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Title: Family I have a Prednisone question... Post by Redd715 on Sep 21st, 2004, 9:01pm I need an answer fast on this as I see Pam in the morning, so I'm posting this here. Last major go round I was on two different pred rounds but they were not at all correct from all I've read here. Well I'm starting back into a major round here and I called Pam and she phoned in a script for a taper of pred for 14 days, as thus... 60mg-60-50-50-40-40-30-30-20-20-10-10-5-5 mg Sound right to you? She was going to also start me on Zonegran, but it's not indicated for people allegic to sulfa...which I am, (thank you internet, and it's in my chart that I'm allergic so I wonder why she suggested that anyway) so we have to find something else...lithium is out of the question due to the cost involved in the testing, (baseline ekg) and still on the trex to abort. Any suggestions would be appreciated...and sorry O2 is not the list due to cost as well. Already looked into that one. Please input would be helpful...(and this timeing, with Mom in surgery tomorrow too is awful) when it rains it pours edit to add I'm back to upping the verap to 300 mg too after 4 days on the pred. |
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Title: Re: Family I have a Prednisone question... Post by vig on Sep 21st, 2004, 9:22pm My opinion on prednisone is purely negative. Find a way to not even take it. I hope surgery goes well tomorrow. I'll be with you in spirit Pegg. |
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Title: Re: Family I have a Prednisone question... Post by Redd715 on Sep 21st, 2004, 9:28pm I know all about the negative aspects of the pred...but I need the break, and hope to nip this thing in the bud...I have to work...I need an income...so another 3 months of hell is not an option if I can help it. Hard enough dealing with the random attacks when at work....have this cycle ramp up where I'm spending more time locked away in the "dungeon" than I am at my desk is not gonna fly.... |
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Title: Re: Family I have a Prednisone question... Post by brain_cramps on Sep 21st, 2004, 9:32pm Pred seems to get things under control for a lot of people. (for a lot, only temporarily) I was on a 9 day taper just over a month ago. 50-50-50-50-50-25-25-25-25 It was near the end of my cycle, as far as I know, so it may have had a hand in ending the cycle --- maybe not. I HAVE had success with it in the past (three times in the 80s and 90s) grant |
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Title: Re: Family I have a Prednisone question... Post by farmboy on Sep 21st, 2004, 9:38pm my taper is 50-50-40-40-30-30-20-20-10-10-5-5. works for me. |
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Title: Re: Family I have a Prednisone question... Post by vig on Sep 21st, 2004, 9:56pm I know it sucks Pegg. Sometimes we're damned if we do and damned if we don't. :'( |
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Title: Re: Family I have a Prednisone question... Post by Lizzie2 on Sep 22nd, 2004, 12:18am I'm not allowed to do pred anymore...at least not very often. It has caused early stage osteoporosis and possibly bone cell death in both knees as well as a host of other problems. Based on the fact that I might now have to get dead bone cells cut from both knees, I think I will keep my clusters and skip the pred for now. :( Like Vig says...damned if we do, damned if we don't. I get my MRI tomorrow so we'll see just how extensive the damage done is... <sigh> |
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Title: Re: Family I have a Prednisone question... Post by fubar on Sep 22nd, 2004, 12:25am In my experience, the negatives outweigh the positives by a sufficient margin to avoid the Prednisone. In fact, I think it made me become chronic, but I cannot know that for sure. I was episodic until I was put on Prednisone, then enjoyed 3 solid years of CH hell until I found fungus among us. All hail the fungus. |
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Title: Re: Family I have a Prednisone question... Post by Lizzie2 on Sep 22nd, 2004, 12:30am on 09/22/04 at 00:25:54, fubar wrote:
It always seems like a good idea and saving grace at the time, eh? The prednisone that is. I always welcomed the few days relief or shadows or whatnot. Now I'm kinda pissed that I did that to myself because of the consequences I have to pay back 10-fold. :( |
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Title: Re: Family I have a Prednisone question... Post by Svenn on Sep 22nd, 2004, 1:12am Prednisolone in high doze for 10 days 80mg then over a 3 weeks periode step down like 60-40-30-20-10-5mg every 3dh day The way i use the stuff Svenn |
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Title: Re: Family I have a Prednisone question... Post by Dave_Emond on Sep 22nd, 2004, 1:47am Hi Redd, If your total use of the pred is only 14 days, according to the research I've done (and that's quite a bit!) your taper is considered short term and safe. That is the medical field's opinion, obviously I have reason to agree with Fubar and Carrie and can't help but be nervous for anyone taking Prednisone. If you've been on 60mg's or higher for any length of time before this taper, it could be a whole different story. I'm assuming you're starting at 60mg's and tapering immediately off in 14 days, in which case all information says you have nothing to worry about, especially since you've been on Pred before and know what to expect. Hope you feel better soon, Dave |
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Title: Re: Family I have a Prednisone question... Post by Superpain on Sep 22nd, 2004, 4:57am The taper my neuro put me on was scheduled out on a chart. As in, not just how many mg per day, but when to take them. It worked very well. 3 or 4 days breakfast, lunch, dinner, bedtime, then 3 days at 60, 3 days at 40, 3 days at 20... But the dosage times were varied and changed every day or two. I don't remember what they were now, but I might be able to dig up the sheet if it would help. |
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Title: Re: Family I have a Prednisone question... Post by Major_Headcase on Sep 22nd, 2004, 12:47pm Ditto what Svenn said, worked for me last cycle. Nasty side effects, but I thought the trade off was worth it ... |
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Title: Re: Family I have a Prednisone question... Post by unsolved1 on Sep 23rd, 2004, 8:43am I don't care about the side effects or bone death ... I just want my head to quit pounding !! :-/ 60,60,60,40,40,40,20,20,20,10,10,10 or even higher: 100,100, 80, 80, 60, 60, 40, 40, 20, 20, 10, 10 Many times starting the taper after a shot of Decadron or SoluMedrol. Unsolved |
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