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Title: calling for a catch-phrase response please... Post by CC2004 on Jan 14th, 2005, 9:47pm FRUSTRATION >:(- does anyone have a catch phrase we could use when we get some supposedly well meaning ::)advice from friends & family out there in the other world, like "try to relax, you bring them on yourself" [smiley=sayno.gif] or other nonsense like that - there must be something succinct we can say in a meaningful (but hopefully nice !) way to let them know this is NOT a headache, no not even a meegrain any ideas??? CC |
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Title: Re: calling for a catch-phrase response please... Post by don on Jan 14th, 2005, 9:51pm Quote:
STFU has worked well for many years. |
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Title: Re: calling for a catch-phrase response please... Post by Sean_C on Jan 14th, 2005, 9:52pm Get fucked usually works for me ;;D |
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Title: Re: calling for a catch-phrase response please... Post by don on Jan 14th, 2005, 10:06pm Good swift kick in the nuts usually works well to. You dont have to say a word to them. |
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Title: Re: calling for a catch-phrase response please... Post by thebbz on Jan 14th, 2005, 10:06pm To be nice say "I need to be alone now", and leave. The responses above are the standard for me, and they leave...Ha Ha. BB |
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Title: Re: calling for a catch-phrase response please... Post by BlueMeanie on Jan 14th, 2005, 10:10pm "Get the hell out of here" has a pretty good success rate. |
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Title: Re: calling for a catch-phrase response please... Post by CC2004 on Jan 14th, 2005, 10:19pm on 01/14/05 at 22:06:36, thebbz wrote:
yeah, I need to be alone and my husband understands that but I was meaning in general when the topic comes up - like at a social gathering and Im not drinking [smiley=wtf.gif]??? so I say well I get these clusters, have done for 28 years - Ive had them 28 years but they know better (WTF [smiley=huh.gif]), and they say "oh well you should do this" or you should do that... And I want to explain to them THESE ARE NOT NORMAL HEADACHES, NOT EVEN MIGRAINES - migraines are a walk in the park - I want them to at least understand they cant know if I cant explain it Just wish I could get it through to them short and sweet [smiley=pokeeye.gif] |
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Title: Re: calling for a catch-phrase response please... Post by don on Jan 14th, 2005, 10:27pm Slightly tap them on the side of the head and say "This is a migraine" Then jam your knee in their crotch full force and say "This is a Cluster. Get it now?" |
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Title: Re: calling for a catch-phrase response please... Post by CC2004 on Jan 14th, 2005, 10:32pm on 01/14/05 at 22:27:46, don wrote:
8) wish I could |
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Title: Re: calling for a catch-phrase response please... Post by Sean_C on Jan 14th, 2005, 10:35pm ROTFLMMFAO exactly ;;D |
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Title: Re: calling for a catch-phrase response please... Post by maureeng96 on Jan 14th, 2005, 10:44pm If it's family or friends or other people that you see on a regular basis, the best thing to do is print out some of the basic information for them to read. (Not too much, they'll be overwhelmed). In a social setting, you could say something like, "Unfortunately, most people confuse cluster headaches with migraines. A cluster headache is kind of like the pain of a three-day long migraine compressed into a one-hour time span." If all else fails, when they ask if there is anything you can do to get rid of your CH, ask them if there is anything they can do to get rid of their ignorance. :P |
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Title: Re: calling for a catch-phrase response please... Post by CC2004 on Jan 14th, 2005, 11:08pm excellent - thanks! I still like Don's too - but just as well clusterheads cant drink though coz I might be more likely to try his way ;;D |
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Title: Re: calling for a catch-phrase response please... Post by Charlie on Jan 14th, 2005, 11:21pm Perhaps we could just tell them to come here if they think we're kidding. If they say "no," kill them.... Damn. I deleted all my really mean smilies relating to this. Give me time. Charlie |
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Title: Re: calling for a catch-phrase response please... Post by brain_cramps on Jan 14th, 2005, 11:35pm on 01/14/05 at 21:47:08, CC2004 wrote:
At one time, my response would be: "Relax? >:( Are you fukkin *&^%$*$*^% CRAZY? YOU bring on the *&^%*&^% stress! ::) " but maybe i've mellowed with age |
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Title: Re: calling for a catch-phrase response please... Post by CC2004 on Jan 14th, 2005, 11:41pm on 01/14/05 at 23:21:38, Charlie wrote:
not to worry Charlie - you've got the best smilie ever happy to be here It still makes me smile every time I see it - thanks heaps ;;D |
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Title: Re: calling for a catch-phrase response please... Post by CC2004 on Jan 14th, 2005, 11:47pm on 01/14/05 at 23:35:31, brain_cramps wrote:
hehehe I know the feeling well Ive mellowed too [smiley=mellow.gif] being here helped no end and I managed to get through without ever once saying STFU [smiley=tongue2.gif]- no mean feat since I cant help but think of the language & kick ass smilies Id be using if I was here [smiley=sgrin.gif] instead of the other world CC |
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Title: Re: calling for a catch-phrase response please... Post by Jonny on Jan 15th, 2005, 12:00am How about......Look at me like that again and Ill rip your fucking balls off, make you swallow them, force you to digest them and then squeeze your fucking head till you shit them out. Hows your cluster headache? ;;D |
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Title: Re: calling for a catch-phrase response please... Post by taraann on Jan 15th, 2005, 1:40am The reasons I have "all my problems" is that I don't eat right. ::) Gotta love family. |
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Title: Re: calling for a catch-phrase response please... Post by maureen on Jan 15th, 2005, 1:53am i know what you mean as much as I love the kickin in the crotch [smiley=laugh.gif](would pay good money to see that) I just tell people it's something most people can't understand and before they have a chance to say all the stupid things you mentioned I let it "slip" that I can't stand people who think they have the solution to my problem when they don't even know anything about it. Usually shuts them up, I think it's the challenging grin on my face that cinches it though ;) |
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Title: Re: calling for a catch-phrase response please... Post by Donna_D. on Jan 15th, 2005, 2:19am Since the start of my headaches my mom has insisted (no joke) that they are due to my teeth (I cracked a few during some bad hits) and my long, heavy hair. Well, I got my teeth fixed. Well, I got my hair cut (7 inches off the back :o ) Well, I STILL have clusters. When I called her to tell her this, she said... "Well, you must not be eating right....are you taking your vitamins?" I love my mother...dearly. But she has no freakin' CLUE....not one. MY response to those who tell me THEY had a cluster headache ONCE... "Oh really, you mean you felt like killing yourself, too....you KNOW they call Cluster Headaches 'Suicide Headaches' don't you?" That usually stuns them enough for me to change the subject or leave.... DD |
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Title: Re: calling for a catch-phrase response please... Post by karma on Jan 15th, 2005, 6:25am People who don't have it don't undertsand and will never understand. People who bring it up during casual conversation knowing that others won't understand are looking for sympathy and an elevation to hero status for fighting the unimaginable pain. Why is there this necessity amongst CHers to try and explain the unexplainable? Most doctors don't understand. Why do people expect the average moron at a cocktail party or the office to understand? |
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Title: Re: calling for a catch-phrase response please... Post by PrettyH8Machine on Jan 15th, 2005, 12:16pm Just tell them "This is not your typical headache. It is like being skull-fucked by Satan himself." Works for me, CD |
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Title: Re: calling for a catch-phrase response please... Post by Jeepgun on Jan 15th, 2005, 12:20pm "It's like someone is taking a piping-hot knitting needle and forcing it into your eye, then digging it around and around, while having your molars torn out with visegrips." That's usually a sufficient explanation. Last, but not least, when I wake up with one and I'm moving out of the room, my wife wakes up and sleepily says, "You're having one, aren't you?" And I quietly say, "Yeah... It's alright, baby. Go back to sleep, okay?" (and then I make my way out to the living room for the headbanger's ball. |
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Title: Re: calling for a catch-phrase response please... Post by Ree on Jan 15th, 2005, 12:46pm Believe it or not I can relate to this... when my friends tell me not to worry about my son in Iraq. I would just tell your friends and family that you will only take advice from another Cluster sufferer... or a family member of a sufferer. I finally told my friends and family until their kids go to Iraq or are in a war torn country don't tell me how to feel. Saying I am sorry for your pain is the best thing anyone can do for you... I am sorry for your pain CC Be well friend...love ree |
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Title: Re: calling for a catch-phrase response please... Post by Magick on Jan 15th, 2005, 7:54pm The only thing that I've found that seems to keep people mouths shut (although there are always a few who can't seem to do that) is to say I have a medical condition. I never say the work headache. I tell them I need to be alone and take my medications. I just never use the trigger word HEADACHE. |
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Title: Re: calling for a catch-phrase response please... Post by CC2004 on Jan 15th, 2005, 8:38pm when I first came here I saw someone had said they had two wishes - 1 that there would be a cure found for clusters, and 2 that noone would ever say again 'I know how you feel, I get migraines too'. I really wish there could be a new name for the bastards - "cluster headaches" just doesnt do it, but I dont like suicide headaches either - some important sounding technical medical name shortened to initials CLUSTER XYZ syndrome 8) could be good - at least then people would know they didnt have a f*'n clue! But of course, none of this matters with the casual acquaintance, and people who are close should at least be able to get that its bigger than they can know Ree, so sorry to hear you're getting nonsense like that :( I know for my part I try to relate in some way to understand someone else, I have a 16 year son who left home just before he turned 15, we've been through a lot, as a mother Ive been through a lot - thats all I know. Nothing like Iraq and I dont know how you feel, but I know you feel deeply and I feel for you Ree - bless you all and hey THANKS you all, Ive really enjoyed this, venting frustration can be huge fun around here unlike in the other world! ;;D |
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Title: Re: calling for a catch-phrase response please... Post by nani on Jan 15th, 2005, 8:41pm How 'bout...I suffer from pain related to vascular issues and trigeminal neuralgia? Ree and CC...I, too, had to deal with not knowing whether one of my kids was going come home alive and undamaged - due to choices that she made. There is no feeling like the horrible anxiety of not knowing. :'( |
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