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(Message started by: dynasty on Sep 30^th, 2004, 9:09pm)

Title: To my husband
Post by dynasty on Sep 30^th, 2004, 9:09pm

Okay so this is my first post so please bear with me...

I just need my husband Scott to know just how much I care about him and love him! He is a episodic cluster migraine sufferer gone chronic :(

This man is amazing! He's 32 years old, we have been married 9 yrs this past August, we have a beautiful 4 yr old daughter. We have been together 13 yrs... and I have watched him go through these time and time again. I feel so helpless, yet the only thing I know how to do is let him know I am here.

Now he has gone chronic. We have FINALLY found a neurologist that is doing everything he can to help us, however, we are at the Litium point. Though this medication scares me, I will never ever deny him getting the relief he needs. Please say prayers that this is the one that helps.

The reason I am posting though is to tell him this:

Scott, I LOVE YOU!!! You are my life, my love, my best friend, my EVERYTHING! You are NEVER a burden, NEVER. I am your wife and I am proud!!!! Baby, whatever, or where ever you need me I am there. We will get through this, we always do!. You are the strongest person I have ever known, don't give up! Aly and I love so very very much........ We will do this, we will fight it, and together WE WILL BEAT IT!!! I promise you!

Just remember your support is here! I love you baby.,... don't you ever think anything else! I LOVE YOU!!!!!!!!! [smiley=heart.gif] [smiley=heart.gif] [smiley=heart.gif] [smiley=heart.gif]

Title: Re: To my husband
Post by thomas on Sep 30^th, 2004, 9:14pm

Beautiful :'( Welcome!

Title: Re: To my husband
Post by jhammer on Sep 30^th, 2004, 9:16pm

Welcome to the board Dynasty, and may I say that Scott is lucky to have someone as supportive you behind him.

One word of advice though, don't use the terms 'cluster' and 'migraine' in the same description.

I personally have no experience with the Lithium, but I've read about it as a treatment. Everyone here reacts different to different treatments, that's half the problem with these damn things. I hope he finds what works for him soon.

~Hammer

Title: Re: To my husband
Post by broomhilda on Sep 30^th, 2004, 9:18pm

:'( Welcome, you sound like a wonderful and truly amazing supporter....

Wishing for pain free days and nights for you and Scott...

Andrea

Title: Re: To my husband
Post by Cathi04 on Sep 30^th, 2004, 9:42pm

Dynasty....I think you've got it!!! Scott... you have the rock of Gibraltar there.........lucky you!!!!
It is sad you need to be here in Clusterville, but I am happy you have found the place...settle in, BOTH of you.... read everything to the left, post any questions you have......grab some oars....and know there are plenty of people here who understand, and will do what they can to help you cope, laugh a bit....give you something to grab onto when you need it most..send you vibes, wrap their cyber arms around you..and in general, help you deal with life in Clusterville....
Stick around..........this could well be your other home.......
PF to BOTH of you......
Cathi :-*

OH, and....SCOTT, SHE LOVES YOU!!!

Title: Re: To my husband
Post by Leesa on Sep 30^th, 2004, 9:43pm

Dynasty, sorry you and Scott have found us but welcome to the family. That is one of the most beatiful posts Ive seen on here in a long time. Scott is VERY lucky to have you in his life. Your a GREAT support to him!
PF wishes, Leesa

Title: Re: To my husband
Post by Jonny on Sep 30^th, 2004, 9:48pm

Anyone know Scott?

I dont and im here every day.

.............................................jonny

Title: Re: To my husband
Post by Jayne on Sep 30^th, 2004, 10:20pm

Hi Dynasty.

I too am chronic, and 10 months ago my doctor said to try Lithium (and verapamil).

I was very leery about taking lithium.

10 months later I can say this has been my best year ever as a sufferer. I have NO side effects from the drug.
I am on 450 mg of Lithium and 360 mg of verapamil per day.
Now I love the stuff. I just don't go around announcing to non sufferers that I am on that drug.

A lot of chronics have noticed that we get cycles within our chronicness....meaning at sometimes it's worse than others, so It might not be that your drugs have quit working.

He is lucky he has you.
Jayne

Title: Re: To my husband
Post by Charlie on Sep 30^th, 2004, 10:58pm

Welcome and what a great intro.

I'm glad you found us and if you look around you'll find some good ideas about dealing with this horror. You have some real reading to do but good luck and let us know how things are going.

Charlie

Title: Re: To my husband
Post by vig on Sep 30^th, 2004, 10:59pm

Lucky guy... ;;D

Title: Re: To my husband
Post by dynasty on Sep 30^th, 2004, 11:09pm

on 09/30/04 at 21:48:10, Jonny wrote:

Anyone know Scott?

I dont and im here every day.

.............................................jonny

No sweety u probably don't know Scott. However, he does know you guys. He is here on these boards, and website just about everyday. We came across this site back in March, and have been here ever since.

With that in mind, please let me extend my thank you for all the kind words. Also, thank you for all the unknowing support you have given my husband. It is because of this site, and these boards we have learned so much. And the support of knowing that he is not alone, has helped him to find the strength to fight "the beast" (this is the correct term right lol) :)

Thanks again, and I wish all of you only pain free days and happiness...... I will have you all in my prayers

Title: Re: To my husband
Post by thomas on Sep 30^th, 2004, 11:10pm

on 09/30/04 at 21:48:10, Jonny wrote:

Anyone know Scott?

I dont and im here every day.

.............................................jonny

I'm pretty sure I do. I think he's probably the most famous clusterhead in the world. ;;D

Title: Re: To my husband
Post by Melissa on Sep 30^th, 2004, 11:29pm

dynasty,

Thank you so much for showing your support for Scott. You seem like one terrific wife, don't ever change!

Take care and feel free to post here anytime, or if not, you can always drop me an email at mfiltz@isp.com anytime you want to talk. I've suffered for 14years myself, and you have a lot of wonderful qualities just like my supporter husband (although he is more silent, lol).

Take care,
:)mel

Title: Re: To my husband
Post by Kevin_M on Sep 30^th, 2004, 11:38pm

Glad you came through the door Dyna. Tell Scott hi and there's room on board.

Kevin M

Title: Re: To my husband
Post by alleyoop on Oct 1^st, 2004, 12:20am

WELCOME!!!!!

.......................alley :)

Title: Re: To my husband
Post by Callico_Kid on Oct 1^st, 2004, 1:57am

Welcome to you both. Thank you for being a supporter. There are so many here who have had a far different response from their spouse, and it is so refreshing to see someone else who will stand with her man. (There are a lot of spouses that DO support. I don't mean to diminish them. I honor them greatly, especially theo ones who make it a point to be a part of this great board.)

Don't be afraid of the Lithium. It has a bit of a reputation due to its use for phychotic treatments, but it has been a real Godsend tome for the clusters. The only side effects I have had from it are that is makes my coffee taste a little funny, and I notice a slight tremor in my hands on occasion. I would not think of giving it up at all now. Verap and Lithium have made my life liveable again.

Jerry

Title: Re: To my husband
Post by K-9 on Oct 1^st, 2004, 2:36am

WOW Dynasty, that was like enough love and support for all of us. Very refreshing. You're very strong!!!! You and Scott both!! ;) I have been chronic and did use Lithium for about four years when I was at one of my worst periods. Not too many side effect for me, and it didn't "stop" my ha but man did it regulate it. I thought I could set my watch to the beast before, but after being on Lith, It helped me to better 'plan' my life. I say give it a try!!! Welcome to both of you!!

Chuck

Title: Re: To my husband
Post by E-Double on Oct 1^st, 2004, 8:05am

Dyansty,

That brought me to tears!

What a lucky Scott is as we are for a meeting a new friend.

Best to both of you.

E.

Title: Re: To my husband
Post by Jeepgun on Oct 1^st, 2004, 8:11am

Wow.... Scott is a very fortunate man. Other people have offered some wonderful advice, so I'll just say to Scott: Hang in there, man. To you, Dyna: Wow! What a wonderful supporter you are, and what a fabulous amount of love pours forth from your words.

All the very best to you both,
-Frank

Title: Re: To my husband
Post by thomas on Oct 1^st, 2004, 8:35am

on 09/30/04 at 23:10:36, thomas wrote:

I'm pretty sure I do. I think he's probably the most famous clusterhead in the world. ;;D

Oops, wrong Scott.

Title: Re: To my husband
Post by echo on Oct 1^st, 2004, 11:47am

Great note. Thanks for the intro.

Scott is an extremely fortunate person to have someone like you in his corner.

Welcome to the family.

Title: Re: To my husband
Post by ArCane on Oct 1^st, 2004, 11:55am

Welcome. Nice to have you on board. We could all hope to have a loving, supporting spouse such as yourself. I wish the best for both you and Scott.

Title: Re: To my husband
Post by ShariRae on Oct 1^st, 2004, 2:35pm

Awwww....that was beautiful....and not only do you have eachother.. you now have US!!! Welcome aboard!
Huggs
Shari

Title: Re: To my husband
Post by ExplodingEyeBall on Oct 1^st, 2004, 2:59pm

Wow!!!

My wife supports me but I don't think she understands as well as you do. I guarantee you that Scott is happy to have you around.

BTW: If Scott has never posted here, make sure and have him sign in and post. We'd all be happy to talk to him.

Pat

Title: Re: To my husband
Post by Superpain on Oct 1^st, 2004, 4:30pm

Is Scott the Buckeye scooter scott?

Title: Re: To my husband
Post by scotter on Oct 1^st, 2004, 10:50pm

Thank you soooo much!
I love you too.
Thanks for al of your love and support, I COULDN'T GET THROUGH THIS WITHOUT YOU!

I love you too, you are everything to me! [smiley=hug.gif]

Title: Re: To my husband
Post by Ree on Oct 1^st, 2004, 11:02pm

AWWWWWWWWWWW you guyssssssssssss... that was so sweet...You are one lucky Scott... (one of my favorite names read below) Dynasty... keep coming here we need your loving support. Scott Im glad you guys decided to post... Welcome... love to you both Ree

Title: Re: To my husband
Post by Jeepgun on Oct 1^st, 2004, 11:08pm

Welcome, Scott. Sorry you had to seek us out.... Anyhoo... With the love that the two of you have, you can conquer anything. :) It's wonderful to see. Thank you.

Pain-free days and nights (PFDAN) to you.

-Frank

Title: Re: To my husband
Post by scotter on Oct 2^nd, 2004, 3:07pm

Thanks to all of you as well for al your kind words and support.
It's nice to know there are other people around going through the same things.
Some days can get really ugly

Title: Re: To my husband
Post by chris on Oct 28^th, 2004, 1:20am

I agree with the other posts, don't be afraid, lithium is your friend when it comes to clusters. Along with verapamil , it let me get on with "GETTING ON" ! Really rough on the belly though. Always keep them baby wipes handy!Best of luck!

Title: Re: To my husband
Post by Pegase on Oct 28^th, 2004, 10:32am

Welcome to both of you... that made me cry :'(

Title: Re: To my husband
Post by becky8 on Oct 28^th, 2004, 2:57pm

I'm sobbing!!! Man, how lucky for both of you! Two is better than one for making it through a CH attack (but how would I know) I know from having hundreds (ALL OF THESE CH"ERS ) So buckle up and hang on, were all here for you. [smiley=wave.gif] [smiley=hiya.gif]