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        New Message Board Archives >> 2004 Posts >> Unsolved gets slammed
        
(Message started by: UN_SOLVED on Jul 25^th, 2004, 11:30am)

Title: Unsolved gets slammed
Post by UN_SOLVED on Jul 25^th, 2004, 11:30am

I sure did enjoy some PF time during the convention. It lasted over 4 day and it was a great break.
Then ... over a dozen injections in 2 days. A 3 day hospital stay for IV Solu Medrol and a touch of DHE IV (4mg total). I'm out now out and on a steriod taper again.
Maybe the beast knew he was about to get shot at with a new 'treatment' and wanted to keep me down. I haven't got to try the treatment yet...BUT I WILL !
Gotta be at MHNI on Monday morning.
I mentioned C.H.A.T.S. to my local neuro. He thought it sounded like a great idea and is looking forward to the 'finished product. I'll mention this to doctors at MHNI tomorrow too. Thanks to everyone who put effort into CHATS. I believe it will show to be a very useful data collecting tool. I hope many Clusterheads get involved !

Unsolved

Title: Re: Unsolved gets slammed
Post by ClusterChuck on Jul 25^th, 2004, 11:37am

DAMNIT!!!! I hate when the beast does that!!! He gives you some slack or PF time, and then he makes up for it! The BASTARD!

Sorry he nailed you so hard ...

Chuck

Title: Re: Unsolved gets slammed
Post by JDH on Jul 25^th, 2004, 11:40am

on 07/25/04 at 11:30:21, UN_SOLVED wrote:

Maybe the beast knew he was about to get shot at with a new 'treatment' and wanted to keep me down. I haven't got to try the treatment yet...BUT I WILL !
Unsolved

I hope you get to take your shot with your new treatment soon Michael, you need a break.
good luck,

Jim

Title: Re: Unsolved gets slammed
Post by Cathi04 on Jul 25^th, 2004, 11:43am

MIchael..doggoneit! It was so nice to know you had some PF time...but as Cluster Chuck told me... the beast keeps a tally sheet..and he always manages to get even..............I HATE THAT!

I sure hope the steroids do some slamming BACK!

BTW, your hat will be in the mail tomorrow..
Cathi

Title: Re: Unsolved gets slammed
Post by Redd715 on Jul 25^th, 2004, 11:46am

WTF??

The beast just can't seem to leave some of us alone for very long.

Huge vibes and all the best to you in your new round of treatment Bro!

Luv ya....

Redd

Title: Re: Unsolved gets slammed
Post by Jeepgun on Jul 25^th, 2004, 11:53am

Damn... I am so sorry. I hope the new treatment holds some promise for you. Hugs to you, bro'.

-Frank

Title: Re: Unsolved gets slammed
Post by broomhilda on Jul 25^th, 2004, 12:14pm

Damm, sorry to hear that, I really hope the new treatment will bring you well deserved break from the beast....

Hugs and vibes to you...

Andrea

Title: Re: Unsolved gets slammed
Post by brain_cramps on Jul 25^th, 2004, 12:44pm

Hoping for more PF time for you (and everyone here),
grant

Title: Re: Unsolved gets slammed
Post by alleyoop on Jul 25^th, 2004, 2:14pm

Hey Michael,

SOB, it's like the Beast has picked you for his poster child! I remember our conversation in Nashville about your new treatment. BTW, you've got a helluva good friend for support (what is his name? Jeff?) Anyway, I sure hope it works for you. If anyone deserves success, it's you Michael! I have been PF since the convention myself, until last night. Got hit hard 4 times (7 shots of trex), so it looks like the party is over for me. Looks like I've worked out the details though, to try the same treatment in the next few weeks. I'll keep you posted & please do the same for me.

Good Luck Michael................luv ya man..................

..........................................................alley

Title: Re: Unsolved gets slammed
Post by Samantha_Smith on Jul 25^th, 2004, 2:43pm

So very sorry to hear that The Beast returned. Hang in there. Samantha

Title: Re: Unsolved gets slammed
Post by ZAIRA on Jul 25^th, 2004, 4:15pm

Oh Michael, I'm very sorry.... :'( but think so: You Have an inexhaustible strength and positivity source :) which often in the every day’s life of this bad world gets lost and sends you in the caos……

Love to you, dear friend, Zazi

Title: Re: Unsolved gets slammed
Post by don on Jul 25^th, 2004, 4:26pm

Hang tough bud.

They'll get you some help down at the MHNI.

Thats the Mental Health and Nervous Istitute right?

Heard they got ceramic groups in the day room.

What are you gonna do bout dem headaches though.

Title: Re: Unsolved gets slammed
Post by CarrieBethRN on Jul 25^th, 2004, 5:43pm

Hiya Michael,

So sorry that the PF times didn't last. :( However I think awhile back when I was upset that the beast came back after the pred taper bought a few days of relief, you said to me that a few days is better than none. How true that is. But still not any easier when it comes back with a vengence. >:(

Let me know how that new treatment works for you... I'm interested in hearing how it goes.

Again, great to meet you in Nashville, and vibes coming your way!!

Carrie/Lizzie2 :)

Title: Re: Unsolved gets slammed
Post by Kevin_M on Jul 25^th, 2004, 7:45pm

Good luck Michael with treatment. Nice to get the rare opportunity to meet you pain free. Hoping that happens again and again.

Kevin M

Title: Re: Unsolved gets slammed
Post by E-Double on Jul 25^th, 2004, 9:26pm

Hang in there and much luck with the treatment!!!!

Title: Re: Unsolved gets slammed
Post by Charlie on Jul 25^th, 2004, 10:14pm

Rats.

Ya never get a break. >:(

Here's hoping you get one this time. Let us know how you're doing.

Charlie

Title: Re: Unsolved gets slammed
Post by Gator on Jul 26^th, 2004, 5:54pm

on 07/25/04 at 16:26:29, don wrote:

No, it stands for Michigan Home for the Notriously Insane. I heard about them ceramic classes, though. And fingerpainting. LOL

Sorry to hear you're getting it so hard, Michael. I pray for better times for you.

Gator

Title: Re: Unsolved gets slammed
Post by Jonny on Jul 26^th, 2004, 6:02pm

Hang in there Mike!!

............................jonny

Title: Re: Unsolved gets slammed
Post by Cerberus on Jul 26^th, 2004, 8:45pm

Mike I really hope the new treatment works for ya...glad ya got a break though, even as short lived as it was.

PF,
Ramon

Title: Re: Unsolved gets slammed
Post by Carl_D on Jul 26^th, 2004, 8:52pm

Sorry to hear that the beast is hitting you hard again, though it sounds like you're going to the right place. When I lived in MI, I was a patient at MHNI (Michigan Head-pain and Neurological Institute) under the care of Dr. Weintraub. They put me on the Verapamil / Lithium combo, and o2 for an abortive. Helped me keep the beast at bay for a couple of seasons. I just wish the Verapamil still worked for me. I hope you get some relief soon bro.

Peace,
Carl D

Title: Re: Unsolved gets slammed
Post by Leesa on Jul 27^th, 2004, 2:55pm

Mike sorry to hear the beast retured hun. Hope this new treatment kicks some butt big time. Glad to hear you had some much deserved PF time. Hang in there hun.
Vibes going, Leesa