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Title: New Effort At An Interview/Article Post by Jeepgun on Jul 30th, 2004, 3:03pm I just finished firing off the following letter to my local newspaper. Hopefully, some good will come of it... _____________________________________________ To Whom It May Concern; I was interviewed for the following article that appeared in the Pittsburgh Post Gazette. http://www.post-gazette.com/pg/04160/328352.stm I don't know whether you would be interested in doing an article on cluster headaches, but if so, I would be glad to participate. One of the most hellish aspects of cluster headaches, is that they affect only .1% of the population, and physicians, neurologists, ENT doctors, and emergency room personnel are woefully uninformed about these headaches which have been characterized in medical journals as "suicide headaches." There is also a link at the bottom of this message that will take you to a site on cluster headaches, where you may read some accounts of what these headaches are like. These aren't "Uncle John's, migraines," or "Aunt Bessie's tension headaches." Cluster headaches have been classified as the worst pain known to mankind. If you are interested in doing an article about cluster headaches, I may be reached on the weekend and during the evenings at ***-****, or during the day at ***-****. Thank you for your consideration. Sincerely, -Frank H. Weeden (Cluster headache sufferer for 7 years) -- Cluster Headache Sufferers Support: http://clusterheadaches.com/ (page down to the text in red that reads, "Want to know what it's like to live with cluster headaches?" ) |
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Title: Re: New Effort At An Interview/Article Post by UN_SOLVED on Jul 30th, 2004, 4:13pm I'd be interested in seeing if and how they respond. Let us know. Keep fighting the fight ! Unsolved |
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Title: Re: New Effort At An Interview/Article Post by Jeepgun on Jul 30th, 2004, 4:15pm Right on, man. I live in a little one-horse town with a crappy little newspaper, but some good may come out of it. We'll see... Thanks! Frank [O|||||O] JEEP |
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Title: Re: New Effort At An Interview/Article Post by purpleydog on Jul 31st, 2004, 8:36pm on 07/30/04 at 16:15:48, Jeepgun wrote:
Why don't you fire it off to a newspaper in Nashville too? You'd get more exposure and may possibly be picked up by other news services. pd |
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Title: Re: New Effort At An Interview/Article Post by john_d on Jul 31st, 2004, 8:53pm That is the first time I have seen that article, it is excellent. :) Good job. |
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Title: Re: New Effort At An Interview/Article Post by Carl_D on Jul 31st, 2004, 9:05pm on 07/31/04 at 20:36:00, purpleydog wrote:
ESPECIALLY since we just had the CH Convention there. Mention that. CD |
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Title: Re: New Effort At An Interview/Article Post by RevDeFord on Aug 1st, 2004, 8:57am Absolutely Awesome article. I wrote her a letter thanking her. |
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Title: Re: New Effort At An Interview/Article Post by kimh on Aug 1st, 2004, 9:52am Frank, Great interview! Reading stuff like this gives a great sense of hope*** |
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Title: Re: New Effort At An Interview/Article Post by Jeepgun on Aug 1st, 2004, 12:16pm Thanks! I just sent a copy to Paige Orr at the Nashville Post, as well, and mentioned the convention. http://www.nashvillepost.com Sooner or later, someone is going to pick this up and run with it. Frank [O|||||O] JEEP |
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Title: Re: New Effort At An Interview/Article Post by Jeepgun on Aug 2nd, 2004, 11:15am Just got off the phone with Paige Orr, who was so kind, and gave me some leads to some other newspapers. Apparently, hers is a business publication, but I'm now at the Tennessean's website, and I have another lead with The City Paper, so cross your fingers... :) *rowing and rowing and rowing and rowing and...* |
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Title: Re: New Effort At An Interview/Article Post by Jeepgun on Aug 3rd, 2004, 9:42am What the hell does it take to get any kind of reply from anyone? Grrrrr.... >:( I just sent off another copy of my letter to someone at "The City Paper." I'm still trying to find an email address for someone at the "Tennessean." If this doesn't work, then maybe I'll try the outlying areas like Murfreesboro, Antioch, etc. |
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Title: Re: New Effort At An Interview/Article Post by Jayne on Aug 3rd, 2004, 10:05am I talked to the medical reporter at the Tennessean and I emailed him a BUNCH of info, but to no avail it seems. I also told him about the convention and sent him info about our speakers, and I told him about the news segment. I am sorry Frank but I cant remember the Wally's name. If you type in the word clusterheadaches in thier search engine...nothing/ I know they did a huge article years ago about botox curing cluster headaches and migraines. I sent the article to BobP when it happened. The guy they interviewed was Joe Catoe I believe. I tracked him down and called him, and he was indeed getting relief from botox. They were injecting him in the base of his neck. The doctors office he was seeing here in Nashville \gave me no help and wouldn't give me a script for o2. I hope this info helps you a bit. |
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Title: Re: New Effort At An Interview/Article Post by Jeepgun on Aug 3rd, 2004, 10:09am Thank you, Jayne. You rock! I just don't understand the reluctance of newspapers to do a story on this. I mean, the story practically writes itself, and from a journalistic standpoint, it's intriguing, dramatic, and something that the readership would have an interest in. If I were a journalist, I would be all over this like stink on.... er.... I would write an article on it. [smiley=laugh.gif] In any case, I have a hell of a lot of tenacity, so I'm going to keep plugging away at it. Sooner or later, someone will write an article, and then someone else, and then someone else, and little by little, like the snowball that starts an avalanche, the word IS going to get out. Thanks again. -Frank |
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Title: Re: New Effort At An Interview/Article Post by Little Deb on Aug 3rd, 2004, 10:03pm You go JEEP!! Can I nominate Jeep for something??????????????? |
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Title: Re: New Effort At An Interview/Article Post by ClusterChuck on Aug 3rd, 2004, 10:08pm He is jes trying ta get HIS picture in the paper this time, instead of that scrufty ass bumm they had in the original story! Luv ya Franky baby !!! Chuck |
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Title: Re: New Effort At An Interview/Article Post by don on Aug 3rd, 2004, 10:33pm Quote:
You already answered your own question. Quote:
I wouldn't include that little tidbit in the next communication. |
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Title: Re: New Effort At An Interview/Article Post by TxBasslady on Aug 3rd, 2004, 11:19pm Look at the medical community......lots of them have never heard of CH either ! Education is a given. Your idea is good, but unless you can find a news reporter, or someone in the media business, who has CH, then the response may be less than desired. I am not suggesting that you give up, Frank. Try and be patient.....we have CH and we know what it's like. You will eventually find someone with a voice. Jean |
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Title: Re: New Effort At An Interview/Article Post by Turts on Aug 3rd, 2004, 11:37pm Quote:
Gday Jeepgun, I tried to contact you on both numbers above and there was no answer at either one!!! lol Great work mate. Really trying to give that OUCH mission statement about educating the masses a hammering, GO GET 'EM!!! Turts |
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Title: Re: New Effort At An Interview/Article Post by Ree on Aug 4th, 2004, 12:22am VERY COOL.........JEEP ~~~ REE |
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Title: Re: New Effort At An Interview/Article Post by Jeepgun on Aug 4th, 2004, 8:51am Thanks for the encouragement and the suggestions. I appreciate it. Turts, the reason you couldn't get through is because you have one of those weird Aussie phones, and the electrons in the lines "swirl" the wrong way. ;;D 8) |
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Title: Re: New Effort At An Interview/Article Post by Turts on Aug 4th, 2004, 8:59am Quote:
Phone??? I was using a baked bean can and some string!!! whats a phone???? sounds like a sexual aid!!! Turts lol 8) |
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Title: Re: New Effort At An Interview/Article Post by Jeepgun on Aug 4th, 2004, 9:01am LMAO!! That must have been one hella-LONG piece of string! [smiley=crackup.gif] |
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Title: Re: New Effort At An Interview/Article Post by Turts on Aug 4th, 2004, 9:08am I sent my mate out in a dinghy to hold the string out of the water!!! He should be on his way back by now, its been three days!! Turts |
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Title: Re: New Effort At An Interview/Article Post by Jeepgun on Aug 4th, 2004, 9:12am Jeez... What is he, some kind of slow swimmer? Man, I thought you Aussies were TOUGH!! ;;D Actually, he's probably out playing around with the sharks, taming them, and turning them into the equivalent of sea-going kitty cats. LOL |
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Title: Re: New Effort At An Interview/Article Post by Turts on Aug 4th, 2004, 9:20am I have read that only humans and dolphins engage in sex purely for physical pleasure!!! enough said. Thats and he stopped off for some duty free shopping!!! Turts |
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Title: Re: New Effort At An Interview/Article Post by Jeepgun on Aug 4th, 2004, 9:43am Yeah, but really: Just how many cartons of cigarettes and bottles of scotch can one inflatable raft hold? ;;D 8) (Then again, maybe he's offering the traditional post-coital cigarette to the dolphins?) [smiley=laugh.gif] |
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Title: Re: New Effort At An Interview/Article Post by Turts on Aug 4th, 2004, 9:52am Quote:
he just called on the tin can phone!! Hes got two cartons of smokes, 2 bottles of jack Daniels an exhausted Dolphin and no cigarette lighter!!! ( no, no partidge in a pear tree, thats next trip) Turts |
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Title: Re: New Effort At An Interview/Article Post by Jeepgun on Aug 4th, 2004, 9:55am ROFLMAO!! "...an exhausted dolphin." LOL!! Trying to figure out who got the better end of that bargain! LOL! (er... or should I start looking for a congratulations card and a nice wedding present?) [smiley=laugh.gif] |
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Title: Re: New Effort At An Interview/Article Post by Turts on Aug 4th, 2004, 10:09am Quote:
I wouldnt go shopping just yet Jeepgun, the dolphin hasnt returned his call. He has been sitting by the baked bean can all night. Turts |
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Title: Re: New Effort At An Interview/Article Post by Jeepgun on Aug 4th, 2004, 10:15am Oh no..... Kicked to the curb... Well, at least he has the whiskey for which to drown his sorrow... Poor fella. ;;D |
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Title: Re: New Effort At An Interview/Article Post by don on Aug 4th, 2004, 10:36am BY the way Jeep, dont give up the effort. My reponse was meant to be constructive criticism. Newspapers viewpoint. "If it only effects .1% of the population then what % of my readership is included in the .1%? Screw that, one of the Hilton sisters is puking again, I'll run that headline" |
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Title: Re: New Effort At An Interview/Article Post by Carl_D on Aug 4th, 2004, 10:49am Keep plugging away at it Jeep. I know how frustrating it is trying to get the medias attention. I went through hell back when I did OUCHFest trying to drum up media attention. Most people think I shaved my head before the event. Actually, I pulled it all out from frustration, anger, etc. I had a deadline, but you don't. Keep plugging away, and try making connections with people from each publication you write. Build a relationship but above all - REMAIN VISIBLE! When they see how persistent you are, they will eventually break down. The squeaky wheel always gets the grease right? Peace, Carl D |
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Title: Re: New Effort At An Interview/Article Post by Jeepgun on Aug 4th, 2004, 11:29am I appreciate the suggestion, Don. You are correct. Thank you. Right on, Carl. If I have the tenacity to slug it out with cluster headache cycles for seven years with no medication, the media's apparent lack of interest is only the most minor of bumps in the road. "I have not yet begun to fight." ;;D |
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