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        New Message Board Archives >> 2004 Posts >> Please help is now please accept my thanks
        
(Message started by: sadwife on Sep 28^th, 2004, 11:05pm)

Title: Please help is now please accept my thanks
Post by sadwife on Sep 28^th, 2004, 11:05pm

I am new to this and wrote on to my previous message, only I'm not so sure you all will get it so forgive me here it goes...

Gender:
Posts: 3
Re: Please help
« Reply #22 on: Today at 10:13pm » Quote Modify Remove

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Wow, I have just gotten home from what seemed to be an endless day after my fourth night of no sleep, and to what to my wondering eyes do appear, but tons of messages filled with love and cheer I can't thank you all enough for the love and encouragement you have sent my way. To give an update, after reading about has helped so many of you, I called and got my husband a presciption for O2, to be given at any emergency or urgent care facility. Even better I called my husbands father in the wee hours of the morning (he works for a medical supply company) and by noon he had taken the presciption and delivered my husband a portable tank. what helped even more is after reading I realized that my mother (who lives W/us) takes veraparimil...yes I was bad and at 4am I borrowed one, needless to say my husband went back to work at 2PM, (he has been out since Friday) and I am at this very minute happily typing away. (He doesn't have a CH, so far) I also printed out alot of information and your kind messages, so that he could see how many wonderful people are in the world. (my husband is very pessimistic, and thinks I look too much for the good in others when I should be looking over my shoulder Anyway being that he isn't much of a talker and definitely not a computer geek, he did ask me to speak on his behalf. For the first time in weeks he feels hope, love, and I think a touch of what he has not understood about me. He is actually smiling and telling his family about the wonderful web-site I have found. May God richly bless you all and your families, I couldn't in ten lifetimes tell you what the last 18 hours you have given me has meant. In all the bad that goes on in this crazy world, you have shown me I am not crazy, there are good people you simply have to reach out and receive them.

Kindly,
Not so sadwife tonite
IP Logged

Title: Re: Please help is now please accept my thanks
Post by Redd715 on Sep 28^th, 2004, 11:22pm

"Such a wise woman is this." Out of Africa

You have found the right place to come and help your beloved husband.

Bring him here...no Geekiness needed, and please please please...keep reading and learning. You are a wonderful supporter.

Love, faith and endurance does help one endure the difficult times.....

Glad you found us....great group of folk here.

Title: Re: Please help is now please accept my thanks
Post by OneEyeBlind on Sep 28^th, 2004, 11:26pm

Ok, I'm crying. Just let me make a difference the little voice inside my head always says ........... and the reply was "you did".

Hopefully the O2 will work for him. If not try the Imitrex Injections ..... expensive, but if you have insurance and have trouble getting him what he needs .... we are here ! We have ways around that !

I'm glad to see a smiling wife tonight !

Title: Re: Please help is now please accept my thanks
Post by Jayne on Sep 28^th, 2004, 11:32pm

Ok now I'm crying too.
Please use my # ANYTIME

just a note though, verapamil is not a drug that will take away one headache (abortive), it is used as a preventative and you have to take it every day. So giving him one pill will not do anything for him. It has to get into your system over a period of about 10 days for it to work. The dosage can be as low as 180mg to work or as high as 920 mg.
This you need to go to the doctor/ neurologist for.
It is the drug of choice for the majority of clusterheads.
I hope that helps
Jayne

Title: Re: Please help is now please accept my thanks
Post by Jimi on Sep 28^th, 2004, 11:59pm

Well I look too much for the good in others too and I think that is the only way to be. Such a heartwarming post. Thanks for sharing that with us.
Remember, the regulator needs to be at least 8 LPM. So I hope you got a regulator big enough. For some it takes 10 LPM. If it works and he is having most of his ha's at night, you ought to consider the large H tank and have it sitting next to his bed. Keep us posted. :)

Title: Re: Please help is now please accept my thanks
Post by Charlie on Sep 29^th, 2004, 12:34am

I just read your other posts and I'm very happy to see this thread. Here's hoping that things continue to look up.

Because it's nearly impossible to make others understand, here is a link to a letter or description that does a wonderful job. It's the best we have at explaining that this has nothing to do with what others think when they hear "headache."

http://www.clusterheadaches.org.uk/home/index.cfm?address=../clusters/note_colleagues.cfm&added=04/01/04&code=CB

Good luck and let us know how you're doing.

Charlie

Title: Re: Please help is now please accept my thanks
Post by Ree on Sep 29^th, 2004, 8:09am

Good for you!!! Get his own script of Verap it seems as if that might work for him... He will still have ups and downs but let me tell you. He won't feel so doomed to know there are others in the world like him... living the same bad dream. We are always here, stick around, check in often we could use you on our team of supporters... God bless Ree

Title: Re: Please help is now please accept my thanks
Post by Jeepgun on Sep 29^th, 2004, 8:50am

I'm crying too... With happiness for you and your husband, and with relief that he has found hope and a way out of this maze of agony.

Thank you for your letter...

-Frank

Title: Re: Please help is now please accept my thanks
Post by TomM on Sep 29^th, 2004, 9:44am

This is good news, indeed.
Now you are armed with information and friends to help you.
Your next task is get him on-line...Then both of you will reap the benifits of this site.
Oh, BTW, Thank DJ. This is his site.
TomM

Title: Re: Please help is now please accept my thanks
Post by don on Sep 29^th, 2004, 10:26am

Glad your getting some help !

Quote:

I realized that my mother (who lives W/us) takes veraparimil...yes I was bad and at 4am I borrowed one,

Verapamil is used as a preventative, not an abortive. Daily dosing of verapamil ussually takes 10-14 days to become effective.

Title: Re: Please help is now please accept my thanks
Post by Kris_in_SJ on Sep 29^th, 2004, 9:02pm

Hi,

Read your follow-up post on the other thread, as well. I'm so glad to hear you and your hubby are getting a little relief.

I'm sure you've heard the caution on the Verapamil by now - it will take a couple weeks of steady and increased dosing to really kick in, but in the meatime it's wonderful to hear that O2 and your healing hands are helping.

My daughter is just finishing her certification in medical massage therapy, so I know she would especially appreciate how your accupressure works wonders (I plan to share that with her).

Stay with us, and encourage your non-geeky cluster husband to join, as well. You're now part of a big, new family, whether you planned it or not!

Many Hugs,

Kris

Title: Re: Please help is now please accept my thanks
Post by Virginia on Sep 29^th, 2004, 9:27pm

WOW! A newbie that we didn't scare off! That's great!

I'm glad you (and your husband) are sticking around.

Keep us updated.

Virginia

Title: Re: Please help is now please accept my thanks
Post by ShariRae on Sep 29^th, 2004, 11:41pm

If the tears would just stop.. I could get something typed here!!!
So glad you found some relief for your husband...Welcome to this big, crazy, wonderful life saving family (this i know first hand)
Huggs
Shari