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(Message started by: eddie on Dec 12th, 2004, 3:14pm)

Title: nitroglycerin
Post by eddie on Dec 12th, 2004, 3:14pm
if nitroglycerin 100% sure to set CH off . could this be
used to test for CH?

Title: Re: nitroglycerin
Post by Svenn on Dec 12th, 2004, 3:18pm
Nitro is 1 of the first things the docs use when they diagnose cluster.over 95%reaction

Svenn

Title: Re: nitroglycerin
Post by eddie on Dec 12th, 2004, 3:27pm
my neuro didnt ?
i just was curious, even if your chronic or eposidic
will it trigger one?
thanks eddie

Title: Re: nitroglycerin
Post by Svenn on Dec 12th, 2004, 3:29pm
this is the fun part being a clusterhead.All i can say try it and see if you get hit.


Svenn

Title: Re: nitroglycerin
Post by BobG on Dec 12th, 2004, 3:36pm

on 12/12/04 at 15:27:05, eddie wrote:
my neuro didnt ?
i just was curious, even if your chronic or eposidic
will it trigger one?
thanks eddie

I agree with what Svenn said.

Your Neuro didn't? Your Neuro has some studying to do.

Chronic or episodic?
My opinion is, if you are in a cycle it will trigger an attack. If you are not in a cycle it may or may not.

Have to ask……..why do you ask? Does your Neuro want to hear you scream?

Title: Re: nitroglycerin
Post by eddie on Dec 12th, 2004, 3:46pm
i just was curious, yes he has studing to do. i have had
all the info printed that i could show him. im chronic
and no i dont want to cause one for myself. i seem to
get hit everyday almost beside shadows.
thanks eddie

Title: Re: nitroglycerin
Post by totka2 on Dec 12th, 2004, 4:21pm
I would kill my doc if he tried it on me.[smiley=bigguns.gif]

Title: Re: nitroglycerin
Post by Bandette74 on Dec 12th, 2004, 4:31pm

on 12/12/04 at 16:21:11, totka2 wrote:
I would kill my doc if he tried it on me.[smiley=bigguns.gif]



no sh*t!!!!  

[smiley=hammer.gif]
how. does. this. feel. doc? me. hammering. on. your. head. oh. it. hurts. well. let. me. write. down. that. hammering. on. head. causes. severe. pain.

Title: Re: nitroglycerin
Post by Redd715 on Dec 12th, 2004, 4:32pm
I agree with totka.....well I should say if the GP had tried that I'd have prolly taken a nice firm hold of his gnads and carry them with me as I paced the clinic till the hit was over. >:(

Title: Re: nitroglycerin
Post by Jonny on Dec 12th, 2004, 7:34pm
It would seperate the CH'ers from the meegrainers now wouldndt it....or would it?

Title: Re: nitroglycerin
Post by Sean_C on Dec 12th, 2004, 7:40pm
I didn't know that, guess I'm fucked if I get a heart condition. I heard you get a headache when you pop a nitro regardless if your a clusterhead, but would it bring you to an early cycle?

Sean...............................

Title: Re: nitroglycerin
Post by eddie on Dec 12th, 2004, 8:33pm
everywhere i have read there is no test for CH.
sounds like a test to confirm CH?
eddie

Title: Re: nitroglycerin
Post by Sean_C on Dec 12th, 2004, 8:37pm
I'm not takin no test, I know what I got and he's sleepin', just the way I like him ;;D ;;D

Sean...........................

Title: Re: nitroglycerin
Post by kissmyglass on Dec 12th, 2004, 8:40pm
I think Cat had a nitro induced cluster. supposed to be a real mother fucker those nitro induced ones.  Glad my neuro didn't try it....

Kev

Title: Re: nitroglycerin
Post by Sean_C on Dec 12th, 2004, 8:50pm
Why would you want to make yourself have one is beyond me. If my nuero ever said take this I wanna see you have a cluster I'd run as fast as I could in the opposite direction[smiley=laugh.gif]

Sean.......................................

Title: Re: nitroglycerin
Post by Cerberus on Dec 12th, 2004, 9:23pm
 The only "test" I ever got aside from the numerous MRI's and CT's was to see if O2 would abort it....
Of course that was not anywhere near a 100% chance of working...I was just lucky it did.
 As far a Nitro goes...YES it does trigger, and effectively at that. I found that out by shooting in a trap league the year after my diagnosis. My shotgun ejects the shells on the right side, and I am a left handed shooter...so every freshly spent nitro charged shell ejects right across my nose...yeah, nice. Anyway...within an hour my head started up and so began the cycle of Fall 2002.

Ramon

Title: Re: nitroglycerin
Post by catlind on Dec 12th, 2004, 9:51pm

on 12/12/04 at 20:40:39, kissmyglass wrote:
I think Cat had a nitro induced cluster. supposed to be a real mother fucker those nitro induced ones.  Glad my neuro didn't try it....

Kev


Yup I did.  It wasn't to test for clusters though I was admitted to the hospital for cardiac reasons - myocardial ischemia was showing on the ECG - Despite me telling them NOT NO FUCKING WAY give me nitro, they put me on a nitro drip.

Yup it triggered one mother fucker CH attack.  Interesting is the fact that my vitals were already in a danger zone with the cardiac issues - the attack sent my vitals into the dead zone.  The entire ER staff started to panic.  When I was screaming at the nurse to give me O2 at 15lpms and get me a non rebreather mask (I don't think I was too coherent - Clark had to tell them what I was saying) the nurse had the balls to say "but your O2 saturation is at 98%" - I just started going into beserk mode - Clark forcefully explained it wasn't for my heart, it was for my cluster attack.  BTW, O2 doesn't work very well on a nitro induced attack!

In fact there was not a damn thing I could do about it.

They turned the drip off and then in the ambulance over to the main hospital the alarms started going off and the ambulance attendant reached for the nitro drip.  I very calmly and very clearly explained that if he touched that drip I would get up, stretcher and all, and throw his bloody and beaten body out the back doors of the ambulance.

I now have a medic alert card, and nitro is listed as an allergy in my records.  It did more to nearly kill me than the original cardiac condition.

When I got to the hospital and got hit again, they wouldn't give me anything, so I reached into my purse and got out my trex and syringe.  They lunged at me to try and stop me, I told them if they valued their lives they wouldn't come any closer.  They kept saying "You can't do that" I looked at them and said "watch me" and stuck myself hehe.

Don't piss off a clusterhead that has been triggered by nitro ;)

Cat

Title: Re: nitroglycerin
Post by Ueli on Dec 12th, 2004, 9:56pm
After ruling out other diseases (with the help of MRI and such), the IHS criteria for cluster headaches are clear enough for a neuro who has done his homework.

If a doctor (or some fucking jerk from an insurance company) needs a proof for the diagnosis by inducing an attack with nitroglycerine,

he is acting highly unethical,


and his ball should be crushed for an hour, every day for a year.


Just MHO
Ueli                 [smiley=smokin.gif]



Title: Re: nitroglycerin
Post by Bandette74 on Dec 12th, 2004, 10:10pm

on 12/12/04 at 21:56:39, Ueli wrote:
After ruling out other diseases (with the help of MRI and such), the IHS criteria for cluster headaches are clear enough for a neuro who has done his homework.

If a doctor (or some fucking jerk from an insurance company) needs a proof for the diagnosis by inducing an attack with nitroglycerine,

he is acting highly unethical,


and his ball should be crushed for an hour, every day for a year.


Just MHO
Ueli                 [smiley=smokin.gif]


hear hear!!!

Title: Re: nitroglycerin
Post by K-9 on Dec 12th, 2004, 10:23pm
A doctor at Diamond HA clinic wanted to induce me with Nitro for "educational" purposes for a couple of interns he had in the office that day.  That's one education they did NOT want, but they don't know that.  I said no, so everyone lived to tell about it.   The end.

Title: Re: nitroglycerin
Post by nani on Dec 12th, 2004, 11:18pm
I had a heart attack scare before I had my CH diagnosis and while I was episodic and out of cycle. It did not trigger a CH at that time.

Title: Re: nitroglycerin
Post by Rock_Lobster on Dec 12th, 2004, 11:35pm
I was just going to ask that nani.

Will nitro trigger a CH when you are solidly outside of your episode?

Title: Re: nitroglycerin
Post by floridian on Dec 13th, 2004, 1:23pm

on 12/12/04 at 19:34:12, Jonny wrote:
It would seperate the CH'ers from the meegrainers now wouldndt it....or would it?


Nope.  Nitroglycerin can also provoke migraines in migraneurs.  Nitro IS NOT a reliable test for cluster headaches per se.  It might give the doctor an opportunity to witness a cluster,  and if they knew what they were seeing they would distinguish it from a migraine.  But if you are in the 20% that aren't triggered by nitro, your doctor wouldn't see anything.  


Quote:
Cephalalgia. 2004 Feb;24(2):110-9.      

   Reliability of the nitroglycerin provocative test in the diagnosis of neurovascular headaches.

   Sances G, Tassorelli C, Pucci E, Ghiotto N, Sandrini G, Nappi G.

   Headache Unit, University Centre for Adaptive Disorders and Headache, IRCCS C Mondino Foundation Institute of Neurology, Pavia, Italy. grazia.sances@mondino.it

   Nitroglycerin administration provokes spontaneous-like migraine attacks in migraine and cluster headache (CH) patients. Nitroglycerin-induced migraine-like headache has been used as an experimental model of migraine. In this paper, we evaluate the possibility of using the nitroglycerin provocative test (NPT) as a supportive measure in the diagnosis of primary neurovascular headaches by assessing its reliability on a large population and adopting strict criteria for rating the response as positive or negative. Our population consisted of 197 migraineurs, 42 subjects suffering from cluster headache and 53 healthy controls. In migraine without aura, the test sensitivity was 82.1%, specificity 96.2% and accuracy 85.5%, while in subjects suffering from migraine with aura, the reliability of the NPT was less satisfactory (sensitivity 13.6%, specificity 96.2% and accuracy 72%). In CH patients tested during the active phase of the disease the sensitivity was 80.6%, specificity 100% and accuracy 92.9%. NPT is an easy, low-cost and reliable method for supporting the diagnosis of migraine without aura and cluster headache.


Easy. For the doctor.  

I think nitroG is like alcohol and other triggers - most episodics are sensitive only when in cycle.

Title: Re: nitroglycerin
Post by Jonny on Dec 13th, 2004, 4:29pm
Thanks for clearing that up, Flo Dude!

.......................................jonny

Title: Re: nitroglycerin
Post by Sean_C on Dec 13th, 2004, 6:13pm
The Flo-dude does come up with some great shit doesn't he. Thanks for the info ;;D

Sean..................................

Title: Re: nitroglycerin
Post by eddie on Dec 13th, 2004, 6:15pm
thanks for the info



 eddie     ;)



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