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(Message started by: sandie99 on Aug 15th, 2004, 8:08am)

Title: Officially chronic
Post by sandie99 on Aug 15th, 2004, 8:08am
Hi guys,

the last time I was writing, I was on my way to see the neurologist. She confirmed that my episodic CH has turned into chronic. I got huge dose of maxalt for the pain and verpamil & verpamil for the prevention. I hope this combo works!!!


Best wishes to all,
sandie99

Title: Re: Officially chronic
Post by synergy2120 on Aug 15th, 2004, 8:14am
Sorry to hear that sandie, my partner is chronic.

sebding happy and PF vibes your way sweetie!!!

luv sarah xx

Title: Re: Officially chronic
Post by Becky on Aug 15th, 2004, 9:04am
(((( Sandie ))))

I am sorry to hear that you are now chroic. I pray that the meds do the job for you. Don't forget you are not alone, we are here for you.

Hugs
Bec

Title: Re: Officially chronic
Post by UN_SOLVED on Aug 15th, 2004, 9:19am
Sorry to hear.
That sux. You've been going for a year without much of a break heh ? I know how you feel.

Hope better days are coming for you !

Best wishes,

Unsolved

Title: Re: Officially chronic
Post by alleyoop on Aug 15th, 2004, 9:34am
Sorry to hear your diagnosis, Sandie. Seems like everytime you turn around, there's a new chronic. Be interesting to see how many of us there are now. Maybe we could start a CCH Club, elect UNSOLVED president! ;;D

Seriously, it's not a fun row to hoe. Hope you get relief soon!

.........................................alley :-/

Title: Re: Officially chronic
Post by farmboy on Aug 15th, 2004, 10:10am
sorry to hear that you have went chronic.  sure hope the meds do their job and give you some relief.

vibes to you


Title: Re: Officially chronic
Post by Jonny on Aug 15th, 2004, 10:45am
Verapamil & Verapamil is one hell of a combo ;;D

Good luck

.............................jonny

Title: Re: Officially chronic
Post by Jayne on Aug 15th, 2004, 10:48am
sorry to welcome you to the chronic club Sandie :'(
I hope you make a turnaround.

Title: Re: Officially chronic
Post by Prense on Aug 15th, 2004, 10:50am

on 08/15/04 at 10:45:05, Jonny wrote:
Verapamil & Verapamil is one hell of a combo ;;D

Good luck

.............................jonny


It is...   ;;D

Title: Re: Officially chronic
Post by IndianaJohn on Aug 15th, 2004, 11:31am
So sorry to hear of your diagnosis.  We're hear for you if you need us....

Best Wishes!

Title: Re: Officially chronic
Post by don on Aug 15th, 2004, 11:42am
I'll save a seat in the episodic box for you.

Hopefully you'll be able to reclaim it.

Title: Re: Officially chronic
Post by Jonny on Aug 15th, 2004, 11:47am

on 08/15/04 at 11:42:20, don wrote:
I'll save a seat in the episodic box for you.

Hopefully you'll be able to reclaim it.


Sorry dude, I just filled that seat, but.....she can sit on my lap ;;D

............................jonny

Title: Re: Officially chronic
Post by don on Aug 15th, 2004, 11:52am
Folding chairs.

I got folding chairs.

Title: Re: Officially chronic
Post by miapet on Aug 15th, 2004, 12:21pm
Sorry to hear your diagnosis . . . hope you're able to kick the beast to the curb soon.
*positive light and energy*
miapet

Title: Re: Officially chronic
Post by Karla on Aug 15th, 2004, 1:15pm
Well this chronic lady has been pain free for 22 weeks and is no longer chronic.  Yeah.  I am going to find a folding chair for me to sit on in the eposodics club house. ;;D

Title: Re: Officially chronic
Post by Mac on Aug 15th, 2004, 1:34pm
Sorry to hear you've been diagnosed as chronic Sandie. I've been chronic for 4 years(6 or 7 hits a week) but I've only had one hit in the last 2 months! I don't know if that qualifies as "in remission" or not but there is hope. Hang in there.

pfdan glen

Title: Re: Officially chronic
Post by ClusterChuck on Aug 15th, 2004, 2:50pm
Sandy, it is not the worst news that there ever was.  Remember our dear honorary clusterhead, Christopher.

There could be worst news.

There are plenty of us that survive with the handle of "chronic" ... It can be dealt with.  Some have had that title for over twenty years.  I have had it for over six years.  We are still here.  Don't let a title get you down.  You are a clusterhead.  Us clusterheads are tough.  We will not let the beast get the best of us.  We are stronger than he is.

Now forget about the word "chronic" and get on with living your life to the fullest.  Life is too great to worry about a word.

Life is wonderful!

Chuck

Title: Re: Officially chronic
Post by kimmiedawn81 on Aug 15th, 2004, 7:43pm

on 08/15/04 at 11:47:00, Jonny wrote:
Sorry dude, I just filled that seat, but.....she can sit on my lap ;;D

............................jonny


I would gladly give up my seat for good!

Title: Re: Officially chronic
Post by Charlie on Aug 15th, 2004, 11:32pm
Rats.

How I hate to read that another is added to the chronic list.  It ain't fair.

Here's hoping your combo works.

Charlie

Title: Re: Officially chronic
Post by Gator on Aug 16th, 2004, 1:36am
Sorry to hear the news.  Listen to Chuck, though.  You're clusterhead tough and life's too important to worry about a word.

Hang in there.

Gator



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