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Title: Update Post by Lizzie2 on Dec 30th, 2004, 12:12am Just wanted to let you all know that I was admitted to the hospital (Jefferson) yesterday. Eric (E double) has my contact info if anyone wants it. I can't stay on the phone for a real long time, but I can talk for a little bit for anyone who feels like calling! Just get the info from Eric or PM me and I'll get it to you next time I sign online. Had a PICC line placed in Interventional Radiology (CVIR) today because the PICC nurses tried 4 times themselves and then turned me over to the "big guns." So far everything is going well. I was cluster free for over 24 hours, but then just got slammed at around 11pm. Damn beast! Good thing the O2 and ice packs generally work fairly well for me! Can't write anymore tonight...I'll update when I can. Hugz, Lizzie2/Carrie :) |
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Title: Re: Update Post by TxBasslady on Dec 30th, 2004, 12:14am Lots of vibes headed your way, Carrie ;) Take care, sweetie Love ya, Jean |
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Title: Re: Update Post by nani on Dec 30th, 2004, 12:15am Best wishes to you, Carrie. Hopefully you'll have a whole lot more PF time. [smiley=hug.gif] |
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Title: Re: Update Post by Lizzie2 on Dec 30th, 2004, 12:18am Thanks for the thoughts, vibes, etc. So far medication wise I have just had cogentin, droperidol, and DHE...tonight he added Toradol and Depacon to the mix. He only ordered the Depacon once, but I think I can get it for 3 days without the side effects killing my liver! We'll see...I wrote down my list of questions for when they come in tomorrow, and also about when I get cluster attacks, how long, what helps, etc. This way I can show him some more facts. :) Well I think I'm going to go to sleep. Love to all and happy new year :) Hugz Carrie :) |
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Title: Re: Update Post by Opus on Dec 30th, 2004, 12:30am Carrie, Thinking and praying for you my friend :) Opus/Paul |
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Title: Re: Update Post by Donna_D. on Dec 30th, 2004, 1:41am Lil' Sis, I wish I was closer to help you through all of this. You are so young to be dealing with so much. And yet you persevere I am sooo proud of you for all that you have accomplished. I pray for you and for you to find some relief, some where, some how. I know you hurt. Believe me, Take care and if there is anything you need. Just let me know. Your Big Sis', DD |
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Title: Re: Update Post by Charlie on Dec 30th, 2004, 4:02am Thinking of you and sending you all the vibes I can find. Lots of luck and keep in touch kid. Charlie |
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Title: Re: Update Post by Carl_D on Dec 30th, 2004, 4:08am Sending you all the vibes I can muster up. Hope you're not in there for too long and they get you up and running again. Peace & hugs, Carl D |
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Title: Re: Update Post by Lizzie2 on Dec 30th, 2004, 6:19am Thanks again :) I'm awake now because they came in and got an EKG at like 5:30. So now I'm awake! haha I did have a cluster hit last night and also several intense cluster "shadows" that only lasted about 5 minutes or so. It was almost a premonition that it was going to be one of those nights with the clusters! Fortunately, I slept after that...so I got about 3 hours of sleep last night because I was having trouble falling asleep until late in the night! Luv y'all and Happy New Year :) Carrie/Lizzie2 |
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Title: Re: Update Post by broomhilda on Dec 30th, 2004, 10:43am Thinking of you Carrie, pf wishes and hugs on over from Canada, hope this brings you some well deserved pf time [smiley=hug.gif] Andrea |
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Title: Re: Update Post by cschick on Dec 30th, 2004, 11:51am Be well Carrie - thinking of you! Karen |
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Title: Re: Update Post by LeLimey on Dec 30th, 2004, 1:39pm I hope all of this works for you and is worth it! Take care love Helen |
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Title: Re: Update Post by cynjeep89 on Dec 30th, 2004, 6:57pm Carrie, Just read that you are at Jefferson. I work at The Children's Hospital of Philadelphia and live in Wilmington, Delaware so I'm not far from you. I went to the headache clinic at Jeff but wasn't too happy with the docs or staff. Finally found a wonderful Neuro. doc, Dr. Cohen, in the GSB building on City Line Avenue. Am going to e-mail my phone # to you in case you need anything. I'm available to help in any way that I can. Do not hesitate to call me!!! Cyndi |
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Title: Re: Update Post by Tim_Z on Dec 30th, 2004, 7:47pm Hang in there Carrie, vibes coming to ya. Take care. Tim |
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Title: Re: Update Post by eddie on Dec 30th, 2004, 7:50pm prayers and vibes for you carrie eddie |
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Title: Re: Update Post by Lizzie2 on Dec 30th, 2004, 9:57pm Well they are looking for a stronger sleeping pill for me since last night, the 5mg of Ambien I got was like spitting on a bonfire! I slept a whole of 3 hours or so! I've been awake (in the hospital no less!) since 5:30 this morning, so I'm starting to get tired! The PICC line I have in my left arm is good and functional. Unfortunately, I started getting Heparin Sub-Cu, and now it looks like someone beat up my abdomen. Not to mention that two of the sites I got injected decided to spontaneously bleed earlier. Had to throw my new pink pajama shirt into a sink of cold water with a little pack of Woolite. The funniest part about Woolite was that it was in my little complimentary bathroom kit from United Airlines from Nashville when I got stuck overnight in DC and they lost my suitcase! Nice!! hehe So anyhow, today my doc kept me on Cogentin/droperidol/DHE combo. He added Depacon yesterday and renewed that dose for today. He added magnesium since now that I have a PICC, it won't blow my veins. Magnesium IV really hurts! I'm on IV toradol too because that generally helps me in IV form. The weirdest thing was tonight I got 4 nerve blocks. Two were in the occipital nerve which I've gotten many times before. The other two he called supratrochlear I believe...they were above the inner corner of my eyes and up by the eyebrow. It felt cool at first, but then my headache spiked up, and now it is back to a 7 or so. Thanks for all the thoughts and vibes! Cyndi, I'm a nursing student at Jefferson, too. We just did our pediatric clinicals, and I was at DuPont. We needed to trade places! 202 South is my nightmare road! What do you do at CHOP? DuPont was pretty fun. Anyhow...I gotta try to sleep or do something that makes me more tired!! I don't want another night of that 3 hours crap! That's too much like my regular life! hehehe Hugz, Carrie :) |
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Title: Re: Update Post by Jonny on Dec 30th, 2004, 10:05pm Please put a 9MM to my head and do me!! |
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Title: Re: Update Post by cynjeep89 on Dec 31st, 2004, 8:16am Carrie, Good morning, Lady. Whew! Sounds like you have been thru so much in the last couple of days while in the hospital. I'm keeping my fingers crossed and hoping that they find something that provides you some relief. When you mentioned Toradol, a chill went down my spine. It was prescribed for me after surgery a while back and after just two doses, I had the worst nightmares. Relieved the pain somewhat without all of the side effects of other pain meds but damn, those nightmares scared the poop outta me! I do the billing for about 40 physicians (9 different divisions such as Allergy, Immunology, Infectious Disease, Nephrology, Dermatology, Metabolism, etc.) at Children's Hospital. The billing is for the physician services not the hospital/facility services. duPont Hospital is about 10 minutes from where I live. I did some work there when I was working as a consultant years ago. Great place!! I e-mailed you my home phone #. I will be here all day today until about 8:00 tonight...am heading out to celebrate New Year's Eve. I'll be home the rest of the weekend and will be on the couch watching the Mummer's parade tomorrow so if you need anything or just want to talk, call me!!! As I said in my e-mail, I work from home most of the time but I plan on being in Philly @CHOP on Monday and at a meeting @20th & Arch Sts. on Friday. I'm hoping you can get some relief from the pain and that you are home soon. Remember....if you need anything or just need to talk, call or e-mail me. If you can't make long distance calls from the hospital, let me know and I'll call you. Cyndi |
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Title: Re: Update Post by E-Double on Dec 31st, 2004, 8:34am Wishing you the best, kid..... Throw a kick a$$ bash in your room for all the patients, nurses and docs........ Good meds to go around and if you turn up all of the monitors' volume at once it will sound like a tribal rave.......(may hurt some of the heads but worth it ;)) Have a Happy New year L2 E2 |
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Title: Re: Update Post by Bethany1 on Dec 31st, 2004, 10:16am Carrie, PF Vibes to ya... hang in there and have a happy new year... [smiley=hug.gif] |
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Title: Re: Update Post by vig on Dec 31st, 2004, 10:24am I hope 2005 is a great year for you Carrie. Get well soon. |
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Title: Re: Update Post by OneEyeBlind on Dec 31st, 2004, 10:26am Thinking of you Carrie, and hoping that you bring in the New Year with 8 hours of uniterrupted pain free sleep !!!! Be well ! |
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Title: Re: Update Post by Gator on Dec 31st, 2004, 10:27am Hope all this helps you be better able to function and continue your studies. Sucks to be in the hospital over New Years. Maybe you can do as suggested and have your own little private party in your room. Wishing you a Happy PF New Year. Gator |
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Title: Re: Update Post by Lizzie2 on Dec 31st, 2004, 8:42pm Thanks again for all the messages! I spent last New Years in the hospital, so apparently this is becoming a trend! hehe But instead of going inpatient every 5-6 months, I went a year this time. That's mainly because of nursing school, but I'm happy enough with how far I've come! The bleeding from my injection sites has FINALLY slowed down. Now they have to do the injections in my thigh instead of my abdomen because of the craziness with the bleeds! Other than that, had 2 CH hits today...which really doesn't sound like anything to whine about, but the DHE, etc should really be keeping it under control! I got more injections today...trigger points in my face, neck, and upper back. Have to see if the one doc will inject the left side of my neck because he seemed to have skipped a spot! Everyone has been very nice, which is cool. My mom brought me these two packs that can be heated or chilled. One is big enough to put behind my neck and the other one is perfect for the forehead or covering eyes. That one is filled with lavender and flax seed (in their seed form), and the other one for my neck has a lot of different scents in it, but to me it overall smells like Vicks' Vaporizer! hehe Anyhow...that's about it for now! Cyndi....do you do billing for orthopedics at Presbyterian because that is a UPenn Hospital? or do you just stick to CHOP stuff? A kid I graduated with in high school has two parents who are doctors. I know that Bonnie Nye is the one who is orthopedic at CHOP. I see Dr. Garino out of presbyterian for my avascular necrosis. I liked him a lot. Better like the person who is going to be operating on you...especially if it requires multiple operations! haha I haven't checked my email on yahoo in a really long time, but I'll try to do that soon! Maybe I could give you a call when I have downtime here tomorrow or something! Hugz to all, Carrie :) |
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Title: Re: Update Post by cynjeep89 on Jan 1st, 2005, 12:02pm Carrie, Good morning, Lady. Getting a late start this AM....my boyfriend's band played at a party last night and by the time we got everything cleaned up and all of the band equipment packed into the van, we didn't get home until about 3:30 this morning so we slept in a bit...well, I should say that we tried to sleep in. Would have stayed in bed longer but the dogs had other plans for us and insisted I wake up and let them outside. I'm watching the Froggy Carr Comic Brigade in the Mummer's parade laughing my butt off!! They are doing a tribute to my hero, Jimmy Buffett. A bunch of them are dressed as Parrotheads...cool! Glad to see they managed to make it to the parade on time this year. I think it was last year when they were so drunk they got lost in the city on their way to the parade route and no one could find them. Go figure...over 600 drunken Mummers lost in the streets of the city? Gotta love Philly traditions! Someday I hope to see the parade in person. I do billing for CHOP docs only. There are times they do consultations at satellite hospitals like Abington, HUP, Crozer so I bill for those consults. too. I'll be home all day and all night so please call me if you feel up to it. I know I won't be doing much more than making trips to the 'frig and back to the couch today since I'm pretty worn out from all of the dancing I did last night! Hoping that the injections and treatments you are getting are helping and that you will be home soon. Even though you are getting great attention from the hospital staff, there's no place like home!! Look forward to hearing from you!!!! Cyn |
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Title: Re: Update Post by Lizzie2 on Jan 1st, 2005, 5:41pm Cyndi, Can you send me a private message here with your phone # in it? That way I don't have to go thru the 10,000 emails I have on my yahoo address just to find one that matters! More later but it's been a rough day, and I think I want a nap! Love and hugz, Carrie :) |
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Title: Re: Update Post by Lizzie2 on Jan 1st, 2005, 5:43pm Cyndi, Check your Private Messages (PM's) - you should have one from me now! Hugz, Carrie :) |
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Title: Re: Update Post by cynjeep89 on Jan 4th, 2005, 8:20pm Carrie, PM did not come thru. Can you mail me at casanford@verizon.net Have you gotten home yet? I'm keeping my fingers crossed that you are and are pain free. Remember, I'll be in Philly on Friday. If you need anything, mail me and let me know. Cyn |
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Title: Re: Update Post by Lizzie2 on Jan 4th, 2005, 9:37pm I will email you. Probably not tonight. Just signed on to check messages...I guess today was day 7? I'm not really sure. I developed a condition called anticholinergic toxicity, and it made me a little more than wacko. I think last night I pulled down my own IV bag...oops kinda got in twubble for that! Then I would wander out to the nurses' station at like 4am and start 8 new topics in about a minute's time. After awhile they were probably ready to kill me! It's a really rare condition, but I'm still trying to get over it! I have no memory. When they do the test if you remember 3 things 10 minutes later, I can't ever remember all 3. I can generally get 2. Something got f'd over in my brain! haha Well, I will email you as soon as I can...just not tonight! Take care! Carrie :) |
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Title: Re: Update Post by broomhilda on Jan 4th, 2005, 9:42pm :'( [smiley=hug.gif] Thinking of you and sending tons of good thoughts and more your way Carrie, stay strong, you are doing awesome!!! (((((((Carrie)))))))))) |
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Title: Re: Update Post by nani on Jan 4th, 2005, 10:47pm (((((((CARRIE))))))) [smiley=hug.gif] Stay strong...hang tough...get a notebook to write everything down. Post its get lost. love, nani who struggles with her memory issues everyday. edited because I can't remember how to spell struggles. :( |
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Title: Re: Update Post by Carl_D on Jan 5th, 2005, 6:44am Sending you more vibes and prayers that you get out of there very soon. 7 days is a rough stretch. What does the doc have planned for longterm when you are released, if you know? Hugs, Carl |
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Title: Re: Update Post by cynjeep89 on Jan 5th, 2005, 4:55pm Carrie, I wish there was something I could do! My heart is aching for you right now...damn! If anyone can get thru this, you can. Keep your sense of humor going...it will pull you thru. Don't worry about the memory thing...I have lots of "blonde moments" :) Best wishes to you. Cyn |
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Title: Re: Update Post by Svenn on Jan 5th, 2005, 4:59pm Thinking of you and sending you all the vibes I can find. |
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Title: Re: Update Post by Ree on Jan 5th, 2005, 6:20pm Be Well Lizzie 2.........love ya ree |
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Title: Re: Update Post by Lizzie2 on Jan 6th, 2005, 1:24pm Thanks for the messages and thoughts! :) Sorry I haven't gotten to check my yahoo email so if anybody wrote to me there, I haven't read it yet. That is sort of my email addy I use when I join websites! Haha... :) I switched rooms last night down to a telemetry (cardiac) room because they have me on IV lidocaine. This worked pretty well for me in summer of 2003, but that was before I had the CH's. Right now I'm feeling kind of numb in my tongue (don't ask...weird feeling!) but otherwise it's been going okay. Got hit at about 9am this morning, and I had my O2 ready and waiting thank goodness since they don't give ya anything else for it. I have herbal ice packs that I keep in the fridge down the hall. :) I have a PICC line in my left arm and had kind of a funny incident with that this afternoon! I'm known to be a really horrible "stick" here, and this is even my 3rd PICC line which had to be put in by CVIR because the PICC nurses couldn't get it. (Sorry if I repeat myself!!) This cardio tech came in at around 11:30 or so to get my vital signs, and he majorly tripped over my IV lines and went flying into the wall!!!! I was more concerned about him than I was my arm because I just saw a guy fly into a wall!!! Anyhow...he was okay. My PICC is bleeding more around it (but I'm also on heparin). We have it marked at the last line it bled to and the doctors are aware. I swear...only ME would have this kind of $hit happen!! Well...no that's not true...I can think of a few others, but I swear...cut me a freakin break! haha Hopefully I'll be outta here someday soon, but right now it's just baby steps. If you want my contact info, either IM me on AIM, MSN, or Yahoo (I'm not on a whole lot right now) or send me a PM and I'll get it to you ASAP. Miss chatting with y'all, but I do appreciate the thoughts! Hugz, Lizzie2/Carrie :) |
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Title: Re: Update Post by nani on Jan 6th, 2005, 1:26pm [smiley=hug.gif] |
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Title: Re: Update Post by Jeepgun on Jan 6th, 2005, 3:53pm Damn.... Carrie, you just keep on hangin' in there. This has to end soon, and I truly feel that it will. [smiley=hug.gif] Lots o' Love, -Frank |
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Title: Re: Update Post by LeLimey on Jan 6th, 2005, 6:47pm You are so brave and so positive.. you're a real inspiration! [smiley=hug.gif] I hope you get some GOOD luck soon! Take care Helen |
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