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        New Message Board Archives >> 2004 Posts >> Last Night
        
(Message started by: medic1852 on Nov 28^th, 2004, 10:27am)

Title: Last Night
Post by medic1852 on Nov 28^th, 2004, 10:27am

Last night about 1 am, as I sat rocking holding my head unable to see from my right eye, knowing that the pain would get worse soon, and I would be up walking and ranting, praying for the pain to end. A single thought came to mind it was from this board, the topic what a CH looks like, and I saw clearly and wish I was an artist so I could show you all what a CH looks like. What I saw was a small boy sitting in the floor holding his head and crying all alone the room that the boy sat in was huge dark and ominous. Behind the boy stood a huge menacing monster, red eyes a mouth full of sharp pointy teeth with black and brown long hair covering his entire body. The monster hand one hand out-stretched holding his hand above the boy, not to grab him but from his finger were strings attached to the boy so he could control him like a puppet, the boy know the monster was there and there was nothing he could do except wait for the control to begin and the nightmare to be over. That is what a CH looks like. :-/

Title: Re: Last Night
Post by lionsound on Nov 28^th, 2004, 10:35am

wow. I can see it.

That's very powerful....
you really should try to draw it.

PF vibes for you, medic
-lionsound

Title: Re: Last Night
Post by Jonny on Nov 28^th, 2004, 10:44am

How could someone so pretty
http://im1.shutterfly.com/procserv/47b3d701b3127cce8eebff8098e10000001610

Look so bad when the beast attacks, this is a Kip 10 in a parking lot off the highway, as soon as I took this I got out of the truck to pace in the rain....SUCKED!!
http://im1.shutterfly.com/procserv/47b3d738b3127cce8ee15c105d020000001610

Edit:...To say that it felt like the side of my head would blow off at any moment.

Title: Re: Last Night
Post by medic1852 on Nov 28^th, 2004, 10:47am

Johnny, you manage your pain well, at 10 i could not even begin to take a pic of myself and get pale diaphoretic and would throw the camera for even thinking of looking at me. You look like a bro i got in New albany Ind, who is a nurse.
And to you lionsound, the only thing I can draw is flys...

Title: Re: Last Night
Post by Jonny on Nov 28^th, 2004, 10:50am

LOL....30 years chronic will able you to do many things a normal human can not....LMAO ;;D

Title: Re: Last Night
Post by medic1852 on Nov 28^th, 2004, 10:52am

23 years of such joy and sleepless night. I am confussed, I get them seasonal...ussually in fall to late winter. then I am good to go for a year.

Title: Re: Last Night
Post by Jonny on Nov 28^th, 2004, 10:56am

No matter how ya cut it.....IT SUCKS for all of us!!

http://im1.shutterfly.com/procserv/47b3d609b3127cce8d22fdb2c00d0000001610

Title: Re: Last Night
Post by cschick on Nov 28^th, 2004, 12:29pm

:'( OMG. That just breaks my heart, both of you. I am not joking. I can't stand to think of anyone going through this hell. I can see the pain in your eyes, Jonny. In the first picture they are sparkling and happy and the second they are almost just dead looking. The drawing is dead on but needs to extend down into the teeth and ear and that is exactly what I feel like when I am hit. Why? Thank God for this board.

PFDAN to you all. :-*

Title: Re: Last Night
Post by broomhilda on Nov 28^th, 2004, 12:50pm

:-/ :'(

Big hugs and pf wishes to all whom are grappling with the beast, truly heartbreaking...

Title: Re: Last Night
Post by Redd715 on Nov 28^th, 2004, 1:05pm

I agree with the teeth thing, but there also needs to be one of those huge spikes rammed up through the nostril, threw the eyeball, all the way back to the skull and trying to drill it's way out.

Title: Re: Last Night
Post by Donna_D. on Nov 28^th, 2004, 3:31pm

Here is what a bad headache looks like around my house...

Before...

http://tinypic.com/oziig

After...

http://tinypic.com/ozif7

CH is anything but glamorous...

DD

Title: Re: Last Night
Post by cschick on Nov 28^th, 2004, 6:00pm

:'( and [smiley=hug.gif] to all of you and to the beast [smiley=bash.gif]

Title: Re: Last Night
Post by Redneck on Nov 28^th, 2004, 6:00pm

What a life.
Friday night I hit a 3 on my scale:
1: Oh Shit
2: Oh Fuk
3: Oh I am Fuked
then ran out of 02!

serious hangover saturday, then at 11:10 my elderly mother called in distress. made 75 miles in 50 minutes (run Happy, mad man on the road!)

Really like your description though!

Title: Re: Last Night
Post by Jeepgun on Nov 29^th, 2004, 12:48pm

Damn.... A picture is worth a thousand words, huh? :'(

I expect my next cycle to hit in February. I think I'll do the Before/After photo thing, too. (Meanwhile, hoping against all hope that I won't have a cycle at all; that somehow, I'll escape...) :(

Title: Re: Last Night
Post by ClusterChuck on Nov 29^th, 2004, 1:15pm

Seeing so many of you witnessed me getting hit (much to my chagrin) I figured I might as well add my "before and after" pictures too:

A good looking stud
http://image18.webshots.com/19/6/28/51/224462851sIwOdY_ph.jpg

A scarey looking bastard:
http://image20.webshots.com/21/6/23/52/224462352LZyPQj_ph.jpg

Damn that is an ugly picture!

Chuck

Title: Re: Last Night
Post by don on Nov 29^th, 2004, 1:42pm

You know.......after 27 years of this shit I still find it difficult to look at those pics. Do normal people see the pain, anguish, and desperation I wonder?

Oddly, or maybe not, I had the most difficulty viewing Jonnys pics. BOTH of them. 8)

Title: Re: Last Night
Post by marlin on Nov 29^th, 2004, 2:02pm

Johnny, Why are you smiling in the 1st pic - I mean, we're only seeing from the shoulders up? The 2nd pic can either be explained by a CH or a recently crushed testacle so no need to elaborate on that one...

Title: Re: Last Night
Post by Margi on Nov 29^th, 2004, 2:04pm

on 11/29/04 at 13:42:23, don wrote:

same here, Don. For me, it's only 18 years of living with clusters but I will NEVER get used to seeing that pain on the face of people I care about. It's SO not fair. That look in Jonny's eyes just kills me. I've seen that same look on Mike's face, so many times. :'(

Title: Re: Last Night
Post by Cathi04 on Nov 29^th, 2004, 2:08pm

Don.Normal..well, I'm not certain, but as a non-sufferer, I assure you, I see the agony quite clearly-I look into the eyes, and cannot, in my wildest dreams, understand how a human can relive this over and over and over again.
Someone once told me he doesnt anticipate the hits, rather he focuses on the pain-free time......

What an amazing group of people........what a horrendous pain......
Wishing I were a magician :-/
Cathi

Title: Re: Last Night
Post by Cathi04 on Nov 29^th, 2004, 2:09pm

Oh, and Chuck..........you're not a stud.........hope I didnt kill the dream!!!! :P

Title: Re: Last Night
Post by Magman on Nov 29^th, 2004, 4:38pm

on 11/29/04 at 13:42:23, don wrote:

I can't speak to still photos Don, but I can attest to the power and profound affect of a hit on video.While at Mclean hospital, the administrator, Dept head [Dr. Pope] and Drs. Halpern and Sewell were spell-bound watching the video of Chuck's hit. Afterward, it took a few minutes before anyone sitting in that board room could even speak.
Peace,
-dan

Title: Re: Last Night
Post by Redd715 on Nov 29^th, 2004, 4:52pm

All these pics are makeing my heart break. I don't have any pictures, but I can attest that at least "sometimes" the average person can see it.

Example.

I work late on Thursdays, so depending on my Friday sched. I either come to the office at 9am or Noon. This particular day I came in at noon, and the Pres. had called a meeting earlier that morning. Since I wasn't in my supervisor took me aside once I was there to fill me in on the munites of the meeting. About 15 minutes into the briefing she looked up from my papers and asked if I was getting hit. She could see it happening. Right before her eyes she could see the changes in my face. I wasn't even in pain yet, but I knew it was comming. Her discription is it is like the left side of my face begins to slowly 'melt".

Title: Re: Last Night
Post by john_d on Nov 29^th, 2004, 4:59pm

I thought I was hiding it all those years, I do remember people thinking I was crying. They thought :'( but it was actually [smiley=pokeeye.gif] [smiley=hammer.gif] [smiley=bomb.gif]

Title: Re: Last Night
Post by nani on Nov 29^th, 2004, 5:35pm

Quote:

Oh, and Chuck..........you're not a stud.........

Don't you listen to her Chuckles... you are one studly as hell old dude! ;;D

Title: Re: Last Night
Post by don on Nov 29^th, 2004, 9:33pm

Quote:

Don.Normal

In the same sentence?

Quote:

Don.Normal..well, I'm not certain,

Thats more like it. 8)

Title: Re: Last Night
Post by Kevin_M on Nov 29^th, 2004, 10:16pm

A still picture comparison shows the persons we are and can be, and also the persons we can suddenly become. Some good pics but then depicted on the edge of sanity bearing beyond what is bearable...

Chuck, I saw you laughing, joking and picture posing like CH didn't exist. And then I saw you wheeled by me through the lobby into the elevator in the throws of pain at NashCon. It stunned my thoughts. Peace bro.

Wow, such wonderfully nice people, those depicted and those not also.

My next LSD flashback, there's a possibility Don too.

Kevin M

Title: Re: Last Night
Post by Linda_Howell on Nov 29^th, 2004, 11:20pm

I think it was in Atlanta..........DJ told Nancy and others if they could...to witness another having an attack.
Certainly not for any other reason than to see it from a supporters eyes.

When I saw someone other than myself having to endure this, I tell you it was devastating.

That pic of Jonny and of Donna.....Man!!!!!!!! been there, but more important, I so empathize.

Cluster Chuck you are one brave soul.

Linda

Title: Re: Last Night
Post by Svenn on Dec 4^th, 2004, 3:39pm

on 11/29/04 at 16:38:04, Magman wrote:

Can confirm this and the way a major hit and the impact it does on the veuwers.
Hate to admitt it but its starting to be kind of "fun" watch their reactions as the minutes goes by.

We all are in need on some more hits taped so just start.

btw get a "camera-crew" just so you dont kill the tripod or the camera

Svenn

Title: Re: Last Night
Post by Donna_D. on Dec 4^th, 2004, 3:48pm

I was misdiagnosed for EIGHT YEARS because the medical community didn't know about clusters.

I can't think of a more lasting impression than a hit on tape.

Maybe a hit on tape will save at least one person from being misdiagnosed.

DD