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        New Message Board Archives >> 2004 Posts >> In cycle? Out of cycle?
        
(Message started by: don on Aug 24^th, 2004, 12:19pm)

Title: In cycle? Out of cycle?
Post by don on Aug 24^th, 2004, 12:19pm

My neuro asked me today "Are you in cycle or out of cycle"? I said "I dunno".

"I no longer have nighttime attacks and the ussual triggers are not triggering......but....if I take a nap it's a guaranteed hit. So I ask you.....Am I in cycle or out of cycle"?

He says "I dunno".

I left with an Rx for 20 imitrex injections with 2 refills. His reasoning? In case I need a lot of naps.

Gotta love this guy.

Title: Re: In cycle? Out of cycle?
Post by Rock_Lobster on Aug 24^th, 2004, 12:26pm

In.

No shit... in the middle of my last episode I was slapped in the middle of any daytime nap also. Straaange. :o

Title: Re: In cycle? Out of cycle?
Post by IndianaJohn on Aug 24^th, 2004, 12:35pm

This may sound strange. I almost always get this "pressure" in my head when a cycle is about to start or I'm in cycle. I can't explain it any other way. But I always know. It's when the a cycle is ending that I have trouble know if it's over or not.

And I always stockpile my trex!

John

Title: Re: In cycle? Out of cycle?
Post by k9n8 on Aug 24^th, 2004, 1:00pm

I almost always get this "pressure" in my head when a cycle is about to start or I'm in cycle.

That is what I refer to as a shadow. I dont know if that is the same as what other people refer to, but this pressure, and feeling of impending doom (learned) is always present when in the middle of a cycle.

k9n8

Title: Re: In cycle? Out of cycle?
Post by IndianaJohn on Aug 24^th, 2004, 1:11pm

I tend to differentiate between shadows and the pressure. I can have the pressure and be in no pain. The shadows are like a low level headache. Almost like a tension headache, sometimes like a little CH...

Title: Re: In cycle? Out of cycle?
Post by Carl_D on Aug 24^th, 2004, 1:36pm

In cycle since February of 1998.
Sometimes I wonder if this will ever end.

Carl D

Title: Re: In cycle? Out of cycle?
Post by Melissa on Aug 24^th, 2004, 2:46pm

Out of cycle here. I am expecting to get back into cycle approx. 1 year from now.

:)mel

Title: Re: In cycle? Out of cycle?
Post by echo on Aug 24^th, 2004, 3:20pm

Title: Re: In cycle? Out of cycle?
Post by Jeepgun on Aug 24^th, 2004, 4:45pm

I get that same pressure sensation, but it's not the same as a shadow at all. Autumn has traditionally been the time that I go into cycle, but last year, it skipped and I got hit with a cycle last spring instead, so this autumn, I'm not sure what to expect. All quiet on the western front, for the moment...

Title: Re: In cycle? Out of cycle?
Post by Mark C on Aug 24^th, 2004, 5:00pm

Hell I don't know either....on about a three days cycle of heavy shadows followed by three days of no shadows....still no meds needed so I ain't complaining.

After 30 years of this $hit I still cannot figure this thing out... :-/

Not complaining....yet...Mark

Title: Re: In cycle? Out of cycle?
Post by Cerberus on Aug 24^th, 2004, 5:05pm

Good Question...

I went to my GP after a similar anomaly...got meds re-scripted...reported today to the neuro, her advice? Start the Verapamil now....great. :P methinks I will wait another month....yeah I know...stupid, but I havent had a "Cycle" even really begin. I know the idea is preventative measures, but man I take so much crap already that I cant tell if its my med regimen triggering or if its a fluke and I REALLY dont want to add to the confusion with Verap and Adderal and Remeron and Alprazolam and and and and and already coursing through my system...makes me just wanna tell the beast to either hit me or get the fuck out.....DAMMIT! >:(

Ramon

Title: Re: In cycle? Out of cycle?
Post by IndianaJohn on Aug 24^th, 2004, 5:11pm

I would agree to be cautious with the verap. My GP told me the same thing and it wound up not working this cycle...I would definately wait...

Title: Re: In cycle? Out of cycle?
Post by crazy_mj on Aug 24^th, 2004, 5:16pm

I HAVE AN INNIE!!!
I know pretty lame.

ANYWAY....
I am in cycle but on a break...but the shadows are forewarning of impending doom!!!

Title: Re: In cycle? Out of cycle?
Post by BobG on Aug 24^th, 2004, 7:55pm

hey don

Stay stressed. Never relax. Never sleep. Ever.

and don't nap! Ever.

Doesn't anybody ever listen to me? 8)

Title: Re: In cycle? Out of cycle?
Post by Kris_in_SJ on Aug 24^th, 2004, 8:47pm

Ditto to BobG. Still in - don't nap!

Hugs,

Kris

Title: Re: In cycle? Out of cycle?
Post by Sean_C on Aug 24^th, 2004, 9:06pm

I'm with the rest of them Don, if you get hit your still in the cycle but its hopefully on the slide.

I have to tell ya, Lieberman is awesome, you picked a winner ;;D

Sean..................

Title: Re: In cycle? Out of cycle?
Post by athos on Aug 24^th, 2004, 11:57pm

perpetually in cycle... unless you every 4/5 days break

Title: Re: In cycle? Out of cycle?
Post by Mastifflvr28 on Aug 25^th, 2004, 1:40am

Number 2 pain in the ass about this disease (number 1 would be PAIN) is that I have to give up my nappies when in cycle. I really love my nappies.
Like BobG says...never take nappies.

Oh wait...I'm female...I don't get clusters...NM :)
Mast

Title: Re: In cycle? Out of cycle?
Post by BarbaraD on Aug 25^th, 2004, 7:41am

You take naps?????? That's a guarantee for me to get hit so I quit taking them years ago....

Just started back on topamax and hope to heck it works again ..... (fingers crossed). Been off it since last Oct. I could use a break right about now......

Hope you don't need the trex.....

Hugs BD

Title: Re: In cycle? Out of cycle?
Post by Rock_Lobster on Aug 25^th, 2004, 8:07am

on 08/24/04 at 12:26:26, Rock_Lobster wrote:

In.

Oh... I am not in. Just saying that IMO Don is in. If I have had a CH in the last few weeks, I would consider myself in.

I have been out-of-cycle since I shroomed a few months ago. Shrooms seem to be the reset button for my hypothalathingy.

Title: Re: In cycle? Out of cycle?
Post by Leesa on Aug 25^th, 2004, 4:07pm

I would bet my last dime your still in. Hope you dont need the Trex babe.
Now STFU Don!! :P BTW...........U suck............. :P
Love ya anyway, Leesa :-*

PS: Dave NEVER naps hes got to be REALLY sick if he does. Leaves the nappin to me. HEHHEEE ;)

Title: Re: In cycle? Out of cycle?
Post by don on Aug 25^th, 2004, 9:34pm

Quote:

Lieberman is awesome

If he moved to Utah I'd plan my vacations around appointments with him.

Do you see him?

Title: Re: In cycle? Out of cycle?
Post by Ree on Aug 25^th, 2004, 9:40pm

To me Don as long as you are getting hit you are in CYCLE......... sorry dude... better days ahead just believe and it will end..........love ree

Title: Re: In cycle? Out of cycle?
Post by don on Aug 25^th, 2004, 9:49pm

Thanks Ree. I'm not sweating it. I've taken Bob's advise and have been riding the MBTA for 103 hours straight.

Cant get anymore stressed than that! Just keep riding till the cycle ends.

Title: Re: In cycle? Out of cycle?
Post by Ree on Aug 26^th, 2004, 12:23am

LOL Don.......Keep on riding!
http://www.angelfire.com/ny4/KevsGifsGalore/Buses/citybus2.gifMaybe some Irishman will write a song about you... YOU'LL BE THE MAN WHO NEVER RETURNED.........Poor old Donny..........oh sorry I think they already wrote that song......... hopefully it will be over soon. When Daves cycle ends they space out and he gets less attacks per day too maybe this is a good sign......... ok tell me to STFU........... optimistic ree