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        New Message Board Archives >> 2004 Posts >> Clusterheads Documentary
        
(Message started by: justin on Dec 22^nd, 2004, 12:06pm)

Title: Clusterheads Documentary
Post by justin on Dec 22^nd, 2004, 12:06pm

Hey guys!

Just shot an hours worth of footage with my neuro, dr. lawrence newman, on friday. he is aweomse and i can't believe i have all that information on tape now. it will be such a great tool for dr.s and patients i hope.

so i'm still looking for volunteers to have me come visit them and shoot with them.i have about 5 right now. so email me if you are interested, and I'll be sending questionairres out this week.

I'm also looking for stories about attacks. maybe the worst one you ever had or just an embarassing or tough timeyou had. if you can keep it to a couple paragraphs that would be great. just email me.

ALSO... :) looking for younger clusterheads. Someone who's attacks started while they were still in school. HS or college. email me...

Thanks all & Happy Holidays!

Justin
Email me here not through the board if you can:

clusterheadsmovie@mac.com or
justinott@mac.com

they are the same email address actually

:)

justin

Title: Re: Clusterheads Documentary
Post by nani on Dec 22^nd, 2004, 12:10pm

I am old now...but my first episode was at 16. Do I count?

Title: Re: Clusterheads Documentary
Post by Jeepgun on Dec 22^nd, 2004, 12:13pm

Justin, I just want to take this opportunity to say thank you for all of your hard work and the time and devotion that you have put into this. The way I see it, the biggest obstacle OUCH and cluster headache sufferers face, is the appalling lack of knowledge in the medical community about cluster headaches. Blessings to you for "lighting a candle in the darkness." My best to you and yours.

-Frank

Title: Re: Clusterheads Documentary
Post by Jimi on Dec 22^nd, 2004, 1:19pm

I gotta echo Frank. Thanks a lot for what you are doing. I have been pain free now for 4 years. Never went this long before. Maybe there is hope that for some of us, they do disappear after you get older.
Good luck on the documentary, you are off to a great start.
Jimi

Title: Re: Clusterheads Documentary
Post by marlin on Dec 22^nd, 2004, 1:43pm

on 12/22/04 at 13:19:12, Jimi wrote:

Maybe there is hope that for some of us, they do disappear after you get older.
Jimi

Tell me it's true. Some of my neuros have told me the same thing and my cycles have been getting further and further apart. My father said his (I think he had migraines) went away after he hit 50. If so I only have a few years to go.

I can only hope.

Title: Re: Clusterheads Documentary
Post by Little Deb on Dec 22^nd, 2004, 3:56pm

Yes Justin. What Frank said. You are to be commended for your long hours of work and dedication to this project. Thanks.
Little Deb

Title: Re: Clusterheads Documentary
Post by justin on Dec 22^nd, 2004, 11:14pm

thanks guys

nani - yes you count! if you'd like to tell me what it was like living with clusters as a teen that would be great. how was school affected, etc.

also marlin, my neuro said that they tend to start slowing down in periodicity and intensity around 60 and can often dissapear completely around then

j

Title: Re: Clusterheads Documentary
Post by Mark C on Dec 22^nd, 2004, 11:16pm

http://www.clusterheadaches.com/public_html/yabbimages/smileys/headbanger.gif