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New Message Board Archives >> 2004 Posts >> This is getting pretty fricken ridiculous!
(Message started by: Carl_D on Oct 26th, 2004, 12:17pm)

Title: This is getting pretty fricken ridiculous!
Post by Carl_D on Oct 26th, 2004, 12:17pm
Day 7 - no sleep!!!
Even after 60mg Remeron, 200mg Amitriptyline and 1600mg Ibuprofen. Tossed and turned, had 2 more attacks - one aborted one didn't.
I'm losing track of time... not sure if it has been a total of 10 1/2 hours of sleep for 2 1/2 or 3 weeks now. My brain is mush, my head is ringing, my legs are losing functionability, blah blah fricken blah! Waiting for the neuro to call back (again.)

If there are two things I am sure of:

Clusters and insomnia FUCKING SUCKS!!!!!!!!!!!!

>:(
cARL d

Title: Re: This is getting pretty fricken ridiculous!
Post by miCHel on Oct 26th, 2004, 12:28pm

Quote:
Clusters and insomnia FUCKING SUCKS!!!!!!!!!!!!

 
cARL d


I've had CH for 20 years and I've has insomnia but NEVER at the same time.  It's got to be totally awful.

Sorry, I can't provide you with a good idea on how to get through this, Carl.  I really really hope you find the right cocktail and get over this soon!

Hang in there!

miCHel

Title: Re: This is getting pretty fricken ridiculous!
Post by Gator on Oct 26th, 2004, 12:44pm
I can't imagine all you are going through.  My heart goes out to you.  I pray that you get this figured out soon.

I do know about the ch/insomnia thing.  It sucks to be sure.  

Hang in there.  Post when you can and keep us up on the situation.  You know you can always call if you need to.

Gator

Title: Re: This is getting pretty fricken ridiculous!
Post by ArCane on Oct 26th, 2004, 1:17pm
Sorry to hear your not getting any sleep.  I know from my own personal experience that being tired and fatigued just adds to the beast's strength.  I pray you find sleep and some PF time.  Hang in there.

Title: Re: This is getting pretty fricken ridiculous!
Post by AlienSpaceBabe on Oct 26th, 2004, 2:07pm

on 10/22/04 at 18:58:20, don wrote:
Venting is good...follow up is better.

I did a little research for you and found a listing of local services that might be able to assist you.

http://www.mhaswil.org/local.htm

I think Chestnut Health Systems might be in your part of town and possibly more accesable to you.


First:    [[[CARL]]]

Second: Don has a really good point.

We can support you here... we can listen and commiserate....  it sounds like you need someone right there with you to help you through this.  Clusters and insomnia do suck.....  you can and will make it through this - calling them for help just might make it easier.....

jmho.

hugs,
Lizzie

Title: Re: This is getting pretty fricken ridiculous!
Post by Carl_D on Oct 26th, 2004, 2:49pm

on 10/26/04 at 14:07:28, AlienSpaceBabe wrote:
Second: Don has a really good point.

We can support you here... we can listen and commiserate....  it sounds like you need someone right there with you to help you through this.  Clusters and insomnia do suck.....  you can and will make it through this - calling them for help just might make it easier.....


Already on it. Thanks.  ;)
Carl

Title: Re: This is getting pretty fricken ridiculous!
Post by don on Oct 26th, 2004, 3:58pm

Quote:
Don has a really good point


I do? Bout time.

Maybe I'll have another one next year. Stay tuned.

Title: Re: This is getting pretty fricken ridiculous!
Post by Linda_Howell on Oct 26th, 2004, 4:16pm

Quote:
Don has a really good point  



I do? Bout time.

Maybe I'll have another one next year. Stay tuned.


Carl, you've been around here wayyyyyyy long enough to know that these peeps have your best interests at heart.  I have forgotten about  that lately but Leesa made me see the light......Now Carl!!!!!!!  listen to  Don. We may not be THERE, (right there in person) for you but...we love you Carl Daniels.......we love you!!!!!!!



Kay?     Linda

Title: Re: This is getting pretty fricken ridiculous!
Post by don on Oct 26th, 2004, 4:27pm
If they jerk you around about insurance or things like that let me know. My company pays me to get people into services so I knows a little.

Title: Re: This is getting pretty fricken ridiculous!
Post by Linda_Howell on Oct 26th, 2004, 4:47pm

Quote:
so I knows a little.



which means he knows a LOT!


L

Title: Re: This is getting pretty fricken ridiculous!
Post by Carl_D on Oct 27th, 2004, 2:32pm
Damnit Linda! You know how to get a guy all choked up don't you?  :-*

I'm on day 8 of NO SLEEP! Trying everything I can to get some winks with no luck. It's like my brain wants to shut off but my body wakes it back up. My legs, back - hell, everything hurts right now. The only brightness was I only had 3 CH's in the last 24 hours (one right in the middle of dinner last night. Had to bail to my nieces room to 'shoot up'.) Other 2 didn't abort.  >:(
I feel like I am on lsd or something. Seeing shit move, I'm moving sitting still, and forgetting what I did 5 minutes ago. I'm watching my nephew right now who is slightly autistic, and he is funny. When I have muscle spasms, he tries to imitate it. If I don't get any sleep by Friday morning - I have to go to the hospital.  :(
Ever seen "Fight Club"? I think I am living in it! I feel beat all to hell. Except my hallucination is Bea Arthur as Dracula instead of Brad Pitt.
One thing I don't understand is how 25mg of Amitriptyline knocks most people for a loop, but 250mg isn't doing shit for me. Pain is keeping me awake I think.

Super frustrated!
Carl D

Title: Re: This is getting pretty fricken ridiculous!
Post by cootie on Oct 27th, 2004, 11:06pm
Take it from a chronic insomiac that  Amitriptyline made 'me' feel WIERD....and I could NOT sleep on it...."nonea" that stuff helped me sleep and made it worse.....instead of layin there with my mind raceing I laid there with a BLANK mind feelin tense. (I said blank mind not blonde mind)  Too much advil makes me feel strange and hurts my stomach.....it'll make it bleed ! Aches and pains abound Pam

Title: Re: This is getting pretty fricken ridiculous!
Post by don on Oct 27th, 2004, 11:10pm

Quote:
(I said blank mind not blonde mind)


And the differance is...........................?

Title: Re: This is getting pretty fricken ridiculous!
Post by cootie on Oct 27th, 2004, 11:40pm
The difference will be when I smack you upside the head..........blahhhhhhhhhhhhh !! No blanks here Pam  ;)



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