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        New Message Board Archives >> 2004 Posts >> Welcome to the board.....
        
(Message started by: Mark C on Aug 8^th, 2004, 7:50pm)

Title: Welcome to the board.....
Post by Mark C on Aug 8^th, 2004, 7:50pm

Welcome motye51......sorry you need us but glad you found us..

We all know all too well what these folks are going through.....

on 08/08/04 at 18:07:15, motye51 wrote:

My husband is now going on his 5th week of cluster headaches. He was just diagnosed Friday, August 6th. He is exhausted, depressed, losing weight, and just all out miserable. I don't even think that is a good enough word for it. We have 4 children and a small business. My whole house is waking up from 11:30 - 12:00 every night trying to help him get over this awful pain. But nothing we do seems to help. We finally got our hands on some medicine and we have the oxygen tank in our room.

The reason for this message is that I don't feel like I am going to be able to handle this if this is an ongoing thing? I know that sounds really terrible but my husband is so useless after he has these headaches it makes him debeliatated. I feel like he's turning back into a child? I know that sounds horrible on my part but I don't know what else to say. For 4-5 weeks now these headaches are running our business into the ground. I'm trying to get all 4 children ready to go back to school and it's just not working. No one in my house is sleeping because we're getting up with him. He's so scared to go to bed at night it's not even funny. Like clockwork - we go to bed for 9:00 - 9:30 at 11:30 he's up immediately throwing up and ice on the face and nothing we seem to give him works. I'm waiting for him to O.D. on all the freakin medicine he's on. Instead of feeling sympathy I'm getting mad and I know that's not right. These things are taking over my household and I hate them. Will they ever end? Will my husband ever be the same again? What can I do?

Whay say you Family? What do we do best around here?

Mark

Title: Re: Welcome to the board.....
Post by ShariRae on Aug 8^th, 2004, 8:13pm

SUPPORT!!!!!!
Now,, see if you can get hubby to the board to just talk,vent..whatever..we all have been there done that..and we understand...
theres lots of help and support for YOU as well...This is brutal on both the sufferer and their family...but we understand...and there is plenty of help & advice here.. pull up a chair..read...and ask questions...
Hang In There
Shari

Title: Re: Welcome to the board.....
Post by BillyJ. on Aug 8^th, 2004, 8:50pm

Quote:

Instead of feeling sympathy I'm getting mad

That's a good thing.But don't get mad at him,get mad
at the beast causing all this!!! Now FIGHT!!!!
How do you fight? First,start reading,read all the links to
the left here,knowlege is power.Second,goto the
supporters corner and get some support for yourself.
being a supportter is not an easy task.God bless our
supporters!Third,ask questions,learn how others deal
with this nightmare.
This is the place that you will learn,how to deal with
doctors and insurance companies,how to cope with this
demon.You CAN do it!You don't have to let the beast
win,it can only win if we let it!
I know it's not easy,but,NEVER give up!!!!
Pain free wishes to you,,hang in there,,,,,,BillyJ

Title: Re: Welcome to the board.....
Post by Becky on Aug 8^th, 2004, 8:57pm

((( Motye51 )))

Welcome to the family, but I am sorry you had to find us. We are here to help in anyway we can, ask all the questions you want, some one will have an answer or know where to get it. Read all you can, there is alot of info here that can help. Try and talk your husdand into joining us also.

Hugs

Bec

Title: Re: Welcome to the board.....
Post by motye51 on Aug 8^th, 2004, 11:45pm

My husband and I have been reading through all of the message boards. It's actually quite scarey. I almost don't know what to think. The reference to shadows we have to assume is the swollen, weird feeling in his right eye socket that never seems to leave. It's always there just in a 3-4 pain catagory. My husband said the reference of," The Beast!" is very appropriate. 5 weeks now he's had them every night, and the last 3 nights he managed to get a break from them. Today, at around 2:00 p.m. this afternoon, he got one which ranged in a 7. It came on really fast and furious. He dosed himself up with all of the medicines he's gotten and used the oxygen tank twice, which seemed to work. His question is now, can you take Imitrex as a prevenative before bed or only once the headache comes on? Our doctor really didn't specify. Also, can you take Imitrex more than once a day? Also, does anyone have any information on the side effects of Prednizone. He's complaining that his legs are hurting now. Just wondereing if that is a side effect?
Thanks,
Melissa

Title: Re: Welcome to the board.....
Post by Racer1_NC on Aug 8^th, 2004, 11:51pm

Prednizone will cause all kinds of side effects.....and it's nothing but a temp solution.....

Bill

Title: Re: Welcome to the board.....
Post by DaveHar on Aug 8^th, 2004, 11:53pm

motye51, Please get in touch with us. My e-mail is davenleesa@earthlink.net

I am a suffer and Leesa is my wife and support. Please contact us and we will do all we can to help. This board is a wonderful place and can help you allot. Once you e-mail us we can get to talking on the phone and you will find how not alone you are. Leesa or myself and many others will do all we can to help.

Dave

Title: Re: Welcome to the board.....
Post by Jeepgun on Aug 9^th, 2004, 1:24am

I'm so sorry that you had reason to search us out, but so glad that you did find us. Yes, by all means, read, vent, hammer the walls of this place! Whatever it takes to give you all the strength to get through this. Imitrex, if it's injectable, is only to be used as an abortive. It is not a preventative. In other words, taking a shot before bed isn't going to do anything except waste the shot and give him a good headrush.

Any chance of his doctor putting him on Verapamil? This seems to work for a great many people as a preventative.

Very best wishes to you both.

-Frank

Title: Re: Welcome to the board.....
Post by BlueMeanie on Aug 9^th, 2004, 1:07pm

Welcome Motye.

Sorry to hear your Hubby is in so much pain right now. If it is a typical episodic cycle, it shouldn't be much longer before he's PF again. I agree with Jeep. See about getting off the prednisone and ask the doc about Verapamil as a prevent instead. Meds work differently for each person. Imitrex is an abortive. Have your hubby read the Imitrex tip to the left of this page. He will find that 1/2 shot works as well as a full shot. Is the 02 working ? Does he have a 12-15 ltr. flow regulator ?

Good luck to you and your Hubby. Sending PF vibes your way.