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(Message started by: cat14 on Jan 12th, 2005, 2:05pm)

Title: I just have
Post by cat14 on Jan 12th, 2005, 2:05pm
I am in a cylcle now (chronic cycle) and I can't really see much or type worth a sh*t, BUT I have to post!

Bye
Miss my playmates
Wendy

Title: Re: I just have
Post by sandie99 on Jan 12th, 2005, 2:13pm
Wendy,

[smiley=hug.gif]
so sorry that the beast is visiting you.... :(
Hang in there!

By the way, I just love that pic!  :)

PFdays,
sandie99

Title: Re: I just have
Post by vig on Jan 12th, 2005, 2:18pm
big hug for ya wendy... :'(

Title: Re: I just have
Post by Langa on Jan 12th, 2005, 2:29pm
[smiley=hug.gif]

Langa  

Title: Re: I just have
Post by ExplodingEyeBall on Jan 12th, 2005, 2:37pm
Hang in there.
[smiley=hug.gif]

Title: Re: I just have
Post by Bob P on Jan 12th, 2005, 2:38pm
Isn't a chronic always in cycle?

Title: Re: I just have
Post by BarbaraG on Jan 12th, 2005, 2:53pm
Jeez Boob, I think you're right.  BarbaraG(chronic)

Title: Re: I just have
Post by cat14 on Jan 12th, 2005, 2:56pm
okay, then I am having a F*ckin Sh*tty week! Is that better? ;;D

Title: Re: I just have
Post by Margi on Jan 12th, 2005, 2:57pm
you're right, Barb.  Bob's been right, what, three times in less than two days now?

The sky is falling!!  The sky is falling!!
Run for your LIVES!!

Title: Re: I just have
Post by BarbaraG on Jan 12th, 2005, 3:01pm
I'm running Margi.  Also just boosting my posts.  Wonder who I'll piss off first??????    How are doing Margi?  BarbaraG    

BTW  where is BarbD hiding these days??? ;;D

Title: Re: I just have
Post by Margi on Jan 12th, 2005, 3:04pm
I'm doing good, Barb - thanks for asking.  Freaking cold though.  Looks like you're having some nasty weather too though.  

I saw BarbD here the other day.  Haven't seen Elaine around for a long while though.  Jackie popped her head up last night - that was pretty cool.  

now if we could only find Drummer...or that guy named, what was it?  Daren Johnson or something like that?

Title: Re: I just have
Post by cat14 on Jan 12th, 2005, 3:12pm
Guess the old timers took over my thread! Oh well, I did get my first laugh today from it ! ;;D

Title: Re: I just have
Post by vig on Jan 12th, 2005, 3:22pm
Wendy, you've been hijacked....

Title: Re: I just have
Post by nani on Jan 12th, 2005, 3:54pm
Hmmm....EpiCHronic...a term I learned right here ...  definition: A chronic sufferer with severe episodes.  I also suffer the same way, Wendy...I knew exactly what you meant.

BTW...It's heartwarming to see how much support you're getting....

Title: Re: I just have
Post by Margi on Jan 12th, 2005, 4:08pm
nani's right - Barb and I got sidetracked.

Wendy, my hat's off to you.  Rare the clusterhead that can post while getting hit.  My husband sure can't.  He can barely even form a sentence during an attack, let alone practice his typing.  You're stronger than most here.

Nani, didn't I read one of your posts where you said you had been diagnosed with CPH?  Have you tried indomethacin?  I've heard it's got almost 100% effectiveness in controlling CPH.  




Title: Re: I just have
Post by nani on Jan 12th, 2005, 4:15pm
I tried Indo to rule out CPH...within 4 days we knew it wasn't. I did get 3 full PF days first, though...then the rebounds came and bit me in the ass. Wendy's tried it, too. We were both (at seperate times) hoping we had CPH and Episodic CH. No such (?)luck...

Title: Re: I just have
Post by Margi on Jan 12th, 2005, 4:26pm
if you got 3 immediate pain free days by introducing indo, I'd say chances are pretty good that it is CPH.  It could be the other meds you're on that are interfering with it working.  Sure sounds like it's worth considering a taper off everything else and letting indo do its work alone.

Title: Re: I just have
Post by cat14 on Jan 12th, 2005, 5:04pm


Wendy, my hat's off to you.  Rare the clusterhead that can post while getting hit.  My husband sure can't.  He can barely even form a sentence during an attack, let alone practice his typing.  You're stronger than most here.

Thank you Margi, tell your husband about trex shots, they work good!!!

Title: Re: I just have
Post by Margi on Jan 12th, 2005, 5:11pm
I can't think of anything that would allow most clusterheads to post during a hit.  Not even trex shots.  Trust me - after 30 years of clustering, he knows his limitations.


Title: Re: I just have
Post by cat14 on Jan 12th, 2005, 5:14pm
I don't remember saying I was in the middle of a hit, I said I was having a bad week. Meaning hit on and off!Thanks for getting on my thread and supporting me, just like us clusterheads do for each other, right Margi????

Title: Re: I just have
Post by Bethany1 on Jan 12th, 2005, 5:21pm
Wendy so sorry to hear your having a bad week!!! [smiley=hug.gif]  I love ya hon, take care of yourself and get better--

Your bud--B
;;D

Title: Re: I just have
Post by Margi on Jan 12th, 2005, 5:23pm
right you are, Wendy - thanks so much for reminding me that we lowly supporters couldn't possibly match the support the big dawg "clusterheads" give each other.  Silly me.

sorry to have hijacked YOUR thread.

Title: Re: I just have
Post by cat14 on Jan 12th, 2005, 5:30pm
Looks like your having a bad day, to start on someone just for saying they were having a sh*t week seems alittle strange to me. PMS?

Title: Re: I just have
Post by guesst on Jan 12th, 2005, 5:38pm
Getting out the Orville Redenbachers........  ::)

Title: Re: I just have
Post by Roxy on Jan 12th, 2005, 5:44pm

on 01/12/05 at 17:30:38, cat14 wrote:
Looks like your having a bad day, to start on someone just for saying they were having a sh*t week seems alittle strange to me. PMS?


We are clusterheads, or are the supporters of someone who is a clusterhead.  So.....most weeks are shit weeks.  Margi has done more than her share of supporting and helping......so back off.

Tracey....another chronic who can't type while getting hit.


Title: Re: I just have
Post by Jackie on Jan 12th, 2005, 5:48pm

on 01/12/05 at 17:23:48, Margi wrote:
right you are, Wendy - thanks so much for reminding me that we lowly supporters couldn't possibly match the support the big dawg "clusterheads" give each other.  Silly me.

sorry to have hijacked YOUR thread.


Sorry Margi.......but I'm not gonna listen to that silly shit outta you....

You were here doing endless research,  supporting,  moderating the supporters board,  chairing commitees,  holding office in OUCH, etc......while some were still spilling their milk and pissin' their britches.

Hey Thomas.....pass the popcorn.... ;;D

Jacks 8)

Title: Re: I just have
Post by Gena on Jan 12th, 2005, 5:54pm

on 01/12/05 at 17:48:59, Jackie wrote:
Sorry Margi.......but I'm not gonna listen to that silly shit outta you....

You were here doing endless research,  supporting,  moderating the supporters board,  chairing commitees,  holding office in OUCH, etc......while some were still spilling their milk and pissin' their britches.

Hey Thomas.....pass the popcorn.... ;;D

Jacks 8)


I second that motion.....

could not have said it beter myself. You go Girl.

Can I have some Popcorn too ;;D

Title: Re: I just have
Post by nani on Jan 12th, 2005, 6:22pm

Quote:
I'd say chances are pretty good that it is CPH


Thank you for your input, Margi. I think I'll leave the diagnosing to my dr, though.

Title: Re: I just have
Post by Margi on Jan 12th, 2005, 7:21pm

on 01/12/05 at 17:48:59, Jackie wrote:
Sorry Margi.......but I'm not gonna listen to that silly shit outta you....

You were here doing endless research,  supporting,  moderating the supporters board,  chairing commitees,  holding office in OUCH, etc......while some were still spilling their milk and pissin' their britches.

Hey Thomas.....pass the popcorn.... ;;D

Jacks 8)


yeah, gimme some of that corn too, would you?  this could get interesting.  I think Jackie just called me old.  Whatabitch.  Wassmatta, Jacks?  Ya PMSing?

Thanks, Rox - your post means more than you could ever know.  

I'm not upset.  Just trying to learn how to do this sensitivity-R-us thing.  I don't think I've quite got it yet.  Maybe I need to practice more.
;)

Title: Re: I just have
Post by Grandma_Sweet_Boy on Jan 12th, 2005, 7:29pm
Margi - you don't need to practise anything.  Just stay your same sweet self and you'll be just fine.  You probably have more knowledge in that baby finger of yours than some have in their whole body!

Anybody got a problem with that?

And....if we're havin' popcorn - could mine please have caramel on it! ;;D

Title: Re: I just have
Post by john_d on Jan 12th, 2005, 7:39pm

It looked more like you were being reasonable, trying to accomodate and help and somebody baited you and then slammed you in the face with a basketball.  I don't see the avoidability through sensitivity of it.   Old timer/ new timer division whatever, supporter/ clusterhead division- fuck no.  That's a match made in heaven.

Title: Re: I just have
Post by Jackie on Jan 12th, 2005, 7:40pm

on 01/12/05 at 19:21:22, Margi wrote:
 Wassmatta, Jacks?  Ya PMSing?


Nah....no PMS here...just being my normal self....

CallsitlikeIseesitoldbitchJacks 8)


Edited to say........Yep, agree with what Grandma_Sweet_Boy and John said......

Title: Re: I just have
Post by Charlie on Jan 12th, 2005, 7:43pm
http://www.netsync.net/users/charlies/gifs/coffee.gif

Hope you are feeling better kid.

Charlie  

Title: Re: I just have
Post by Grandma_Sweet_Boy on Jan 12th, 2005, 7:44pm
Jackie - gotta say girl, I like your style!  I too calls it like I sees it!  

Hugs to ya and you too John.
Carol

Someone once told me this:  Sarcasm is neither wit nor humour, but the incoherent babbling of a diseased mind.  Funny but even after all these years, that's still true!

Title: Re: I just have
Post by vig on Jan 12th, 2005, 7:44pm
I don't think anybody meant anything, it just sort of got twisted up and took a life of it's own.
Smile everybody!
my $.02
so spank me.

Title: Re: I just have
Post by broomhilda on Jan 12th, 2005, 7:47pm
Ditto to what Roxy, Jackie, Carol et al...

We love you Margi, just the way you are, don't change a thing, you have done so much for so many people and for that THANK YOU(its not enough) ... you ROCK ;)

I like extra butter please ;;D

Title: Re: I just have
Post by Ueli on Jan 12th, 2005, 7:53pm
Take it easy folks, it's just bash-the-oldtimers-week.

This will pass too.....

Hugs and kisses to all    :-*   :-*   [smiley=hug.gif]

Title: Re: I just have
Post by Margi on Jan 12th, 2005, 7:53pm
Jacks.  Seriously.   :-*  You KNOWS I loves ya missy.  

can we still spank Paul though?  because I think he's earned it.


Title: Re: I just have
Post by Jackie on Jan 12th, 2005, 7:56pm

on 01/12/05 at 19:53:05, Ueli wrote:
.



Hugs and kisses to all    :-*   :-*   [smiley=hug.gif]


What !!!! ???? No vibes.... [smiley=huh.gif]


Title: Re: I just have
Post by vig on Jan 12th, 2005, 7:59pm
[smiley=moonwiggle.gif]

Title: Re: I just have
Post by Jackie on Jan 12th, 2005, 7:59pm

on 01/12/05 at 19:53:54, Margi wrote:
can we still spank Paul though?  because I think he's earned it.


Sure, Margi....we can spank him but I charge $100.00 to give a good spanking .... what's the going rate in Canada?

Jacks 8)

Title: Re: I just have
Post by Grandma_Sweet_Boy on Jan 12th, 2005, 8:19pm
$150.00 and I've got the whip! ;;D

Title: Re: I just have
Post by nani on Jan 12th, 2005, 8:36pm
Wow...what an interesting hi-jack. It's all over the place. It seems to me that when someone mentions that they are suffering it's not the best time to berate and make fun of the way they may have said it. Then to go and hijack so you can make a point is most certainly in poor taste. Then to imply they may not be suffering because they can type...I could go on and on... I wonder why Wendy may have been feeling defensive?
All this bullshit is getting ridiculous. If you don't like touchy - feely fine...keep ignoring those who need it. If you think you're more special because you've been here longer, fine...don't scare away real newbies with your sarcasm and nasty attitudes. If you're a newbie who thinks they're special fine...  don't make fun of oldtimers.
WTF is so hard about this people???

Pain free wishes to all of you and Wendy...I hope the beast cuts you some slack.

And Paul...I am available to spank you on weekends for a special CH.COM discounted price of $50.00 per hour.

Title: Re: I just have
Post by Kris_in_SJ on Jan 12th, 2005, 8:38pm
Perhaps it's time to call a truce.

We've had someone come here and say it's a bad week.  Suddenly, we have responses that are negative at best, and belittling as well.

I personally don't care how many posts you've had, how many people you've helped in the past, how superior you think you might be ... many of the posts above were just plain cruel!

No wonder so many people are leaving this board.  DJ - perhaps it's time you had a say here.

I'm GONE!

Kris

Title: Re: I just have
Post by Kevin_M on Jan 12th, 2005, 8:46pm

on 01/12/05 at 20:38:31, Kris_in_SJ wrote:
many of the posts above were just plain cruel!

No wonder so many people are leaving this board.



I'm sure Paul can take it though, I don't think he'll leave.



Kevin M

Title: Re: I just have
Post by Charlie on Jan 12th, 2005, 8:54pm

Quote:
many of the posts above were just plain cruel!

Actually, I think we've become softer....which is healthy. For cruel, nothing beats the old board....granted, some of the cruelty was deserved there as well.

Charlie.....Mr. Sweetness and light.

Title: Re: I just have
Post by nani on Jan 12th, 2005, 10:02pm

Quote:
some of the cruelty was deserved there


[smiley=nono.gif]

Sorry Charlie... IMHO cruetly is never deserved. It is the weapon of the despot and  the insecure. I think responding with cruelty, even when one may think it is deserved, is to sink lower than the offender.  [smiley=twocents.gif]

Title: Re: I just have
Post by BarbaraG on Jan 12th, 2005, 10:10pm
Let's give it a rest.  Nothing good can come of this.
                                                        BarbaraG

Title: Re: I just have
Post by don on Jan 12th, 2005, 10:28pm

Quote:
DJ - perhaps it's time you had a say here.


Just what is it you'd like him to say?

Title: Re: I just have
Post by BlueMeanie on Jan 12th, 2005, 10:55pm

on 01/12/05 at 22:28:52, don wrote:
Just what is it you'd like him to say?


He'd probably say the same thing jonny would say. STFU.  :o

Title: Re: I just have
Post by vig on Jan 12th, 2005, 11:08pm
I really thought YOU were going to pay ME for the spankings.... I'm not PAYING a dime for that honor. ::) [smiley=moon.gif]

Title: Re: I just have
Post by Charlie on Jan 13th, 2005, 4:13am
Ok. The word cruelty was wrong. The thing is, most of us tore the cranks, snake oil salesmen and just plain crooks to pieces. The old board was full of this shit.

Call it a response to the broadsides the board took every day.

Charlie

Title: Re: I just have
Post by Bob P on Jan 13th, 2005, 9:29am

Quote:
you're right, Barb.  Bob's been right, what, three times in less than two days now?

Even a blind hog finds an acorn if he roots long enough.

While I'm on a roll of being right, women don't get clusters!

Title: Re: I just have
Post by medic1852 on Jan 13th, 2005, 9:34am
Can of worms Bob,, you just opened a can of worms, I am going to leave. [smiley=yikes.gif]



Even though everything I have read states women dont get CH...

Title: Re: I just have
Post by Bob P on Jan 13th, 2005, 9:38am
If there is only one thing I've learned in my lifetime its:

Girlie men get migrains
and
manly women may get clusters.

Question:  How many females here have beards?

Title: Re: I just have
Post by nani on Jan 13th, 2005, 9:40am
me.

Title: Re: I just have
Post by medic1852 on Jan 13th, 2005, 9:41am

on 01/13/05 at 09:38:18, Bob P wrote:
If there is only one thing I've learned in my lifetime its:

Girlie men get migrains
and
manly women may get clusters.

Question:  How many females here have beards?



ROFLMAO


Title: Re: I just have
Post by Marc on Jan 13th, 2005, 9:42am
When I joined this board (the old board) years ago, it was all Clusterheads and supporters.

Back then, doctors weren't diagnosing CH because they didn’t know how to spot it, or even what it was. The word got out. Now I see doctors diagnosing CH when they encounter other complex, stubborn headaches.

I’m not pointing at anyone in particular, but any Clusterhead or supporter can spot the difference.

When I joined this board, it was all Clusterheads and supporters.


Title: Re: I just have
Post by Redd715 on Jan 13th, 2005, 9:46am

on 01/13/05 at 09:38:18, Bob P wrote:
If there is only one thing I've learned in my lifetime its:

Girlie men get migrains
and
manly women may get clusters.

Question:  How many females here have beards?


Have you looked at your own Photo site lately Bob? [smiley=laugh.gif]

Title: Re: I just have
Post by nani on Jan 13th, 2005, 9:48am

Quote:
I’m not pointing at anyone in particular, but any Clusterhead or supporter can spot the difference.

When I joined this board, it was all Clusterheads and supporters.


And your point is?

Title: Re: I just have
Post by Margi on Jan 13th, 2005, 9:52am

on 01/13/05 at 09:42:38, Marc wrote:
When I joined this board (the old board) years ago, it was all Clusterheads and supporters.

Back then, doctors weren't diagnosing CH because they didn’t know how to spot it, or even what it was. The word got out. Now I see doctors diagnosing CH when they encounter other complex, stubborn headaches.

I’m not pointing at anyone in particular, but any Clusterhead or supporter can spot the difference.

When I joined this board, it was all Clusterheads and supporters.


I wish you'd speak up more often, Marc.  Because every single time you post - your words are right smack dab on the money, my friend.

EXCELLENT point.  


Title: Re: I just have
Post by nani on Jan 13th, 2005, 9:54am
So is his point one that is so obscure only oldtimers get it? Because I sure don't.         WTF...    >:( If you think someone is not a sufferer or supporter....have the balls to say who.

Title: Re: I just have
Post by guesst on Jan 13th, 2005, 9:54am

on 01/13/05 at 09:48:38, nani wrote:
And your point is?

His point was well made, back in the day there were no people with DPH, CHP, Migraine or other ailments coming here asking if they have clusters.

Title: Re: I just have
Post by guesst on Jan 13th, 2005, 9:56am

on 01/13/05 at 09:54:45, nani wrote:
So is his point one that is so obscure only oldtimers get it? Because I sure don't.         WTF...    >:( If you think someone is not a sufferer or supporter....have the balls to say who.

Read the "getting to know ya" board, you'll see what he's talking about, Jesus H. quit being so damned defensive.

Title: Re: I just have
Post by nani on Jan 13th, 2005, 9:56am
So...again....who do you think that is???

Title: Re: I just have
Post by nani on Jan 13th, 2005, 9:57am
Gee...I can't imagine why anyone here would feel defensive. Is this the thread to make that point on?

Title: Re: I just have
Post by cat14 on Jan 13th, 2005, 9:57am
The experts here must know who the F*ck has Clusters!!jeez, you people?????

Title: Re: I just have
Post by don on Jan 13th, 2005, 9:58am

Quote:
When I joined this board, it was all Clusterheads and supporters.


BINGO!

Title: Re: I just have
Post by guesst on Jan 13th, 2005, 10:02am

on 01/13/05 at 09:57:57, cat14 wrote:
The experts here must know who the F*ck has Clusters!!jeez, you people?????

I can honestly say, the only people that I know for sure have ch, are the people I have seen get hit, and myself.  I know THAT for sure.  Now we can all watch everybody flame ME for that remark.

Title: Re: I just have
Post by Margi on Jan 13th, 2005, 10:04am

on 01/13/05 at 09:57:57, cat14 wrote:
The experts here must know who the F*ck has Clusters!!jeez, you people?????


with the combined experience here of feeling (and witnessing) cluster pain, I'd say the "experts" here actually are pretty good diagnosticians.  Think about it.  Doctors, neuros have so many ailments that they are trained to spot.  It's a very mixed bag.  Folks who live with clusters focus solely on clusters - we learn a lot from each other too.  Now, before my words get twisted yet AGAIN - I am NOT saying we are better than doctors.  But we do get pretty good at spotting anomalies.  

Title: Re: I just have
Post by cschick on Jan 13th, 2005, 10:04am

on 01/12/05 at 19:44:49, vig wrote:
my $.02
so spank me.


You'd like that wouldn't you?   [smiley=laugh.gif]  

BTW - I hope everyone is PF and smiling today!  I've decided just to be a little ray of sunshine from here on out!  

Title: Re: I just have
Post by cat14 on Jan 13th, 2005, 10:05am
I'll send you a video, WTF like someone would want to have CH guesst??????????????????

Title: Re: I just have
Post by cat14 on Jan 13th, 2005, 10:08am
Then, THATS really funny cause before I even saw the dr. it was people here (lots) that were sure I HAD clusters , its not something you want????????

Title: Re: I just have
Post by nani on Jan 13th, 2005, 10:08am

Quote:
I can honestly say, the only people that I know for sure have ch, are the people I have seen get hit, and myself.


Going by that logic...I'm the only person in the world who has CH...so get off my board you losers.

Title: Re: I just have
Post by Margi on Jan 13th, 2005, 10:08am
sadly, the cluster wannabe syndrome has become very real.  I blame a lot of lazy doctors for that, though, more than the headache sufferers - just like Marc said.

I have no idea why ANYone would want to be a clusterhead or supporter though.  It ain't exactly a walk in the park.

Can we flame Thomas now?  I think that could be a lotta fun, actually - he's got spunk.  I like spunk. :)
And then Gena could rise to his defense and we could get a pretty good brawl going here.  

Title: Re: I just have
Post by cat14 on Jan 13th, 2005, 10:09am
How the hell can you comment on people you don't even know, I don't understand????? What did we ever do to you?

Title: Re: I just have
Post by Margi on Jan 13th, 2005, 10:09am

on 01/13/05 at 10:08:32, nani wrote:
Going by that logic...I'm the only person in the world who has CH...so get off my board you losers.


sorry, I just had to copy this one before it gets deleted.  

now I have to go get some windex and clean my monitor.   [smiley=laugh.gif]

Title: Re: I just have
Post by Bob P on Jan 13th, 2005, 10:09am

Quote:
Have you looked at your own Photo site lately Bob?  

Just this morning I added:
Mike - Gator
Beth
and an updated pic of Cheryl

I don't question anyone who wants their pic on the board.  I know there are clusterheads, supporters, CHPers, meegrainers and groupies there.

You may want to scan the page from time to time.  I've been adding pics but have been remiss in announcing the additions here so there are probably some that people haven't seen yet.

Title: Re: I just have
Post by cschick on Jan 13th, 2005, 10:10am
Now I want some popcorn.  Who's Bogarting it?

Title: Re: I just have
Post by guesst on Jan 13th, 2005, 10:11am

on 01/13/05 at 10:05:32, cat14 wrote:
I'll send you a video, WTF like someone would want to have CH guesst??????????????????

Boy, I offer myself up for flaming in order to get the heat off you and nani, and who is the first one to flame me?  Thanks.

Title: Re: I just have
Post by Margi on Jan 13th, 2005, 10:12am
Hey!  I offered to flame you, Thomas.  But it quickly got buried.  Man these people type really FAST, huh?

;)

lighten up everyone.  Cluster misdiagnosis is a very real problem.  No one is pointing any fingers at anyone.  Relax.  Breathe.  Quit being so bloody defensive.

Title: Re: I just have
Post by Bob P on Jan 13th, 2005, 10:14am

Quote:
I'll send you a video, WTF like someone would want to have CH guesst??????????????????

Unfortunately there are those kind of people.  The ones who get headaches, want people to feel sorry for them so they hang the name of the most severe type of headache on their pain.  Wannabes.

Title: Re: I just have
Post by guesst on Jan 13th, 2005, 10:15am

on 01/13/05 at 10:02:01, guesst wrote:
I can honestly say, the only people that I know for sure have ch, are the people I have seen get hit, and myself.  I know THAT for sure.  Now we can all watch everybody flame ME for that remark.

Yeah, thanks Margi.  You can flame me anytime you'd like.  I'm waiting for 'em all to come out with pitchforks and torches after this remark.

Title: Re: I just have
Post by cat14 on Jan 13th, 2005, 10:19am
Well, Margi it was me that was getting attacked for nothing yesterday, nani should have never been invo :Pled. I could give a rip whether you think I have CH or not. I am the one who has to live with them! I just didn't get it when it bugs you so much that I was having a bad day and typing, sorry maybe since you know so much you should tell me just how the f*ck to be when thats happening! If you don't like what I say then DON"T READ IT!!!!!

Title: Re: I just have
Post by Margi on Jan 13th, 2005, 10:19am
People wonder why we jump on the wannabes so much.  

For me, the sole reason is because if you've been misdiagnosed to have cluster headaches, you WILL be prescribed meds for cluster headaches.  These meds aren't exactly placebos or sugar pills, people.  Cluster meds have some very serious side effects and we HAVE heard stories here of them causing some very serious and potentially lethal results.

We've also heard stories of folks who have been CH diagnosed when they've had other very serious problems going on.  I remember a lady who, if she took one more shot of imitrex, she would have caused the aneurysm that hadn't been found, to have exploded.

Maybe that helps to shed some light on why some of us stand at the door here on guard.

Title: Re: I just have
Post by Jeepgun on Jan 13th, 2005, 10:20am
Aw, and I was so hoping for a good ol' fashioned brawl!!  [smiley=laugh.gif]

Title: Re: I just have
Post by nani on Jan 13th, 2005, 10:22am

Quote:
I offer myself up for flaming in order to get the heat off you and nani


why thank you Thomas... but I prefer taking my own heat. I can get as bitchy as the best of 'em....


Quote:
Quit being so bloody defensive.


You know, after the attacking and passive aggressive shit that's been going on here...WTF do you expect.
Yes, cluster misdiagnosis is a problem, yes, all types show up and ask questions,  what the hell does any of that have to do with this thread????

Title: Re: I just have
Post by guesst on Jan 13th, 2005, 10:23am
Would you ninnies quit bickering, it sounds like a damn hen-house here.  I want to be flamed damnit and I'm not leaving until I get what I want.

Title: Re: I just have
Post by cat14 on Jan 13th, 2005, 10:25am
I understand what you're saying, but since you don't know me, don't you think you could put things in the right way. For all you know I could have been a very depressed CH person on the edge?????? I am not, but I sure the hell couldn't want to think I pushed someone because I didn't really know for sure if they were a real clusterhead? Follow me? I wouldn't want that on my mind?

Title: Re: I just have
Post by nani on Jan 13th, 2005, 10:26am
I am also available to flame you on weekends. I do all my spanking and flaming on Sat nights. CH.COM discount for flaming...$25.00 an hour.

Title: Re: I just have
Post by Margi on Jan 13th, 2005, 10:28am
http://www.deephousepage.com/smilies/2gunsfiring_v1.gif

http://www.deephousepage.com/smilies/AR15firing.gif

http://www.deephousepage.com/smilies/argue2.gif

http://www.deephousepage.com/smilies/dueling.gif

http://www.deephousepage.com/smilies/flamethrow.gif

Feel better, Thomas?  Here, have a smoke.  


http://www.deephousepage.com/smilies/Smoker.gif




Title: Re: I just have
Post by Langa on Jan 13th, 2005, 10:29am
I just wanted to jump in here to say that I would give Vig a spanking for free... ;;D

Bye...

Langa

Title: Re: I just have
Post by Redd715 on Jan 13th, 2005, 10:30am
This arguement is getting way too divisional.  Oldtimes/newbies, who does and who doesn't, who come who goes, it's all part of the natural evolution of things.

The only thing that stays the same is change.  Everything changes and evolves including the dynamics of the mix of personalities on a message board.  As this disease is made more widely known by the efforts of us all and through OUCH, the dynamics are going to change as more and more people become aware of what the hell is going on inside their heads.  Medicine practice will change as more and more specialists like Volcey and Goadsby find and map the subtile differences in how this disease manifests in each of us.

As a newly elected officer of OUCH, this rift forming amoung the family is heartbreaking. I have more I'd like to say but I won't.  Suffice it to say that new or old, we will all have something to contribute to the enlightenment and support of all who suffer.

Title: Re: I just have
Post by Jonny on Jan 13th, 2005, 10:30am

on 01/13/05 at 10:29:04, Langa wrote:
I just wanted to jump in here to say that I would give Vig a spanking for free... ;;D


SL-UT!! ;;D

Title: Re: I just have
Post by Jeepgun on Jan 13th, 2005, 10:31am
I'm with Thomas. Barbecue ma' azz!!!  [smiley=laugh.gif]

Title: Re: I just have
Post by guesst on Jan 13th, 2005, 10:34am

on 01/13/05 at 10:30:38, Redd715 wrote:
As a newly elected officer of OUCH, this rift forming amoung the family is heartbreaking.

That's all well and good, Peg, but this ain't no OUCH board.

Title: Re: I just have
Post by Margi on Jan 13th, 2005, 10:34am
You know what, though?  It really isn't about newbies/oldtimers.  It SO isn't.

A new person finding us that needs genuine cluster support is immediately love-bombed and taken into the fold without question.  That's been proven time and time again here.

And usually, it's the folks that have been here a long time that are first to embrace that new person.  


Title: Re: I just have
Post by Langa on Jan 13th, 2005, 10:35am

on 01/13/05 at 10:30:58, Jonny wrote:
SL-UT!! ;;D


;;D ;;D ;;D

(I have my appt. book open for those who need flaming, whippings, massages, spankings, etc...my book is filling up quickly here...let me know)...

Langa


Title: Re: I just have
Post by medic1852 on Jan 13th, 2005, 10:37am
Damm....I am so glad that this board is set up to be a support network for people who suffer. A place to come and learn and share information on CH.

But then again I am a new person here, what do I know. Hell I have had CH since I was 16, but since I just found this site and no one knows me, I guess I am just a wanna be.

Thanks for all of your suppport and helping me to learn that since I was not here during the inception of the web site and O.U.C.H that my pain is not real...

Whew what a relief to know that after all these years I really wasnt hurting. [smiley=finger.gif]

Title: Re: I just have
Post by Redd715 on Jan 13th, 2005, 10:38am

on 01/13/05 at 10:34:30, guesst wrote:
That's all well and good, Peg, but this ain't no OUCH board.


That wasn't the point Thomas...the point of that statement was if it weren't for this board, I would never have involved myself in the other.

Pegg

Title: Re: I just have
Post by guesst on Jan 13th, 2005, 10:39am
http://im1.shutterfly.com/procserv/47b4cc31b3127cce9dce4e16f0c300000016108AaOWzNu4bNe

Everybody have a drink of water and cool off, will ya?  I'll buy  ;) ;;D

Title: Re: I just have
Post by Rock_Lobster on Jan 13th, 2005, 10:41am

on 01/13/05 at 10:35:14, Langa wrote:
;;D ;;D ;;D

(I have my appt. book open for those who need flaming, whippings, massages, spankings, etc...my book is filling up quickly here...let me know)...

Langa


Heh heh!  Don & Jonny & Frank & Thomas will be living out of an RV in your driveway.   ;;D ;;D


That said, everyone on this thread rocks.  Kinda sucks to see them in a pissing contest.  

/that is about a mushy as i get

Title: Re: I just have
Post by cat14 on Jan 13th, 2005, 10:43am
Okay Pegg, now bring on your BEST PICTURES, sis!!!!

Title: Re: I just have
Post by nani on Jan 13th, 2005, 10:44am

Quote:
It really isn't about newbies/oldtimers.  It SO isn't.


So if that's true:
1. WTF was the deal with Leesa's thread?
2.WTF is all of this doing on this thread?

Tell me, Margi....why is it some people can't seem to just address an issue with an individual personally? Why does this division happen? If someone has an issue with a newbie (or anyone else), there is such a thing as a PM. This passive aggressive and general insult thing is so chicken-shit...
And as far as embracing newbies...I don't find your theory about long timers true at all. It's the folks who've only been here a short time that are often the first to embrace.

Title: Re: I just have
Post by Langa on Jan 13th, 2005, 10:45am

on 01/13/05 at 10:41:52, Rock_Lobster wrote:
Heh heh!  Don & Jonny & Frank & Thomas will be living out of an RV in your driveway.   ;;D ;;D


That said, everyone on this thread rocks.  Kinda sucks to see them in a pissing contest.  

/that is about a mushy as i get


Wow...I've never seen you this emotional Rock without a pic of a nekkid woman preceding your thread...i'm flabbergasted... ;;D

Langa

Title: Re: I just have
Post by Margi on Jan 13th, 2005, 10:46am

on 01/13/05 at 10:37:44, medic1852 wrote:
But then again I am a new person here, what do I know. Hell I have had CH since I was 16, but since I just found this site and no one knows me, I guess I am just a wanna be.
[smiley=finger.gif]


No, you're not a wannabe, Medic.  You're a clusterhead who has just found the board.  BIG difference.


Title: Re: I just have
Post by Jeepgun on Jan 13th, 2005, 10:48am

on 01/13/05 at 10:41:52, Rock_Lobster wrote:
Heh heh!  Don & Jonny & Frank & Thomas will be living out of an RV in your driveway.   ;;D ;;D


That said, everyone on this thread rocks.  Kinda sucks to see them in a pissing contest.  

/that is about a mushy as i get


Rock on, Rock!
[smiley=headbanger.gif]

Title: Re: I just have
Post by Margi on Jan 13th, 2005, 10:50am

on 01/13/05 at 10:44:45, nani wrote:
there is such a thing as a PM. ....I don't find your theory about long timers true at all. It's the folks who've only been here a short time that are often the first to embrace.


Nani, you answered your own question before you asked it.  You dont' see the PM's or emails that get sent that offer help without any intention of driving that magic number of posts skyward.

Title: Re: I just have
Post by JDH on Jan 13th, 2005, 11:00am

on 01/13/05 at 10:50:22, Margi wrote:
driving that magic number of posts skyward.


BINGO!
THAT'S what's really important here  ::)

Jim

Title: Re: I just have
Post by cat14 on Jan 13th, 2005, 11:08am
See, I don't get that thing about posts???Do you win a trip or something? What are you all talking about?

Title: Re: I just have
Post by nani on Jan 13th, 2005, 11:11am
OK Margi...on that I stand corrected. It has never been my intention to insult your standing as a supporter.

Increasing posts because someone might want more magic stars???
You people really have issues don't you.
If someone wants to post 1000 times a day...why do you care?
If someone wants to post once a year....why do you care?
Does it somehow affect how you are looked at? Does it take away your little stars?

I gotta say...I just don't get it.
That's it ...I'm done with this thread...it's all a bunch of BS anyway.
But I will say it again...if you've got an issue with me...tell ME. You can start a thread or PM me...I will respond accordingly. Don't scare off the newbies with your nasty BS.

Title: Re: I just have
Post by Roxy on Jan 13th, 2005, 11:12am

on 01/13/05 at 10:44:45, nani wrote:
It's the folks who've only been here a short time that are often the first to embrace.


Now that is fucking rude......and you wonder why people are offended at what you are posting?

Title: Re: I just have
Post by LadyElaine on Jan 13th, 2005, 11:17am
I guess I have met maybe 200 hundred people from this board in person  and met another 200 on the phone.  Out of those 400 I only felt like a 100 of them knew my pain.

As far as saying some here like Margi does not support the new people,  a lot of us do our supportting privately. Margi and Jackie are supporters but they know my pain. They don't have clusters but they know my pain.  

I have seen post about other message boards that are good but don't move as fast as this board.  This site use to be a group of clusterheads and their supporters who became friends. Now its about who can post the most post. How fast we can keep the board moving. Its people trying to out do others, its internet  madness.  

Some Beach somewhere :)

Title: Re: I just have
Post by vig on Jan 13th, 2005, 11:19am

on 01/13/05 at 10:35:14, Langa wrote:
;;D ;;D ;;D

(I have my appt. book open for those who need flaming, whippings, massages, spankings, etc...my book is filling up quickly here...let me know)...

Langa

I'll take the whipping (as long as it's whipping cream) and the massages thank you very much [smiley=laugh.gif]

Title: Re: I just have
Post by cat14 on Jan 13th, 2005, 11:20am
Get a room you two!!!! ;;D

Title: Re: I just have
Post by Margi on Jan 13th, 2005, 11:21am
uh, LadyE...  I hate it when you mime your answers.

speak up, woman.

Title: Re: I just have
Post by Langa on Jan 13th, 2005, 11:21am

on 01/13/05 at 11:19:21, vig wrote:
I'll take the whipping (as long as it's whipping cream) and the massages thank you very much [smiley=laugh.gif]


Sigh....it's gonna get messy and sticky, but alright... ::)

Langa

P.S.:  You're Welcome... ;;D

Title: Re: I just have
Post by don on Jan 13th, 2005, 11:43am

Quote:
Can we flame Thomas now?


To late.

He's already a flamer.

Title: Re: I just have
Post by Bob P on Jan 13th, 2005, 12:09pm

Quote:
A new person finding us that needs genuine cluster support is immediately love-bombed

Hey I think I  missed my turn.  Bring it on people!


Quote:
For me, the sole reason is because if you've been misdiagnosed to have cluster headaches, you WILL be prescribed meds for cluster headaches.  These meds aren't exactly placebos or sugar pills, people.  Cluster meds have some very serious side effects and we HAVE heard stories here of them causing some very serious and potentially lethal results.


For me it's because I've been a clusterhead for 34 years.  I paid my dues in pain, tears, barf and snot.  I ain't letting no wannabe share in this sacred disease!

Title: Re: I just have
Post by Gena on Jan 13th, 2005, 12:12pm

on 01/13/05 at 11:43:04, don wrote:
To late.

He's already a flamer.


I don't think so ::)

Title: Re: I just have
Post by don on Jan 13th, 2005, 12:14pm

Quote:
For me it's because I've been a clusterhead for 34 years.  I paid my dues in pain, tears, barf and snot.  I ain't letting no wannabe share in this sacred disease!


Same here.

Anyone know of a sinus headache support site. I'm going to be a volunteer supporter. You dont really need to actually know someone right?

Title: Re: I just have
Post by Margi on Jan 13th, 2005, 12:15pm

on 01/13/05 at 12:09:03, Bob P wrote:
 I ain't letting no wannabe share in this sacred disease!


ok, well, there's that aspect of it too.  

Sorry, Bob, we didn't have the technology back then when you joined the board - so here's your newbie greeting, just about 4 or 5 years late.

http://www.deephousepage.com/smilies/newbie.gif

Title: Re: I just have
Post by Leesa on Jan 13th, 2005, 12:53pm
To those it may concer..............

MY post was simpley to vent and clear the air!! Its not a matter of newbie or old time its a matter of CONTENT!! Alot of IMPORTANT posts made get over run with BS and for what?? I could care less who posts what when or anything of the sort! Folks come here to learn about CH and how to support the ones they love. They come here to learn about the meds used, and YES to get support from others who suffer! And from those who care bout someone who sufferes! Just dont piss in my ear and tell me its raining cuz my boots are wet!  Like most of us here WE ALL try to call as we see'em. Call a spade a spade!  

All the clusterheads Ive met (in the flesh), I have NEVER known any of them to be able to post while being hit. (Ive met alot of them too, bout 50 in Alanta, over 100 in Nashville and bout 15 at a meet n greet in Nashville!) Rock, dance, or what ever you call it YES! This includes Dave my husband. Hell cant do ANYTHING except rock while he bangs his head in the floor! Margi is right about the fact we have had alot of folks that have come here in the past and say they have CH all to find out it was BS!  >:(
I AM NOT saying that everyone that shows up here doesnt have CH! 99.5% more then likely do. But some of us whom have been here awhile tend to look at things in a differnt light then others.
Leesa  >:(

PS: most of the time PM's are used when someone new comes here. most of the time they are told to READ first! ;)

Title: Re: I just have
Post by purpleydog on Jan 13th, 2005, 1:15pm

on 01/13/05 at 10:50:22, Margi wrote:
You dont' see the PM's or emails that get sent that offer help without any intention of driving that magic number of posts skyward.




Title: Re: I just have
Post by Big Dan on Jan 13th, 2005, 1:24pm

Quote:
A new person finding us that needs genuine cluster support is immediately love-bombed



Love-bombed?!...

... how strangely erotic....





-Big Dan

Title: Re: I just have
Post by karma on Jan 13th, 2005, 2:51pm
Goddam thats what this shitfest was all about?

Reminded me of my three sisters going at it when I was growing up. [smiley=laugh.gif]

Title: Re: I just have
Post by Jayne on Jan 13th, 2005, 5:45pm


    SERENITY NOW!!!!!!

Title: Re: I just have
Post by Charlie on Jan 13th, 2005, 5:59pm
http://www.netsync.net/users/charlies/gifs/grenade.gifhttp://www.netsync.net/users/charlies/gifs/blahblah.gif
Charlie  http://www.netsync.net/users/charlies/gifs/blind.gif

Title: Re: I just have
Post by cschick on Jan 13th, 2005, 6:33pm
So I guess what I want to know is - Who exactly is a "wannabe" on this MB?  If you are going to go on about the "wannabe's" - call them out so we can clear the air.  I don't know why anyone who isn't a true supporter or sufferer would want to stick around in this crapfest if they don't have to.

Title: Re: I just have
Post by BlueMeanie on Jan 13th, 2005, 7:05pm
Experience with Clusters has alot more to do with it, than experience on this board. 30 yr. Clusterhead with 100 post, or 1 year Clusterhead with 1000 post. Which would you believe ?

I posted awhile back "what do doctors know",
Years ago doctors would say only guys have CH's. Now it seems that since they realize woman also get them, that as long as you have pain in one eye, you have Clusters. I'm not saying it to flame anyone in particular, I'm saying it because I read the newbees posting everyday. More don't sound like Clusterheads than do.

Just my opinion.

edited to add: It's good ppl are coming to ask, that's one reason for the MB and I'm glad they come here to see; but it seems whenever someone responds that it doesn't sound like Clusters, half the time they get flamed.

Almost forgot... Thomas doesn't have Clusters. He's a wannabee.  [smiley=laugh.gif]

Title: Re: I just have
Post by vig on Jan 13th, 2005, 7:09pm
I wannabee rich, does that count?

Title: Re: I just have
Post by Donna_D. on Jan 13th, 2005, 7:12pm
Just wondering...


And not choosing sides...


Did anyone ever stop to think that maybe, just MAYBE, they got a correct diagnosis due to the educational efforts of some of the "Old Timers" around here?

If all of this energy could be channeled into educating the medical community...wow...who knows?

Just a little food for thought.

And Vig, I wannabe rich too...


DD

Title: Re: I just have
Post by Drk^Angel on Jan 13th, 2005, 8:04pm
Zzzzzzzzzzzzzzzzzzzzzzzzzzzzzzzzzzzzzzzzzzzzzzzzz...  Are we there yet??

PFDAN....................................... Drk^Angel

Title: Re: I just have
Post by Pegase on Jan 13th, 2005, 9:51pm
I've been reading this sucky thread all the way down... lets go gang... GET A LIFE...

Bob did it again... Bravo... Bravo... Bravo [smiley=bow.gif]

:P

Title: Re: I just have
Post by thebbz on Jan 13th, 2005, 10:32pm
????? Post what ? when? Newbie or how many stars? Wait is this the right thread? Where the $%^am I? Where the hell is the pic of the day? Boy I'm tellin ya! [smiley=huh.gif]
BB    LMOL

Title: Re: I just have
Post by Ree on Jan 13th, 2005, 11:21pm
here I am again without minding my own b'ness.........lol

I wanted to just say... I have other type of headache and I KNOW I DONT WANT TO HAVE Cluster because I have witnessed alot of those and frankly... If he left me or died tomorrow I'd run for the Fucken hills............. and you wouldnt see hide nor hair of me again... I hate this disease but love my husband and want to see him cured.   SELFISH ME.  ~~~REE~~~

WHO WOULD WANT TO BE A CLUSTER HEAD.......CERTAINLY NOT THIS MIGRAINER.......... FOR SURE...........  

Title: Re: I just have
Post by Donna_D. on Jan 13th, 2005, 11:35pm
This worked pretty so well in the other thread I thought I might try it here...


OK...here we go   AGAIN!!!



on 01/13/05 at 21:27:28, Donna_D. wrote:
Wait , wait, waaaaaiiiiit!!!!


I know EXACTLY what this thread needs!!!


Can't believe we didn't do this sooner!!


OK...


Here Goes!!





http://tinypic.com/18yjo3





;;D




DD





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