Clusterheadaches.com Message Board (http://www.clusterheadaches.com/cgi-bin/yabb/YaBB.cgi)
New Message Board Archives >> 2004 Posts >> How much........survey re: Imitrex
(Message started by: Donna_H on Oct 18th, 2004, 10:10pm)

Title: How much........survey re: Imitrex
Post by Donna_H on Oct 18th, 2004, 10:10pm
What do you spend in one year on Imitrex?

Title: Re: How much........survey Imitrex
Post by Kevin_M on Oct 18th, 2004, 10:13pm
me:  $60.00

Ins:  $12,000+

relief:  priceless


Kevin M

Title: Re: How much........survey Imitrex
Post by Donna_H on Oct 18th, 2004, 10:20pm
So, you use $12,000.00 worth of Imitrex per year......is that right?

Title: Re: How much........survey Imitrex
Post by Tom K on Oct 18th, 2004, 10:35pm
I spend $20 per copay.  
Refill everyday when in cycle.  
Cycle last up to 2 months.  
Figure around $1200
Insurance picks up the rest
Have a medical savings plan through work, so I get the $$ back, even though it is really my money to begin with.

T

Title: Re: How much........survey Imitrex
Post by Cerberus on Oct 18th, 2004, 10:37pm
before or after insurance?

Ramon

Title: Re: How much........survey Imitrex
Post by Donna_H on Oct 18th, 2004, 10:44pm
I have a feeling that the drug company makes more on cluster sufferers than migraine sufferers.

I am looking for the amount that the drug company makes on each cluster sufferer.  Where the money comes from is not necessary.....just how much revenue is generated by each clusterhead.

Title: Re: How much........survey Imitrex
Post by Cerberus on Oct 18th, 2004, 10:49pm
Well I got 300 bucks worth of the stuff here and I havent refilled yet but will eventually maybe two or three times. So without insurance maybe $1200 a year...five or take a couple of hundred.....course insurance covers almost all of that.

Ramon

Title: Re: How much........survey Imitrex
Post by Donna_H on Oct 18th, 2004, 10:55pm
So then, we have three answers thus far with about $1,200.00 per year being the guesstimate.

Let's see what a few more have to say.




Title: Re: How much........survey Imitrex
Post by Kevin_M on Oct 18th, 2004, 10:58pm

Quote:
So, you use $12,000.00 worth of Imitrex per year......is that right?

It's 12,000

90 NS a month at 2100.00 a month for six months a year.


Kevin M

Title: Re: How much........survey Imitrex
Post by Melissa on Oct 18th, 2004, 11:02pm
Let's see,

2 injections or nasal sprays per day X 37 days of my cycle= 74 doses

$181.00 co-pay for 6 injections and 12 nasal sprays

74 divided by 18= 4.11 X $181.00= $743.91 total

did I do that right?


edited to add that is for every other year






Title: Re: How much........survey Imitrex
Post by Roxy on Oct 18th, 2004, 11:12pm
Donna,

You might check with Cat on this topic.  We did a survey when we were meeting with NECH on this, called a bunch of people off the board to get numbers.  I remember at the luncheon with Glaxo they almost fell out of their chairs when they understood just how much imitrex Cat and I went through.....and that was only two clusterheads.  I was using, at the minimum, two full shots a day....seven days a week...month after month.  Can't remember exactly, but between the two of us, in a months time, it was an unbelievable amount of money.  

There may be more migrainers out there....but they don't use as much.....or spend as much as cluster sufferers.

Title: Re: How much........survey Imitrex
Post by Donna_H on Oct 18th, 2004, 11:22pm
Forget all about insurance.

Just how much does it cost (whoever pays for it is not important) to supply you with the Imitrex you need per year.

I want to know how much the drug company makes on us.

I got it now Kevin.....$12,000.00 per year, amazing, isn't it?

I wish we could do a real study on this, keeping real figures and come up with a close total.  I'll bet everyone would be surprised and we'd have a real weapon to use (money, that is) for getting attention.

Title: Re: How much........survey Imitrex
Post by Melissa on Oct 18th, 2004, 11:28pm

on 10/18/04 at 23:22:34, Donna_H wrote:
I wish we could do a real study on this, keeping real figures and come up with a close total.  I'll bet everyone would be surprised and we'd have a real weapon to use (money, that is) for getting attention.


Donna, I believe that this exact thing (ch prescription drug use) is incorporated into the C.H.A.T.S. program.  

Title: Re: How much........survey Imitrex
Post by Donna_H on Oct 18th, 2004, 11:35pm
Oh.  I guess I jumped the gun.

Thanks for telling me Mel.

I'll be looking for the info.

And thanks to you too Roxy.  I agree.....I'll bet anybody $5.00 that we do spend more than they do.

Title: Re: How much........survey Imitrex
Post by Gator on Oct 19th, 2004, 4:31am
The retail price here in Stillwater, OK for the 2 shot stat dose kit is $135.  The price for the single dose vial is $115.

I use the vials, because of the new math, through the insurance company I can get 10 vials or 4 stat dose kits per month.  Got a letter of necessity, so I get 30 vials a month.  Even splitting dose, figure at least one vial per day (sometimes more)

365 x $115 = $41,975 per year.  This is the price I would pay if I walked into the pharmacy without surance and bought the vials.

According to the last statement I got from the insurance company, 90 vials cost the insurance company about $4700.  My copay was $30.  If I had to buy those same 90 vials without insurance = $10350

Since the insurance company is only paying $4700 (and you know GSK is still making money at that price) and the retail customer is paying $10350, there is a HELL of a mark up on the drugs.

Is that clear as mud?


Gator

Title: Re: How much........survey Imitrex
Post by Sean_C on Oct 19th, 2004, 7:09am
I went through one cycle with insurance that would only cover two doses a month and I had to pay out of pocket for the rest. I think I spent around 4 thousand, and it was worth it believe me. I no longer use that provider however ;;D

Sean............................

Title: Re: How much........survey Imitrex
Post by Rock_Lobster on Oct 19th, 2004, 7:38am
My insurance is paying about $65 per vial.
I get 16 vials per month.
In cycle 4 months this year.
So...

($65*16*4) == $4160

Title: Re: How much........survey Imitrex
Post by don on Oct 19th, 2004, 7:52am
What differance does all this make?

I dont care iff they advertise it for meegrains as long as it is available to Chers and it always has been.


Looking for a peice break. You'll have to wait for the patent to expire.

Just about every CH med available is marketed for other conditions. Whats the point of all this ?

Title: Re: How much........survey Imitrex
Post by TomM on Oct 19th, 2004, 8:14am
I use the nasal spray @ @181.00/box. There are 6 shots and I go through a box every other day in peak cycle upto 2 months. Don't forget there is a taper thing [as far as the frequency and intensity of CH's], too. I would guess 8-10, maybe 12 boxes a cycle.
$181.00
x 8 boxes
$1448.00

My cost is $25.00/box which yields $200.00 out of pocket expense. Pretty cheap in my world.
TomM

Title: Re: How much........survey Imitrex
Post by Kevin_M on Oct 19th, 2004, 8:55am

on 10/19/04 at 07:52:19, don wrote:
What differance does all this make?

It was a pop math quiz Don.  Your make up will be, how many hours of baseball have the last three games been?  
Answer: What difference does it make, Boston is still in it.   [smiley=wow.gif]


Quote:
Looking for a peice break. You'll have to wait for the patent to expire.

Sox fans seem very anxious for when the Yankee patent expires.  

Even with the high $ amounts, it's still not enough, lots of oxygen too.


Kevin M

Title: Re: How much........survey Imitrex
Post by karma on Oct 19th, 2004, 9:05am
zip
zero
nada
And you guys wonder why O2 is so hard to get?

Title: Re: How much........survey Imitrex
Post by Jayne on Oct 19th, 2004, 9:45am
My insurance will only allow me 2 kits per month ans they won't cover me for "headaches". Glaxo Kline fought for me to get the two kits per month.

2 kits per month, my co pay $35 x12 = $420 per year.

Title: Re: How much........survey Imitrex
Post by thomas on Oct 19th, 2004, 9:52am
54,000 in the last 12 years on all meds, but about 80% of that was for trex, that is MY out of pocket expenditures.

Title: Re: How much........survey Imitrex
Post by Giovanni on Oct 19th, 2004, 10:27am
I'm authorized for 9 boxes of stat dose per month with a $20 co-pay.  That comes to about $12,000 per year total costs.  I've been lucky and only used one injection during the last 12 months because of O2 and the fungi.

John

Title: Re: How much........survey Imitrex
Post by vig on Oct 19th, 2004, 10:32am
hmm let's see, last year:
$20/month copay for 4 shots x 12 =$240 + 3 x $20 = $60 for extras from the pharmacist (She liked me  ;;D)
~$300.
This year.... $0
Psilocybin treatment

Title: Re: How much........survey Imitrex
Post by Root on Oct 19th, 2004, 10:50am
The bill last year came to $38,360. I try not to dwell on it too much.

Title: Re: How much........survey Imitrex
Post by Gena on Oct 19th, 2004, 11:02am
2 shot stat dose kit is $135

I get 5 at a time = $675

Refilled RX 3 times = $2025 so far

If cycle continues and longer will have to refill agine.


P.S. Thankfully I have insurance so each refill only cast me $25

Title: Re: How much........survey Imitrex
Post by Big Dan on Oct 19th, 2004, 11:55am

on 10/18/04 at 22:10:49, Donna_H wrote:
What do you spend in one year on Imitrex?



Depends on how much the cocksuckers let me have a month.  Usually $21.30/month.... or 2 injections

... and whatever I've stowed away.





-Big Dan

Title: Re: How much........survey Imitrex
Post by Tom K on Oct 19th, 2004, 9:31pm

on 10/18/04 at 22:44:50, Donna_H wrote:
I have a feeling that the drug company makes more on cluster sufferers than migraine sufferers.


Not a real big stretch there...Ch'rs have more frequency than meegrainers.  

T

Title: Re: How much........survey Imitrex
Post by Mr. Happy on Oct 19th, 2004, 9:53pm
If Pharmco, Medical and Media attention is what y'all crave.......there's nothing like a good old fashioned mass suicide. No more of that "Picking us off one at a time" crap. How's about 2 - 3 dozen of you most helpless cases meet in a hotel in downtown Muscoteene, Iowa, and pick 3 - 4 ways to Off yourselves. It'll draw attention, and make one heck of a statement, eh? An equal opportunity endeavor.

C'mon. Take one for the team,
RJ

Title: Re: How much........survey Imitrex
Post by E-Double on Oct 19th, 2004, 9:58pm

on 10/19/04 at 21:53:27, Mr. Happy wrote:
If Pharmco, Medical and Media attention is what y'all crave.......there's nothing like a good old fashioned mass suicide. No more of that "Picking us off one at a time" crap. How's about 2 - 3 dozen of you most helpless cases meet in a hotel in downtown Muscoteene, Iowa, and pick 3 - 4 ways to Off yourselves. It'll draw attention, and make one heck of a statement, eh? An equal opportunity endeavor.

C'mon. Take one for the team,
RJ

I'll bring the punch  [smiley=laugh.gif]

Title: Re: How much........survey Imitrex
Post by Gator on Oct 19th, 2004, 11:26pm
Hmmm, another "Jones"town massacre courtesy of the irReverend Mr. Happy?


Gator
Oh, that was bad.  Nevermind.

Title: Re: How much........survey Imitrex
Post by don on Oct 19th, 2004, 11:32pm
How about an FDA raid.

I have a trex lab out in my shed.

Title: Re: How much........survey Imitrex
Post by Prense on Oct 20th, 2004, 9:21am
I was only able to get ten injections a month.  That would be an annual cost of $7,800.

Chris

Title: Re: How much........survey Imitrex
Post by Donna_H on Oct 20th, 2004, 10:28am
Well kids, looks like out of just 15 people so far, we have an astonishing figure of $176,753.00.

Not all posts included a figure.

Cat made a post on the OUCH board and contributed her figure, which I've included.














Title: Re: How much........survey Imitrex
Post by Bethany1 on Oct 20th, 2004, 11:41am
4 boxes for 30 days $20 (insurance co-pay), I fill every 30 days. w/out insurance is $140 per box. (have had to do this many times) I would say total they get w/out insurance is about $6800 and w/insurance about $1000.  I stock up when Im not in cycle.

Title: Re: How much........survey Imitrex
Post by Karla on Oct 20th, 2004, 12:34pm
I spend 2400 on imitrix for the year and equally about that for zomig and axert.  Last year I spent 15,000 out of pocket in my co-insurance expenses for perscription drugs.  OUCH!  My husband switch employeers and now we have a much better insurance plan.

Title: Re: How much........survey Imitrex
Post by kissmyglass on Oct 20th, 2004, 5:45pm
Before Lithium it was 4 shots a day @ $75...$300 a day & no Ins.....now this friggin beast is breaking through 900mg of Lithium & I'm broke  [smiley=huh.gif]

Title: Re: How much........survey Imitrex
Post by BlueMeanie on Oct 20th, 2004, 7:33pm

on 10/19/04 at 21:53:27, Mr. Happy wrote:
If Pharmco, Medical and Media attention is what y'all crave.......there's nothing like a good old fashioned mass suicide. No more of that "Picking us off one at a time" crap. How's about 2 - 3 dozen of you most helpless cases meet in a hotel in downtown Muscoteene, Iowa, and pick 3 - 4 ways to Off yourselves. It'll draw attention, and make one heck of a statement, eh? An equal opportunity endeavor.

C'mon. Take one for the team,
RJ


Hey Happy, you coming to DavCon ? hehe

2 bx/month x 12 = 24 boxes. $135.00 bx = $3,240
My cost $21.00 x 24 = $504.00




Clusterheadaches.com Message Board » Powered by YaBB 1 Gold - SP 1.3.1!
YaBB © 2000-2003. All Rights Reserved.