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Title: got O2 Post by john_d on Jan 5th, 2005, 8:26am I went to the doc for the first time in years. He did not understand very much about clusters but he listened well. Got O2, it works. Believe it or not I have not used it before. Got Ambien ::) not taking that, it scares me thinking about it. Got a neuro referral, we will see. Ordered something special ;) hope that works much more. This website and the info available here is a godsend. If I did not have the right info my doctor would not have. Hope all is well with you all. Pain Free Days. John |
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Title: Re: got O2 Post by Rock_Lobster on Jan 5th, 2005, 8:29am I can relate to that. Most of what my GP knows about CH he learned from this site via me. |
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Title: Re: got O2 Post by Langa on Jan 5th, 2005, 9:02am Glad you got 02...It worked wonders for me! Langa |
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Title: Re: got O2 Post by Renee on Jan 5th, 2005, 9:10am John, Many have found that the o2 works even better once coupled with "something special". ;) Good Luck! Renee |
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Title: Re: got O2 Post by john_d on Jan 5th, 2005, 12:55pm Thanks, it's a real step for me- to admit I actually need help. I never go to the doctor and I always think I can fix everything. The amazing thing is the O2 specialist at the med store had actually had episodic clusters before. To be honest, when she said that I actually teared up. Then last night I tried it and for the first time in my life I actually aborted a CH. Special thanks to Ree and Dave, their effort at reaching out and showing they care probably made it possible for me to do this. I know it does not sound like a big deal, going to the doc, but it is for me. And now, I actually have an 'out' for the first time. |
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Title: Re: got O2 Post by Jeepgun on Jan 5th, 2005, 12:58pm Outstanding, John!! Sorry to hear that you're in cycle, but glad to hear that you're getting some relief. Hang in there, my friend. After my fruitless and supremely frustrating consultation with my POS neurologist, I came here, printed out the medical stuff, and took it to my GP. She read it and then with a wonderfully compassionate smile said, "Okay... I think I can work with you on this." My eyes filled with tears... Just to come across someone who understands and is willing to help... The relief and gratitude are overwhelming. PFDANs to you, John. -Frank |
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Title: Re: got O2 Post by BlueMeanie on Jan 5th, 2005, 2:57pm on 01/05/05 at 08:26:46, john_d wrote:
Bout' time ya got off your butt and got some ammo. Glad to hear it works for you John. PFDAN |
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Title: Re: got O2 Post by lionsound on Jan 5th, 2005, 3:20pm I'm so glad to hear that you went to the doctor! And that the O2 is helping. (remember to breathe :) ) Is that ambien the sleep med? I've used ambien and it has a very short half-life so you usually sleep for about 5hrs. and don't wake up groggy. However, it is NOT meant for long term use so if you can find something else..... It also did not help me sleep through ANY headache. PF vibes.. -lionsound |
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Title: Re: got O2 Post by guesst on Jan 5th, 2005, 4:02pm on 01/05/05 at 08:26:46, john_d wrote:
Yer tough. ;;D |
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Title: Re: got O2 Post by Rock_Lobster on Jan 5th, 2005, 4:35pm on 01/05/05 at 16:02:10, guesst wrote:
You are not shitting, newb. ;;D I am amazed when I read the 'I have CH, but do not want to visit my doctor' posts. Tough as nails. These people would have John Wayne rubbing their feet. |
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Title: Re: got O2 Post by guesst on Jan 5th, 2005, 4:40pm on 01/05/05 at 16:35:40, Rock_Lobster wrote:
Who you calling newb? "Stone_Shrimp" ;;D |
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Title: Re: got O2 Post by john_d on Jan 5th, 2005, 5:53pm on 01/05/05 at 16:02:10, guesst wrote:
some would say 'yer crazy' ;;D but the truth is this is my first longer-than-a-few-days cycle in like 6 years. Somewhere around 1998 was my last one. But this is the worst I can remember, getting hit over and over throughout the night, no sleep in sight. All I can say now is 'I love my O2 tank'. |
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Title: Re: got O2 Post by Ree on Jan 5th, 2005, 6:13pm wow I am so proud of you... you went to the doctor... How were you originally diagnosed buddy??? You thought that if you went to the doc you would really be in cycle...and I m so sorry John D... that you are in cycle ...! Why is it that guys hate to go to the doctor... Women have a doctor for this and a doctor for that. ~~~ I am so proud of you for steppin up to the plate and going the natural route is going to get you there faster. Remember if you smoke not to smoke or use candles near the 02 though.At one of the conventions I couldnt believe how many were smoking near the tanks.......NOT me... NON SMOKer here!!! ((only one practically there) LOL... I will be really sad if I hear you blew up... No credit here to me and Dave either!!! You got help all by yourself...Don't be afraid to get help. It could genuinely shorten your cycle.Keep our number and if you need to call at all I am here all the time (sad to say) I need a job... a real job... Be well and take care of yourself... with all the love I can muster for ya Ree |
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Title: Re: got O2 Post by Jonny on Jan 5th, 2005, 6:13pm on 01/05/05 at 17:53:04, john_d wrote:
And it loves you...as long as you change the water in the bubbler once a week with distilled water! ;;D |
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Title: Re: got O2 Post by john_d on Jan 5th, 2005, 7:25pm [quote author=Ree link=board=general;num=1104931246;start=0#12 date=01/05/05 at 18:13:21How were you originally diagnosed buddy??? [/quote] I went to the doctor when I was in the Navy, got diagnosed there. 1991. Perscription, Lidocaine. Helped not. Went to the Navy emergency room in 1993, they gave me something but I am not sure what it was, but it made me feel like my whole body was flushed. The thing is they gave it to me after the hit was over. That was my last doctor visit for cluster headaches. The only other time I went to the doctor since then was because my ears got full of wax and I could not hear anymore, I thought I went deaf. ;) |
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Title: Re: got O2 Post by broomhilda on Jan 5th, 2005, 8:46pm John glad to hear you went and you have a new best friend, well the o2!!! May you get much needed pf time coming to you... Best |
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Title: Re: got O2 Post by Jonny on Jan 5th, 2005, 8:55pm Oh, I love a great ear wax story |
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Title: Re: got O2 Post by E-Double on Jan 5th, 2005, 9:18pm Good to hear you can catch some relief brother!! Love your tank like a lady and treat it well...it will return the favor!! "Tough as nails" & "crazy" I hear that bro!! Went nearly a decade w/o help myself. G-d blees ya!! Hang tough and always here! E. |
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Title: Re: got O2 Post by Mr. Happy on Jan 6th, 2005, 12:01am on 01/05/05 at 08:26:46, john_d wrote:
Kudos and great job, John........but how in the 7 Hells of Wotan are we supposed to get the kiddies to check out O2, if you've been around this long and just checked out the canned air routine? Glad it's working, but if this ain't proof positive that you can quickly lead a horse to water, but you can't make it have cheap sex, I don't know what is. Huff Ho, man......... RJ |
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Title: Re: got O2 Post by Ree on Jan 6th, 2005, 12:14am Hey Hap... Dave has had CH for 20ish years and only had 02 for his last cycle... his insurance up til recent wouldnt cover it. We knew it "might" work but they said they wanted him to go to the ER with a CH and they would observe him aborting one with 02 before they would prescribe it... After the convention and Linda H helped him to use the 02... he was bound and determined. So he called the Neuro and it had been 3 years since his last cycle and things had changed... 02 is alot cheaper than Imatrex, Zomig, Amerge, Frova, lets see did I miss any... by the way has anyone tried Relpax. my friend swears by it for her Migraines....... ree |
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Title: Re: got O2 Post by Mr. Happy on Jan 6th, 2005, 12:25am on 01/06/05 at 00:14:29, Ree wrote:
Exactly. 20 years. Fuck insurance. Pay for canned air..It's cheaper than beer. It's cheaper than.......... Why the hell aren't you nekkid and in bed with Davey Boy at this time of night? I would be, if I gave birth to younguns..... RJ |
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Title: Re: got O2 Post by BobG on Jan 6th, 2005, 12:57am Way to go John. Happy success stories are great to hear. (and read). on 01/05/05 at 20:55:20, Jonny wrote:
LMAO [smiley=laugh.gif] Maybe next week John will tell us his toe-jam story. |
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Title: Re: got O2 Post by OneEyeBlind on Jan 6th, 2005, 6:18am John, glad to hear the O2 is working for you ! :D |
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Title: Re: got O2 Post by john_d on Jan 6th, 2005, 7:29am on 01/05/05 at 20:55:20, Jonny wrote:
lol Jonny, I will spare you the details. thanks everybody, got hit with one last night that the o2 had some trouble with, but all others aborted, still can't wait for cycle to end- just managing these is a real pain in the rear- but aborted pain is much, much better than non-aborted pain, eh? ;) yay O2 |
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Title: Re: got O2 Post by nani on Jan 6th, 2005, 9:34am I can't believe I haven't posted to this yet...Good for you John... :) |
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