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        New Message Board Archives >> 2004 Posts >> Is this Normal?
        
(Message started by: Ronny on Sep 30^th, 2004, 4:40pm)

Title: Is this Normal?
Post by Ronny on Sep 30^th, 2004, 4:40pm

Hi,

This cycle started in april.
It was really bad until the end of june, then things got better but still not PF.

In august I thought it was over and I quit verapamil, bad idea, so I restarted.

By the end of august, early September I quit vera again and I didn’t have any attacks for weeks, (hmm finally). Still I had little twinges and stabs but very tolerable, (just a way of Mr Beast to say: “Hey I’m still around”) and now: they are back.
Mr. one o clock is my most regular guest but… not every night, that’s so weird, last week I had a day with 3 struggles, the next day I had nothing.

Weird isn’t it?

Ronny.

Title: Re: Is this Normal?
Post by thomas on Sep 30^th, 2004, 4:43pm

The beast does as the beast wills, my friend.

Title: Re: Is this Normal?
Post by Jeepgun on Sep 30^th, 2004, 4:46pm

Jeez... Agree with Thomas. :-/

PFDAN to you.

-Frank

Title: Re: Is this Normal?
Post by alleyoop on Sep 30^th, 2004, 4:52pm

I'm no doctor of course, and not even episodic, but I do believe from personal experience that the different meds we have to take have an effect on the beast's time table.

.......................alley [smiley=twocents.gif]

Title: Re: Is this Normal?
Post by E-Double on Sep 30^th, 2004, 4:52pm

Very similar to my current cycle.

Started @ the end of May, found some relief towards end of July in fact had nearly 2 weeks of relative pain free. (just shadows and twinges. low level)

August 1st wham back in and that continued until beginning of September which gave me a few days here and there then started ramping up again last week. So far this week I've been on my Tank quite a bit and have had to give myself a stab a little more often then I have in the past.

Yesterday I started with the roids again (round 3).'

We'll see....

It is what it is. Stay Positive as best ya can. That's my thing ;)
No clue only now my neck Fucking hurts again after smacking it around.

Whatta tribe we are :D

Hope you catch a break for good!!!

Eric

Title: Re: Is this Normal?
Post by Ronny on Sep 30^th, 2004, 4:58pm

Yes, it does seem quite similar,

It's just, until now it was

yes or no (in or out cycle)
every day
on time.

Title: Re: Is this Normal?
Post by Tom K on Sep 30^th, 2004, 5:09pm

This cycle that I'm in is pretty out there, too. Since June, one every 8 days all at the same time of day, left sided. End of August, cycle starts 2 a day for a week then kicks up to 4 a day, 4 hours apart. Peaked at 6 a day for 3 days, 5 hours apart. Started Verap, got trigger point injections and then it took 2 weeks of stepping down from 6 to 5 to 4, etc. Ssshhh...don't want to wake the Beast, but have been PF for 40 hours, now. Don't have no rhyme or reason. I quit trying to figure them out years ago.

T

Title: Re: Is this Normal?
Post by StueyStu on Oct 1^st, 2004, 11:09am

I can only add that since I've been on Verapamil 960 mg I've been pain free for over a year. But the verapamil is something I take for blood pressure as well. My neurologist decided not to taper me down from 960 since I had no side effects from it, it was the only thing that stopped my last cycle. I may be on it for life but if it stops CHs from coming I'll take 10,000 mg a day. Good luck to you.

Title: Re: Is this Normal?
Post by Kirk on Oct 1^st, 2004, 11:24am

The more things change the more they stay the same.
After 30 plus years the sucker still has me guessing.