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        New Message Board Archives >> 2004 Posts >> How do you feel?
        
(Message started by: mooshie on Oct 21^st, 2004, 8:55pm)

Title: How do you feel?
Post by mooshie on Oct 21^st, 2004, 8:55pm

[smiley=wave.gif] Hi, I am 8 years old and am a supporter for nani. I want to know how you feel about living with cluster headaches. When my Mom gets a cluster HA I feel like I am the one who gave her it. My brother thinks so, too. Sometimes I feel like I get a headache, too. It makes me feel sad when she gets a headache :( .

(I typed this for mooshie and she learned a lot about how she feels-nani)

Title: Re: How do you feel?
Post by Jayne on Oct 21^st, 2004, 9:07pm

Hi there Mooshimoo....I love your name....IT"S THE BEST name I have ever heard.
When your mom gets a headaches it is NOT your fault sweetie.
You should get Mommy to buy you some of your favorite comic books....and then when mommy gets a headache, that's when you should go read your favorite comics.
Mommy's head is going to hurt sometimes, but she will be alright. You should do something you really like to do (as long as it isn't too noisy) when she gets one.
Tell your brother it's not his fault either.
Also tell your mommy to give you a BIG HUG from me.
You are one COOL kid............HIGH FIVE!!!
Lot's of love
Auntie Jayne ( My head hurts sometimes too)

Title: Re: How do you feel?
Post by broomhilda on Oct 21^st, 2004, 9:14pm

Hi mooshie, welcome to the family! Jayne said everything perfectly, perhaps when mom is hurting you can get some special books or video games to play, till she feels better... its not your fault, you did nothing to hurt her and it will go away and I bet when she feels better your hugs and kisses really make her feel much better.....probably makes her day, when my head feels better theres nothing I love more than hugs from my little man whose 61/2....

Hugs to you and your brother and your mom!

Title: Re: How do you feel?
Post by alleyoop on Oct 21^st, 2004, 9:20pm

Hi Mooshie,

For an eight year old, you sure do sound grown-up! You are certainly doing a grown-up's job being a supporter for your mom. That is a very tough job. I'm sure your mom is very proud of you for helping her in her greatest need.

Mooshie, I want you to understand that neither you nor your brother is in any way responsible for your mom's headaches. No one gives her headaches. She has a sickness that very few people have that gives her the headaches. All of the people here that you are writing to either have this sickness(called Cluster Headaches) or are supporters like you.

In many ways, the job you have as a supporter is harder than being a sufferer like your mom and I. I know you feel helpless when your mother has one of her headaches and that is what makes it so hard. A lot of times the best thing you and your brother can do is to just leave your mom alone and play or do anything that your mom won't have to worry about you doing. If she asks you for anything or to do anything, then you can do that for her. Just know that the headache will go away! I promise you Mooshie, there is nothing that you, your brother or anyone else could do to cause your mom to have one of these headaches, so don't ever blame yourselves.

I want to personally welcome you to our family Mooshie and please feel free to ask any questions you may have or just come to talk any time you want. We are just one big family that you are now a part of. Your mom is a very lucky and blessed person to have you in her corner.

Talk to you later,

....alley ;)

Title: Re: How do you feel?
Post by Kevin_M on Oct 21^st, 2004, 9:27pm

on 10/21/04 at 20:55:18, mooshie wrote:

[smiley=wave.gif] I want to know how you feel about living with cluster headaches.

mooshie,

I don't like the headaches either. They hurt. The people that write things here get the hurting headaches. Your mommy found other people who hurt too.
There are many nice people like yourself that see people get the headaches. They feel hurt too because they don't like to see people that they like get the headaches. You are one of those nice people that your mommy has for her very own to be with. She is lucky. Mommy loves you too.
She talks with other people who hurt when she types here and sometimes she talks about what can make the hurt stop. We like talking about making the hurt stop. We love each other too.
Give mom a hug and tell her it will be ok. She will smile. The nice people here do that sometimes and it helps me smile. Some people are funny too. That makes me laugh. I am glad I found your mom here, it has made me feel better.

make some cookies with mom, then tell HER to go brush her teeth.
Come back and see us, we will be here.

Welcome mooshie [smiley=wave.gif]

Kevin M

Title: Re: How do you feel?
Post by john_d on Oct 21^st, 2004, 9:47pm

I don't like them >:( and I don't like seeing other people get them either :'(. No person can cause a cluster headache and no person can take them away. They come all by themselves and they go away all by themselves. I like it best when they go away ;)

Nice to read your post Mooshie, thanks,

John D

Title: Re: How do you feel?
Post by BlueMeanie on Oct 21^st, 2004, 9:54pm

Hello Mooshie,

You sound like a really great kid helping your mommy.

Maybe if you ask her nice, she might teach you how to get her an ice pack from the freezer for her head when she is hurting. But don't do it on your own unless she ask you o.k.

Taking care of your brother will really help your mommy too.

Don't worry, Nani's headaches will always get better. Sometimes it just takes longer is all.

Give her hugs for me o.k. :) :) :) :) :) :)

Title: Re: How do you feel?
Post by cschick on Oct 21^st, 2004, 10:02pm

Hi Mooshie. My name is Karen and guess what?! Your mom not only gets headaches BUT is also a supporter! She helped me one night by staying on the phone with me and talking to me until my headache went away and I could go to bed. Your mommy is a very good lady and no matter what don't ever believe you cause her headaches. You don't. I have a little boy that is almost 7 and the best thing he does for me when I have a cluster headache is play quiet like a little mouse. It helps a lot after I have a cluster to have him give me big hugs and kisses and that reminds me why I don't let these headaches get me down. I am sure that your mom would love that as much as I do (even though I don't have a sweet little girl, but a stinky ol' boy)!!! OH I almost forgot - welcome to the Family and please, please, please give your Mommy big hugs from me since she is too far away for me to do it! I live all the way in Missouri, have your mom show you where that is at on the map!

Love-
Karen

Title: Re: How do you feel?
Post by Charlie on Oct 21^st, 2004, 10:53pm

I think you do just fine when your mother has a headache. Just do what she asks. She knows that
it isn't your fault. If you feel as though you are having a headache too, that's a normal. It's called sympathetic reaction.

Glad you let us know you are there helping. Good for you.

Charlie

Title: Re: How do you feel?
Post by catlind on Oct 21^st, 2004, 10:59pm

Hi Mooshie,

I have a 10 year old daughter and a 12 year old son that would be happy to talk with you about how you feel and how they feel if you'd like. Let me know if you would like to chat with them through email :) I'm sure they would love to hear what other kids go through and to share their experiences.

Cat

Title: Re: How do you feel?
Post by ClusterChuck on Oct 21^st, 2004, 11:38pm

Mooshie, darling, what a sweetheart you are!!

There are several things I have to tell you.

First and foremost is that neither you nor your brother give Mom those headaches. That is one thing that cannot be blamed on you two. Although, there IS something you two are guilty of! Look closely at Mom's hair. Do you see them? Those GREY hairs? YOU and your brother gave those to her! But guess what, regardless of what Mom says, she is proud of every one of those! Because they came from YOU and your brother!

There are several things that you can do to help Mom through her headaches. You need to sit down with Mom, when she is not having a headache, and ask her what would help her. As someone else said, maybe getting her an icepack, or a cool damp cloth, or her oxygen tank. Or maybe, as others have suggested, just getting out and away from her, and keeping your brother and yourself quietly entertained. Many of us like to be left alone when we are getting hit. Maybe Mom is like that. But you will never know these things, unless you ask her.

The only one that can tell you what to do to help a sufferer (like your Mom) is that sufferer.

Good luck, and welcome to the family!

Chuck

Title: Re: How do you feel?
Post by nani on Oct 22^nd, 2004, 12:29am

Thank you all for being so warm and welcoming to my little angel. :-* It's funny, because I never knew she thought SHE caused the HAs. I'll admit that I have been impatient at times I'm feeling a sensory overload, but I guess I never realized she took it so personally. I would like to share how proud I am of her. She is a warm, funny and amazingly creative child.(she's even had some artwork published in the local newspaper!) She is intense and strong and I always say if I can teach her to use her power for good that she will be a phenomenal woman! She is going to be thrilled when she checks in tomorrow and sees all the wonderful replies. Thanks again family and I love you guys!

Title: Re: How do you feel?
Post by sandie99 on Oct 22^nd, 2004, 6:39am

Mooshie,

my headaches leave me angry, depressed, numb, weak, frustrated, guilty.

I hate having them, I can't really control them. I feel relieved when my HA ends.

But I have learned a lot from my CH. I have learned to live more healthy life. I have started to listen to my body more, which is a good thing. I know that my head needs time occasionally and I have to take that into account.

There is very little others can do when CH comes, but you know, sometimes just being there is enough! :)

All the best,
sandie99

Title: Re: How do you feel?
Post by Jayne on Oct 22^nd, 2004, 10:59am

Hey Mooshiemoo

another idea for you....when your mom get's a headache...maybe you could do some drawings....maybe make your own comic book.

I would love to see some of your drawings!!!!

HIGH FIVE

Love Auntie Jayne

Title: foRe: How do you feel?
Post by mooshie on Oct 22^nd, 2004, 2:48pm

Thank you all for writing to me! [smiley=laugh.gif]

All of you have given me great ideas for when my mommy has CH's, and plain headaches. Especially Auntie Jayne. My mom calls me mooshie-moo, too! Just like you do. I will send you the picture of my drawing that was in the newspaper. Love, mooshie-moo
[smiley=hug.gif]

Title: Re: How do you feel?
Post by Ronny on Oct 22^nd, 2004, 3:56pm

Hey, mooshie

Every one else already said it but i'll say it again:
"It is not your fault, or your brothers, that your mom gets those headaches"

You seem like a nice girl, very understanding.

I am Ronny, and live in Belgium which is in Europe. Ever heard of it? Maybe you've heard of Belgian chocolat? Anyway, it is very far from your home but thanks to internet, we might as well be neigbours.

About 'living with CH', it is not easy to live with, you can never plan anything, afraid of getting a HA with other people. But: we get used to them and learn to live with them.

Do you like animals? I bet you do. i have 2 big cats here, one male and one female. I'll try to add a Photo in this message of my cats.

Kisses and hugs, you're doing a great job mooshie. ;)

http://users.skynet.be/fa455588/images/im000965.jpg

Title: Re: How do you feel?
Post by netniet on Oct 22^nd, 2004, 6:51pm

[smiley=hiya.gif] mooshie,

I understand what your saying. My father is a CH and when he was in a cycle my mother made sure that me and my brother and sister didn't make to much noise in the house.
But when you are little it is verry hard to understand CH. So sometimes we run in to the house with some friends while my father was doing his dance, screaming and crying. And we (my sister and brother) thought my father had this pain because we where loud kids.

Now I have CH so I now for sure you cant helped it. I tell my son, he is also 8 years, that it is not is fauld I have these headaches. I now its hard but dont you ever, ever think you and your brother can do anything about it.

Ninet [smiley=hug.gif]

Title: Re: How do you feel?
Post by Ree on Oct 22^nd, 2004, 7:31pm

What a cool girl you are Mooshie~~~ My name is Ree-ree I also have a cool name like you do. I'll bet no one ever forgets your name. They never forget mine. I have a young daughter named Breezy. When her dad gets Cluster HA's she can tell because she says his eye gets funny. She usually goes to her room or somewhere to play because it makes her nervous when her dad has a CH. It is ok for you to be a little nervous, but never blame yourself for those headaches. Its just a sickness that no one understands enough to find a cure yet. Aunt Jayne and the others have given you some gread advice. Just tell MOM you love her, ask her if she needs you to do anything and she will be just great. Maybe you could keep your brother busy for mom if she is having a bad one. Love to you sweet girl. You are a very special girl. Maybe someday you can help people with Clusters by being a nurse or doctor, you can also teach people that don't know about these headaches by talking about it to other kids and adults. I would also love to see you draw a picture. I wonder what MOM looks like will you draw her for us...Love to you, your friend Ree-ree

Title: Re: How do you feel?
Post by don on Oct 22^nd, 2004, 7:50pm

Quote:

I don't like them and I don't like seeing other people get them either . No person can cause a cluster headache and no person can take them away. They come all by themselves and they go away all by themselves. I like it best when they go away

Perfect. Absolutely perfect.

Hi Mooshie!

You cant cause the headaches because I'm way up here and I get them to. The headaches travel around to differant people and do what they want. You know what the headaches hate the most? When little girls make drawings about them. Sometimes the headaches get so mad they leave. Go ahead Mooshie, draw the headaches. Go get em!