Clusterheadaches.com Message Board


    
      
        Clusterheadaches.com Message Board
        (http://www.clusterheadaches.com/cgi-bin/yabb/YaBB.cgi)
      

        New Message Board Archives >> 2004 Posts >> prednisone
        
(Message started by: john_d on Oct 3^rd, 2004, 9:15am)

Title: prednisone
Post by john_d on Oct 3^rd, 2004, 9:15am

I keep hearing horror stories involved with this drug. Is this stuff incredibly dangerous for clusterheads or what? Should the site warn others? I don't have any experience with it myself outside the really bad things I hear about here.

John D

Title: Re: prednisone
Post by Jonny on Oct 3^rd, 2004, 9:20am

Shhhh, you'll scare potential victims ;;D

...................................No like Pred

Title: Re: prednisone
Post by Lizzie2 on Oct 3^rd, 2004, 9:57am

I'd just weigh the risks and benefits if I were you. :) I always thought I could handle the risks until this most recent medical diagnosis. Ehhhhh chit happens! Now I'd rather have the CH's than the many surgeries in my future! But also...pred never stopped my cycles...it just would give me a few days off. If it were to stop my cycle completely, I probably wouldn't have cared about the problems it caused. But then again, if it had stopped my cycle completely, I wouldn't have had to keep taking it, and I probably wouldn't be where I'm at now with the knees!

You have to decide if it is worth it! :)

Lizzie :)

Title: Re: prednisone
Post by don on Oct 3^rd, 2004, 10:29am

Quote:

Is this stuff incredibly dangerous for clusterheads or what?

Its been extremely beneficial to this one.

Title: Re: prednisone
Post by Jimmy_B on Oct 3^rd, 2004, 10:37am

Prednisone is a drug that needs to be tapered slowly when it is stopped. I have had good luck with the Medrol Dose Pack, that I take at the beginning of a cycle.

Any drug can be dangerous, if not used properly. Before I start any drug I research & then research some more. When I'm done researching, I ask questions of my Doc & Pharmacist. This also goes with O.T.C. drugs. Also having a very knowledgable physician helps.

Jimmy

Title: Re: prednisone
Post by eddie on Oct 3^rd, 2004, 10:37am

i have taken it off and on since i was 23 now im
40. yes i can tell what it has done to me.
its an oxy- morone its good & bad. if you go
look in a PDR [wallmart has them ] you wouldnt believe
what it says. i have done the pred 3 times
this summer it just will not break mine
this time yes im chronic and it sucks.
i can tell you lifetime of prednisone
is not good for ya. i take supplements
to help, but i just know i read alot about pred
yrs ago and more recently. it also will mess
up different organs in your body if you
dont take it right. i have been in this CH
cycle for almost 400 days, i do use verapamil
o2, imitrex and did pred taper 3 times just
this past summer. i think you can only take
so much in a years time. CLUSTERBUSTER
is what i need / i hope to hear from anyone
about it to help me out till i can proccure my
own. dont want to scare anyone but check
the PDR {PILL BOOK FOR DOCS} and make
your own jugdement. PFDAN TO ALL& HUGS

Title: Re: prednisone
Post by Lizzie2 on Oct 3^rd, 2004, 10:54am

on 10/03/04 at 10:37:00, Jimmy_B wrote:

Hey Jimmy,

Not trying to play devil's advocate or anything, but you know where I go for headache treatment. :) I've never once had an inappropriate taper. All have been about 7 days or so in length, starting at around 60-70mg and tapering over the course of the week. Somewhere along the line though..my body said no! :)

I do think it can be helpful, but it is not without risks!

Lizzie :)

Title: Re: prednisone
Post by vig on Oct 3^rd, 2004, 10:54am

It works wonders at GREAT expense.
It causes long term damage.
I vote no.

Title: Re: prednisone
Post by Jeepgun on Oct 3^rd, 2004, 11:09am

I was prescribed prednisone for my last cycle. I got the script filled, but didn't take it. I really don't know why I didn't take it, other than experiencing a strong inner "nudge" that I should leave it alone, so I did.

In hindsight, I'm glad. I think I would choose the clusterbusters method over prednisone, if I absolutely couldn't stand the pain anymore.

-Frank

Title: Re: prednisone
Post by eddie on Oct 3^rd, 2004, 11:15am

medrol dos pak
dont even phase me at all
almost 20 years of pred is hell
on the body but i had no choice
research all meds from docs
the more you take the higher
you have to go the longer you
take it the more damage it does
but it does work for alot of diff
stuff / like i said its good but bad
PFDAN TO ALL

Title: Re: prednisone
Post by JDH on Oct 3^rd, 2004, 11:54am

I've used Prednisone and it gave me a short break until I started tapering down then I was right back to where I started. IMO the long term risk are not worth a few pf nights.
there are better ways to deal with this.

Jim

Title: Re: prednisone
Post by Jimmy_B on Oct 3^rd, 2004, 1:52pm

on 10/03/04 at 10:54:27, Lizzie2 wrote:

I wasn't trying to suggest that your problems with Pred. were caused by Physician failure or inappropriate tapering. I apologize if it came out that way. Just wanted to make sure that John really researches this med before making a decision.

Do ya forgive me [smiley=mellow.gif]

Jimmy

Title: Re: prednisone
Post by Lizzie2 on Oct 3^rd, 2004, 2:03pm

on 10/03/04 at 13:52:38, Jimmy_B wrote:

Do ya forgive me [smiley=mellow.gif]

Jimmy

LOL..of course! [smiley=hug.gif]

Lizzie :)

Title: Re: prednisone
Post by totka on Oct 3^rd, 2004, 2:40pm

First drug which works for me. It stopped my last cycle on the first day.
Hungarian cluster-ass-kick therapy is Solu-Medrol (IV) and Medrol pills 500 mg tapered to 8 mg in two weeks.

Title: Re: prednisone
Post by Kris_in_SJ on Oct 3^rd, 2004, 8:56pm

I think it's a great drug when taken rarely for episodic clusters. Really helps me until my prevent (Verapamil) has kicked in.

Side effect for occasional Prednisone (proper taper down) use - EXTREME HUNGER.

Side effects for frequent or prolonged Prednisone use - TOO MANY TO MENTION.

I think you have to weigh it out. If you've never (or rarely) taken it, it might very well help you in your cycle. I don't think it works this way for chronic CH (as above testimony says).

Good luck!

Kris

Title: Re: prednisone
Post by Patrick_A on Oct 3^rd, 2004, 10:54pm

Prednisone and Verapamil stopped mine in its tracks and i have now been painfree for 13 months.

Pred definitly has some awful side-effects but so does putting a shotgun to your head due to losing patience with the CH's.

Patrick

Title: Re: prednisone
Post by eddie on Oct 4^th, 2004, 2:32pm

http://www.transweb.org/reference/articles/drugs/pred.html

i have taken it to much not sure but what i read"yes"
it use to work for me but seems not anymore
research all meds
http://www.rxlist.com/cgi/generic/pred_ad.htm :P

Title: Re: prednisone
Post by thebbz on Oct 4^th, 2004, 7:43pm

Prednipoison or Kip 9? Lesser of two evils . No choice.
Take whatever else works . If no alternative then go for the poison. Kip9 or pred...lesser of two evils..LOL [smiley=laugh.gif] [smiley=laugh.gif]
BB

Title: Re: prednisone
Post by chris on Oct 28^th, 2004, 1:43am

Have taken it once or twice a year for 5 years, when the verapamil and lithium quit working. Just stay on it for about a week with orw/0 a taper. I tried both no reaction that was different, but doctor will recommend a definite taper. No side effects except for sore gums. Even though I am chronic it stops those really extra tough cycles when lith and verap wouldn't. I personally think it's great if used properly and not for long periods.