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        New Message Board Archives >> 2004 Posts >> C.H.A.T.S. Overview - Ed. 8/18 
        
(Message started by: Magman on Jul 21^st, 2004, 3:08pm)

Title: C.H.A.T.S. Overview - Ed. 8/18
Post by Magman on Jul 21^st, 2004, 3:08pm

All updated information has been placed in the pdf file found via this link... C.H.A.T.S. (http://www.kdlltd.com/System.pdf)

Kind regards,
-dan

Title: Re: Nashcon presentation - C.H.A.T.S.
Post by BruceD on Jul 21^st, 2004, 3:14pm

Dan,

Thank you so much for all you have done with CHATS I was sitting with Thomas during your presentation and we were utterly amazed at how thorough & well-managed CHATS is. It is a tremendous development to give credence to the significance of CH.

I'll also urge everyone to participate and ACTIVELY contribute their data to CHATS once it goes "online". That data will really make a difference in how researchers and drugcos "see" clusterheadaches ... and that will help us all defeat CH.

Thanks again
BruceD

Title: Re: Nashcon presentation - C.H.A.T.S.
Post by Luke63 on Jul 21^st, 2004, 3:15pm

HEY....EVERYNE NEEDS TO SEE THIS OK?????? These people have probably spent countless hours...and days on this. This program is gonna knock the socks off the medical community..as well as benefit us all greatly!!
Applause to you guys!!!!! Luke

Title: Re: Nashcon presentation - C.H.A.T.S.
Post by vig on Jul 21^st, 2004, 3:18pm

Free distribution or royalties to Dan, Svenn, Grant, and Zazi!

Fantastic work team!

Title: Re: Nashcon presentation - C.H.A.T.S.
Post by Jeepgun on Jul 21^st, 2004, 3:47pm

HOORAY!! Above anything else, this is the piece of the presentation that really opened my eyes. The potential for educating doctors and setting up a clear, methodical approach to finding a cure is just staggering... *applauding*

P.S. I can't get anything of the on-line presentation beyond the opening screen...

Title: Re: Nashcon presentation - C.H.A.T.S.
Post by Jimi on Jul 21^st, 2004, 4:57pm

It works well on my puter Magman. Maybe a little slow, but it is very professional. Thanks to all who has a part in this.

Title: Re: Nashcon presentation - C.H.A.T.S.
Post by BarbaraD on Jul 21^st, 2004, 6:23pm

This was an awesome presentation and the possibilities are endless for us. Thanks Dan, Svenn and Grant for all the hard work.

Hugs BD

Title: Re: Nashcon presentation - C.H.A.T.S.
Post by DaveHar on Jul 21^st, 2004, 8:25pm

Wonder if DJ will lock it at the top so it does not get lost in all the posts. I know i hate searching for stuff and with the amount of posts made here daily we would loose this.

CHATS team you all did a outstanding job. Thank you for all you have done.

I'll be in touch

Dave

Title: Re: Nashcon presentation - C.H.A.T.S.
Post by alleyoop on Jul 21^st, 2004, 8:50pm

on 07/21/04 at 15:47:32, Jeepgun wrote:

I can't get anything of the on-line presentation beyond the opening screen...

Same here, unless there's a hidden link I missed. The title page ROCKS!!!

................................alley

Title: Re: Nashcon presentation - C.H.A.T.S.
Post by Magman on Jul 22^nd, 2004, 5:55am

Due to slow execution and some persons not gettng past the first slide in the presentation I have placed the Power Point file on the server for FTP download.

Please go to ftp://kdlltd.com/pub/chats/ and simply drag the CHATS-1.ppt file to your local hard drive.

Questions or problems??? Please refer communication to chats@kdlltd.com

Peace,
-dan

Title: Re: Nashcon presentation - C.H.A.T.S. FTP added
Post by miCHel on Jul 22^nd, 2004, 10:17am

I can only say Wow!!!

I think this is a brilliant idea. It has the potential to create a real breakthrough for CH treatment.

I am anxious to begin a new cycle. OK... That last part is totally untrue but man am I impressed.

Big congratulations and thanks to the team! Terrific work!!!

miCHel

Title: Re: Nashcon presentation - C.H.A.T.S. FTP added
Post by ave on Jul 22^nd, 2004, 10:40am

On my puter the picture does not move. Nothing to click...

I do have Windows 98, only, is that the problem?.

Title: Re: Nashcon presentation - C.H.A.T.S. FTP added
Post by Jeepgun on Jul 22^nd, 2004, 12:55pm

I downloaded the powerpoint presentation from the ftp link, then downloaded a powerpoint viewer from Microsoft, and voila: I was able to view it. (Was there supposed to be sound with it too?) Anyway.. Thanks for all the hard work. I am optimistic about what this program will mean for the future.

Title: Re: Nashcon presentation - C.H.A.T.S. FTP added
Post by Magman on Jul 22^nd, 2004, 2:13pm

on 07/22/04 at 12:55:22, Jeepgun wrote:

Sorry, no sound with this version. I am looking into having this turned into a Flash presentation.

Thanks Jeep, for the Viewer info. I have placed a copy of the MS Power Point viewer in the same location for those that require it.

Thanks,
-dan

Title: Re: Nashcon presentation - C.H.A.T.S. FTP added
Post by Melissa on Jul 22^nd, 2004, 2:19pm

I do know that in order to get past the first page, you need to right click your mouse, then click "next" to get to the next page.

At least, that's what i had to do.

:)mel

Title: Re: Nashcon presentation - C.H.A.T.S. FTP added
Post by floridian on Jul 22^nd, 2004, 2:28pm

Just went through the presentation. AWESOME !!

Title: Re: Nashcon presentation - C.H.A.T.S. FTP added
Post by alleyoop on Jul 22^nd, 2004, 4:41pm

on 07/22/04 at 14:28:52, floridian wrote:

Just went through the presentation. AWESOME !!

You nailed it floridian! I used the ftp link and thanks Dan for the powerpoint download link.

.............................................alley :o

Title: Re: Nashcon presentation - C.H.A.T.S. FTP added
Post by Charlie on Jul 22^nd, 2004, 5:42pm

Great thing you've done here and it's terrific.

It moves but slowly for me. Nothing to click so far but I'll try Mel's idea.

Wonderful thing you've all done.

Charlie

Title: Re: Nashcon presentation - C.H.A.T.S. FTP added
Post by Gator on Jul 22^nd, 2004, 6:06pm

This looks incredibly awesome. Kudos to all who participated in the creation of this.

Gator

Title: Re: Nashcon presentation - C.H.A.T.S. FTP added
Post by echo on Jul 22^nd, 2004, 6:08pm

Very nicely done.

I'd be happy to help with beta testing if you need another body.

Title: Re: Nashcon presentation - C.H.A.T.S. FTP added
Post by Mastifflvr28 on Jul 23^rd, 2004, 12:54am

Thanks so much C.H.A.T.S. contributors...
for being...
Part Of The Solution!
Mast

Title: Re: Nashcon presentation - C.H.A.T.S. FTP added
Post by Kevin_M on Jul 23^rd, 2004, 9:22am

Dan,

The whole presentation was well done. I see it as a program that, if committed to a data entry regime by us, can bring more real time info to the fingertips of doctors, and pharm companies should be peeking too.
Everyone involved has done a great job to create a good compiling method for what clusters have to deal with, and to get doctors informed, long desired needs of ours to have out there. Thank you all for the work involved, and time and skills put to the cause.

Kevin M

Title: Re: Nashcon presentation - C.H.A.T.S. FTP added
Post by Superpain on Jul 24^th, 2004, 6:28am

I mentioned this very thing as "Wouldn't it be cool if..." statement a long time ago.
Very cool.
Work it out with GSK so that every regular participant gets an extra discount on trex! Or something... [smiley=huh.gif]

I'll be out of cycle for a while, but I'll participate fully when I start getting nailed again! [smiley=deal2.gif]

Title: Re: Nashcon presentation - C.H.A.T.S. FTP added
Post by Giovanni on Jul 24^th, 2004, 8:57am

This is AWESOME!

No problems with viewing, downloads, etc. I have XP and cable connection.

John

Title: Re: Nashcon presentation - C.H.A.T.S. FTP added
Post by kissmyglass on Jul 24^th, 2004, 12:51pm

WoW! Thats about all I can say..WoW!

I too have Xp and a cable connection & no problems.

Very Very Impressive.

Title: Re: Nashcon presentation - C.H.A.T.S. FTP added
Post by totka on Jul 25^th, 2004, 9:56am

[smiley=thumb.gif] and thanks so much!

Title: Re: Nashcon presentation - C.H.A.T.S. FTP added
Post by bobkip on Jul 26^th, 2004, 4:17pm

Astounding, thanks to all.
Kip

Title: Re: Nashcon presentation - C.H.A.T.S. FTP added
Post by UN_SOLVED on Jul 26^th, 2004, 10:56pm

I too have Xp and a cable connection & no problems. It was great.

I've mentioned it to my local neurologist and he was very interested. I also mentioned to doctors at MHNI who are also interested.

Great work !

Unsolved

Title: Re: Nashcon - C.H.A.T.S. Presentation - Ed. 7/31
Post by Robert_C. on Aug 2^nd, 2004, 9:28am

Melissa's trick worked well.

Incredible amount of work!!!!

Is it online yet? How do we participate?

Robert

Title: Re: Nashcon - C.H.A.T.S. Presentation - Ed. 7/31
Post by saintslair on Aug 3^rd, 2004, 10:45pm

Great presentation, tip of the hat to all those involved.

When is the beta testing going to start?

Thanks,
Andy

Title: Re: C.H.A.T.S. Overview - Ed. 8/18
Post by EmpressJMB on Sep 18^th, 2004, 9:47am

I'm new to the site and was just reading through older material...came across the C.H.A.T.S info. Downloaded file and mspp (thanks). Went through program info. This is fabulous!! I am impressed!

Title: Re: C.H.A.T.S. Overview - Ed. 8/18
Post by slkygreen on Sep 22^nd, 2004, 7:07pm

[b][/b]
everything but the pictures came up for me and i think its a wonderful idea!!!

Title: Re: C.H.A.T.S. Overview - Ed. 8/18
Post by holistic_love on Oct 7^th, 2004, 1:14pm

Hello, DO you or a loved one suffer from clusterheadaches?I too suferred needlessly untill I was cured by my doctor,Dr. Erin Elster.Pleases visit her website at erinelster.com

Title: Re: C.H.A.T.S. Overview - Ed. 8/18
Post by thomas on Oct 7^th, 2004, 6:29pm

Just sent holistic love this pm ;;D ::)

on 10/07/04 at 18:15:09, holistic_love wrote:

This is not an open air market. Please refrain from advertising here in the future.

Title: Re: C.H.A.T.S. Overview - Ed. 8/18
Post by Tom K on Oct 7^th, 2004, 6:43pm

We need someone to cut off their heads and put them on spikes outside the door, like they did in Medevil times. That should make them go away. Or we could all just access their site at the same time and shut down their server.

T

Title: Re: C.H.A.T.S. Overview - Ed. 8/18
Post by Lebowski_Dude on Oct 7^th, 2004, 8:54pm

EXCELLENT!!!

About time! Any one who posts or visits this web-site: This CHATS is a MUST SEE.
My head off to the folks who are developing this and the web-art-work/etc. is great.

This is exactly why I went 'looking' for web-sites like 'ch.com' et al.:
To try and find a site that isnt only about supporting one another [which is crucial and very important as CH brings along with it a whole host of psychological issues, too numerous and complex to go into [at the moment, anyways]; but things like anxiety disorders, PTSD, depression, anger management issues, drug-addiction, etc, etc.

Some questions for the MAGMAN and folk working on this long overdue data-base [and what sounds like it may have a 'clinical trial' focus to it as well]:

Will CHATS deal with those folk [like myself] who have been diagnosed as/with 'Atypical Cluster Headache Syndrome' and/or have concurrent diagnoses of other 'hellacious-headache' syndromes: Like Migraine, Post-Head Trauma and /or brain/nerve 'damage'?

I do fit the diagnostic criteria for CH [but Atypically so] ..and CAN tell the difference between Migraine and CH [as they're nothing alike; BUT!? Is there a possible connection..an actual organic/physiological one?].

I'm a 'newbie' to CH.com..and posted just recently..to suss out the general form of the web-site and its members [and have been very impressed and pleased]..many of the replies I got did invole other members who reported having more than just a clear-cut diagnosis of CH ONLY.

People with migraine, several different forms of 'recognized' seizure disorder, and others [like myself] who have also had severe head-trauma.

Plus some very interesting feedback re: sleep disorders AND'parapsychological' phenomenae [which I imagine you WONT be exploring; but is a genuine issue re brain-states and the physiology/complexity of the brain/mind.
The Brain/Mind IS the 'Final Frontier', and perhaps the most FUNDAMENTAL Frontier [speaking as a student of philosophy AND psychology/neuropsychology].

I know: Tricky territory and you want [and need] to keep CHATS as scientifically viable as possible if you're going to generate interest/feedback/cooperation with Medical Doctors and Researchers, never mind getting FUNDING!

Back to my point [yes, I can be quite tangential]:

I'm still trying/going to get back to some of these people, as my 'questions' weren't scientifically succinct, in that:
[What I wanted to know]:

Did they have a diagnosis [or were they exhibiting classic Symptoms/ Syndrome] of CH 'ONLY'..before their Migraine history, or after they developed Migraine?
Same with those people who reported having Post-Head Trauma/Concussive type headache 'syndromes'...

I understand the complexity of possibly skewing your collected data by including people who have other [concurrent? Concommittant?] diagnoses that involve pathology of the brain and/or cranial nerves..or Vascular issues [and possibly 'glandular', as in the Hypothalamus hypothesis, disturbances] to be more accurate.

And from the PP presentation it looks like you are collecting data re: cycles, duration, intensity, abortive and interventive [and, really, prophylactic-type] medications, such as Beta blockers and Calcium-ion blockers, etc etc..and their efficacy.

when I first logged on/became a member, I took the CH.com data-test re: meds tried and results/impact of meds on my headaches.

I wasnt sure if I was looking at MY results only; or was I looking at the over-all results of everyone thats responded to that questionnaire?
I'm assuming it was an over-all result I was being shown [as the result didnt reflect the data I had inputed].

I was actually quite surprised how high some of the tallys were re: 'HAVEN'T TRIED' on some of the most basic [and oldest] CH-type medications.

The last 24 years I've literally tried everything out there, as I had some excellent Neurologists and/or GPs, who took me through actual 'trials' to try and find out what did/didnt work.

It's likely the fact that my CH is 'classed' as Atypical and I have a smorgasborg of other neurological diagnoses and history that some meds worked for a limited time, and some not at all.

Back to my point/question:
Will CHATS be ruling-out unclear or Atypical CH diagnoses, or multiply diagnosed persons?
What diagnostic criteria will you be using? [The ICDM definition of CH-syndrome?]
Maybe I missed it, or you folk are still working on it, but what's the criteria re: being part of the data?
Is it a definitive diagnosis of CH only?

Sorry this is so long; but I'm beyond intrigued and excited about what you're working on and would appreciate any answers/info you may/can supply.

Great work! Judging from the Message Board you wont have any shortage of sincere and intelligent support, not to mention data.
Thanks.
Really.

The Dude

Title: Re: C.H.A.T.S. Overview - Ed. 8/18
Post by aggiegran on Nov 1^st, 2004, 11:12pm

Magman for some reason I can't open the file, and I would love to see it I have 2 doctors that would be interested .....They listen and seem to understand what we go thru....any suggestions....I getting a headach and have got to run, but I'll be back....Thanks Ann

Title: Re: C.H.A.T.S. Overview - Ed. 8/18
Post by inyoureye on Nov 3^rd, 2004, 9:06am

WOW- Thank you so much, count me in. If there is any kind of list to inform ppl when it's ready, I would like to be on it please E-mail---fvrustyhooks@cox.net
Thanks aain

Title: Re: C.H.A.T.S. Overview - Ed. 8/18
Post by thomas on Nov 4^th, 2004, 3:00pm

Is it still on for November 10th?

Title: Re: C.H.A.T.S. Overview - Ed. 8/18
Post by Svenn on Nov 4^th, 2004, 3:23pm

working on it Thomas

Svenn

Title: Re: C.H.A.T.S. Overview - Ed. 8/18
Post by alleyoop on Nov 8^th, 2004, 6:11pm

Dan,

How about beta? Wasn't today the release date?

............alley [smiley=huh.gif]