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New Message Board Archives >> 2004 Posts >> bday for me
(Message started by: eddie on Sep 2nd, 2004, 9:11am)

Title: bday for me
Post by eddie on Sep 2nd, 2004, 9:11am
the best birthday gift i could get that this
cycle breaks i have had cortisteroids 3 times
this summer. i have this cycle 378 days or
more HAD ENOUGH any ideas on other meds
that help me to break it. i just finished the
pred taper. i have had enough prednisone
im 40 today i have like im 60 yrs old . i have
taken this crap since i was about 23yrs old
off and on had enough of it. i get a wish
dont i. i have learned so much here.

Title: Re: bday for me
Post by Jonny on Sep 2nd, 2004, 9:17am
Happy Birthday dude, wish it could be a better one for you.

.............................jonny

Title: Re: bday for me
Post by lionsound on Sep 2nd, 2004, 9:26am
eddie,
Happy PF Birthday wishes for you!

-Lionsound

Title: Re: bday for me
Post by Leesa on Sep 2nd, 2004, 9:32am
HBD Eddie, wishing you some much needed and deserved PF time ahead.
PF wishes, Leesa

Title: Re: bday for me
Post by Jimmy_B on Sep 2nd, 2004, 9:32am
Happy  40th. Of course you get a wish...& if that don't work, kick it's a$$ back where it came from. ;;D

Happy Birthday Eddie

Title: Re: bday for me
Post by IndianaJohn on Sep 2nd, 2004, 11:19am
Happy B-Day eddie.  Hope it's a good one for you.

Title: Re: bday for me
Post by juvy on Sep 2nd, 2004, 11:21am
Happy Birthday Eddie,

I hope the beast leaves you alone long enough so you can have a great day.

*hugs and birthday wishes*
April

Title: Re: bday for me
Post by karma on Sep 2nd, 2004, 11:28am
Eddie
The best birthday wishes from the caribbean.
ENJOY IT!
Maybe consider the clusterbuster alternative. It may be the ticket.

Title: Re: bday for me
Post by don on Sep 2nd, 2004, 11:56am
Happy Birthday Eddie. Hopin it gets better for ya!

Title: Re: bday for me
Post by Jeepgun on Sep 2nd, 2004, 12:03pm
HFBD, Eddie!! ;;D Hang tough, man. If the choice came down to prednisone or the clusterbuster method, I'd go with the latter. In any case, may you get at least SOME pain-free time. Best wishes.

-Frank

Title: Re: bday for me
Post by broomhilda on Sep 2nd, 2004, 1:55pm
Happy Birthday, pf wishes your way for your bday and many more!

Andrea

Title: Re: bday for me
Post by E-Double on Sep 2nd, 2004, 2:02pm
The best of wishes for you on your day!!

Have a happy and pain free one :D

E

Title: Re: bday for me
Post by farmboy on Sep 2nd, 2004, 2:12pm
Happy birthday........................ Sure wish i had a magic wand that i could wave and grant you a wish.

Hang in there and think of good times on this your birthday.!

Title: Re: bday for me
Post by Charlie on Sep 2nd, 2004, 2:24pm
Hope you have a good one Eddie and that 40 is the beginning of the end........the beast that is  ::)

By the way, you might try this. As goofy as it sounds, it worked for me:

[What follows is a technique learned from a neurologist:

I am not sure what mechanism is triggered by this but whatever it is, at least indirectly helps kill the pain. I do know that this technique has nothing to do with meditation, relaxation, or psychic ability. It is entirely physical and takes some work. It involves concentrating on trying to redirect a little circulation to the arms, hands, or legs. It can described as a conscious circulatory flexing. Increased circulation will result in a reddening and warming of the hands. Try to think of it as filling your hands with redirected blood. The important and difficult part is that it has to be done without interruption through the pain. Do not give up in frustration. It may not work on the first try. Every now and then it will work almost immediately. I lived for those moments. Try experimenting between attacks. You will find that it gets easier with practice.
I was given less than five minutes instruction in the use of method. The doctor, while placing his arm on his desk, showed me that he could slightly increase his arm and hand circulation. After several attempts, I was able to repeat this procedure and use it successfully. I have had about a 75% success rate shortening these attacks. My 20 minute attacks were often reduced to 10 minutes or less. Once proven that I had a chance to effectively deal with this horror, I always gave it a try as I had nothing to lose but pain.
Perhaps it will help if you think of it as trying to fill the arm as if it is were an empty vessel. I used to try to imagine I was pushing blood away from my head into my arm. Use your imagination. There is one man who wrote that his standing barefoot on a concrete floor shortened his attacks. This may be similar as it draws some circulation away from the head. Cold water, exercise, or anything affecting circulation, seems to be worth a try. My suggestion is to not let up immediately when the pain goes. Waiting a minute is probably a good idea. So long as you do not slack off, this has a chance of working.
This technique is very useful while waiting for medication to take effect or when none is available. It costs nothing, is non-invasive, and can be used just about anywhere. It is not a miracle but it helped me deal with this horror. It can be a bit exhausting but the success rate was good enough for me and a cluster headache sufferer will do just about anything to end the pain. It gives us a fighting chance.
I hope this technique is helpful and I wish you the best of luck

Charlie      

Title: Re: bday for me
Post by aprilbee on Sep 2nd, 2004, 2:27pm
HAPPY BIRTHDAY!!!   ;;D  MAY ALL YOUR WISHES COME TRUE!!!

Title: Re: bday for me
Post by thomas on Sep 2nd, 2004, 2:29pm
[smiley=me&mb.gif]  Here's to ya and the BIG FORE OH!!!!!!!

Title: Re: bday for me
Post by Gator on Sep 2nd, 2004, 3:11pm
Happy Birthday, dude!  Wishing you pain free time ahead.


Gator

Title: Re: bday for me
Post by eddie on Sep 2nd, 2004, 6:42pm
im very grateful  for the happy wishes
from my friends  thank you
its great to have people
that really know
im kip 7-8 now
it has not even
started yet
THANKS

Title: Re: bday for me
Post by alleyoop on Sep 2nd, 2004, 6:42pm

on 09/02/04 at 11:28:41, karma wrote:
Eddie
The best birthday wishes from the caribbean.
ENJOY IT!
Maybe consider the clusterbuster alternative. It may be the ticket.


HAPPY FOUR-O EDDIE!!!!!!!!

....................................alley

Title: Re: bday for me
Post by Giovanni on Sep 2nd, 2004, 6:49pm
Happy Birthday to Eddie!!

Please do consider the alternative treatment.

www.clusterbusters.com


John

Title: Re: bday for me
Post by cootie on Sep 2nd, 2004, 9:22pm
Happy birthday eddie..wishin you some PF days cuz sounds like you sure da hell could use some !!!! Pain free vibes viber Pam

Title: Re: bday for me
Post by firebrix on Sep 3rd, 2004, 4:24am
Happy Birthday Eddie!
Wishing you pfdans and a happy year
firebrix

Title: Re: bday for me
Post by synergy on Sep 3rd, 2004, 4:47am
Happy Birthday Eddie - hope it gets better for you hun, sending PF presents your way!

luv sarah xx

Title: Re: bday for me
Post by Kevin_M on Sep 3rd, 2004, 8:52am
Happy Birthday Eddie,

Hoping some PF time soon for you.  



Kevin M

Title: Re: bday for me
Post by Ree on Sep 3rd, 2004, 9:07am
HAPPY BIRTHDAY EDDIE... WISH IT COULD BE BETTER FOR YOU... http://www.geocities.com/BourbonStreet/Delta/7560/holiday/party/pty-garfield.gif  LOVE TO YOU REE AND FAMILY

Title: Re: bday for me
Post by Peppermint on Sep 3rd, 2004, 9:10am
Happy Birthday Eddie... hope the rest of the year takes an upswing for you.

Pepper



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