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        New Message Board Archives >> 2004 Posts >> K then, the continuing saga of a newbies plight to
        
(Message started by: Guido on Oct 5^th, 2004, 6:20pm)

Title: K then, the continuing saga of a newbies plight to
Post by Guido on Oct 5^th, 2004, 6:20pm

Day one… I go to my doc and explain I have excruciating pain in my head. It has been going on for about a month now, and so far it happens around 2-3 in the morning. They just begin and leave a half hour to a couple hours later about as suddenly as they come. I also explain to him this same sort of thing happened about 3 years ago for a few months then stopped. At that time I did nothing (no insurance). My doc prescribes Maxalt and amitriptyline. The maxalt does nothing that I can tell and the jury is still out on the amitriptyline.
Day two… I surf the net and find www.clusterheadaches.com I realize from my symptoms and what I read I suffer from cluster headaches.
Day three… I call my doctor (actually I don’t think he is and actual doctor yet) who works for Kaiser (most generally I have no issues with Kaiser, I actually like them a lot). I leave a message, telling the message taker the Maxalt does not work and my own personal discovery and diagnosis and that I would like to schedule an appointment with a neurologist. Later that same day I leave another message.
Day four… I call again being a bit more assertive. I was transferred to and advice nurse, who’s 26 year old daughter suffers from CH. Now we’re getting someplace. Later that same day my doctor and I actually connect. He tells me he has talked to a neurologist and he (my doctor) informs me it sounds like I have is what is called a cluster headache, duh. With that he prescribes emitrex(?) and 100% oxygen. Now a slight kink, he wants me to come to the nurses station when I get a headache, I guess to make sure that the oxygen works. LOL, one, the clinic is not open 24/7, two I live 50 miles away. I told him that, now I am on hold (figuratively speaking).
I am certain this will all work out, and I am also certain you all have your own stories and in way to many cases they are worse. A couple of you wanted me to keep you posted so in my verboseness here it is. I am so glad this all happened when I am not ha, right now it is sorta funny.

Title: Re: K then, the continuing saga of a newbies pligh
Post by vig on Oct 5^th, 2004, 6:26pm

Great news Guido.
Actually that's pretty quick work. Many of us went years before we got that far.
keep it up...

Title: Re: K then, the continuing saga of a newbies pligh
Post by Guido on Oct 5^th, 2004, 6:35pm

Thanks, but I really think I owe the quickness to you folk before me and you all coming together here at this site. Without the info from the people here and the info on this and OUCH, I can see why it could take longer.
Thanks to you all.
Guido

Title: Re: K then, the continuing saga of a newbies pligh
Post by Rock_Lobster on Oct 5^th, 2004, 6:37pm

Yep... not bad results.

I have never been to a neuro.
Armed with what I learned here, my GP and I have been pretty effective with the treatment.

Title: Re: K then, the continuing saga of a newbies pligh
Post by Charlie on Oct 5^th, 2004, 7:27pm

Looks good to me.

You're doing better than many here. Sounds like this is working out.

Stick around.

Charlie

Title: Re: K then, the continuing saga of a newbies pligh
Post by thebbz on Oct 5^th, 2004, 8:19pm

Ya Guido!!!
You had a ? after the imitrex. Did you get stat dose or Pills? The trex is a life saver for me,only the statdose works for some reason. Stick around and pass it on.. 8)
BB

Title: Re: K then, the continuing saga of a newbies pligh
Post by don on Oct 5^th, 2004, 9:41pm

Your on the right road. Hope it's a short road and you get what you need quick.