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        New Message Board Archives >> 2004 Posts >> it's official
        
(Message started by: john_d on Dec 5^th, 2004, 6:57pm)

Title: it's official
Post by john_d on Dec 5^th, 2004, 6:57pm

I am in a cycle for the first time in like 5-7 years. Funny thing my twin brother knew it right away, he saw the fear in my eyes and my face going flush before it even hit. I am going to do what I usually do- hopefully it will do the trick. these godamn peice of shit ha's fricken piss me off like nothing else. >:(

Title: Re: it's official
Post by LeLimey on Dec 5^th, 2004, 6:59pm

Oh I'm so sorry.. all that time PF and now this. I hope it passes quickly for you and you kick that beastie b@stards arse
[smiley=hug.gif]
Helen

Title: Re: it's official
Post by marlin on Dec 5^th, 2004, 7:04pm

Good luck dude. If your cycles last a month or so you should consider meds that have some prospect of breaking the cycle. Of course maintain that abortives stockpile.

Q: Is your twin identical and does he also get CHs?

If can answer either with a yes I'll bet there are a few research groups that might be real interested in sticking needles in you guys and taking a bunch of MRIs and performing all sorts of tests...

Title: Re: it's official
Post by john_d on Dec 5^th, 2004, 7:31pm

no he doesn't. there is another twin who posts here and his twin does not get them either, and him and I are both identical twins. Which means my brother and I and his brother and him share exactly the same genetics. [smiley=huh.gif] But whatever, all I can think about now is 'fuck this', you know what I mean? fuck this

Title: Re: it's official
Post by E-Double on Dec 5^th, 2004, 7:32pm

kick it's ass!!!!!!!!
hopefully it's in and out!

PF wishes and here for ya!

E.

Title: Re: it's official
Post by john_d on Dec 5^th, 2004, 7:42pm

thanks for the good thoughts and vibes folks. it's funny how they really do make you feel better, calmer. thanks.

Title: Re: it's official
Post by don on Dec 5^th, 2004, 7:45pm

What meds are effective for you?

Got any stockpiled?

Title: Re: it's official
Post by nani on Dec 5^th, 2004, 7:45pm

that really bites, john! >:( But, you are stronger than it is...so kick it's ass. vibes, [smiley=hug.gif] an lots of PF wishes to you!

Title: Re: it's official
Post by Ree on Dec 5^th, 2004, 7:46pm

Sorry John~~ We are here for ya brother... let us know what you need. love ree

Title: Re: it's official
Post by john_d on Dec 5^th, 2004, 7:54pm

on 12/05/04 at 19:45:34, don wrote:

What meds are effective for you?

Got any stockpiled?

i've never taken meds, I am not against them it just that 7 years ago the only thing I remember people saying worked was oxygen, and I did not even do that. Does that special fungus everyone talks about actually work? I am not sure what to do, I may try to get some oxygen.

Title: Re: it's official
Post by nani on Dec 5^th, 2004, 8:01pm

I'm pretty sure it's OK to use O2 and the fungus. You just can't use chemical meds... I think.

Title: Re: it's official
Post by cschick on Dec 5^th, 2004, 8:05pm

That is very interesting you being an identical twin. So sorry to hear you are getting these f'in things again. Hope you find something that works for you!

PFDAN to you!
Karen

Title: Re: it's official
Post by don on Dec 5^th, 2004, 8:18pm

Have you stayed in touch with a neuro or GP?

7 years has been along time and there are proven effective meds out there now that will help you manage your pain and maintain some quality of life.

Title: Re: it's official
Post by john_d on Dec 5^th, 2004, 8:20pm

Thanks

I never bring this up because it sounds like a lame cure post but what I do when I get in cycle is I practice meditation. When I get into a hit or shadowing really hard, I sit in half-assed lotus position and be aware of my breathing, of the pain, of everything and I let it be- that is what I do. It's worked (for me) in the past. Well, I just investigated and discovered I starting posting at ch.com almost this same time last year and I was shadowing then also. Last year I never did get hit though. But what I did then was 1) quit drinking 2) started meditating again, and the shadowing stopped. At this point in my life I am back to drinking (nightly) and I stopped meditating about a month ago. I am getting back on the plan right-fricken-now, it's amazing the discipline I can feel coarsing through my veins with the thought of clearing the pain of ch. we'll see what happens. still- [smiley=nono.gif]

Title: Re: it's official
Post by Sean_C on Dec 5^th, 2004, 8:21pm

I always had luck with snake oil, wanna buy some ;;D

Sorry to ~~year~~ hear the bad news, vibage comin your way.

Sean...........................

Title: Re: it's official
Post by Kris_in_SJ on Dec 5^th, 2004, 8:24pm

Don's right (man, I hate to say that ....) LOL!

There are new and better meds now. I'm also a 5-year cycler. And, if you're determined to do the chemical-free thing, O2 is effective for many, many people here.

For alternatives, check out clusterbusters.com.

Hugs and wishes for PFDAN,

Kris

Title: Re: it's official
Post by lionsound on Dec 5^th, 2004, 8:51pm

PF vibes goin' south.
It's kind of cold up here so maybe they'll help like an ice pack.

Check yer IM's

-lionsound.

Title: Re: it's official
Post by Charlie on Dec 6^th, 2004, 3:45am

This sucks but I hope you think about getting some help although if meditation works, great. You might want to add my technique in the mix though.

Give the bastard a real run for his money.

Charlie

Title: Re: it's official
Post by sandie99 on Dec 6^th, 2004, 5:38am

[smiley=hug.gif]I am so sorry that you're getting hit again, John... :'(
I am glad that you had many PF years, though. You know that it's possible to have those. I hope that gives you strength to fight beast this time! :)

Keep on fighting!

Wishing PFdays,
sandie99

Title: Re: it's official
Post by Rock_Lobster on Dec 6^th, 2004, 8:30am

man... that sucks brother. hope it is a quick and easy one for you.

Title: Re: it's official
Post by ExplodingEyeBall on Dec 6^th, 2004, 8:57am

:(

Hang in there man.

Title: Re: it's official
Post by Jeepgun on Dec 6^th, 2004, 9:44am

*cracking open a 50-gallon can of vibes*

Hang tough, my friend... This too shall pass.

Title: Re: it's official
Post by Bethany1 on Dec 6^th, 2004, 9:50am

Vibes coming to you John.... Meditation is great, personally I just can't concentrate. My mom teaches yoga and does reiki (sp) so once she did reiki when I had one but I couldnt sit still. I wish I could, I would rather do the natural thing than all the meds, but hay, Whatever works. Hang in there. [smiley=hug.gif]

--B

Title: Re: it's official
Post by john_d on Dec 6^th, 2004, 5:25pm

Thank you very much all :)

quick dumb question, let's say I went to the doc and got some meds.

What is the story with 'rebound' headaches? As an episodic does this mean my cycle will last longer or does it mean I am going to be taking more meds chasing shadows all day?

Thanks if anyone has a chance or inclination to answer

Title: Re: it's official
Post by miCHel on Dec 6^th, 2004, 5:39pm

Hey John,

Getting hit after 5 years is simply awful. I once had a four-year break and when the beast came back, I was a very unhappy camper.

As some people said, CH treatment has gone a long way in the past few years. Go check your options with a doc/neuro who knows his stuff. I have treated my last two cycles with a Verapamil/Imitrex shots combo and it has made it much easier for me. Rebound headaches and/or longer cycles are also a concern of mine but, so far, using meds have been positive. Next on my list is O2.

Wishing you a very short cycle and an even longer pain free periode!

miCHel

Title: Re: it's official
Post by marlin on Dec 6^th, 2004, 5:59pm

john, just break down and see a neuro. The cycle may or may not last longer than it would have otherwise BUT you will not experience the k9 or k10s if the meds work.

I tried meditation using a bio-feedback system 20 years ago with minimal success. Don't waste your time. It'll never knock a CH down like modern meds. This is a chemical imbalance so you fight it with chemistry.

O2 & trex MAN!!! Get with the program

Title: Re: it's official
Post by Jonny on Dec 6^th, 2004, 6:12pm

Here ya go, Bro

http://im1.shutterfly.com/procserv/47b3dd03b3127cce95d0ab9e025a0000001610

Put it on and snap it off in the beasts ass, retrieve it and send it over to Wrokk, Wrokk, you send it to EEB.

Dont worry, I have another one for my beast.

Good luck dudes!!

............................................jonny

Title: Re: it's official
Post by don on Dec 6^th, 2004, 7:17pm

Quote:

let's say I went to the doc and got some meds.

I can tell you this. I once had a three year remission, cycle free and med free for 3 blissful years. Then they hit.

I immediately started the verapamil, stored up some imitrex and a week into it did the prednisone taper.

The cycle was the shortest and most manageable I have had in 27 or 28 years of this. I attribute that to the meds being more effective after having not used them for three years.

Rebounds? Worry about the initial attacks first. Worry about rebounds after. You may not even experiance them.

Give yourself a break.See a Doc. Get on some meds.

Title: Re: it's official
Post by Rock_Lobster on Dec 6^th, 2004, 11:19pm

Some boot and some suck... ready to rock.

http://www.geocities.com/amish_elite/don4.jpg

Title: Re: it's official
Post by karma on Dec 7^th, 2004, 6:11am

John,
My experience with meds was not pleasant. Tried verap and Zomig tabs for the first time. Got more and worse Ha's and experienced shadows for the first time. I guit the meds and my cycle went back to the normal 1-2 a day and no shadows after two days. I am very active and involved in allot of physical activities and the verap made me feel like crap.
My suggestion would be the 02. Deep breathing and relaxing works to get through a hit.
If you feel you want to try the trex go ahead but if you experience an overall worsening of the cycle, give it up.

Title: Re: it's official
Post by OneEyeBlind on Dec 7^th, 2004, 6:25am

Sorry to hear you are getting hit again. That simply STINKS !

I did Imitrex for the really bad headaches that woke me out of a dead sleep, other than that, I used O2 for shadows and the lesser painful headaches. I never had a problem with rebounds.

Good luck !

Title: Re: it's official
Post by Jonny on Dec 7^th, 2004, 4:41pm

on 12/06/04 at 23:19:04, Rock_Lobster wrote:

Some boot and some suck... ready to rock.

http://www.geocities.com/amish_elite/don4.jpg

ROTFFLMMFAO ;;D

Don, whats with the pink glasses? ;;D

Title: Re: it's official
Post by Gator on Dec 7^th, 2004, 10:07pm

Sorry to hear you're getting hit again after such a long remission. I hope this one is a nice short one.

Gator

Title: Re: it's official
Post by Kevin_M on Dec 7^th, 2004, 11:43pm

How ya doin' there John?

Working, I know.
Post how things are working out for you.

We can work it out. 8)

Kevin M