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Title: OK..... Here is the skinny on symptoms Idieas? Post by athos on Jul 17th, 2004, 1:56am This has been going on since Most started at 5/31/04 Current problems. 1. Back spasms severe at first have tapered off 2. Sometimes lose control of my legs balance or coordination fall hit various parts of my body most head 3. Urination problem. Feel the need to go bladder is full but sometimes can’t go for several hours 4. Often numb lips?????---don't understand this one 5. Numbness in my fingers hands and arms 6. Neck always very painful for many years 7. Pain down my arms... more so the left one. 8. Weakness in my left arm 9. Fatigue 10. Speed of thinking… takes me a min to remember things 12. Mood swings. 13. Chronic Cluster Headaches for 18 years Ideas on any or all of these combined symptoms? |
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Title: Re: OK..... Here is the skinny on symptoms Idieas Post by Gator on Jul 17th, 2004, 2:17am List your meds including any OTC stuff taken regularly as well as any herbals you might use. Do you do any gardening - are you around insecticides, fertilizers and weed killers? How about other poisons? What kinds of plants do you have around the house? Let's do some research into interactions the meds and such. Floridian found several entries on different websites that documented bone and joint pain with depakote use, even though the manufacturer doesn't acknowledge it nor did my doc know anything about it. Also, someone (sorry - brain not working right now so I don't remember who) referenced MS-like symptoms from iron toxicity in another thread. If your sysmptoms don't tell a doc anything, these other things could be starting points. Gator |
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Title: Re: OK..... Here is the skinny on symptoms Idieas Post by athos on Jul 17th, 2004, 2:35am med - keppra Trileptal Lexapro Valium Oxycontin No herbals Mini bambo and a money tree, No pets I have gone through every other med that has been listed on this site, but maybe not in combinations. No floride in the water, I am not sure the iron content... I am going to a naturalpath to check some of those things next week. |
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Title: Re: OK..... Here is the skinny on symptoms Idieas Post by Jimmy_B on Jul 17th, 2004, 7:20am Do you get or have a light colored rash or difference in color around the bridge of the nose &/or eyes? I'm asking cause it sounds like it may be lupus, or possibly fibromyalgia along with a nerve root problem along the Cervical spine. (Left Arm). Did you get Blood Work...specifically Titer Count? Also an MRI of the Cervical Neck & entire spine (Thoracic & Lumbar). The urination problem could be from a couple of meds your on...Numb lips---a definite side effect of Cervical Nerve root compression as well as the Left arm pain & numbness. Good Luck Athos...I hope you feel better. Jimmy |
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Title: Re: OK..... Here is the skinny on symptoms Idieas Post by sailpappy on Jul 17th, 2004, 9:16am ;;DGood Day ;;D From the symptoms you listed and the meds your taking(Not knowing the length of time you have been on each) I would tell you that Oxycontin mask a whole bunch of stuff, I have been off of all meds for 5 weeks yesterday and have been having all of the symptoms you mentioned except for the Back Spasm, My doctor discovered that I have an underlying High blood pressure problem which contributes to many of the symptoms. Valium,oxycontin and even the keppra help your blood pressure read low, but in my case it was hidding the high blood pressure problem, Oxycontin is also a contributing factor in problems in your digestional tract from long term use. http://www.purduepharma.com/PressRoom/PI/OxyContin_PPI.pdf Pappy http://www.gifs.net/animate/sungulls.gif http://www.gifs.net/animate/sailboat.gif |
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Title: Re: OK..... Here is the skinny on symptoms Idieas Post by Donna H. on Jul 17th, 2004, 9:28am My guess was also going to be a cervical spine issue with the numbness, pain and weakness. Check out ....... http://www.myelectronicmd.com/get_reference.php?Id=504&condition=PROSTATE%2C%20ENLARGED&symname=P&typ=3 to see if these are your symptoms for the urinary problem. What are your doses of the Valium and OxyContin? Had an increase lately? Could be a drug interaction. Your doc is the best/only one to really talk to. We are just lay people guessing. |
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Title: Re: OK..... Here is the skinny on symptoms Idieas Post by Donna H. on Jul 17th, 2004, 9:31am HEY PAPPY....... So good to see you posting!!! Will write you later tonight....watch your e-mail. |
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Title: Re: OK..... Here is the skinny on symptoms Idieas Post by athos on Jul 17th, 2004, 4:12pm I have a fusion c-spine c5-c7 and I have a herniation at c4 |
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Title: Re: OK..... Here is the skinny on symptoms I Post by Not4Hire on Jul 17th, 2004, 4:53pm on 07/17/04 at 07:20:31, Jimmy_B wrote:
...my same thought (fibromyalgia) JB... not that I know anything/much about it.. but my sister has lupus and some of the same symptoms. KEN!... I only know that 3 of the drugs you mention are "downers" : Lexapro, Valium, and oxycontin... the others I will "look up". But the c o c k tail you describe is pretty strong. I very well remember that your ....general level of lucidity was very high about 6-8 months ago and now....well, ya sound kinda out-of-it.... sorry, but that's MY take.... and I HAVE been following your story pretty carefully. Look bud.... we don't want ya on the "Short Bus"... get back to your doctor, wear a helmet, don't try ANY of my remedies at HOME, and I hope yer feeling better soon.... DISCLAIMER: we are NOT doctors--our support is given because we CARE..... good luck pard....n4 |
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Title: Re: OK..... Here is the skinny on symptoms Idieas Post by athos on Jul 17th, 2004, 5:32pm My lucidity is not too bad... Cathi talks to me on a regular basis and lets me know if she thinks that I am out of it or not..... Ususally based on the pain my conventraion is good or bad.... Right now I am wheelchair bound until they figure out why my legs keep buckling.... I have enough brusies and cracked ribs to give in to the wheelchair idea. Once fell on a chair knocked myself out but split my ear open.. just Connor and Kira ages 6-9 were there. Freaked them out pretty good as I lay in a growing pool of blood.... Nothing lasting but a scar on my ear. But my poor kids scared them to death. Connor thought I was dead. Lexapro is an anti-depressant Valium they have me on to get me to sleep at night... Otherwise i don't go to sleep until 3 am Oxycontin is a downer yes... But the cocktail seems to help the CH down to a much better level, but might be causeing other problems. Question would cervical problems cause stability problems? |
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Title: Re: OK..... Here is the skinny on symptoms Idieas Post by Jimmy_B on Jul 18th, 2004, 7:40am on 07/17/04 at 17:32:45, athos wrote:
Kinda ...Neck-related dizziness Whiplash injuries or neck manipulations performed by different health professionals can make you dizzy. This kind of dizziness is not usually severe. You may get headaches and neck pain when you hold your head very still because you find that moving it around makes you dizzier. This causes tension in your neck muscles, which begin to ache, and the pain may then go on up into your head. Headaches and neck pain can make people wrongly think that their dizziness is being caused by a neck problem. Check out this site... www.rnid.org.uk/html/leaflets/dizziness_and_balance_problems.htm I really hope you find the cause of these issues. I'm sure you probably already discussed this with a neurologist, but have you ever seen a Rheumatologist? It may be worth a shot. Jimmy |
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Title: Re: OK..... Here is the skinny on symptoms Idieas Post by Donna H. on Jul 18th, 2004, 9:02am Maybe you ought to talk to your doc again about Valium being used for sleep. There are better drugs than that to make one sleep. It is not known as a sleeping aid. I know they relax you and that can make you drowzy, but so will Melatonin and other non-addictive drugs. As your might guess, someone very close to me has a serious drug problem which developed while trying to wait out back pain. It really scares me and I wouldn't want it to happen to you. His OxyContin level had to keep being increased until he was taking 160-some per month of a high dosage, plus Vicodin.....when he tried to quit or taper down, it was too late. He has now been going to a Methadone clinic for 2 years and is finally tapering down 2mg. per month. The doc had him come in once per month for a new prescription (doc never saw an X-ray) at $90.00 and sent him on his way. And.....he's one of three in this family who is addicted... innocently. It's awful. Please be careful. I'm honestly not trying to imply that you have this habit. I just want to share with the world what can happen if we're not careful and not informed. |
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Title: Re: OK..... Here is the skinny on symptoms Idieas Post by Rock_Lobster on Jul 18th, 2004, 12:06pm Lyme Disease? A friend of mine recently had this... caused by a tick bite. I thought of this as he had unexplained bladder problem, in addition to a shitload of other symptoms. ie face muscle problems fatigue disturbed sleep pain/numbness in extremities http://www.xpressnet.com/bhealthy/symptoms.html |
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Title: Re: OK..... Here is the skinny on symptoms Idieas Post by mynm156 on Jul 18th, 2004, 4:20pm Prior to 5/31/04 Did you have any sort of infection that required you take antibiotics? MYNM156 |
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Title: Re: OK..... Here is the skinny on symptoms Idieas Post by athos on Jul 18th, 2004, 5:40pm no infections |
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Title: Re: OK..... Here is the skinny on symptoms I Post by Kris_in_SJ on Jul 18th, 2004, 8:44pm Hi, I'm a little bit new to the board, so don't know you or your history, but I'm also a (retired and no longer practicing) R.N. Besides the fact that you're on a really strong cocktail (the Oxycontin is especially scary because of it's addictive qualities), your symptoms are suggestive of a couple things that need to checked out and, hopefully, ruled out. Those would be MS and ALS (Lou Gehrig's). I'm not trying to scare you, but they need to be ruled out! I hope you're doctors are working on doing that. Hugs, Kris |
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Title: Re: OK..... Here is the skinny on symptoms Idieas Post by athos on Jul 18th, 2004, 9:28pm It is kind of ironic that the initials of Microsoft and the initials of Multiple Sclerosis... are the same.... |
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Title: Re: OK..... Here is the skinny on symptoms I Post by Prense on Jul 19th, 2004, 4:16pm One thing to consider with MS is that many of the symptoms tend to come and go. "Normally"; blindness, numbness, fatigue and pain will come on for a few weeks and then disappear for a while. Also, the recurring symptoms may not recur in the same part of the body. It's a horrible condition and I hope you don't have it. Chris |
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Title: Assuming it is MS ... (1) Post by floridian on Jul 19th, 2004, 4:34pm Going on the assumption you may have MS, and that further tests will be done to determine what it actually is --- you may want to think about some of the dietary changes that have been shown to help with MS. If it is MS, you have a headstart. If its something else, you can let your diet go back to however it is now. 1) Bromelain and trypsin - bromelain is a protease from pineapple. Trypsin is a protease from humans & animals. Phlogenzym, which is a mix of these enzymes, has been shown to help with several autoimmune diseases, including MS. Eating a large amount of pineapple, kiwi, or fresh figs can have the same effect. Quote:
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Title: Assuming it is MS ... (2) Post by floridian on Jul 19th, 2004, 4:41pm Some evidence that Vitamin D helps prevent MS - not sure if it reduces the course of the disease once established, but there's a fair chance it might. Vit D is fat soluble and stored in the liver. Taking too much for too long can cause toxicity. Quote:
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Title: Assuming it is MS ... (3) Post by floridian on Jul 19th, 2004, 4:48pm The role of fats in MS is not a settled question, but there is some evidence that changing the diet to include less fat, and fats of the right type may have an effect. Quote:
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Title: Assuming it is MS ... (4) Post by floridian on Jul 19th, 2004, 4:56pm Antioxidants. Quote:
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Title: Re: OK..... Here is the skinny on symptoms Idieas Post by athos on Jul 19th, 2004, 10:41pm Neuro surgeon and MRI of the brain will be this week and next, and then see if they are going to fuse more of my neck. Hope that will help. |
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Title: Re: OK..... Here is the skinny on symptoms Idieas Post by DJ on Jul 19th, 2004, 10:57pm Athos, Have you had an MRA of the arteries in your head? The MRA is done with the same machine but it's different than the MRI. The MRA shows the condition of the carotid arteries in the neck/head (which the MRI won't show) to rule out any vascular problems. Just a thought.... -DJ |
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Title: Re: OK..... Here is the skinny on symptoms Idieas Post by athos on Jul 19th, 2004, 10:59pm Floridian...... Wow that is a lot to digest... a lot to think about and to study.. you are going to have my up for awhile diggin into this info... thanks!!!!!! |
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Title: Re: OK..... Here is the skinny on symptoms Idieas Post by Samantha_Smith on Jul 20th, 2004, 9:45am My heart goes out to you Athos. I can't imagine how scared you must be. You're in my thoughts and prayers. Samantha |
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Title: Re: OK..... Here is the skinny on symptoms Idieas Post by Cathi04 on Jul 20th, 2004, 10:29am LOL... Ken...soooooooooooooo, what did ya do while I was gone?? LOL!! Seriously, this is not the time to explore ironies...it is time... past time, to become rabid about this situation, Ken....get the fusion in the works, but GET A DR who is really ready to find out what this other stuff is..and treat it! You have got some great "jumping off points" here...let's get this fixed, once and for all... Cathi |
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