pm
I am sorry to hear this.  My prayers and on their way, bro.  

In the mean time, this page from www.lupus.org gives a lot of hope.

http://www.lupus.org/education/prognosis.html


Quote:
PROGNOSIS:

The idea that lupus is generally a fatal disease is one of the gravest misconceptions about this illness. In fact, the prognosis of lupus is much better today than ever before.


Keep your chin up.  She's gonna need some of that clusterhead strength to help her cope.  You know you can always come back to the well when you need more.


Mike
Title: Re: Like lifes not hard enough on us
Post by Jonny on Jan 21st, 2005, 3:40pm
:'( :'( :'( :'(
Title: Re: Like lifes not hard enough on us
Post by minnie on Jan 21st, 2005, 3:49pm
 
  :'(

  sorry to hear this Sean.will be praying for the strength you'll both need to deal  with this.
         Minnie
Title: Re: Like lifes not hard enough on us
Post by kissmyglass on Jan 21st, 2005, 4:38pm
Sorry to hear  :(

good news is they can control it pretty well these days.

hang tough!

Kev
Title: Re: Like lifes not hard enough on us
Post by Donna_D. on Jan 21st, 2005, 5:57pm
Sean give your wife a great big hug and be strong for her.  

Lupus is NOT the end of the world although it may seem like it.  My Aunt was diagnosed over 20 years ago with Lupus and the doctors have been able to control it fairly well....deal with it the best you can and read, read, read...any of this sound familiar? ;)  You know what to do...now do it.

There is hope, and there is prayer.  I will be praying for the both of you...for strength and for health.

Love you both,


DD
Title: Re: Like lifes not hard enough on us
Post by BMoneeTheMoneeMan on Jan 21st, 2005, 6:34pm
Best wishes and long life
BMonee
Title: Re: Like lifes not hard enough on us
Post by Sean_C on Jan 21st, 2005, 10:41pm
You know what makes this board so great?...........................ALL OF YOU :)

Thanks so much for all the support and pm's guys, they won't be forgotten believe me.

Lotsa Love back at ya

Sean....................
Title: Re: Like lifes not hard enough on us
Post by cootie on Jan 21st, 2005, 10:52pm
I have two friends with lupus...........seems it comes and goes.....they do fine for while then bad for while. But last I saw them they were doin GREAT......the one went thru some bad times at first then it seem'd to subside and she has been doin good a long time. Other friend did great several years.....she had a bad spell couple years back but like I said...seems to come and go with ups and downs. Good luck to ya both and hope she has all GOOD times. Ups with no downs Pam (yeah I wish)
Title: Re: Like lifes not hard enough on us
Post by OneEyeBlind on Jan 22nd, 2005, 5:05am
Sean, prayers and good vibes coming your way.  Read up on the disease, knowledge is power.  Glad to hear that she'll be going to a good doc, that makes all the difference in the world.  
Title: Re: Like lifes not hard enough on us
Post by Jeepgun on Jan 22nd, 2005, 2:06pm
Who loves ya, baby?  :) [smiley=thumb.gif]

/Kojak


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