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Title: Cluster Theory? Post by Carl_D on Jul 26th, 2004, 8:47pm I shared this with a few people at convention who believe this could be a possibility, and I have posted this before. I have a theory as to the cause of Clusters. What if the head is merely suffering the symptom of a problem elsewhere in the body? It has been proven by research that the brain can rejuvenate cells. When someone experiences pain, the first part of the brain to get the signal is the Hypothalamus. It would make sense that since Clusterheads are constantly subject to extreme pain, that the Hypothalamus is working overtime. Therefore, with the Hypothalamus receiving so many signals so often, it becomes enlarged. Just as the enlargement of the Hypothalamus is not easily detected with most tests, MAYBE there is a defect in the heart that isn't necessarily detectable by Ekgs, or other tests. I believe there could be a defect in the heart, or elsewhere in the circulatory system. That could be why they haven't found the cause for CH yet. They could be looking for the cause in the head while it is suffering the symptom of a problem elsewhere, and just maybe that is why they can't pinpoint the cause of CH. Does this make sense to anyone else? Just my own personal theory. Peace, Carl D |
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Title: Re: Cluster Theory? Post by Jeepgun on Jul 26th, 2004, 8:49pm That makes a lot of sense, Carl. Very interesting theory! |
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Title: Re: Cluster Theory? Post by cootie on Jul 26th, 2004, 9:19pm Brad got hit int he head with a hammer someone dropped from a garage roof while helpin install a huge old satillite dish......does that count ? Cuz after that is when they started up......but his mom told him his great grandma had some sort of severe headaches and used to hold a wet rag on the side of her face or head. No one has any idea if it was clusters or not.....too long ago and no one has any more info that that. Wham bam slam Pam |
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Title: Re: Cluster Theory? Post by don on Jul 26th, 2004, 10:18pm Yup. Makes sense. But with these wierd ass headaches my mother not saying she loved me enough when I was a toddler is plausable to. |
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Title: Re: Cluster Theory? Post by floridian on Jul 27th, 2004, 11:58am The whole 'cause' of clusters is a huge chicken and egg problem. It's clear that the headaches are only the most visible symptom of a disease that is widespread through the body. Even episodics are different 24/7/365 - not just for a few hours per day for 2 months per year. The hypothalamus is different, but its not clear why. In clusterheads, blood cell membranes are different. Choline levels are low. Blood coagulates differently. Magnesium is often low. Receptors for adenylate cyclase and some adrenaline compounds are whacked. Cellular metabolism is different. The immune system is altered. The list goes on. The hypothalamus/serotonin angle gets lots of attention because it does reduce pain. That's good, but its not a good idea to assume that other parts of the brain and other neurotransmitters are not important. |
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Title: Re: Cluster Theory? Post by Jeepgun on Jul 27th, 2004, 12:11pm Immune system? That's interesting... I wonder how often clusterheads get sick, and if it differs from the ordinary population. I've had one cavity in my entire life, never had mumps, measles, and didn't get chickenpox until I was 22 years old. I've had the flu twice in my life: When I was 6 years old, and again, when I was 23. About six years ago, I had strep throat and a fever that landed me in bed for a day. Other than that, I never get sick, have no allergies, and have had almost a preternatural resistance to ordinary diseases, even when I was working in a hospital. |
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Title: Re: Cluster Theory? Post by don on Jul 27th, 2004, 12:34pm Thats a good point Jeep. I've been incredibly healthy my entire life. Considering I tried my best to poison myself with alcohol and toxins for about three decades, thats quite a feat. I have smoked a least a pack a day since my teens and consume gallons of coffee daily. In fact I have Hepatitus C, have had it for many years, and have been, for the most part, asymptomatic. Other than an exploding appendix, I have never required any type of surgical procedure. Blood pressure is great. Heart rate good. I get common colds once in awhile but thats about it. |
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Title: Re: Cluster Theory? Post by aprilbee on Jul 27th, 2004, 12:42pm I've always been a healthy person too...when I was younger, the shot that they give you for measels and rubella (sp?) didn't take, I could have contracted either one because I wasn't properlly inocculated...they didn't discover it until I was pregnant, I had to get the shot after I delivered my daughter...I had chicken pox and the flu maybe once in my entire life!! I don't have allergies, this is a very interesing topic. :) |
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Title: Re: Cluster Theory? Post by Racer1_NC on Jul 27th, 2004, 12:45pm I believe that we have a gene that makes CH possible, but that alone doesn't cause it. I think other external factors have to be present for CH to appear. What they are, I have no idea. They could range from head injury, stubbing your toe as a kid, chemical exposure, or anything else you can come up with. So far I see no 100% common thread among us. Weird stuff these clusters......... Bill |
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Title: Re: Cluster Theory? Post by Jeepgun on Jul 27th, 2004, 12:49pm on 07/27/04 at 12:45:52, Racer1_NC wrote:
Yes, but they do stay crunchy in milk... [smiley=gocrazy.gif] |
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Title: Re: Cluster Theory? Post by aprilbee on Jul 27th, 2004, 12:52pm on 07/27/04 at 12:49:07, Jeepgun wrote:
[smiley=laugh.gif] LOL...funny |
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Title: Re: Cluster Theory? Post by Racer1_NC on Jul 27th, 2004, 12:54pm on 07/27/04 at 12:49:07, Jeepgun wrote:
Figures....I like mine soggy..... ;;D |
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Title: Re: Cluster Theory? Post by KingOfPain on Jul 27th, 2004, 1:06pm on 07/27/04 at 12:11:38, Jeepgun wrote:
Me: ____________________________________________ CH Osteoarthritis, right & left hands/wrists Carpal Tunnel, right & left hands/wrists Tendonitis, right & left hands/wrists Restless Leg Syndrome [RLS] Mitral Valve Prolapse hereditary Bronchitis hooked on Clusterheadaches.com ____________________________________________ Guess there is an exception to every rule. :( |
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Title: Re: Cluster Theory? Post by Jeepgun on Jul 27th, 2004, 1:14pm Not necessarily, KOP: Those things are musculo-skeletal or hereditary, and have nothing to do with the immune system. |
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Title: Re: Cluster Theory? Post by Jayne on Jul 27th, 2004, 1:21pm I've had the Flu once in my life....not many colds at all. One ear infection. THAT"S IT |
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Title: Re: Cluster Theory? Post by don on Jul 27th, 2004, 1:40pm This is getting interesting. Jeep is right KOP. Those conditions aren't related to the immune system. Hep C certainly is and I've been asymptomatic. |
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Title: Re: Cluster Theory? Post by Georgia on Jul 27th, 2004, 1:52pm Carl - I think its a very vaild point that the CH could be a symptom of a problem in some other part of the body. What doesn't jive for me when thinking of the heart is when I think about remission, episodics, clock-like timing of the headaches, etc. Charlie for example...if it were a heart problem, did it just get better all of a sudden and stop his headaches for 13 (?) years now? And for the people who have a cluster every fall, why would the symptoms of a heart problem only appear once a year? at a certain time of day? stop? start again? I dunno. Very interesting topic though. As far as immune systems - I get sick a lot. Mononucleosis when I was 7 ( I started kissin' real young), recurrent strep throat and ear infections all my life, colds, flus, cat scratch fever or the bubonic plaque - they weren't quite sure which after the biopsy, blah blah. Peace and love, Georgia |
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Title: Re: Cluster Theory? Post by CJohnson on Jul 27th, 2004, 1:56pm on 07/27/04 at 12:45:52, Racer1_NC wrote:
Smoking like a chimney is pretty damn close to 100%. PFDANs -Curtis |
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Title: Re: Cluster Theory? Post by Racer1_NC on Jul 27th, 2004, 2:00pm on 07/27/04 at 13:56:54, CJohnson wrote:
Not 100%, but close.....I know a few that do not, and have not ever smoked. Bill |
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Title: Re: Cluster Theory? Post by floridian on Jul 27th, 2004, 2:07pm Most of the interesting immune work has been done in Italy - here are two abstracts that cover it pretty well. Quote:
Quote:
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Title: Re: Cluster Theory? Post by Jeepgun on Jul 27th, 2004, 2:12pm Very interesting stuff... I'm going to write a blues song entitled, "O Doctor, What's Wrong With My Head." 8) -Blind Melon Jeepgun |
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Title: Re: Cluster Theory? Post by floridian on Aug 1st, 2004, 12:48am Just came across this on the heart and clusters Quote:
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Title: Re: Cluster Theory? Post by jhammer on Aug 1st, 2004, 1:09am I've been pretty healthy my whole life. I got the mumps when I was three, other than that I've got nothing else on my record really. Just a bunch of broken bones, cavities, cuts, bumps, bruises. Oh wait...I've had my heart broken a million times...does that count? ;) A wierd thing has occured to me recently though, right after my first cluster attack (about 3 years ago) I got a strange pain in my 'gut area' I guess you would call it that. It was directly to the right of my belly button on my side kinda. It lasted for about another month afterthe headaches went away, then it too dissappeared. After this last cluster, my second, I started to get the same pain again only it hasn't evolved to point it did the last time...yet. I saw the doc for it back then but never got a diagnosis. It hasn't really bothered me enough this time to make an appointment. I wonder if it could be related? |
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